Main Article on Thyroid Problems Question: Please describe your experience with thyroid disease. Submit Your Comment Comment from: No peep AC, 75 or over Female (Patient) Published: May 10 My thyroid diagnosis was hypothyroidism forty years ago. Within fifteen years I was diagnosed hypothyroid. Within 2019 to 2021 the TSH test caused a change in my medication (Synthroid) from 100 mg to 88 mg and now 75 mcg tablet. I don’t know what this change in the TSH indicate for the thyroid function. Comment from: Sun city, 75 or over Female (Patient) Published: September 22 I was diagnosed with Graves’ disease 35 years ago. I was treated with radioactive iodine. I have been on levothyroxine 88 mcg for the last 10 years. Now my thyroid test shows hyperthyroidism and my dose was just reduced to 75 mcg. Wonder what would suddenly cause my need for less medication. Comment from: Rachel D, 45-54 Female (Patient) Published: July 31 I had my thyroid chemically ablated, and my levels are still changing. I was on 150 mcg then put on 137 mcg of levothyroxine. Now they are lowering the dose again. And no matter what, I can't lose any weight. Comment from: Rachel, 35-44 Female (Patient) Published: May 12 My TSH was 5.8, just in the 'normal' range. My hair fell out, my muscles felt heavy, my taste in music went from dance to heavy metal, and I watched TV all weekend instead of the usual socializing. In the end I was treated for iodine deficiency which caused my thyroid disease and magically came back to life. Comment from: Suku, 25-34 Female (Patient) Published: March 11 I was diagnosed with hyperthyroidism in May 2018 and was on Neomercazole 10 mg BD. Two months back I went for bariatric surgery. I am still taking medicine regularly. Nowadays my TSH has risen to 17 and my heart rate is between 50 to 60. I feel glue in my eyes. I don’t know what to do. Comment from: Geraldine 66, 65-74 Female (Patient) Published: March 10 I had been diagnosed with thyroid disease in 2009, and thyroid cancer two years ago. I had fast heart rate and was put on bisoprolol and apixaban. I am having more bad days than good. I had blackouts twice in August and was in hospital for three days. It was put down to low blood pressure. Doctors think I’m overreacting about cancer. I have lots of pains, a funny feeling in chest, and so tired at times. I have not had any thyroid scans, maybe eight years, so worried and depressed. Comment from: Ariel , 25-34 Female (Patient) Published: January 20 I was having this tingling feeling all over my body. I was weak and tired all the time. I would wake up out of my sleep, my whole body would be shaking like I'm having seizures, and my mind would go blank. My period comes on 1 month and I won’t see it for another 2 to months and when it does come on I bleed heavy. I have gained a lot of weight and have trouble with bowel movement. My throat hurts and I lost my hair. I went and talked to my doctor about it. He told me it was my hormones. All the time my thyroid was low. Comment from: Shelly, 25-34 Female (Patient) Published: January 10 I just did an ultrasound because over 4 months now I have been losing weight. Then I have a lump inside in the front of my neck and I am always hyper and getting upset very quickly. The ultrasound shows I have goiter in my thyroid. I am so scared because I don’t want to die now and leave my 4 kids to suffer. They told me it cannot be treated unless I get a blood test showing what level it has reached. I am so scared. Comment from: Salt, 65-74 Female (Caregiver) Published: December 03 Five years ago I was diagnosed with a goiter/thyroid problem. Then I developed nodules on both sides and these were monitored regularly with a needle biopsy every two years. This year it was found the nodule on the left side was 5 mm and was interfering with my windpipe! My specialist recommended I remove part or all of my thyroid however if I chose half and it was cancerous they would have to go back in again. I had my whole thyroid removed 8 months back. I’ve been depressed and tired, with headaches, mood swings, insomnia, etc. They have not been able to get the dosage or thyroid levels right. Comment from: Thom4545, 65-74 Female (Caregiver) Published: November 26 I have been suffering with underactive thyroid for a few years but didn’t know what it was. Then a couple of months ago I started having spells where I felt so funny all of a sudden and I would be exhausted and feel like something was inside me was happening. There was no pain but I would have to sit down because I was so weak and would start to have a panic attack because I didn’t know what was wrong. I felt cold air just flowing through my body at times. I’m on medicines now, thank goodness! SLIDESHOW Hyperthyroidism Symptoms and Treatment See Slideshow Comment from: Sandy M, 55-64 Female (Patient) Published: July 09 In 2003, I was diagnosed with Hashimoto’s thyroiditis during a 3-year swing of up and down thyroid. Later, doctors increased the dose if I was tired and couldn't lose weight. In 2018, I felt overmedicated and doubted needing Synthroid