Uterine Fibroids

Question:

Please describe your experience with uterine fibroids (benign tumors of the uterus). Submit Your Comment

Comment from: L, 35-44 Female (Patient) Published: November 02

I have 2 fibroids, one the size of a grape, and one the size of a grapefruit. I’m scheduled to have an abdominal myomectomy on December 3rd. I have had 2 blood transfusions and IV iron infusions, MRI, and ultrasounds. The grapefruit size one is pushing through the uterus muscle my doctor told me. I also had to switch doctors to get better answers and I’m grateful for that.

Comment from: KathyMac729, 55-64 Female (Patient) Published: October 23

I am 55 years old, and never in my life have I been in this much pain. Not even giving birth to my 3 children put me through this. I have no insurance and don't know where to go for help. I’ve been to the emergency room twice in 1 week, where I received a CT and transvaginal ultrasound. And 2 units of blood because of anemia. My uterine fibroids are as bad as they can get. I need a hysterectomy.

Comment from: V, 35-44 Female (Patient) Published: September 25

I’m 44 with 2 kids and found out I have a small uterine fibroid, about a year ago. It has not increased the heaviness of my periods but my monthly cramps are much worse and I get mid-cycle pain when I ovulate. I eat a very clean diet -- organic, very low carb, no sugar, lots of vegetables, no caffeine, almost no alcohol and I exercise every day. I’m tired of the pain, and don’t like having to take Advil so often and wonder if I should consider having the fibroid removed or taking medication.

Comment from: Stolen Life, 55-64 Female (Patient) Published: September 24

I am 56 years old. I have had pain with menses starting at 9 years old. A “cyst” was identified at 32 during my first-ever pregnancy ultrasound. I had heavy bleeding, and extensive pain in the abdomen, pelvis and legs every single month; and anemia. During perimenopause, multiple uterine fibroids were found on CT scan. I would bleed like a tap, fist-sized blood clots, bleed more days per month than not. I had pain, swelling, hot flushes and weight gain. Six months into menopause I have severe contractions, searing pain, sleepless, abdominal pressure; I am so sick. I am trying to get a hysterectomy.

Comment from: Serena, 55-64 Female (Patient) Published: September 22

I had a uterine fibroid 4 cm in diameter removed, and didn’t have a period for 18 months, then whoosh, all over the floor. Then, 4 years ago, they noticed a mass in my stomach which turned out to be a fibroid. It was 11 cm in diameter. They scanned me a year later but it was the same size. As I'm high risk for any operation they decided to leave it a year and scan it. It hadn’t gone but hadn’t gotten any bigger. So I didn't need an operation.

Comment from: AMCN_0225, 25-34 Female (Patient) Published: September 17

It will be 8 weeks tomorrow since my 9 uterine fibroids removal via myomectomy. I am grateful they are removed. However, my menstrual flow is still not as I expected. Lighter, but not as I was 7 years before I developed them. I've had 2 one-time cycles, and I can still push out clots which come, to my surprise. I'm hoping as I heal, this will not be the case much longer.

Comment from: Dan, 35-44 Female (Caregiver) Published: September 10

I just wanted to share my story. My wife recently passed away aged 41 from leiomyosarcoma. She had existing uterine fibroids and had been suffering typical fibroid symptoms (heavy periods, poor bladder control, pain in hip and pelvis). She had been back and forth to doctors and specialists to be told it was her fibroid; turns out the suspected fibroid was masking leiomyosarcoma. I just wanted to share as I would hate for anyone else to go through what I am going through.

Comment from: Cupid23, 35-44 Female (Caregiver) Published: July 07

I had 4 uterine fibroids, 3 of which were removed via laparoscopic myomectomy. Prior to the surgery I bled every day for 6 months, that was light with breakthroughs of large clots. Prior to that I had a D and C and blood transfusion. I would pass clots the size of a newborn. The last D and C I had was due to the clots opening my cervix. It was so painful I wanted to die.

Comment from: Marie, 45-54 Female (Patient) Published: June 04

I'm 49 years old and I have 5 uterine fibroids. I have just a few symptoms. I had an ultrasound done 4 months ago and then last week I had a transvaginal ultrasound done and the results showed a slight change in size; like a millimeter differences in size. Waiting to have a CT done and then will go from there. Not wanting to have surgery at all.

Comment from: Victoria O, 25-34 Female (Patient) Published: May 22

I just turned 30 and was diagnosed with a small 2 cm uterine fibroid in early 2019. They said to come back for a vaginal ultrasound by the end of 2019 to check on its size, but my insurance changed and I haven’t gone. I’m about 8 months overdue. I’ve recently been having very heavy periods and a lot of blood clots. However, unlike everything I’ve read, my periods have shortened from my usual 5-7 days to only 2 or 3 days. I’m worried, planning to get the ultrasound done as soon as possible.

SLIDESHOW

Pelvic Pain: What's Causing Your Pelvic Pain? See Slideshow
Comment from: Juju, 55-64 Female (Caregiver) Published: April 30

I am a 57 year old with uterine fibroids again. in 2011 the doctor removed 5 large fibroids. I never felt normal as they grew back before I was healed. I wanted natural menopause. Now I feel bloated, with pain in my left side and possibly adhesions from the first surgery. I eat a little at a time as it feels crowded in there. I am contemplating myolysis instead of hysterectomy. The doctor wants me to have a hysterectomy but I am not sure.

Comment from: Vimsa , 35-44 Female (Patient) Published: April 09

I had a myomectomy in March, for uterine fibroids, and am now on my second period after the surgery. I have never had so much pain and heavy bleeding as I have now so I don’t think it worked. It is frustrating. I have also been trying for 4 years to get pregnant, had two miscarriages and now I have been told my eggs are of poor quality. I am not sure if a hysterectomy is the only option to get rid of the pain and bleeding as there is only a 5 percent chance of actually getting pregnant and carrying a baby full term.

