Main Article on Uterine Fibroids Question: Did you have your uterine fibroids removed? Describe your experience and prognosis. Submit Your Comment Comment from: Anonymous , 35-44 Female (Patient) Published: October 05 I was diagnosed with enlarged uterus and multiple uterine fibroids of about 10 cm, after ultrasound. I’m 39 and had my only child 15 years ago. I don’t want any more kids and scheduled for my gynecologist appointment soon. I’m experiencing heavier periods (always had terrible periods since it began at 11) where I can’t function for at least a day. But no long periods, however, they seemed to be seeping over 5 days now, and I am passing clots. Hoping they allow me to have a hysterectomy because I don’t want to deal with this anymore. Comment from: Abby, 45-54 Female (Patient) Published: April 14 I had my uterine fibroids removed robotically in January. I saw my period February and March. Now no period in April. Wonder if I could be pregnant. Comment from: 18347393hdbfowh, 25-34 Female (Patient) Published: February 26 I had one small fibroid at the top of my uterus that caused me issues. I suddenly had a period that would not stop. At the height of the 2 day crisis, I continuously bled about one whole period every 30 minutes or so. No one understood what was happening to me, and I had to self-advocate in the emergency room for them to administer the ultrasound that found the fibroid. After a D and C, three months of birth control and rebuilding my blood supply, and a myomectomy to remove the fibroid, my body returned to normal. Comment from: Jacks87, 25-34 Female (Patient) Published: February 04 I kept having miscarriages and no one could figure why. Finally a doctor found a 4 cm fibroid in my uterus. I did have pain during intercourse and heavy period bleeding but had no idea why till now. Just had surgery to have it removed. Hopefully after recovery the intercourse pain and heavy period bleeding will be gone. I will try to become pregnant and hopefully it will be a full term pregnancy this time. Comment from: Rock, 45-54 Female (Patient) Published: January 29 About 16 years ago, I had a myomectomy to remove my uterine fibroids and to keep my uterus. My doctor wanted me to be able to have a baby. My fibroids were huge. I had to see so many doctors, before I found mine. The surgery was successful. All the other doctors just wanted to do a hysterectomy and didn’t care that I didn’t have any children. I was put on Lupron, a birth control shot to shrink the tumors first and they had me go to a blood bank, to bank my blood in case I lost too much blood. Comment from: Marine , 25-34 Female (Patient) Published: September 24 I got my subserosal uterine fibroid removed in November 2016 through myomectomy and now I have another intramural fibroid. I just want to know if it is easy to conceive with intramural fibroid or if I have to remove this one also. I wonder if anyone gets pregnant with intramural fibroid. Comment from: Jackie, 35-44 Female (Patient) Published: August 19 I am a 40-year-old with an 11-year-old child. I am appalled by the lack of options for those of us who suffer with uterine fibroids. My, albeit kind, gynecologist has all but given up on me and is really pushing a hysterectomy. I know I'd now be deemed a 'geriatric' pregnancy at my age but I'd really like the option of having another child if I so choose. On the other hand, the bleeding and clots have become so bad over the years that it has extremely, adversely affected my quality of life. Comment from: Upsetblonde, 45-54 Female (Patient) Published: August 19 I was told at my birth control appointment my pills were on back order and I would have to take a substitute. I started bleeding, and they changed my pills 4 times. I asked why I couldn't get back on my original pill and they said I was too old; I'm 47. Six months wasted with constant bleeding. I was finally diagnosed with uterine fibroids and enlarged uterus. I'm stilling trying to schedule hysterectomy. I have gone to this doctor’s office since I was a kid. Now I'm anemic and still bleeding 212 days and going. Not sure why they lied. Comment from: Tam, 45-54 Female (Patient) Published: May 10 I have 4 uterine fibroids. I was told they would shrink in menopause. Instead they went through a growth spurt and got larger. Started causing more pain, pressure, and bladder issues. I am having hysterectomy this week. I should have never waited, now they will be way harder of a surgery. My uterus is 5-months-pregnant size. Comment from: ChrissyBozz, 45-54 Female (Patient) Published: January 18 Two years ago I had a hysteroscopy to remove 3 uterine fibroids. Apparently one was imbedded. Now I need to have this one ground down again because my periods are lasting 14 plus days and I’m pretty sure I’m anemic. Doctor wants to keep doing these surgeries since I’m 45 and going to be hitting menopause soon (hopefully). I have severe fatigue, dizziness, heavy periods with large clots, and abdominal pain. Pretty much awful. QUESTION What are uterine fibroids? See Answer Comment from: Mia, 45-54 Female (Patient) Published: December 09 I had an operation on 1st August 2019 to remove a 6 inch growth and they also give me a radical hysterectomy. After the operation they actually told me it was a uterine fibroid which I thought you would have to wait for the results to know. On 4th August they sent me home, on the 12th stitches out, and 13th August the nurse called with the result that it was fibroid, which the surgeon had already told me after the operation. She also said I did not need any further treatment or need to have a follow up appointment, which I found strange. Comment from: Bethrenee, 35-44 Female (Patient) Published: December 03 My doctor said (after ultrasound) that my uterine fibroid was too large to try an IUD (intrauterine