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Tuberculosis (TB)

Question:

How was the diagnosis of your tuberculosis established? Submit Your Comment

Comment from: Annonomous , 55-64 Female (Patient) Published: October 16

I had tuberculosis (TB) when I was 15 in 1975. I didn't have the standard symptoms. I was tired all the time and had loss of appetite but for 3 months the doctors said they couldn't find anything. My mother had her doctor meet us in the emergency room. The night before it felt like someone punched me in the back. I remember the doctor saying nothing was wrong but he would order a chest x-ray. I then saw him come back in and apologize to my mom and off to isolation I went for a month. I was put on INH (isonicotinylhydrazide) and ethambutol for 3 years.

Comment from: sss, 25-34 Female (Patient) Published: October 16

I was working as a nurse when our annual health checkup was done. A classic tuberculosis (TB) patch was discovered on my x-ray. I was almost symptomless except for a little weakness and a weight loss of about 1 or 2 kg over a year. I did CT (showed TB disease). Doctors couldn't diagnose. I consulted another renowned chest physician who immediately started me on TB medicine. I was confused as my sputum was negative. I had to suck out sputum through bronchoscopy which came out positive later on.

Comment from: Jufer1, 65-74 Female (Patient) Published: August 07

I received a call from a doctor that I had seen 1 year and 3 months prior. She informed me that the lab that had done my blood tests had 'reviewed their results' and now I have a positive QuantiFERON Gold test - positive for latent tuberculosis (TB). Chest x-ray shows a nodule in right upper lobe of lung. CAT confirms and shows ground glass opacities (GGO) as well. PET scan shows 1.0 x 0.7 cm nodule lighting up at 2.5 and GGOs. I am frightened and now have to wait to start the INH (isonicotinylhydrazide) treatment, I am female, 67 plus and asthmatic.

Comment from: Candy, 19-24 Female (Patient) Published: June 12

I experienced chest pain from June 2017 after I had muscular spasm on my whole left side. At first I thought that my chest pain is only a muscle spasm. I wasn't able to sleep on my left side due to the pain. I started to place a pillow below my left side but everyone said that that it was only muscle pain. I tried Wintogeno for that but that pain didn't end. I didn't have fever or any other symptoms, but yes, I had cough on and off. I have had this complaint my whole life and every doctor prescribed antibiotics and allergy medicines to me because I have allergy problems, so this cough didn't alarm me. My only complaint was my chest pain but at last after 7 months I went to the medicine department for checkup. I did my chest x-ray and showed it to the pulmonologist, and he diagnosed me with tuberculosis. The next day he did bronchoscopy and my AFB (acid-fast bacillus) was negative at that time but my gene expert was positive. From the next day I started Myrin-P Forte. Now I am on my 5th month of treatment. I am a medical student myself but I didn't knew that I was having tuberculosis and I advise you to go for checkup whenever you experience such symptoms. I don't know for how long I had that disease but my chest x-ray showed only one nodule. I had stress problems, maybe I got this disease due to that, but my doctor told me that I had a strong immune system otherwise this disease could have caused me much more damage. I hope I can be completely cured and never have it again in my life.

Comment from: HM, 25-34 Female (Patient) Published: May 02

I was coughing since 7 months, and had been repeatedly visiting doctors but none was able to find my tuberculosis (TB) until I had CT scan and then went for bronchoscopy test one day. The next day I was so weak and feverish that I got admitted in the hospital for 5 days. They confirmed it as TB and now I am under medication. I never ever thought I would get this one. The stress led me to the disease through a series of emotional events and I easily got infected from others. Stay strong guys. Never let your stress destroy the overall physical health of your body; you end up get infected easily!

Comment from: pucca31, 25-34 Female (Patient) Published: September 10

I started with tuberculosis symptoms 12 months before I was diagnosed. Night sweats and a cough were the first signs, then chest pain, fevers, sputum, weakness and weight loss. I had to go to my doctors on five occasions to be told that I had a chest infection, asthma and pleurisy. Eventually, a chest X-ray and blood were taken to discover it was tuberculosis (T.B.). By that time I was really ill and weak. I recall this as a nightmare. I then was taken to two drugs after a couple of months and my symptoms came back. I had to be isolated for nearly two months and given second-line drugs such as streptomycin injections. I had a six-drug therapy which made me feel sick all of the time. It was not nice. I panic every time I have an infection or a cough. I worry that it might be back to haunt me.