Comment from: Jasmine, 25-34 Female (Patient) Published: April 07

I went to the hospital on a Thursday because I had so much pain on my sides and abnormal pain in my stomach and back. They said I had uterine fibroids and I still have been in a lot of pain. I can't really eat anything, I have been throwing up. I have been trying to eat a lot of soups.

Comment from: Ang87, 25-34 Female (Patient) Published: February 10

I was just told that I have uterine fibroids and honestly I am so scared. I don’t want them to be bad enough for a hysterectomy because I want to try to have 1 more baby. I am 32.

Comment from: Squish, 45-54 Female (Patient) Published: February 05

I had an embolization for my uterine fibroids in 2006. Then I lost two pregnancies, so had a myomectomy in 2013 to try and restore blood flow. But no children later and lots of heartache, I now have a uterus the size of a football and am awaiting an imminent hysterectomy. I currently have constant pain throughout my left hip, sciatica most of the time, need to urinate all the time, digestive problems and can’t eat much. I am actually looking forward to having it out. Had enough now.

Comment from: Missjcb, 25-34 Female (Patient) Published: February 04

I'm 34 years old and have had uterine fibroids for two years now. At first I suffered irregular periods, then about a year in I started having my period for way longer than normal. I almost died in August from blood loss. I had a D and C and the doctor put me on birth control pill, which didn't do anything to stop the bleeding. Currently I've gone 35 days of bleeding straight and the emergency rooms and my doctor don't seem to care much. I have an appointment with a specialist to get them removed. I'm anemic, depressed and having daily anxiety attacks.

Comment from: Joplin , 45-54 Female (Patient) Published: February 04

I had very heavy and irregular period for years. I used birth control to regulate bleeding but it was still heavy. Found out I had a uterine fibroid sized about 7 cm and some smaller ones as well. I had a fibroid embolization done 8 months ago. I have been back to get them checked since and my fibroids have shrunk and are almost gone. No scar. You go in one day, stay overnight and go home. I would recommend it to women who don’t want a hysterectomy.

Comment from: Joy, 75 or over Female (Patient) Published: January 31

I was diagnosed with uterine fibroids when I was pregnant with my eldest; that was 2012. I felt a solid big mass on my abdomen. It was bigger than my fist but shrank after I gave birth. I didn’t even think about fibroid when I was pregnant with my 2nd, nor did anyone mention it to me. Now, 7 years later, I felt a mass again on my lower abdomen. I’m so scared now because I’ve been urinating more than usual, feeling back and leg pain as well as bloating. My general physician said it might be the same fibroid or a new one.

Comment from: Renee, 35-44 Female (Patient) Published: January 30

I recently discovered I had uterine fibroids, 4 months ago. My periods felt like contractions. I had a myomectomy done. I had 3 fibroids removed, 2 of which were the size of mangos. All together the weight was 3 lb. They were able to save everything! I had 5 incisions on my uterus. Healing has gone pretty well, but I finally started working out after 4 months and now I have abnormal vaginal bleeding. Worried if that is normal.

Comment from: Eneloc M, 35-44 Female (Patient) Published: December 09

I did a myomectomy surgery for my uterine fibroids on the 25th of October 2019. I must say surgery was successful, however my first period which came about a month later for seven days was horrible. I had heavy bleeding with a lot of terrible abdominal and back pain. My belly felt like it was ripping out. I cried for the 7 days because of how excruciating the pain was. I'm not sure though how soon to expect my second period. I hope that it won't be as painful as the first.

QUESTION

What are uterine fibroids? See Answer
Comment from: MJRuff, 25-34 Female (Patient) Published: December 02

I am 30 years old, and will be having a myomectomy next month. My marble sized uterine fibroid is now grapefruit sized. I have very heavy bleeding, and usually have to wear tampon and pad, but still prone to bleed through both, and extreme cramps with lots of back pain since one of the fibroids is against my back nerves. My uterus is the size of a 13 week pregnant women as per my obstetrician/gynecologist. Hoping for some relief after the surgery.

Comment from: Happiness, 25-34 Female (Patient) Published: December 02

I am 26 years old and I have uterine fibroids as large as a 6 months old pregnancy. The doctor said the best and only option is to undergo a myomectomy. I am single with no kids and really scared of the procedure as it may affect my womb.

Comment from: Leanne, 45-54 Female (Patient) Published: November 26

In September 2019 I went to the emergency room due to severe pain in my lower abdomen, fever and heavy bleeding. They did a CT scan and told me my uterine fibroids had grown. I had one measuring 16 cm and another measuring 12. I was told I needed a full abdominal hysterectomy but I did not have insurance to cover the procedure at the time. Fast forward to November 23rd, 2019, I gave birth to the 16 cm fibroid; it was necrotic and trying to kill me. They had to remove another one about the same size. I am 3 days post and cramping.

Comment from: JillyKins, 35-44 Female (Patient) Published: November 21

I have several uterine fibroids, the largest 4 cm by 4 cm. I am in the process of changing my diet and taking supplements in hopes to shrink them, because I now have constant bleeding discharge and discomfort. Even when I go out for a short walk I will just start bleeding and it can be rather heavy. I don't want a hysterectomy, am in the process of looking into MRI guided ultrasound. Going to ask the doctor/specialist if it can be funded.

Comment from: Neik, 35-44 Female (Patient) Published: November 15

I have been diagnosed with uterine fibroids since the age of 19. I am 38 and until now my fibroids have been manageable with Tylenol or ibuprofen. I have always been on birth control except for my 2 pregnancies so I’m not sure if it’s the birth control but I don’t experience heavy periods with my fibroids though I do have extreme pain. I call them episodes which used to happen about 3 times a year. This past year I have experienced ‘episodes’ about 8 times so far, 3 in 1 month. The pain is excruciating!