device) placement, so we went for an ablation. She was going to shave the fibroid down also. Ablation could not be done, and fibroid kept bleeding. Waste for periods that were heavy but still manageable. Three weeks after the surgery, the fibroids reared up and took revenge - my period was/is horrific - clots the size of my palm, and gushing blood. Scheduling hysterectomy this week. The fibroid is softball sized, both in/out of the uterus. Comment from: Kkm , 25-34 Female (Patient) Published: November 19 I had a myomectomy for a melon sized uterine fibroid inside my womb 4 weeks ago. I have if anything gained a little weight and am still very swollen in my lower abdomen with a large overhang. I also frequently ache over my whole body or sometimes more my back and shoulders to the point it feels like a flu. Wonder if anyone else shares these symptoms. Comment from: Ms. M., 35-44 Female (Patient) Published: November 18 I had 4 large uterine fibroids and was assured that I was a great candidate for Acessa. I had the procedure in June. I still have heavy and prolonged bleeding. I am very disappointed in the procedure. I know there is no guarantee but I’d appreciate them sharing the truth about the cases that weren’t successful. It looks like the only thing left is a hysterectomy. Comment from: R Smith, 35-44 Female (Patient) Published: November 18 January 2019 I was diagnosed with 3 uterine fibroids. Two were pea-sized and 1 the size of a walnut. My menstrual bleeding was extremely heavy on days 2 and 3 and often lasted 8 days or more. I had to do something. I opted for hysteroscopic myomectomy. No outside incisions, my doctor went in vaginally to only go after the walnut sized tumor. Procedure went well in that I didn’t experience any pain after, with no spotting. With 75 percent of tumor removed, nothing changed. Still bleeding heavily. Comment from: Scared, 45-54 Female (Patient) Published: November 15 I am 48 years old I went to see a gynecologist. This was my first visit and when he did a Pap he decided to cut off the uterine fibroid right in the office without consulting me first. After he did that and I went home, the next day I was bleeding twice as bad as I was before he did that. I had to shower 3 times because I bled through every hour and I cramped so bad that I was up crying and rocking because the cramps were so bad. I wonder if that was ok. Comment from: ChrissyBozz, 35-44 Female (Patient) Published: November 07 I had two uterine fibroids removed and one ground down because it was embedded in my uterine wall. This was a year and a half ago. Now my periods aren’t as apocalyptic as before but they are pretty horrid, heavy is an understatement and they last 10 days. Cramping before and after period is over. Going for an MRI to see if it’s the leftover fibroid that’s causing issues, who knows where I go from there. Comment from: Bell, 35-44 Female (Patient) Published: September 13 I am 35 and got diagnosed with uterine fibroids in July. My doctor didn't give me much information just basically said it’s no big deal but I'm sending you for another ultrasound just to check on the growth. I went for my 2nd ultrasound in August and was supposed to get my results on September 6th. Well, it got rescheduled for the 21st and I just called to get rescheduled yet again. I don't know if I should be worried or not. When I first got diagnosed in July my doctor didn't specify on how big the fibroids are. Comment from: spicyfelix, 35-44 Female (Patient) Published: September 04 I am 41. I was diagnosed with multiple large uterine fibroids and adenomyosis; sizes 11” and 9”, etc. I was horrified! The only symptoms was bloating and heavy periods. I was lying on my back one morning and felt a hard mass in my tummy. This led to an ultrasound and an MRI, and myomectomy 4 months later. I found a stellar doctor, had an 8 inches incision along my bikini line, and I was shockingly up and walking the next day. I had a quick recovery! SLIDESHOW Pelvic Pain: What's Causing Your Pelvic Pain? See Slideshow Comment from: Bubbles, 25-34 Male (Patient) Published: September 04 I am 27 years old. I had a myomectomy this year in March and one uterine fibroid was removed. Three months ago I started experiencing lower back pain, pelvic pain and pain during sex. I thought surgery was the solution but it seems like the pain is getting worse. I am scheduled to see my gynecologist on the 13th of September as it will be 6 months post operation. I am really nervous of the outcome because the plan was to try and conceive after 6 months but I fear I might have new fibroids growing again. Comment from: Melzie, 45-54 Female (Patient) Published: September 04 I had uterine fibroids and one of them was 10 cm x 10 cm x 8 cm. I had horrible periods and I was anemic from blood loss. My doctor advised that an open hysterectomy was the only way to get rid of the pain and blood loss. I had a hysterectomy a little over 2 weeks ago and so far so good. I was scared to have it done so put it off a long time. It wasn’t that bad. The pain I would say is about what the cramping is, but you get pain medicines to help with that. I am excited to see how much better I feel once healed. Comment from: Tiny, 45-54 Female (Patient) Published: August 27 I was diagnosed with uterine fibroids over 10 years ago. They did not become a problem until 2015 (heavy bleeding and pain). I was given the Mirena IUD (intrauterine device) which helped stop the heavy bleeding and pain. But recently, the fibroids continue to grow and enlarge my uterus, which causes pressure, pain, and abnormal bleeding. April 2019 I had the Acessa fibroid procedure (non-invasive outpatient surgery) that is supposed to get rid of or shrink the fibroids. Three months later my doctor says I need a hysterectomy! Comment from: Suesue, 45-54 