Comment from: Puzzled, 55-64 Male (Caregiver) Published: December 27

My husband has just been diagnosed with TB. He has been coughing for 4 years, each time he went to the doctor he just got antibiotics for URTI's or meds for hay fever. He also had the itchy spots on his shins, attributed to contact dermatitis. Tiredness was attributed to low thyroid. His arms, legs and buttocks are wasted, but his abdomen is distended. He had pain in his side, X-rays diagnosed nothing. They put the cough down to smoking. Last year he had a pneumothorax and was treated by a cardiothoracic surgeon and a pulmonologist and put on asthma pumps. More X-rays taken and shadow was seen - put down to smoking again and cancer suggested but he did not want to go in for exploratory surgery. Two more bouts of chest pain, more X-rays, another thoracic specialist, no result. Sputum test negative. COPD and emphysema attributed to smoking. 2 weeks ago, another pnemothorax, more X-rays, a CT scan, thoracotomy and biopsy and 6 days later TB was diagnosed. I don't understand why it has taken so long and so many tests to diagnose this - I have lost all faith in the medical profession and feel like we've been taken for a ride so they can milk our medical insurance.

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Comment from: BZ, 35-44 (Patient) Published: March 26

I was doing my third year of BA, I started by coughing continuously and a flu like pneumonia for a long time. This moment nearly ruined my life. I started by using flu medication but it resisted to stop. I then went home for a visit to my aunt, who then suggested that I have to go and visit doctor for consultation. As I opened my mouth to explain my problem to the doctor, I started coughing, without hesitation the doctor then said TB. I nearly committed suicide after that, as I was under denial stage. The doctor then registered my name under TB program. Staying in the hospital for six months to me was a nightmare. I became more violent until I forced my doctor to release me from hospital by telling him lies that my lecture called me to write my exam papers. The doctor was under pressure he then released me to go and write with packets of medication and at the same time I was feeling cured. Then the first thing I started by quitting my medication and the diseases as it well known went into hiding for some time. A year later I started to feel very much week around June. I was unable to go upstairs in the library, at the same time coughing started, during nighttime my chest was wheezing. As a border in boy hostel guys organized during my sleeping time and they started pointing fingers me as if I was dying. I was under pressure then I went to the nearest hospital and I was admitted as a TB patient. Students from the University will come to watch me that I am dying and started to call me names and that I am having aids. I wanted to die by that time. At the same time I continued with my treatment for a year until the TB was cured.

Comment from: Don, 25-34 Male (Patient) Published: September 10

During my second semester at the graduate school where I was taking my MBA, I started waking up in the middle of the night soaked in sweat. A week after I started to have a fever every afternoon and felt some pain in my back. Shortly after a few days my cough started, so I went to the doctor and he told me it was just a mild case of respiratory infection and he just gave me antibiotics. After a week with no visible improvements, I decided to go to a pulmonologist and he finds out from my chest x-ray that my right lungs is positive with fluid, so I had to undergo thoracentesis. Just after 2 days, the pleural fluid test result came out that I was positive with TB. It was so hard for me to accept that I had to stop studying for more than four months just to be sure that I won't be able to infect my friends and classmates. I hope it won't come back ever again.

Comment from: careseeker, 45-54 Female (Patient) Published: November 21

I had persistent cough and was diagnosed with tuberculosis (TB). My doctor told me to go the health department for treatment. I asked for a recommendation for a physician, as I was quite ill, but the physician deferred my request and sent me to the health department. At that point I was infectious and felt I had no options so I went. I followed the recommendation, but despite the pills (which I took, there was no issue there) I got essentially no care there. I ended up seeing a nurse practitioner but was assured a doctor was reviewing my chart. After 6 weeks I insisted on speaking to the head of the program and leaving their care. I was cured uneventfully from my disease. I wanted to share my story so that patients realize that they have a right to see normal physicians, and not be treated at the health department. The quality of care at most health departments is quite variable and may be, as was my case, really quite bad. You do have rights, but unless you insist, people are not going to hear your voice. My advice to people living with TB is, you are infectious but you deserve the same level of care as anyone else with a serious disease (infectious or not infectious). If you are being treated poorly look for an alternative. Do not accept no, ask for supervisors, or whatever it takes.

Comment from: dikky, 19-24 Male (Patient) Published: October 15

I had suffered from tuberculosis 2 years back and I had taken medicine in the 1st stage and it was cured. Recently I checked with x-ray, and doctor told one mark is there.

Comment from: Newly diagnosed, 55-64 Female (Patient) Published: September 22

I had breast surgery two months ago. One month later I had pain and infection in my right breast. I was hospitalized overnight to have infection cleaned out and treated. The tissue was tested for strep and staph with no results. One month later I received a call from my surgeon telling me my tissue tested positive for TB. I was told to go in for blood test, sputum test and chest X-ray. My blood tested positive for TB, but the chest X-ray is clear and sputum test is negative. Thank goodness I am not contagious, but am now I am on 4 medications for maybe one year. I have no idea how I got TB and so far my family has tested negative. I never had any symptoms.

Comment from: jessie, 25-34 (Patient) Published: April 01

I had been diagnosed with TB. Prior to that, I also coughed for two months and had a fever every afternoon with unexplained sweating. At first I thought it was just a simple fever due to extreme weather and stress at work, but it went on for three consecutive months. Little by little, I started losing weight. I'll be having my fifth check-up with my doctor and another X-ray soon.