at 88 mcg. My doctor and I gradually decreased the dose and monitored TSH. With every decrease, I felt much better and TSH was about the same. New endocrinologist did an ultrasound and thyroid looks completely normal! I discontinued the medicine and TSH is stable. Comment from: LisaH8, 45-54 Female (Patient) Published: April 01 I've been on Armour thyroid medicine for 6 years now. I've gained 30 lb. in the last 3 months and I'm very tired. I wonder if my medicine has quit working or if this is something normal when you have no thyroid. Comment from: crstlgls, 35-44 Female (Patient) Published: August 09 I was diagnosed with hypothyroidism in September 2016. I gained 15 pounds in a very short period of time earlier that year. My energy was poor. I got switched to Nature-Throid after I tried levothyroxine for 10 months because I could not convert it. Currently, I am experiencing severe fatigue and weakness, headache, constipation, poor balance, unsteady gait when I walk, dry skin, and anxiety. I also burp a lot during the day. I sleep well at night, but still end up needing a nap. I can't keep up with my exercise tapes, no matter how hard I try. I am trying to lose weight, but stalled in the process. Comment from: tlynne122, 25-34 Female (Patient) Published: May 01 I went to my doctor's office for pain in my neck, right arm and upper/lower back. Weeks later I had an MRI which showed a suspicious nodule in my thyroid. Several months later I had a left-hemi thyroidectomy. Weeks after my surgery the pain on the right side has become worse and I'm more tired and restless. I was told the thyroid nodule was benign but when I went into my patient portal I saw malignant neoplasm thyroid gland. I'm so confused and stressed at the same time. I feel like crying all the time. I don't know if I'm better or worse. Comment from: Deb, 55-64 Female (Patient) Published: May 06 I gained 10 pounds in one month, my hair became very dry, and my nails became brittle to the point that I could peel them apart. I went to my doctor and told him those symptoms and how tired I was all the time. I asked him to test my thyroid to see if it could be the cause of all my symptoms. He laughed and told me that he didn't believe it was because I only weighed 125 pounds. The test came back and it wasn't good, I had hypothyroidism. After adjusting my medicine for two years, I feel so much better. I take my medicine daily and have blood tests every six months. I have lost 17 pounds of the weight that I had gained by cutting down on what I eat and exercise. Good Luck Everyone. Comment from: Sherry, 55-64 Female (Patient) Published: October 06 I was diagnosed with a hyperthyroid goiter. They said it was Graves disease when I was 15 years old. They removed half my thyroid. I didn't notice the mental and emotional changes getting the goiter (after all I was a teenager), but I certainly did when they removed it. Fourteen years later, I started noticing mental and physical changes again, and even though I kept telling my doctor, he didn't figure out the problem. I did when I started looking up causes for my eye symptoms. Instead of being an extrovert, high energy person, I had become a paranoid, introvert that didn't have any energy and was gaining weight even though I was exercising more. When they checked my thyroid hormone level, they said it was very low and prescribed thyroid hormone. The medical community doesn't seem to want to acknowledge the effects the thyroid has on a person's mental/emotional condition. It doesn't just affect you physically. In the same way that PMS causes personality changes, so does the thyroid hormone. Comment from: bentherdonthat, 25-34 Female (Patient) Published: October 06 I'm 34, and I have had hyperthyroidism, Graves disease, and now, I have hypothyroidism. I've been going through this for more than 10 years. Please, if you have thyroid problems, see an endocrinologist at least every six months. If you have Graves' eye disease, you should be seeing a neuro-opthalmologist. If I had known this earlier on in my diagnosis, it would have saved me a lot of trouble in my life. Take your meds every day and make sure you're taking them properly, for example levothyroxine doesn't work with food or antacids/calcium. I hope this helps someone. Comment from: Marti, 45-54 Female (Patient) Published: March 03 I had part of my thyroid gland removed 28 years ago and lately haven’t been taking my tablets on time. When I had my blood tests done last week my doctor told me that I have had no thyroid hormone in my body for 3 months now I got to wait 2 months for another blood test to be done and got to stay on the same dosage of tablets. Comment from: Fed up!, 55-64 Female (Patient) Published: October 04 I had a thyroid test 2 1/2 years ago. I've only been on 0.88m cg and I feel awful. My endocrinologist refuses to up my dose saying I show on the high side TSH. I've gained weight, have very low energy and am suffering from peripheral neuropathy. I don’t know what I should do. QUESTION Where is the thyroid gland located? See Answer Comment