Female (Patient) Published: August 21 I had a uterine fibroid embolization (UFE) done on August 2 due to fibroids. It is two weeks now and I'm having heavy bleeding with blood clots. I wonder if that is normal with urinary fibroid embolization. Comment from: Nora, 45-54 Female (Patient) Published: August 16 I was diagnosed in 2013 with a uterine fibroid. It grew at each yearly checkup but other than some mild cramping I decided not to do anything about it. By early 2018 the pain steadily increased with heavy periods. In March 2018 I had an MRI which showed one large 10 cm fibroid with a cluster of several smaller ones. July 2018 I had a UFE procedure (uterine fibroid embolization - noninvasive alternative to surgery). It was painful but worth it. Within 2 months the fibroid was shrinking. Year later I have no symptoms. Comment from: Audrey B, 35-44 Female (Patient) Published: August 15 I am about to have a hysterectomy due to my uterine fibroids. I have PCOS (polycystic ovary syndrome) and have had heavy bleeding with my periods my entire life. Two years ago, the doctors removed my cysts from my ovaries and performed an ablation. Fast forward, I have cysts again and 6 cm plus fibroid that has sent me to the hospital 6 times for pelvic pain that is off the charts. I am 40 and not worried about getting pregnant, so I am getting a total hysterectomy. At this point, my reproductive system hasn’t done me any favors, so it’s out. Comment from: Vmbb, 45-54 Female (Patient) Published: July 16 I am 49 and I had fibroids that had gone septic, in 2016. I had an operation and it is back. Wonder what would be the long-term effects if it is not treated. Comment from: Nanino, 35-44 Female (Patient) Published: July 15 I'm 44 years old, I had my uterine fibroids removed. There were so many and big, an egg size and smaller. I haven't had my periods since. This is the 4th month now without bleeding. This raises concerns. However, I feel movements by the womb as if I will bleed, but nope. I think I should consult with the gynecologist. Comment from: skk, 35-44 Female (Patient) Published: July 12 I had a myomectomy for a 5 cm fibroid last year due to very heavy periods. It improved temporarily and then the rest of the fibroid delivered itself into the uterus. My periods got so bad I got severe anemia and a blood transfusion. The second myomectomy was unsuccessful. Fibroid is still growing and is now 7 cm. I got Mirena but have constant period/discharge every day for months. The doctor said Mirena is now trapped behind the fibroid and she cannot remove it. I have decided on hysterectomy (mother of 3). Comment from: K8, 45-54 Female (Patient) Published: June 21 Reading through these comments what strikes me is that so many male doctors don’t really seem to take into account the fact that the presenting patient is female! I’ve had uterine fibroids for a few years and the doctor said they should stop growing or shrink after menopause (I’m 50). But recently I had a CT scan because I got breast cancer and it showed the fibroids had got bigger. I get abdominal pain and digestive problems and wonder if the fibroids are the cause of this. Comment from: Abby, 35-44 Female (Caregiver) Published: April 23 I had been having heavy long periods for s year. I saw a gynecologist and he found I had a fibroid. He did my myomectomy after a week. I got my two cycles thereafter but after that I missed 3 months only to get my periods now, and I'm bleeding heavy for 3 weeks. I am not sure if this is normal, I got no cramps or pain. I wonder if there is anyone with the same issue. Comment from: Carole, 45-54 Female (Patient) Published: April 09 I had uterine artery embolization (UAE) 6 months ago because of my extremely heavy periods that was so bad it was causing me to have iron infusions and they wanted to do a blood transfusion. My UAE was very successful. I had some uterine fibroids that shrunk and came out. My only issue is now that I am starting to have my cycle which is going a little longer than I expected it to but the flow is very light. I'm not sure what to expect but so far everything is okay. Comment from: Mikael, 35-44 Female (Patient) Published: November 20 I was diagnosed with several fibroids and an enlarged uterus. I live in the United States and have seen 6 doctors in 7 months that refuse to discuss my fibroids and their removal. My only option is birth control. I had severe reaction to the Mirena IUD (intrauterine device) and had to force the doctors to take it out. I was told this was my only option through my healthcare provider and they would be unable to stop my heavy bleeding from my menstrual cycle. I am still trying to get a hysterectomy. Comment from: TC, 35-44 Female (Patient) Published: August 07 I had two uterine fibroids removed a year ago. One was the size of an orange, the other a plum. I didn't have any symptoms until about a 6 months before surgery. No heavy bleeding, just painful sex. I was told by the sonogram tech that she couldn't believe no one had ever told me they were there. A few months after surgery, I still felt pain during sex. The doctor told me there were two more nickel sized ones. Imagine my frustration as I wondered why they didn't remove them during surgery. Comment from: Peace, 25-34 Female (Patient) Published: July 15 Yes, I had my uterine fibroids removed. My experience was not much because I was not sick even with the pain, but after thirteen weeks of surgery I am still bleeding, I don’t know why. Comment from: Renata, 45-54 Female (Patient) Published: May 12 I had a uterine embolization to remove my uterine fibroids, but my period is still very heavy with clots. Comment from: Giantbelly, 35-44 Female (Patient) Published: April 11 When I was pregnant I was found to have two large uterine fibroids. One of them measured 23 cm in length. They