Comment from: HeathG, 35-44 Female (Patient) Published: November 12

They found I had a number of small uterine fibroids, I think the largest was 2 cm, in 2016, when I was nearly 40. I'd been having very heavy bleeding and periods lasting 2 to 3 weeks for 3 years prior to this, with periods being anywhere from 12 to 30 days apart. I noticed at the beginning of this year, 2019, that my abdominal pain was getting worse, I was having bad cramps all the time, periods all over from 11 day cycles to 100 day, and a hard lump in my stomach. Ultrasound showed 12 fibroids, largest 9 cm.

Comment from: Anna, 35-44 Female (Patient) Published: November 05

I have uterine fibroids which first developed about 8 years ago. I am now 39. I have tried every medication available, and I am able to control (stop) my periods by taking norethisterone 3 times a day. However, the effects begin to wear off after about 6 continual weeks, then I prepare for the worst imaginable period. I time it so that it arrives in the weekend and I do not need to take time off work. By the time Monday arrives I can just manage to make to the office. It’s a nightmare.

Comment from: Melanie , 45-54 Female (Patient) Published: October 29

My uterine fibroids were discovered when I was 47. I'm 48 now and they are going off! I started having pain, passing clots the size of small oranges. My gynecologist started me on Depo-Provera. Hate it! Made my periods last for a month at a time. I can't take it anymore. I met with my surgeon last week. I have 3 children all in their 20s so having a laparoscopic hysterectomy is good with me. These fibroids have to go so I can get back to living my best life!

Comment from: SJ 40, 35-44 (Patient) Published: October 24

I recently had a large uterine fibroid tumor removed via myomectomy. It caused me so much agony and pain over the past 12 months. It impacted greatly on my health so much so I had to give up work, felt pregnant due to the speedy growth of it, had heavy bleeding which caused anemia and then gradually I was having no cycle at all due to it pressing on my ovaries. My symptoms were extreme tiredness, nausea, breathlessness, bloating, anemia, and back and hip pain.

Comment from: RenLily, 35-44 Female (Patient) Published: October 24

I'm 43 years old and I have uterine fibroids. I don't have any children but have tried for years. No gynecologist I had been to mentioned the fibroids or their impact on fertility until I complained about the heavy periods and abdominal pain. now I'm going to have them removed but I'm scared and don't know what to expect.

Comment from: Nessa0909, 35-44 Female (Patient) Published: October 10

I’m 36, was diagnosed at the age of 17 with PCOS (polycystic ovary syndrome), at the age of 30 had my first born, 32 my second child, and 34 my last baby. It’s been 2 years and I started with heavy periods and sharp cramps. I went to see my gynecologist and was told I had uterine fibroids. Two weeks later, this was yesterday, the cramps began to become severe like a stabbing pain. He advised we should do an ablation; doesn’t recommend a hysterectomy. I also started with severe back pain, nausea, vomiting and dizziness.

Comment from: Shel, 45-54 Female (Patient) Published: October 01

My gynecologist discovered a 10 cm uterine fibroid in January 2019. I had gone through menopause. I opted for an abdominal hysterectomy. I had a lot of leg pain in my groin, thigh and ankle. Swelling also. DVT (deep vein thrombosis) scan was negative. I'm 5' 3”, 150 lb., and walk daily. My blood pressure is normal. I'm post-surgery six months and still have swelling; some in the lower stomach, both lower legs and below knees. Lab tests show some inflammation but not arthritis. Wonder if I could still be recovering from having a fibroid the size of a grapefruit.

Comment from: Helena, 45-54 Female (Patient) Published: September 27

I have a 14 cm uterine fibroid and look 6 months pregnant. It is painful and I was referred to a hospital. I’ve just come back from my consultation with a male doctor who told me fibroids are not painful and my symptoms could be something else, but couldn’t suggest another reason, but was convinced it’s not the fibroid. I am now paying to have a hysterectomy done privately as I cannot live with this pain.

Comment from: Sarah, 35-44 Female (Patient) Published: September 17

I had severe anemia which almost caused heart failure, at age 38. My periods were becoming severe and lasting 12 to 14 days; with clots the size of a baseball. Turns out the cause of the anemia was a large uterine fibroid. I am terrified to have a hysterectomy. I just hate the idea of losing a body part. I recently turned 41, and I have lost hope of natural treatment. It seems partial hysterectomy is the only option. My bladder leaks every day, and I have to wear a pad. I have had weight gain and back problems too.

Comment from: Treasure , 35-44 Female (Patient) Published: August 01

Living with uterus fibroids is one of the embarrassing things, everybody always assume you are pregnant because of your big tummy. Although mine never really disturbed me much, in terms of bleeding and other pain my friends complain about. I decided to go for surgery because of my big tummy.

Comment from: Mary, 35-44 Female (Patient) Published: July 30

I am almost 45 and started having excruciating pain on my lower right side. I went to doctor and they sent me for CAT scan thinking it was appendicitis or ovary, it was neither. They told me I have a fibroid in my uterus. When I asked how big they didn’t know and said I needed to have sonogram which they set for next Thursday. The intensity of the pain feels a lot like labor. It hurts to move. I am having my second cycle for this month.

Comment from: Mikels, 45-54 Female (Patient) Published: July 30

I've been suffering from uterine fibroids for 5 years. After the ultrasound scan I was told they were degenerating probably due to my age and/or pre-menopause. I was told that that pain was because of the fibroid dying. Doctors don't elaborate on this as they regenerate and during degeneration, they still grow. Nonetheless, these days the pain is relentless. I saw an obstetrician/gynecologist yesterday. He told me I must have endometriosis, since fibroids do not cause this much pain. Very frustrating!

