Ulcerative Colitis

Question:

For ulcerative colitis, what were the symptoms and signs you experienced? Submit Your Comment

Comment from: Jsne, 45-54 Male (Caregiver) Published: January 28

My husband was diagnosed with ulcerative colitis (UC) in 2008. Over the next 7 years he never complained of any stomach issues or pain. But his personality changed as he became more and more distant. In 2015 I found him unconscious in the bathroom. He died 7 days later. His doctor told me he must have been in the most severe pain. They removed his entire colon. I was told half of it was dead. Please, if you have UC don't ignore it. He was 2 weeks shy of 50 years old.

Comment from: Talat, 35-44 Male (Patient) Published: November 16

I am suffering from ulcerative colitis, I recently developed some pinching pain in my intestine which is more when I take burps, I don’t know why that is so. I had gastric issue as well.

Comment from: julieta, 13-18 Male (Caregiver) Published: July 14

My son has ulcerative colitis (UC). He was diagnosed with UC last year; he was 17 years old. He was on Remicade but he did not improve at all; in fact, he developed side effects from Remicade. He was in the hospital because he developed a clot in his leg (one week in the hospital) and, after that he got a pulmonary infection (another week hospitalization). He received in total 6 Remicade infusions. The only thing that works for him are antibiotics: Flagyl, doxycycline and amoxicillin. Now, he stopped doxycycline and amoxicillin; he is only on Flagyl and, he is better although not very good. The doctors want him to begin Entyvio but, I do not want him to. He will go to college and two weeks hospitalization would be terrible.

Comment from: Vincent, 45-54 Male (Patient) Published: February 09

I hope this is helpful to someone. I suffered from ulcerative colitis from 1975 to 1987. In 1975, at the age of 12, I was diagnosed with ulcerative colitis after experiencing symptoms of bloody stools. I was prescribed Azulfidine which seemed to help the problem for the first two years. In 1977, the symptoms worsened to bloody diarrhea. At this point, I was prescribed prednisone. That would initially help, but when I would begin to taper down the dosage, several months later I would get a relapse. Like clockwork, every summer I would get a relapse, and then go on prednisone until the next spring. This continued until 1986, when I got tired of prednisone and its side effects. I decided to see a nutritionist. After several tests, he prescribed a diet, a regime of vitamins (some of which I was already taking), and the supplement Twinlab Fibersol. You can find this product in most vitamin stores. I never changed my diet, I continued with the same vitamins, but several months after starting the Fibersol, I noticed positive results. I started taking the Fibersol February of 1987, the same time I was tapering off on the prednisone. I did not get a flare-up that following summer. Maybe it is a coincidence, I don’t think so, but I have not had a flare-up since. Now, over 29 years later, and no flare-ups since 1986, I am still doing well at the age of 53. I still get periodic colonoscopies to make sure all is well.

Comment from: tucker, 13-18 Male (Patient) Published: August 27

The symptoms I experienced for ulcerative colitis were bloody diarrhea, severe abdominal pain and weight loss. My doc said the UC is not that bad in me but it could get worse if I don't follow a healthy diet and take dairy products. He said that is the only key in UC to follow the diet given by the doctor and medicine plays a little role, it just makes your symptoms a little better for some time but after that it depends just on your diet.

Comment from: ColleenMc , 35-44 Female (Patient) Published: June 19

I have diarrhea with black stool.

Published: August 27

I was diagnosed with ulcerative colitis in 1994, when I went to the emergency room for rectal bleeding. For years, I was not in a financial position to get treatment. I tried raw foods, going vegan for a while, and it kept symptoms to a minimum for a few years. Then two years ago, I started having diarrhea with mucus and sometimes blood several times a day. Every meal ended with an emergency trip to the bathroom. Then my symptoms swung around the other way, and I stopped digesting food at all. I'd have a lump of food in the transverse colon for days, and the pain and swelling was unbearable. Eventually, I would get frustrated and drink a pot of black coffee so I could go to the bathroom, which ended up being just as runny and bloody as before. I've been waiting a year for my insurance to kick in at work. Now I'm waiting for approval on my referral to a specialist. I am afraid my poverty is going to cause colon cancer.

Comment from: mybodyhatesme, 35-44 Female (Patient) Published: December 05

I was diagnosed with UC last year. For about three years, I had occasional bloody stools, abdominal pain, and an insane urge to have a bowel movement

Comment from: MsG, 35-44 Female (Patient) Published: August 11

I’m very interested in anyone that was diagnosed with UC after contact with a virus/bacteria such as salmonella. I had salmonella to begin with, however after suffering for over 12 weeks I was then diagnosed with UC. Since then, I have been living with UC for 4 years now and before each flare, I am faced with a virus such as a cold or flu. I’m interested in any insight or personal experiences.

QUESTION

Ulcerative colitis affects the colon. The colon is also referred to as the... See Answer

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