are on the top of my uterus and my baby was at the bottom. They disintegrated during pregnancy and the pain was severe. I'm currently experiencing abdominal pains and I haven't had a period since I had my baby 14 months ago. I'm scheduled for an ultrasound to see if it's increasing or decreasing. I'm glad to know I'm not alone in this either, although I wish we didn't have to deal with fibroids. Comment from: Kemmy, 25-34 Female (Patient) Published: January 14 I had a uterine fibroid surgery 2 months ago and up till now I have not stopped spotting. And I have had a menstruation and I don’t feel any pain. Comment from: Marylyn, 35-44 Female (Patient) Published: October 09 I had a major surgery for uterine fibroids 3 weeks ago. My menstruation just came with heavy clots of blood, wonder if this is normal. Comment from: Lorrane, 35-44 Female (Patient) Published: September 17 I did a laparotomy myomectomy to remove a 6 cm uterine fibroid and was in the hospital for 2 days. Recovery was hard the first 2 weeks but gets better. I was off work for 8 weeks due to a C-section cut. It's been 3 months and some areas of my skin are still numb. The area itches due to healing, and too much physical work makes the area uncomfortable, but otherwise I am ok. I lost weight and now my period cycle has started, so now I am watching to see how it's going to be, because earlier bleeding was heavy and now, I wait to see how it will be. Comment from: Janet , 25-34 Female (Patient) Published: September 13 No. I haven't got my uterine fibroid removed, but am finding it difficult to conceive. Comment from: Kikelomo, 35-44 Female (Patient) Published: September 03 My uterine fibroid has been removed but since then I have been experiencing heavy bleeding and back pains. Comment from: Fely, 45-54 Female (Patient) Published: August 12 I have pain from my waistline or left lower side 5 months after my uterine fibroid removal. I wonder if it is the result of my ovary removal too. Comment from: Steph, 35-44 Female (Patient) Published: July 24 I am 41 and have at least 1 fibroid and also an IUD (the copper intrauterine device). I have just recently been having extremely heavy periods, like soaking a super plus tampon plus 2 pads every 5 to 10 minutes with clots the size of golf balls. I went to the emergency room on Monday night because it had been going on for days and it was freaking me out. All my blood tests came back normal. Super frustrating. Comment from: Pulane, 45-54 Female (Patient) Published: April 10 I had an operation in February to remove uterine fibroids. Now it is April and I don’t get my periods. Comment from: RithaRitha, 35-44 Female (Patient) Published: October 14 I am 40 years old and I have fibroids, 11 fibroids. No kids yet, trying. I don't have any pain but I bleed extremely heavy. After suffering for about 5 years, I went and had Acessa procedure done in March, 2016, now it is October 2016. I am still bleeding exactly the same, heavy, and my fibroids didn't shrink. I am very stressed, if I knew I should have not done it. I am not saying Acessa procedure is bad, but it didn't help me a bit. Thanks all. Comment from: Fitflop, 55-64 Female (Patient) Published: March 24 I was diagnosed with a 20 cm uterine fibroid when I was 48. Due to its position, I had had no heavy periods, etc., just got very bloated (but put it down to age). Eventually, having had a stomach bug, I realized there was a large solid mass in my abdomen and saw the doctor. I went for ultrasound and TV scans (which showed how large the fibroid was) and had a long discussion with the gynecologist as to the best treatment. The suggestion was made that I could wait for the menopause, but I realized that could be up to 8 years away and no guarantee the fibroid would shrink. I asked about a myomectomy and we agreed that I would take a drug to shrink the fibroid and a decision would be made when I returned in 3 months. In that time I chatted to loads of friends, many of whom had had fibroids. In several cases, they'd tried a myomectomy only to have more fibroids grow (and eventual hysterectomies). After 3 months, my fibroid had only shrunk to 16 cm and it was agreed that a hysterectomy was the best option. I had the operation a month later and after postoperative recovery time, have never looked back. I can breathe properly again, exercise (couldn't bend before as the lump pressed on my diaphragm) and have heaps of energy. Please don't think that hysterectomy is the end; as far as I'm concerned it was a new beginning. Whatever your choice, I wish you well. Comment from: Kathleen O, 45-54 Female (Patient) Published: November 16 I am 52 years old and was told I have a fibroid that is 11cm. It was found after I went to emergency because I was bleeding really heavily with blood clots the size of golf balls!! The doc prescribed a pill that lessened the blood flow to spotting. I have an MRI scheduled for Dec.2nd to see if there is anything else there that I should be worried about like cysts etc. I was so scared before I found out what was wrong with me. Bloating ‘constant back pain and heavy long lasting periods with spotting in between. It's a weight off my shoulders and even though I have to wait so long I am doing something about it. I want to have a hysterectomy and hope to leave my ovaries in so that my hormones are not affected too much. I hope The MRI will clear things up and help me with my decision. Apparently you have to have a D&C anyways even if you have the noninvasive embolization and then it may not work. Comment from: Desperate & Hoping, 35-44 Female (Patient) Published: November 14 I am a 40 year old female from South Africa. I have been diagnosed 2 days ago with fibroids and I also have upper left abdominal pain. I am in my second marriage and my husband has no kids. We have been