from: Maureen, 55-64 Female (Patient) Published: December 28 I have been treated for hypothyroidism for a few years now, due to having taking Lithium for manic Bi-Polar this affected the working of my Thyroid gland. I have since been taken off Lithium but unfortunately the damage has been done. I take 50mg of Thyroxine, but I have been noticed these past months that my weight and hair is being affected again. I went back to my G.P. who said my blood test is normal, so I’m left with having to just 'get by' like this. I know my thyroid is not right again, perhaps the med needs increased but something isn't right. I'm going to try my G.P again and failing that I will buy something online to help. I see there are Iodine tablets you can purchase to help. Comment from: BDB, 45-54 Female (Caregiver) Published: November 12 My wife had her thyroid removed 5 years ago and it turned out benign. Since then our lives have been unbearable. Loss of sleep, depression sick to her stomach following the medicine. She has bright lights in her left eye, dizziness, severe pain in the left side of her neck and headaches, fatigue, severe pain in her legs after just a few stair steps and the inability to have any type of social life. We have been to over a dozen different specialists, including a neurologist that said she was being poisoned. We were back at Mayo yesterday and their answer again was it was just in her head. Why won’t they confront this problem instead of looking the other way. People deserve better answers and treatment. My life has been on hold the entire time also. When they tell us nobody else has these symptoms and then I find this website, what a relief that we are not both going through this because of our imaginations. Comment from: Anna, Female (Patient) Published: October 27 I became very depressed and I couldn't function in school. I could not walk up the stairs without pain in me knees and loss of hair. I was always tired and always wanted to sleep. I was always cold. I started to lose a lot of hair and my neck enlarged and my face gained a lot of weight. My skin turned dry and my legs swelled up. My skin turned yellow. I talked really slow and it took me awhile to understand what others were trying to explain to me. It affected my liver. I couldn’t drink or eat anything that was fried because it made me sick. Comment from: JC, 55-64 Female Published: October 19 I have had thyroid disease for about 15 years now. I take Levothyroxine (25 mcg) tablets. I find it almost impossible to lose weight. I have done a small turn with Nutrisystem with very little success. Now I am trying Weight Watchers. I’ve had three weeks of hard dieting, and I only lost 4.5 pounds in the first week and none in the last two weeks. I am very discouraged. Comment from: magsund, 55-64 Female (Patient) Published: October 06 I had Graves disease years ago and had radioactive iodine years ago too, to treat the Graves disease. Soon after taking the radioactive iodine, I was diagnosed with hypothyroidism. I began taking Synthroid and took the same dose of Synthroid for 27 years when suddenly I began experiencing the same symptoms of Graves disease again. The only thing that changed was that I developed nodules on my remaining thyroid, which the endocrinologist said was very rare. However, he thought that perhaps I developed scar tissue on the thyroid. Comment from: 35-44 Female (Patient) Published: September 17 I have just been diagnosed with thyroid problems. I am 39 years old, married, with two children ages 10 and 11 years old. I was suffering with very severe hot flashes and dizziness and I could hear my heart beating very fast. I thought I might be going through an early menopause, so I was surprised to learn that the problem was my thyroid. I have been given tablets to reduce my heart beat, and have follow-up appointments in 10 days. I will also have to see a specialist at the hospital to discuss further treatment. At the moment, I don’t feel very well and I’m having a hard time doing my job. Comment from: HandyDan, 55-64 Male (Patient) Published: September 11 I was diagnosed with Graves 17 months ago. It had progressed so badly it affected my heart. I was in ICC for 3 days with atrial fibrillation for 14 hours, scared to death that my ticket was punched. Looking back I had Graves for several years, sweating, intolerant to heat, trouble with concentration and sleeping, irritable, sore joints (I wrote this off to hard work and hard play), palpations, and finally weight loss and then the A. fib. and hospital. My specialist diagnosed it right off. I've been on methimazole, 60mg for awhile then tapered down to 5mg 2X daily. I've got good days and some not so good. The feeling of depression and anger at times is almost too much. I don't know if the sleep loss is due to depression (functional) or the Graves affecting another body system, but thank God for modern pharmacology. Sleep is just a med bottle cap twist away. I hope this goes into remission soon. Comment from: dmpipher, 55-64 Female (Patient) Published: September 11 I used to take