Comment from: Lisale, 35-44 Female (Patient) Published: July 18

I have a large fibroid nearly the size of my uterus. I am having a hard time with accepting that I will need to remove it. I want to bear more children. For now, my question that I cannot find an answer for is, what it is about fibroids that cause heavy periods. Lots of reasons why there are heavy periods, but nothing about the function of the fibroid that makes you bleed out of control. This is racking my brain. Someone please explain the science of that.

Comment from: TLS17, 35-44 Female (Patient) Published: July 18

I had a hysteroscopic myomectomy to remove 2 uterine fibroids. The recovery was easy, I did not need any pain medicines, and I just was really tired for a week afterwards. That was 3 months ago. My 1st period after surgery was much lighter and I only had minimal cramps for about 1 or 2 hours. I just had my 2nd period since surgery, this period was not as good - I had dull cramps/pain every day and 2 or 3 days the flow was a bit heavier. I am wondering why this cycle felt so bad. I hope this is not my new normal!

Comment from: Megan , 25-34 Female (Patient) Published: July 16

I discovered my uterine fibroids incidentally, no symptoms at all except I feel bloated and stomach feels heavy. I am recently married and would like to have at least 2 kids. I have multiple fibroids, approximately 8 in number, sizes varying from 2.5 cm to 6.5 cm. It’s so crazy to decide whether to get them removed before conceiving or take a chance as such. I hope they shrink into oblivion and never come back.

Comment from: Black princess, 35-44 Female (Patient) Published: July 12

Pain, pain, and more pain from my uterine fibroids, makes me depressed. I have extended bleeding, weakness, and pain, especially at nights. I am swallowing pain killers like food and still I have pain. And the bleeding; oh my goodness, it is just too much.

Comment from: Dee, 45-54 Female (Patient) Published: July 09

I am 47 and l have had 1 uterine fibroid, for over 10 years. It is the size of a 37 week fetus, my periods never end. They are so heavy l can’t leave my house, the blood clots are very big. My fibroid is growing straight up, which is making it difficult to breathe. I am awaiting surgery, but l am suffering from severe depression coping with the pain and stress. None of it ever ends and I am looking 7 months pregnant all the time.

Comment from: Kez 1234, 45-54 Female (Patient) Published: July 08

I only had small uterine fibroids, but they caused a lot of pressure and pain in my pelvis and bowels. I had six months of Zoladex, but today feel a little pressure ten months later. I wonder how quickly they grow back.

Comment from: Leigh123, 35-44 Female (Patient) Published: July 08

I have a 23 cm uterine fibroid. I am 39 years old and discovered I had one with my first child. It grew to 16 cm, however no real issues other than horrific periods. With the birth of the baby two things changed. The fibroid started to degenerate and the pain was at times horrendous. During the C-section as they were sewing me up, it was as if they aggravated the fibroid, as the pain went to levels I could not deal with. I was in hospital 12 days for them to control the pain. Hysterectomy is the only option now.

Comment from: SOUNDCHAIN, 35-44 Female (Patient) Published: July 08

It is my 3rd pregnancy, and the first one that’s passed the 9 week mark. I have one subserosal fibroid on top of my uterus which is around 8 cm diameter. It first caused me grief in my 17th week and I ended up in hospital in agony. They said it was degenerating. The weight of the fibroid also made my uterus tilt so it is now sitting to the left. The pain lasted around 10 days. I am now in my 23rd week and it feels like the pain is starting up again. It makes it hard to get up from sitting, and causes me to limp.

Comment from: YOLO, 35-44 Female (Patient) Published: June 19

I just had myomectomy surgery and let me tell you it’s not fun... especially recovering. I feel better though and very blessed. My experience with my uterine fibroids were very heavy periods. I could not wear any tampons because as soon as one goes up blood is gushing down my hand. I wore only overnight pads and I would change every hour. I was super weak on my periods.

Comment from: Chanel, 35-44 Female (Patient) Published: June 11

I am 37 and my small grape size uterine fibroid almost killed me. I started gushing blood for 6 days straight, went to emergency 3 times before I had lost over half the blood in my body, and they could no longer turn me away. It took 3 blood transfusions. I am scheduled for a surgery in 3 weeks to remove the fibroid but after such a traumatic experience I am considering a hysterectomy.

Comment from: Tiffany, 45-54 Female (Patient) Published: June 11

I am 45 and Caucasian, and have had 2 miscarriages because the baby couldn't find anywhere to latch on due to my uterus being so full of fibroids. I didn't know. I don't have insurance and no money for surgery, so there's nothing my doctors can do for me. My sister lives in Oklahoma and we have Cherokee blood, and she has just informed me that if I get my CBID number the Choctaw Clinic will do the surgery for free. If you have Native blood I suggest this option.

Comment from: herbert lisa, 35-44 Female (Patient) Published: October 23

About three years ago I passed out at work, was rushed to the hospital and found to have uterine fibroids. At that time, I was on my menstrual period and had very heavy bleeding. My periods were very heavy for the first three to four days and I would have to wear both pads and tampons at the same time. The bleeding was so bad that I had to change both of them every 2 hours. I normally stay at home on the first three days of my period but on this particular day I needed to be at the office to sign some very important paperwork.

Comment from: Hania , 35-44 Female (Patient) Published: August 02

I have been suffering with uterine fibroids for almost 10 years now. I had a myomectomy and a laparoscopy done but the fibroids keep coming back. Fortunately for me I do not have heavy bleeding but unfortunately though I have very painful periods, back and leg pain and the fibroids also affected my fertility. I have been trying to conceive for 7 years but nothing has happened.

Comment from: Golden , 55-64 Female (Patient) Published: August 02

I have been told I have a 21 cm uterine fibroid but doctors don’t seem to be concerned. I have no symptoms other than constant bowel problems and bloating, and my stomach looks like I am six months pregnant. I feel confused and don’t know what to do as all I get from doctors is Fybogel to relieve constipation.