trying to fall pregnant for the last 9 months and nothing. I also have not had a period for 3 months. Most of my periods have been extremely painful with blood clots and heavy bleeding. I am seeing my doctor again on Monday, for her to diagnose further and advise what steps we will take to overcome all these barriers. I read that drinking bicarbonate of soda with Apple Cider Vinegar also reduces fibroids. I'm willing to try anything right now. Comment from: madame B, 35-44 Female (Caregiver) Published: November 08 I have been examined over 12 weeks for bladder infection, kidney stones, gallbladder problems, they now say it's the colon and the back, however, I have had a period for 11 days now, it's heavy and uncomfortable, I still have the pain in the side and my lower back is very painful, the doctors and hospital have never listened when I told them I missed 4 periods and now 2 people have said it could be fibroids. All the money spent the pain incurred and it could be something the doctor hasn't looked into. Comment from: Frances , 55-64 Female (Patient) Published: January 02 No, I haven’t had my uterine fibroids removed. I'm 56, I have been spotting for 4 days, and I have not had my period for 5 years. Comment from: HeathG, 35-44 Female (Patient) Published: November 12 I was 5 months pregnant, couldn't see ovaries due to all the fibroids, fibroids were obstructing the bladder and a kidney. I see the specialist end of this month, I'm on an urgent list due to the possibility of kidney failure. Good times! I'm currently living in Ireland so everything's slow to happen here. I waited 3 months for the ultrasound. Hopefully they can do something that works, and have it happen quickly. Comment from: Kris, 45-54 Female (Patient) Published: September 23 I have a 20 cm uterine fibroid. I am 49. I feel like it is impacting on my bowel and bladder. With the extremely heavy and irregular bleeding, I am constantly on supplements to replenish my iron levels and to replenish my energy levels. I do not have private health care and the waiting time for public is up to 90 days. My four children think I’m pregnant again. I am stressed and am at wits’ end. Comment from: AMY , 35-44 Female (Patient) Published: August 01 I had low abdominal pain in May, and went to the emergency room (ER). I was told I have a small uterine fibroid, and to go to my regular doctor. My regular doctor said I'm having too many symptoms and too much pain, so it was probably endometriosis. I went to a gynecologist, she says I'm fat and it's irritable bowel syndrome. So now I'm waiting to go to my regular doctor again. I went back to the ER last month to try for an MRI or something. They said no. I just want to get an actual exam. The pressure and pain are immense. I have random vaginal bleeding and slight fever. Comment from: Kmc, 35-44 Female (Patient) Published: January 04 I have been having bad cramping and lower back pain with heavy long period and spotting for a few weeks now. I am 43 and this just started. I have never been diagnosed with uterine fibroids before and wasn’t sure if this was something you can develop all of a sudden if you never had them before, or maybe wasn’t sure if I was starting menopause. I have had 4 children. Comment from: Leesa craft, 45-54 Female (Patient) Published: October 01 I had shoulder surgery 5 months ago. My periods stopped for four months, and now I have been bleeding for nearly five weeks. I am 45, pelvic internal and external exam were normal, and Pap smear normal. I wonder if it is because of uterine fibroids. Comment from: Susie, 25-34 Female (Patient) Published: November 04 I am 27 years old and I was diagnosed with fibroids. It’s been 5-6 months since I had a period and I went in to see my Gynecologist and he did a pelvic exam. He said he saw and felt a fibroid about 4cm big. He sent me in for an ultrasound and blood work and called me the next day to tell me the results. He said that it was actually much larger than he originally said. He said it`s 10 cm and my uterus is 9cm. I have always been irregular my whole life going as far as 3-4 months with no period and then having it but 5-6 months was starting to alarm me. My stomach felt pregnant and heavy and with no period. I was for sure thinking something's up. I have a 5 year old so the feeling you get in your lower abdomen was feeling rather similar. Well I am pregnant, but with this darn fibroid! My abdomen feels bloated and tight and heavy. I have these pains I can’t explain and I am rather confused because I have no period and from what I read fibroids usually cause heavy bleeding. I’m not sure what to do. Comment from: Tired ot this, 25-34 Female (Caregiver) Published: March 21 I am 33 years old. I had my first surgery in 2007, where the doctor removed a grapefruit-sized fibroid along with 7 smaller ones. In 2013 I had them removed again. This time I had 17 fibroids. I do not have any kids, but I am married. My doctor refuses to give me a hysterectomy. I have been having these problems all my adult life. I just want it to be over with. Comment from: Marie1534, 19-24 Female (Patient) Published: September 18 I am 24 years old and have I fibroid the size of a tennis ball. I am going to get a myomectomy because it is causing me pain already and my periods are so heavy. Also I want to have children in the next year or two. I will have to have C-sections with my children due to the surgery which I will take that over the risk of interrupting a pregnancy. Comment from: ribbon in the sky, 45-54 Female (Patient) Published: May 28 I had the surgery to remove my fibroids. They were large in growth, my doctor said they were all together the size of a five month pregnancy. Before the surgery I experienced lots of bleeding, pain and longer periods. I had the surgery to remove my fibroids, but there