Synthroid for my thyroid disease, but when I lost my medical insurance years ago, I stopped taking it. I also take high blood pressure medicine and a diuretic. My mother has Graves disease. I have recently been having tremors and muscle weakness. I also noticed that I have lost a little weight. Comment from: Polly Mom, 45-54 Female (Patient) Published: October 16 I was diagnosed with hypothyroidism. Since diagnosed in 1991, I am so tired of the side effects. Comment from: Clara, 35-44 Female (Patient) Published: August 07 I have 4 nodules in my thyroid gland. The size of nodule was 7 mm when I was in Saudi Arabia. Then my employer let me go home to Philippines without any medicine I had taken, and now I don’t know what the medicine is. Comment from: Boots, 55-64 Female (Patient) Published: November 02 I had my left thyroid removed 4 days ago and I feel great! I was really surprised about the pain I had afterwards. There was hardly any pain. My throat was a little sore. I took 2 pain pills, but I didn't really need them. I wanted to tell someone about my experience because I was so very afraid about the surgery. Comment from: eliza, 35-44 Female (Patient) Published: June 03 To anyone that is dealing with your thyroid or removal I feel your pain. I was diagnosed with three types of cancer in my thyroid. My first biopsy did not provide enough cells, so I had to wait months to get the second, which gave the cancer time to spread to my right frontal lobe after getting thyroid removed. I know I will never be the same. Comment from: lauraw89, 45-54 Female (Patient) Published: September 03 I have been struggling with thyroid issues for years, at least since my teens. I am 52 now and had my thyroid removed last year. I am in terrible pain. I can't think straight. I am struggling to raise two grandchildren. I take 400 mcg of Synthroid. It isn't helping. Comment from: phs, 45-54 Female (Patient) Published: July 12 I was diagnosed with Graves disease and had 2 treatment of radioactive iodine. I now have hypothyroidism, and have been on Levoxyl for many years with no problems. They pulled Levoxyl off the market and I was put on Synthroid. My side affects are terrible and my test results weren't good so they raised my dose from 88mcg to 100mcg. Comment from: 45-54 Female Published: January 22 With my thyroid disease, I get cold and I can’t get warm at times. Then I’m hot when it’s cold outside and I don’t want to wear a coat. I get a small ache in my upper throat sometimes, and I often have no energy and I want to sleep a lot. Comment from: mary, 55-64 Female (Patient) Published: January 11 I have been diagnosed with thyroid problems for years now and I also have Addison’s disease. Lately I have noticed my memory has become very poor; I have aching joints, and my eyesight appears to have deteriorated. I presently take an anti depressant for sleep which doesn’t work. Comment from: DAB213, 65-74 Female (Patient) Published: January 05 An Ear, Nose & Throat Surgeon just recently removed my right Thyroid, along with the Isthmus, and a large tumor on the right side of my right Thyroid. He left 3 benign tumors and many nodules. The large tumor removed was also benign. I didn't even realize I had a problem, and thought my gruff voice change was due to the aftermath of a bad cold (I waited 5 months) until my regular MD noticed the swelling on both sides of my neck. My surgery went fine, but I now have no energy. I was like that before, but more so after the surgery. I'm not on any medication yet. I go back to my surgeon on Jan 20, 2010 for a follow up and I guess he will determine what to give me then. Comment from: danish, 25-34 Female (Patient) Published: January 04 In 2007 I was diagnosed with an enlarged thyroid with nodules. I had an ultra sound and an uptake scan done. They had an endocrinologist that would not see me unless my levels were abnormal or I was having difficulty breathing. I went two years now with nothing being done with this. Then one day, I said the words “Hashimoto’s disease” and the man decided to send me to a new endocrinologist. And they have sent me up with lab work and a fine needle biopsy. Soon I will have the relief I need. Comment from: Colleen, 55-64 Female (Patient) Published: November 30 My hyperthyroidism has been treated with a radio-active pill, but it has been 4 months and my blood work has not changed much at all. I am not experiencing electrical impulse feelings in my abdomen area and up to my belly button. It is the weirdest feeling and they come and go. Comment from: bannana boat, 45-54 Female (Patient) Published: November 30 I felt like I had the flu most of the time. My body ached all over. I always felt cold, I would feel dizzy, and have fainting spells. Plus I gained about thirty pounds. I could hardly drive anymore because I felt like I was going to faint, when I was behind the wheel. My hair was getting thin too. I've never had to wear glasses but now I have to. I was also always fatigued. Plus I would have heart palpitations. I suffered for about a year and a half and finally went to