Comment from: fidela, 45-54 Female (Patient) Published: August 08

I have had two myomectomies for uterine fibroids, abdominal in 05/2012 and laparoscopy in 02/2014. I have never been pregnant; not to my knowing. I’m feeling hopeless and the fibroids are growing again. The doctor said that it looks like I may need another myomectomy. I know that I have a fibroid the size of a goose egg (6 cm).

Comment from: nataki, 35-44 Female (Patient) Published: October 08

I am a 39 year old female who was diagnosed with fibroids at the age of 28. A myomectomy was done and 4 fibroids were removed, the largest the size of a golf ball. I had not been actively trying after the surgery, however I now want a child and have one fibroid the size of a 4 month old baby. HSG (hysterosalpingography) was done, and Clomid done (2 cycles). Blood test done, telling me that i am producing viable eggs (not much though). Doctor is telling me I am ovulating normally. Dear hubby was put on Proviron to strengthen his swimmers but to no avail, it was not consistent.

Comment from: blessed, 35-44 Female (Patient) Published: June 26

I recently had a hysteroscopic myomectomy to remove a 3 cm submucosal fibroid. Prior to the procedure I was having heavy cycles but they were manageable. My first month after the procedure, cycle was very heavy and I wasn't expecting it to happen. My second cycle was even heavier with gushing blood, soaked pads and clothes. My doctor put me on birth control to control the bleeding. My third month cycle was even worse. During my second and third month cycle my blood level has dropped causing me to have anemia. My follow-up after the procedure happened before my second and third cycles, and the doctor said she removed the fibroid and everything looked good. Every month since my procedure I have called my doctor and had many visits because something wasn't right. This procedure was supposed to make things better. Finally during my last visit I wanted answers as to what is happening. They kept saying I had heavy abnormal bleeding but it wasn't like that before. During my last visit my doctor finally told me that there was a portion of the fibroid left which was contradictory to the original diagnosis and post-procedure follow-up. The remaining piece could be causing the problem, but she didn't request an ultrasound to see what was going on. However, she had me to do a blood test for my thyroid because that could cause heavy bleeding also. I got a second opinion from another doctor and he found that the remaining fibroid was 4 cm and was submucosal. So the fibroid was not 3 cm but 7 cm. I am so frustrated because I have anemia that I didn't have before, and I have to have another procedure to remove the remaining fibroid.

Comment from: shei, 35-44 Female (Patient) Published: June 23

I am 37 and have an 11 year old daughter. I stopped taking pills in January because my husband and I were trying to get pregnant. As soon as I stopped the pill, my period was heavy. I just ignored it because I thought it was just normal when you stop the pill. I took supplements later and my period was still heavy. About 5 months later the doctor gave me Ova-mit to help me produce eggs when I ovulate. Then just about 2 weeks after I took them (I was asked to take 5 starting on the first day of my menses), I experienced a sharp pain in my lower abdomen which went to my back. I went to the doctor then to have an ultrasound and found out I have 2 fibroids which are about 3 cm. The doctor told me not to be alarmed about it but will monitor its progress. I am taking my supplements from Usana which I have heard will help decrease their size. I have read a lot that even if you had it removed, there's a tendency that more will grow back. So I will stick to this option first.

Comment from: Gracy, 25-34 Female (Patient) Published: October 31

I have undergone myomectomy surgery in June for my uterine fibroids. A month after that I was cured well by medication and suddenly since the past 15 days I am continuously suffering from back pain severely.

Comment from: Leoimyoma, 25-34 Female (Caregiver) Published: September 10

My doctor recently said that I am having subserosal leiomyoma (uterine fibroid) of 10 cm x 8cm size. I don’t know what to do now and my age is 30 years.

Comment from: Cystpain28, 25-34 Female (Patient) Published: August 15

I am a 28 year old woman. I’ve been suffering from reproductive issues for almost 2 years until I found out I have cysts in my ovary. I went to a new gynecologist and he performed a sonogram and found out that I have a fibroid on the back of my uterus, but he never told me. I found out by looking into my chart online and I happened to stumble upon it. I don’t know why the doctor didn’t tell me upfront about the fibroid. This is the issue I have that doctors don’t tell me the things as they are.

Comment from: julie, 45-54 Female (Patient) Published: August 21

I spent a few years rather anemic with my hair falling out - my doctor didn't even know to point out losing lots of blood would mean I am iron deficient. All I was offered was a hysterectomy for my uterine fibroids. I looked up various sites and found things like hormone regulators to control the estrogen levels. I found herbal teas to cleanse - chemists sell heavy period tablets to control bleeding (but I recommend you see a doctor for those). Changing diet, excluding animal products, and using turmeric helped.

Comment from: maria , 35-44 Female (Patient) Published: July 19

I have been suffering with uterine fibroids for almost 10 years now. I had a myomectomy and a laparoscopy done but the fibroids keep coming back. Fortunately for me I do not have heavy bleeding but unfortunately though I have very painful periods, back and leg pain and the fibroids also affected my fertility. I have been trying to conceive for 7 years but nothing happened. In addition to the fibroids, I also have endometriosis and cysts. I tried almost everything and nothing seems to work.

Comment from: SashaS., 19-24 Female (Patient) Published: May 22

I have been experiencing these sharp pains at least daily from 8th of May till even now, 19th of May and I have been mistaking it to be cramps, but it seems not, because my periods are not dropping yet. The pain is constant most especially in the nights. I wonder if this could be uterine fibroids.