were so many they could only remove the larger ones. The pain after the surgery was the worst pain I have ever experienced besides childbirth. Now four years later, I still have some small fibroids I have some pain from them. I have one in my bowel area so I have constipation. Hopefully I will go thru menopause soon and they will stop growing. Comment from: odornell, 25-34 Female (Caregiver) Published: May 09 I had my first surgery at the age of 18 and a second one at the age of 27. I still feel pain from my fibroids Three years after my last surgery, my doctor wants to do another to make sure that I am able to give birth someday. Comment from: 45-54 Female (Patient) Published: March 28 I didn't have much pain, but did have lots of bleeding I had Mirena inserted to stop the bleeding. I didn’t have periods, only spotting for about six months. I noticed my stomach was getting bigger, but since I was 38, I thought it was just a sign of middle age. One night I woke up with stomach pain. My doctor performed an ultrasound and asked if I had ever been diagnosed with fibroids. A hysterectomy was recommended. By then I was 46, had my family, and was fine with that option. I thought they might be able to do laparoscopic surgery, but the fibroid was too big. What was supposed to be a 60- to 90- minute operation turned into 6 hours. The fibroid weighed 6 kg. I haven't looked backed: the operation was great and I have no more pain. I walked out of hospital 7kg lighter. Comment from: scaredy cat, 45-54 Female (Patient) Published: July 11 I was diagnosed with fibroids in 2006 when I was 42. I am now 48 and have been living with them and waiting for menopause because I am terrified of surgery. I was on the pill, but I had a bad reaction when my carrier switched brands they would cover at a low price. I have had my stomach blow up to where I looked six months pregnant and then passed clots. I recently passed about six clots that felt like I was giving birth. Other than that I haven't had any pain. A friend suggested that I take a supplement called Vitex. It is available at most vitamin stores. I have since started buying it online. I recently switched multivitamins and the new one has Vitex in it. So I am taking twice as much as I used to. I haven't had many clots since and I don't bleed between periods any longer. I usually have one really bad day that I have to change every hour. Other than that it’s bearable. I haven't been to the doctor since March 2010 because he thought I should have surgery. Although my fibroids are annoying I am living with them. Comment from: Niecy, 35-44 Female (Patient) Published: June 04 I'm in my early 40s, and I've been having problems with my period since my early 20s. I have four fibroids on my uterus. It's causing me so much pain when my period is on 5-7 days, I have cramping, I can’t get out of bed because of no energy with being an anemic. I have back pain, and irregular and heavy periods with blood clots. I've had three D&Cs to scrape my uterus. I have taken birth control and nothing has worked. This runs in my family. Comment from: wilson, 45-54 Female (Patient) Published: May 30 I woke up seven weeks ago on a Sunday hurting so bad didn’t know what was wrong. I went to the ER that night and did ultrasound and found a fibroid. It was the size of a soccer ball. I’ve finally had it removed. Comment from: Bedella, 45-54 Female (Patient) Published: May 01 I am a 45 yea old mother with three childern. Within the last year I have been diagnosed with uterine fibroids. I've had the ultrasounds done and has found several fibroids some being as large as 3.5 cm. In the last couple of years I have experienced lower abdomen pain, swelling and heavy bleeding. For some reason, my doctor is not very concerned. Comment from: 19-24 Female Published: April 10 I am 21 and I recently was diagnosed with a uterine fibroid. By the time I discovered it, it was 11 cm. I had never ending periods for eight months and abnormal periods for two years. Birth control pills could not control it. I was diagnosed with severe anemia six months before the doctors realized it was a fibroid. Comment from: sunshine1973, 35-44 Female (Patient) Published: March 19 I am 39 years old and have fibroids. I already had one surgery performed in 2009, a myomectomy. The surgery was not successful because they came right back. I still have all of the heavy bleeding, a lot of pain, and my stomach have grew large! I am going to try something else as soon as I have another ultrasound. Good luck to all of you. Comment from: kim850, 45-54 Female (Patient) Published: March 19 I am 48 years old. I started having very heavy periods every two weeks. I felt like I was wearing a diaper to bed because I had to start wearing overnight pads and still had to get up in the middle of the night to change them, sometimes two to three times a night. I'm not one to go to the doctor very often ...but after six months of heavy bleeding, feeling like I was ALWAYS on my period and getting very worn out I went to the gynecologist. She gave me two options: take medicine to put me in menopause which would take about 6 months and fibroids MIGHT shrink or have a hysterectomy. I chose the hysterectomy because I did not want to back in the same situation six months later. The day after surgery I was feeling so much but I wish I hadn’t waited so long. Comment from: Tabby, 45-54 Female (Patient) Published: February 08 I am 47 years old and have an enlarged uterus, and I am anemic due to uterine fibroids. I have very heavy periods with large blood clots. I am now without health insurance and cannot afford the sonogram that I have been advised to have and am not eligible for Medicaid. I have been told that the fibroids would shrink as my estrogen levels drop with age. I do not believe this because this past