Comment from: Anonymous, 19-24 Female (Patient) Published: April 10

I am a final year graduate student. I've been coughing for two months and every time I visited the doctor, he used to prescribe antibiotics. Finally, within no time I lost a lot of weight and became so weak that I was unable to stand. An X-ray and blood tests were taken and I was diagnosed with TB. I was then immediately admitted to the hospital for 15days.i

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Comment from: 55-64 Female (Patient) Published: February 15

I went to the doctor concerned about a cough I've had for more than three weeks. I'm very exhausted and not at all interested in food. I was coughing so much, I nearly passed out. This was repeated over and over. I had blood tests and X-rays and a TB test. I got a large red spot that felt like there was an egg under my skin. Today, my doctor said that I test positive for tuberculosis.

Comment from: t.c, 25-34 Male (Patient) Published: December 13

After my dad got infected by the disease, I had to take his sputum to the labs, and I spilled in my pocket, a year later, I began feeling weak, lost my appetite, a dry cough, with blood stains at times. Went to see my doctor, had an X-ray and sputum test and it was positive. Then I went on treatment for six months.

Comment from: Caroline, Female (Patient) Published: October 17

My diagnosis rests on the sputum test. I have never been treated for TB but was surprised after my first bout with pneumonia. I thought they made a mistake, but no. The 1995 x-ray showed clear lungs so I knew I must have had it since coming to New Zealand. I have struggled with fatigue for years, but I go running 3 times a week and practice yoga once a week. They seem pretty casual about TB here in NZ, and while I wait for the results of the test. I have not been told to isolate myself in any way.

Comment from: Robyn, 55-64 Female (Patient) Published: August 16

I have just been told I have had TB but am no longer infected. My doctor was treating me for other respiratory infection and only a ct scan being done for my back produced the evidence of TB. I had night sweats (nothing unusual there as I am in my 60's and female) lost 17kgs and was literally drowning in mucus. I had terrible pain in back and chest headaches and no interest in food whatsoever, very weak and sleeping pretty much all the time. I live in country Australia and after 6 months of putting up with the symptoms stated above went to Sydney to see a doctor who knew what she was talking about and was put on two different antibiotics and steroids for 3 months, but once again for pneumonia and not TB. It seems that this disease is very hard to diagnose, as this doctor also thought it was not TB. Now all my friends and family have to be tested and are not happy about it, but I did not know I was walking around with TB.

Comment from: Bubun, 19-24 Male (Patient) Published: August 11

My tuberculosis was diagnosed after I suffered a mild fever, weakness, pleural effusion, and pain in left side of lower chest when coughing.

Comment from: Mls, 45-54 Female (Patient) Published: January 27

Well, I am a rheumatoid arthritis patient and so nothing really works for me (pain control) so I now will try one other medication, which is infusion once every six months. My doctor decided to do a TB test just because it's been a year since we last tested. So now I'm positive for TB. Wish me strength.

Comment from: subramanian, 13-18 Male (Caregiver) Published: July 26

I had a bad cough and a high fever for a week. I was tested and the TB was confirmed through a sputum test.

Comment from: anonymous, 25-34 Female (Patient) Published: July 06

I became sick with what everyone including me thought was just a bad case of pneumonia. I was hospitalized by a pulmonary specialist after coughing up blood after two weeks of not responding to strong iv antibiotics he realized something worse was going on. I underwent a lung biopsy that confirmed active tuberculosis. After severe weight loss wheezing in my chest and those awful fevers, I began a long multi-drug therapy that saved my life.

Comment from: 45-54 Female (Patient) Published: June 09

My diagnosis of tuberculosis was established by a CT scan of my chest after more than a year of inconclusive chest X-rays and unsuccessful sputum cultures.

Comment from: raj, 25-34 Male (Caregiver) Published: May 06

I have no cough, no weight loss, and no other symptoms of TB, but the doctor says I have TB.

Comment from: Regretter, 13-18 Male (Patient) Published: February 16

A month ago, my father warned me not to mix with a friend whose father has had TB for a very long time, but I never cared. My father warned me that the son has a better health than me and might not catch the disease for that reason. At last I had a very severe cough and weight loss with fever. My father took me to a specialist who took and X-ray and mucus tests. I was in horror when it proved positive. I regret not listening to my father's advice, now he keeps me in a room and I take four types of drugs and father looks after me at home but he is afraid of infection. I feel much better now but my father is very cautious and he gives me the medicine by himself. May God heal me out not for me but for my father and my family!

Comment from: sentinel, 45-54 Male (Caregiver) Published: September 08

My wife needed to have a TB test for her job (she works at a daycare center ) .The test showed positive. She is in denial and thinks the test is wrong because she won't admit the symptoms are connected to her TB .Symptoms are Extreme fatigue, migraines, night sweats. I try to talk to her about the condition and she becomes very combative. I am growing more worried because we have a 13 year old son and don't want him to get infected. I have been tested and with negative results. She is from South America and has been tested before for immigration purposes but I don't think they administered the shot correctly.

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