Comment from: E, 45-54 Female (Patient) Published: May 18

I know we women are amazing pain-tolerators, but reading these stories is blowing me away. On Monday, I went to a new gynecologist complaining of overly heavy periods, and this Friday, I'm having a laparoscopic hysterectomy (keeping my ovaries to avoid early menopause). I'm 47, so child-bearing is not an issue. But looking back now, I can't believe how many life-upsetting symptoms I've tolerated for so long and am beyond happy to know they're going to go away. With a myomectomy, the fibroids will surely come back, so it's only a good option if you're trying to have kids. And waiting for menopause? Nope. Who knows when that will happen! I want my energy back and my body back. Goodbye bloating and bladder/bowel issues and pain and bleeding. Life is too short. Not all surgeons are trained to do the laparoscopic procedure because it's still relatively new. But if your uterus is swollen up to a 3 month pregnancy size (like mine), you can be a candidate. We are tough, ladies, and we can take a lot. But again, I believe life is way too short to be putting up with so much discomfort when an outpatient procedure can remove every single symptom. This isn't your mama's hysterectomy! After getting over the shock of needing surgery, I'm now truly excited about restoring my body to normal functions (and no more periods; just in time for summer.

Comment from: kay, 35-44 Female (Patient) Published: April 21

I am a 44 year patient who is suffering from uterine fibroids. However, I don't have problem with bleeding but am getting serious back pain and have recently experienced a uterus prolapse because of the fibroid pressing on my womb. I don't want to get surgery because I have keloid skin and don't want another scar on my body.

Comment from: lollybear, 45-54 Female (Patient) Published: February 10

I had my uterus removed. I had multiples fibroids and one looked the size of a baby's head when it was removed. I kept my cervix and my ovaries but now I'm starting to bleed off and on and cramping like I'm on my period.

Comment from: Betty, 45-54 Female Published: October 07

I was told I had a small uterine fibroid but didn't have to worry about it. However, I had cramping, back pain, the feeling of needing to urinate, and anemia. I was given iron pills for anemia and birth control pills to decrease bleeding. Unfortunately, I was in the small percentage of people who didn't tolerate iron by mouth. (I experienced nausea and vomiting.) So, I ended up getting iron via an IV. I think the birth control pills "fed" the uterine fibroids, and I ended up getting an emergency myomectomy because the fibroids caused me to hemorrhage. The doctor thought the fibroid was much smaller than it was, but she didn't know until she operated. My advice is to take care of them and not just take pain pills. I ended up on disability because I was so weak from anemia. However, after surgery, I never had any more cramps, back pain, the bleeding was miniscule, and I was like a new person. It took three months to recover though, because I had been anemic.

Comment from: Much Faith, 35-44 Female (Patient) Published: October 07

I am a 39-year-old black female. I have had problems with bleeding since I was in my early 20s. Birth control helped with the heavy bleeding. I became pregnant in April of 2009, and I had a miscarriage at seven-and-a-half weeks. In September of this year, I was told that the uterine fibroids had returned, but just in the last two months, the pain has increased. I will be celebrating my one-year anniversary this month, and my husband and I are still trying to have a baby. So, I really don't want to have surgery. I am going to schedule a hysterosalpingogram (HSG) this month to determine where the uterine fibroids are and if they are blocking me from conceiving.

Comment from: yams41, 45-54 Female (Patient) Published: September 11

I have uterine fibroids and have had them for years. When my OB/GYN first told me I had fibroids, we decided to take the watch-and-wait route because I didn't have any problems. Now about 10 years later, I have severe/killer cramps, backaches, and constipation. I do not want to have a hysterectomy and my doctor also feels the same. Since I am close to menopause, he suggests that I keep playing the waiting game. I don't have any heavy bleeding, probably thanks to the birth control pills that I take. I found that if I take a painkiller on the first sign of pain, it help lessens the severe cramps. I am also starting to watch my diet. I make sure to eat lots of fruits and vegetables and drink plenty of water. Exercise also helps reduce the cramping.

Comment from: 19-24 Female Published: September 11

I am a 24-year-old Latina. In August, I was experiencing severe pain in my abdomen, so I went to the ER to get it checked out. The doctor told me that I probably had kidney stones, and they could not see them with the ultrasound. He did not want to do a CT scan because of my age, so he gave me medicine to help me pass the stones. Two weeks ago, I had to return to the ER because I was having more severe pain. This time they did an abdominal and pelvic ultrasound. The doctor said the results were inconclusive. I followed up with my doctor, and she scheduled a trans-vag ultrasound, which I did yesterday. She called last night to tell me the results had not come back yet, but she got the full report of my ER visit. She then told me that it showed a uterine fibroid that I have had since 2004! Nobody ever told me that, and I gave birth in 2006. I cannot believe that I have lived with this for four, almost five, years and no one said anything. In late 2004 early 2005, I had an ultrasound performed because I had lower abdominal pain that the doctors wrote off as a UTI, which is funny because the only symptom I had was the pain. I didn’t have any urinary symptoms at all. It also showed gallstones, which they also did not tell me about in the ER.

Comment from: Dianna C, 55-64 Female (Patient) Published: September 04

I do have a uterine fibroid; large too.

Comment from: Fighur8, 45-54 Female (Patient) Published: September 04

Ladies, it’s the food that is causing the uterine fibroids... sugar and carbohydrates and genetically modified organisms.

Comment from: Viki, 35-44 Male (Patient) Published: June 18

I had my uterus removal operation because of uterine fibroids and experiencing a heavy pain since the date of my operation, about 10 days now, at the corner level.

Comment from: CrK713, 35-44 Female (Patient) Published: May 11

Thank you so much for this information. I was recently diagnosed with uterine Fibroids and for months, I couldn't understand what was wrong with me. This article explained so much, I feel better just knowing I'm not crazy and the symptoms are real.

Comment from: Yaya, 35-44 Female (Patient) Published: May 03

I am 35 years old and my doctor just called and said I have many fibroids. I have to go in on Thursday to find out what is next. I want to have more children so I'm a bit worried.