month I bled for 16 days. (For the previous five months, I had clots with a cycle lasting 7-8 days. I hope to have insurance soon and get this issue resolved and have some relief from this finally. I feel for anyone that is enduring this. When I had insurance in place, the doctors would not perform a hysterectomy, which is now what I am told is needed. Comment from: jazzie, 45-54 Female (Patient) Published: February 02 I am 49 years old and have been experiencing lower back pain, frequent urination and pelvic pain. I had an ultrasound a year ago and was told I had both fibroids and cysts. My doctor did not give me any advice. I now have an appointment with a different gynecologist and will have another ultrasound done to see if they have grown. I was told by my previous doctor that the cysts and not the fibroids would be the cause of lower back pain. Comment from: Ely, 19-24 Female (Patient) Published: January 31 I am 23 years old and I have two wonderful girls. I found out summer of 2011 that I had fibroids again I don't know anyone at my age that has this. It's scary. Not even my mother has them or knew what it was when I told her. Also no one in my family as in sisters, aunts or grandmothers had this nor of cancer in the uterus. I am still in pain on my right side where it is at and my stomach is growing as if I were pregnant. I do also miss some periods, which shouldn’t happen due to me being on birth control. The doctor still assures me that I could still have the third child that my husband and I had planned on. Comment from: j4, 45-54 Female (Patient) Published: January 13 I had a large fibroid the size of a melon and had it surgically removed some years ago but I now have three in its place. Comment from: 35-44 Female (Patient) Published: December 05 I am a 37-year-old female with fibroids. During my cycle time it gets unbearable. I have very bad cramps also heavy bleeding which cause me to go through two packs of pads when I use to need only one. I have backaches and have constipation. Comment from: Dedei, 25-34 Female Published: October 31 I was told by my doctor that I have a fibroid when I was 14 weeks pregnant and I had a full term pregnancy and I gave birth to a 6-lb baby girl. Comment from: Tall Lady, 25-34 Female (Patient) Published: September 26 I was diagnosed with fibroids after noticing heavy bleeding and spotting between periods. I am 27 and decided to do the hysterscopic procedure which is when they surgically remove the fibroid. I had this procedure done and i was put to sleep and awoke with minimal pain. The only thing with this procedure is i may have to have it done again as when they removed the big fibroid they noticed another one behind it. It is difficult because I feel I am too young to have a hysterectomy as I have no kids. I hope only one more procedure is needed but my doctor advised me it could be more than one needed. I had this done as of last week and I am back to work and doing fine. I’m scared to continue to have this done but I keep the faith. I am 5'11" and 212lbs. I have been working out as they say that can be a factor. Comment from: Frosty, Female (Patient) Published: September 13 I'm 47 years old. I found that I had multiple fibroids when I was 42. I don't have any bad symptoms, so I didn't do anything except for checking them every 6 months. Now there are two 6cmX7cm big ones, and many small ones. Recently I feel that I go to washroom more frequently. I'm 122 pounds with a small stomach. The fibroids take lots of my stomach room. Other than that, I don't have other symptoms. However, I can feel the two big fibroids bulging out in my stomach. My GYN gave me four options: doing nothing; Lupron; Uterine artery embolization; and hysterectomy. I don't know which option I should choose. I intend to take Ulterine artery embolization. I already arranged a MRI exam and then see what the result is. I'm glad that I'm not along and that I can share my experience with all of you. Comment from: RMK, 35-44 Female (Patient) Published: August 09 These posts are so helpful in making me feel not so alone in dealing with the pain of fibroids. I'm a 43 year old woman, and I currently have at least one fibroid. Last I checked 6 months ago it was the size of a tennis ball, but I'm sure it has grown. I had an IUD but had to have it removed because the fibroid pushed it into my cervix (ouch!). I had a myomectomy 6 years ago for a fibroid the size of a cantaloupe. I thought I was done, but now I have pain again, heavy bleeding, and a swollen uterus that makes my clothes not fit. It's depressing and exhausting. While fertility was a concern previously, I have since adopted my new husband's children and we have decided not to have children together. But I still don't want a hysterectomy! I'm looking into my options, but thanks for providing a forum for this discussion. Comment from: Voiteck, 45-54 Female (Patient) Published: August 08 I'm 54 and have had fibroids for many years .I have three fibroids in the wall of the uterus, the largest is 9 cm. and my uterus is the size of a 4 mo. pregnancy. I don't want to give up my organs unless absolutely necessary as there seems to be some link between hysterectomy and lung cancer. Menopause is on the horizon so I'm in the wait / hurry-up mode. Comment from: Feeling too tired, 19-24 Female (Patient) Published: August 03 I'm 24 years old. I'm very heavy weight ( 5'7” 264 lbs) and when I went to the emergency room because I had excessive bleeding and clots bigger or the size of silver dollars. I feared a miscarriage. I've been trying for a baby to give my 5 year old daughter someone to play with before she gets too old. When I was told I had fibroids and that it wasn't a miscarriage they gave me some pain medication and told me I needed to see a doctor and it was common, not to worry. I've been bleeding for two months and just these past couple of days I've been feeling really tired. Abnormally tired. I want to be able to have babies in the future but I fear with my fibroids I'll never have children again. Comment from: Tracy, 35-44 Female (Patient) Published: August 03 I am just so glad I am not alone, here. I have always had heavy periods. 