see my doctor. She sent me to get an ultrasound, and the doctor asked if I had always been on the thin side, I said yes. She said it probably burnt up because it used to be overactive. My doctor gave me medications for the condition, but I still feel cold a lot and usually fall asleep while watching movies. On the plus side, I've lost about 36 pounds. Comment from: dif, 45-54 Female Published: November 30 It's amazing how often this disease goes undiagnosed until it has caused permanent damage to someone. Why hasn't the medical establishment changed the way they diagnose this disease? Comment from: gee, 35-44 Female (Patient) Published: November 17 I noticed that for the past couple of months, I haven’t been feeling so well. I have panic attacks, which are coming more often and now they are accompanied by dizziness. One day, I am full of energy and the next day, I’m so tired, I can’t even get out of bed. I am on thyroid medications, but I just haven’t been feeling right. Something seems out of place. Comment from: louait101176, 25-34 Female (Patient) Published: November 11 Hi... After several years of tiredness weight gain etc I decided not to go back to my doctor. Then one day my colleague noticed that my right hand had swollen and was going a black/blue color. I’ve had this on and off for about 2-3 years and put it down to poor circulation since I was always cold. I saw a neurologist at the local hospital and I am now currently waiting to go next week for a fine needle aspiration on a cyst found on my thyroid. Over the past few years there has been no problems with my blood apparently it’s been clear. I thank my colleague as health problems have plagued me for almost 3 years and if it’s thyroid cancer they say ill get it fixed and hopefully be back to normal somehow. Comment from: Illinois, 35-44 Female (Patient) Published: November 02 I just read all the comments from everyone and I'm sad to hear that no one out there has made any positive comments. I had Thyroid cancer removed on May 08 which as we all know it's a difficult road to go thru, but I'm encourage to know that I feel wonderful and that I haven't gained any weight I mostly do watch what I eat I just want to know if there is someone out there who has had their thyroid removed and is currently taking med and feels good I believe that we can take this disease and not let it control us, but us control it by doing all the things that we should to stay healthy. Everyone, please know that we can overcome this and we will. Please keep a positive attitude so that we can deal with this situation. By the way I am currently on the low iodine diet. My husband tells me just to think positive and stay encouraged. I want all you people to feel the same way, too. May the lord bless you all and know that he knows our bodies and we are not alone. Thank You! Comment from: cvttejim, 65-74 Male (Patient) Published: October 27 I am presently 69 years old. In my teens, I had radiation therapy for severe facial acne. I had this done monthly for about two years. About 20 years ago, doctors commented on my enlarging thyroid. About 10 years ago, a specialist recommended removal of my thyroid as recent information indicated persons that received excessive radiation for acne treatment were more than 50% likely to develop thyroid cancer as they got older. I had surgery in 1999 abd I currently take l-thyroxine, 200mcg/day. No known problems now! Comment from: lilnikki, 25-34 Female (Patient) Published: December 28 The problem I'm having is finding someone to listen to me about my symptoms. They just want to say I'm suffering depression but I have all the symptoms of thyroid disorder my hair has always been really thick it has been coming out really bad I have aches and pains that are unexplainable I have very bad night sweats I constantly keep a headache I've gained 20lbs even though I workout but the first thing I'm told is it's depression because I was recently laid-off and I have had issues with anemia so that must be the cause of my problems I need someone to listen. Comment from: Chris, 65-74 Female (Patient) Published: December 17 I have COPD which hinders my breathing. Now I have been diagnosed with thyroid problems, plus I have a goiter also. When I was 34 I had this problem and had the goiter taken out because it was lying on my windpipe and cutting off my breath. I now have the same systems but they think it is all because of the COPD. I am very concerned about this, but the doctors don't seem to hear me when I complain. I am being treated for both. Comment from: sailor, 35-44 Male (Patient) Published: October 27 I am a male age 41. I served 2 tours in Iraq I returned home with injuries. I have always been tired and depressed. I found out I was born with less then half of a thyroid after they treated me for another injury. I have suffered and now I'm told this was the cause of the mental depression I battled all my life and the reason for all of those tired and low energy days. I have always been sad since I can remember someone please explain how this could happen.