Comment from: Trish, 35-44 Female (Patient) Published: March 06

I am scheduled for a uterine ultrasound tomorrow because my gynecologist thinks I have fibroids. I'm 35 and am petrified that it is something else (cancer). The last 3 months I've noticed my lower stomach bulging a little and having to urinate more often.

Comment from: Annomous, 45-54 Female (Patient) Published: January 13

I was told by my doctor that my uterus was the size of a woman who is four months pregnant.

Comment from: Angeil, 25-34 Female (Patient) Published: December 16

I am a 30-year-old female. I had been experiencing pain during intercourse and heavy bleeding during my cycles (five days). I would have really bad cramping as well. I went to my fertility doctor who noticed five fibroids. We did surgery a month later and she discovered eight more with three weighing a pound a piece. I am now recovering now and it’s been about two months since the surgery and I feel so much better. No feeling of urinating or pressure in my lower abdominal area, and no pain during sex. Unfortunately the only way for us to get pregnant is IVF but that is our next step after I fully heal.

Comment from: dorah angela, 25-34 Female (Patient) Published: February 28

I am 26 years of age and I found out that I have uterine fibroids. I was going into my periods and I had too much pain in the lower abdomen and the back was aching plus my legs.

Comment from: Rosemary, 45-54 Female (Patient) Published: July 05

I've been having heavy bleeding. In March of this year I lost so much blood I had to have three units of blood a transfusion. It turns out I have fibroids was given a shot to stop the bleeding and it worked but after the six weeks when I got my period it was non-stop bleeding and I was supposed to have a biopsy wasn't able to so I got put on the birth control pills and it stop the bleeding, and I go in two days for a biopsy.

Comment from: Emma, 25-34 Female (Patient) Published: May 20

I am 31 and have 3 small fibroids. I was diagnosed when i was 28. Last year i had to have a blood transfusion as I was so anemic. I have large clots every period I have and pain. I have tried the Mirena coil twice. Both times it fell out. I have been put on the pill now and have been bleeding non -top ever since I started taking them. I am hoping something can be done to help me.

Comment from: onek, 25-34 Female (Patient) Published: February 18

Hello, I'm 30, Asian female, on December 2009 I was diagnosed multiple myoma and I just had my myomectomi surgery this year. I sensed a huge solid tumor in my abdomen accidently, cramping in each of my periods, frequent in urinating, started to constipation, bloating and vomiting after eating, pain in my lower back.

Comment from: nurse 81, 45-54 Female (Patient) Published: January 26

I am 46 years old & have 3 fibroids that have caused my uterus to be the size of a woman who is 6 months pregnant. My clothes no longer fit and my periods are so heavy at times that I cannot leave the house. I have to have an abdominal hysterectomy due the size, as a vaginal hysterectomy will not work, as I was told. I have had 2 C-sections and I am scared facing another major abdominal surgery, but plan to do it in 2 months. I cannot live like this anymore. My periods are 3 weeks apart & last 5-7 days. This whole thing really stinks!

Comment from: jade whirl, 45-54 Female (Patient) Published: January 15

I have fibroids. Two that are 6cm; one in my uterus and one growing on the back side of it. I have heavy flow, large blood clots and lots and lots of pain. I have pelvic pain, back pain, I have to pee all the time and I now have nerve damage or pain to my pelvic area. I think I will die of this because I do not have insurance and cannot afford the operation to have my uterus removed. I have gone to the doctor for this and had ultrasound done that is how I know the size. But I was told it would cost $25,000.00 which I do not have and I do not qualify for welfare.

Comment from: Leonie, 35-44 Female (Patient) Published: January 13

Have just symptoms of others and they are the same. I have had lower back pain like kidney pain and cannot sit or stand for too long. It makes me feel like I’m an old woman. I am only 42, two kids. For the last 3 months I have very heavy periods even where I could not leave the house and they now seem to be never-ending. My doctor said to wait. But I know that it is fibroids. My mother had them at the same age and had a hysterectomy. I do notice that if I am "good" with my food the pain tends to disappear or at least get less obvious. I’m coming back as a man next time!!!!

Comment from: Indian Female, 25-34 Female (Patient) Published: January 07

I am 30 years old and I had an operation for uterine fibroids about three months ago. We are planning to conceive. My doctor just found another fibroid and wants to operate again, which I don’t want because I want to have a baby. I am deeply worried.

Comment from: ladyV, 55-64 Female (Patient) Published: January 06

I am 57 years old, last period 3 years ago. Recently start bleeding for the pass 3 months. No history of HRT use. I have a history of fibroids, recent transvaginal ultrasound shows fibroids are small and no changes from 3 years ago exam. I thought fibroids were supposed to shrink when one get older, but apparently my fibroids found some estrogen along the way. My hormone levels show FSH 16 and LH 11 which is low level for 57 year old. My internist is referring me to GYN for possible biopsy to play it safe.

Comment from: 35-44 Female (Patient) Published: January 04

Hi, I am 43 and have a son who is 7 and I had a miscarriage 3 years ago. My family has a history of fibrous growths (breast as well as uterus). Last year I had surgery for fibroids, endometriosis and a uterine cyst. Since early November '09 I have been experiencing pain in the lower abdomen near the ovaries. I again have a fibroid (growing thru the back wall of the uterus this time) and they are assuming endometriosis again as well. Surgery to remove the fibroid is on Jan. 5th 2010. They will check on/remove whatever else should not be there. I should say that my husband and I are still trying to have another child. So we really didn't want a hysterectomy. I have been on increasingly stronger pain medication as the time has progressed. Good luck to all who are going through this!

Comment from: debbie, 25-34 Female (Patient) Published: December 29

Some months ago, I was scared because I thought I would never be able to have children. I still have heavy bleeding, but my doctor said that I don’t need surgery to remove the fibroid because it’s small. She told me I will be okay.