11 years ago my ob/gyn found my first fibroid when I was pregnant. I have been on a wait a see mode ever since then. I can no longer take this. It is debilitating! I can’t control my urine, the cramps are horrible and my back aches. I didn’t have insurance and went to the free clinic and they ordered the ultrasound that shows I now have multiple fibroids and an enlarged uterus. I have avoided sex with my husband for over a year because it is painful. I finally now have state sponsored insurance (I pay a smaller premium) and will go back to my doctor as soon as I get my card. I wish I had let him do the surgery years ago! I am in the bathroom every hour changing my ultra tampon and passing clots. Today, I have felt so bad, I’m weak and my vision is a little off. They tell you they are nothing to worry about, but unless you have suffered the symptoms, you can’t imagine! I feel like I am bleeding to death! Comment from: Brandi, 35-44 Female (Patient) Published: June 20 I am 44 years old. I have had three miscarriages, with the last one I was told that I had a small fibroid but that it shouldn't be a problem with me getting pregnant again. Well, I went 7 months without a period and I was told it was stress. I started having my periods again but they were heavier with blob clots and I ended up having them every day for a year. I went to another OB and he said the fibroid was the size of a tennis ball, so he put me on 10mg of Provera, it took 6 months for it to work, it controlled my bleeding but then I was having trouble with depression so he put me on depression pills. So I am now scheduled for a hysterectomy in August, I am scared. I have no children but I don't want to be depressed and on all different kinds of medicines. Comment from: msjenny, 45-54 Female (Patient) Published: May 18 I am a 47 year old who goes to the doctor every year for pap smears and necessary visits. About 2 years ago my doctor told me I had 3 fibroids. Unfortunately one was the size of a golf ball. He suggested that he would watch it. My fibroids were growing every time I went to the doctor, about every 3 months. I just recently I had a very bad and painful period. I went back to the doctor and he found that my largest fibroid was the size of a grapefruit. After 2 years he decides it time to do something about this issue. I was scheduled for surgery 3 months ago, and had to cancel because I'm anemic and my iron was too low. Now I have to have the surgery 3 months later imagine what the size of the fibroids will be then. I think that doctors should not wait to watch the fibroids when they are constantly growing. Once it’s discovered that they are growing the situation should be taken care of then. If you have fibroids and they are relatively small ask the doctor what options are available to you then, there are other options besides a hysterectomy you just have to inquire about them. By the time I found out about other options my fibroids were long gone and overgrown. Comment from: Raven, 45-54 Female (Patient) Published: May 13 I am 48 and probably approaching menopause. I have had really heavy periods and am house bound for days. My period lasts from 7-10 days. I also experience clots, like plums or oranges, and feel them pass. I am awaiting my verdict but feel that my doctor will take the path of tablets. My sister had an endometrial resection which I feel that I should have. Comment from: Annette, 45-54 Female (Patient) Published: March 25 I had the uterine fibroid embolization in 2009. I did not suffer from bleeding or cramps but I did experience frequent urination. My fibroids have since grown back and I really don't know what to do. I don't like surgery but I am trying to look at all my options. Comment from: christine, 45-54 Female (Patient) Published: March 21 I had a uterine fibroid removed and everything went well. It was done under sedation and there was no pain to recover from I felt a little groggy from being put to sleep, but I woke up feeling great and there was nothing to be scared off. Comment from: 35-44 Female (Patient) Published: January 31 I had a large fibroid removed after a miscarriage when I was 39. It was done by keyhole and being my first experience of this, it is quite painful and takes a very long time. I was in a very sleepy and sick state from early morning until late into the night. However, the scar tissue was minimal and a complete success so worth the discomfort of the procedure. Comment from: BK, 45-54 Female (Patient) Published: January 07 I am 46 and I have uterine fibroids. My Doctor told me that I need to have a hysterectomy. I keep asking if there is any other way to take care of the fibroids other than having a hysterectomy but because of my heavy periods, large clots during my period, bad cramps and severe anemia I really don't have an option even though I am scared to death to have the surgery due to my history of blood clots in my left leg. So today I will schedule my surgery for next week, a few days after my 47 birthday. I really hope and pray the surgery is a success because have been dealing with this for 24 years. Published: March 25 I had a lot of stomach pain and lower back. Very anemic. Looked up one of the leading doctors in the south and made an appointment. Had the MRI and he said I have 4 fibroids said go home and watch and wait. I am not on Medicare or Medicaid only insurance. I don't think they want to deal with insurance companies. Still living with pain.