Comment from: red, 25-34 Female (Patient) Published: December 15

I have suffered from fibroids for at least 5 to 7 years. It first began when I was much younger around 14 - 15 with very heavy cycles, and I stayed undiagnosed due to my being overweight. Every doctor said I just needed to lose weight. Finally found a good doctor and she knew right off it was fibroids. She prescribed birth control pills and I just took ibuprofen for pain. Eventually, the pain got so bad and I was taking so much ibuprofen I became allergic to it, and I had the fibroids removed. About 2 to 3 years later the fibroids have returned, but I do not have the heavy bleeding like before or the intense pain. I am just taking a “watch and wait” approach to more surgery. I'm 32 now and don't want a hysterectomy.

Comment from: Italian-Canadian, 45-54 Female (Patient) Published: December 07

I'm 49 yrs old and have had fibroids it seems forever. First 2 pregnancies were miscarriages from the fibroids. My son was born via c-section because fibroids were blocking the cervix. I had a myomectomy to remove the fibroids one year after his birth. Became pregnant with my daughter 4 years later and delivered her by c-section. Now 9 years later I have a fibroid the size of a football causing me severe cramping, bleeding constantly and clots the size of oranges. I've been hospitalized twice for the severe bleeding, and I have been on meds for years to control the bleeding. A hysterectomy is not recommended because surgeons are concerned that the uterus will be stuck to the other organs because of the 3 surgeries I've had. I'm under the care of another surgeon at the moment, and he has done a biopsy of the uterus to try and determine the best way to remove this mammoth of a fibroid.

Comment from: aunt bea, 45-54 Female (Patient) Published: November 20

My doctors prescribed progesterone, and I have been taking it for the last two months. The result is that this has caused the fibroids and my uterus to prolapse. I am scheduled for surgery on the 9th of December.

Comment from: Tori, 45-54 Female (Patient) Published: November 16

I am 52 years old, and kept thinking that these heavy periods are going to come to an end. But they keep coming, disrupting my life, I have suffered with heavy periods for many years. I finally decided to go and have a uterine ablation done. They did an ultrasound, found out I have a 7cc Fibroid. So I was not a candidate for that procedure. After several months of still putting up with heavy periods, low iron, back pain and some urinary problems, I decided to have my uterus and cervix removed. The surgery is coming up next week, I am very nervous but I can't take it anymore!!!

Comment from: kitkat1851, 25-34 Female (Patient) Published: November 16

Hello. I'm a 33 year old African American female. I had been experiencing severe pain in my lower back abdomen and shooting pains down my thighs. My abdomen area was hard and swollen. I went into the emergency room because I knew something was wrong. To make a long story short...I had large uterine fibroids. My uterus was enlarged. I had 3 big fibroids that caused my uterus to be the size of a woman 4 months pregnant. My doctor suggested that I get a partial hysterectomy. I have been married for 10 years and have a 14 year old son. My husband doesn't have any biological children of his own so, a hysterectomy was out of the question because we want another child. We have been trying to get pregnant for years. I went in to see my OBGYN. She knew my concerns and that I wanted more children so she suggested that I have another procedure. I really didn't want to have the surgery again, but if I don't have the procedure done, my chances of becoming pregnant are dramatically decreased. In the end, I’m having surgery at the end of November.

Comment from: quinonespearl, Female (Patient) Published: October 07

I'm 25 years old, and I just found out that I have a uterine fibroid the size of a walnut inside of my uterus! For seven years, I've been getting pain two weeks before my period, frequent urination, constipation, bloating and lower back pain. My gyno used to tell me that it was OK. When my pain got worse, I insisted on a sonogram!

Comment from: libralove10, 25-34 Female (Patient) Published: September 16

I have problems with a swollen uterus and is due for an xray and a follow. I have very bad pains in my abdomen pelvic area its hard for me to run play with my son and also lifting pulling and pushing. I have to sleep on my sides or my back( sometimes)I often have trouble sleeping. I feel like an 85 year old lady sometimes it hurts for me to get around sometimes and I'm only 25 yrs old!!! Good luck to all.

Comment from: yohan133, 45-54 Female (Patient) Published: February 08

I just went to my PCP and she did a pelvic exam. She told me that I have a large fibroid that she can feel and it is overlapping my bladder. Hence the reason my bladder is bothering me feeling like I need to urinate all the time. I have been feeling dizzy and lightheaded from a month ago when I had some extreme pain like cramping. Don’t know what happened but I have been feeling weird ever since then. She is going to schedule me for an ultrasound in a month. My periods have been getting much worse and clots are the size of 50 cent pieces. I’m sure I’m anemic now but there is nothing I can do but wait.

Comment from: private, 55-64 Female (Patient) Published: January 12

I am 57 and have had multiple fibroids since my early 30s. The fibroids do not cause any major problems except I have a slightly "pregnant appearance". I was always under the impression that after menopause they would shrink. I had my last menstrual period in 2001 and the fibroids are still there. Its not that they are growing but they haven't shrunk either. I am disappointed that they haven't and I feel I was misled. I probably should have had a hysterectomy years ago. The medical community should emphasize that fibroids do not shrink.

Comment from: Barb1235, 19-24 Female (Patient) Published: January 07

I am 24 years old. In August I had pain in my lower right abdomen, and went to the E.R I was told I had ovarian cysts. I had a laparoscopy to remove the cysts. Every month since then I get pain about 10 days before my cycle. I've had CT scans and ultrasounds and nothing has shown other then free fluid. I recently switched GYN and he did an MRI 2days ago which show I have a small fibroid, now he tells me I need to have a hysterectomy within 5yrs. The only problem I have is the pain I really wish there was a way to deal with the pain without surgery. I really want to have another baby.

Published: October 07

I found out I had a large uterine fibroid when I was pregnant. It was growing as fast as the baby and was really scary.

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