Main Article on Thyroid Problems Question: What were the signs and symptoms of your thyroid disease? Submit Your Comment Comment from: SiwelJ, 65-74 Female (Patient) Published: July 09 After years of misery suffering with hypothyroidism I adopted a ketogenic diet which has reduced most of the symptoms - I lost all of the excess weight and halved my medicines. I went back to the general physician and said I wanted to understand why I had hypothyroidism and what it was about the keto diet that was helping. The doctor was not interested. I was told it could be simply genetic and would get worse with age. Frankly I have been let down for 30 years - it wrecked my marriage and prevented me progressing at work. Comment from: Ready2Live, 45-54 Female (Patient) Published: March 19 I have had nodules removed from my thyroid twice. However a few months ago I knew something was wrong. I was exhausted and feeling horrible mentally and physically but because bloodwork was low normal my general physician was not alarmed. I set up an appointment with an endocrinologist that did an ultrasound to discover my thyroid had been overtaken by nodules and cyst. I had a total thyroidectomy. Physically and mentally I feel amazing. Take medicine as directed, it doesn't taste like anything but water. Comment from: Kelly, 45-54 Female (Patient) Published: July 13 I have had a chronic cough for 4 years, audible stridor at night, and hoarseness. All my thyroid lab tests are normal. I did have a parathyroid tumor that was removed approximately 4 1/2 years ago for primary hyperparathyroidism and this is now corrected. I have had a thyroid nodule that went from 0.7 cm to 1.5 cm in less than a year. I know there is something wrong as I just do not feel well. My endocrinologist says his threshold is 1.5 for biopsy. How do I convince someone to do a FNA (fine needle aspiration) based on my symptoms! Comment from: Cindy, 45-54 Female (Patient) Published: October 20 I have hypothyroidism and Hashimoto’s thyroiditis. I was diagnosed in 2006. I have been taking levothyroxine and according to my blood test seem to be on the right dosage. However I am now experiencing bad muscle and joint pains and it is getting worse and is making me have struggles going to the gym because I am too stiff and achy. Also I have been continuing to gain weight. I am very frustrated and don't know what else I can do. I have talked with my endocrinologist and she isn't much help other than telling me I need to lose weight and get on a 500 calorie a day diet. Really! I would have no energy at all with that calorie intake. Comment from: livingonborrowdtime., 35-44 Female (Patient) Published: May 14 Wow! I agree with the keep the prayers going. Keep up with the good nutrition and sleep the best we can. I too was treated for graves disease. It has been a long battle with the medication levels and blood work. I just live my day as if it’s not apart of me. I do what I have to do every day, even when It feel tiresome. I can’t change it. So why try. The oblation so far has given me many extra years, I believe. The more I argue with my body, the worse I feel. So I don’t argue with it and learn to cope and live with it. I’m alive and feeding myself spiritually which helps me get through some of the tougher times. I do believe it effects others in the emotional sense as well. That is why I believe it is very important to lift each other up in positive ways, daily. We will be ok. We are survivors. I have health stuff all the time. I go to my doctor and I do what he says, take my meds the way I am told, get my test when I am told, and don’t leave any bits of info out when I talk to my doctor. Sometimes its just apart of who we are and apart of how we were made. We can’t argue with Gods handiwork. God made us exactly the way we are for a purpose. So when I argue with the way God made me, I am arguing with his handiwork and saying I know what’s best I surely don’t. Gods Blessings to everyone and many prayers are going out to those who are like me. Comment from: Angry Patient, 35-44 Female (Patient) Published: January 27 I switched to a functional medicine doctor for my thyroid problem because I went to 2 endocrinologists and they basically did nothing. The one almost killed me because he didn't believe me about going into anaphylactic shock due to the buffers in generic levothyroxine. If you want real relief, do not see an endocrinologist, see a functional medicine doctor. Since seeing the functional medicine doctor, my joint pain is gone, I'm starting to lose weight, and my energy is back. Comment from: Yanal, 55-64 Male (Patient) Published: September 16 In 2014 I was diagnosed with thyroid goiter. My endocrinologist after doing all the exams and blood tests decided to go for thyroidectomy surgery, and after 3 days my thyroid was totally removed. Since the surgery time I have felt like I'm another person, the whole anger and the changing moods has been changed. My body and health condition also stabilized, but to be honest I have to make tests every 1 to 2 years. Since then I also keep on my pills at the exact time daily, and avoid junk food. Comment from: mounds, 25-34 Female (Patient) Published: November 03 Well i just got back from the doctors today and I’ve already been diagnosed with hypothyroid about 6 years ago after my second child. It was a relief at that time to have the pill that made me feel alive again! as time went on i switched doctors and have had my dose increase from 25mg to 125mg a day with an extra 25mg on opposite days. Today it’s been increased again to 150mg a day of synthyroid. I’ve gained another 20lbs and i work out at least 3x a week and eat healthy and do yoga. It’s frustrating to struggle with my own body and keep my mind in the right place as well to cope with the struggle. I’m also now taking a stomach acid reducer and that helps with the bloating. Good luck to those out there trying to balance your glands, it’s a long road! QUESTION Where is the thyroid gland located? See Answer Comment from: Todd, 45-54 Male (Patient) Published: September 09 I've had thyroid disease for about 6 or 7 years now. The once time per day pill works fine for me. I really feel like crap the next day if I don't remember to take my pill, which doesn't happen very often. I am overweight (about 235 lbs) and have trouble losing weight. I have been able to manage it and loose a little when I don't overdo it with exercise or dieting. If I exercise heavily, I become constantly hungry, so that doesn't work for me. Taking a good walk works on reducing appetite and losing weight. I also have trouble sleeping again if woken up at night or during the day. The meds will do that do you. Comment from: JW, 25-34 Female (Patient) Published: August 31 I was diagnosed with hypothyroidism about 6 months ago. At the time, I was seeking treatment for heart palpitations and extreme fatigue, but after the diagnosis so many things made sense. Family members commented that I always seemed to be tired, but since I have always been busy and overweight I chalked it up to that. I've never been able to grow out my fingernails, because they were too thin and brittle. I had noticed what seemed like a lot of hair in my brushes and in the drain. And my periods have always been irregular and heavy. I had accepted so many things as just "how I am," and now I'm finding that they may have been symptoms! We're still trying to find the right dosage, but even at 25mcg I noticed that the floor of my energy level had gone up a little. I was still tired a lot, but it felt more manageable and responded better to getting more sleep. My nails are growing for the first time in my life, and my hair isn't falling out quite so much. Plus, most importantly, I haven't had any palpitations since I started the medication. I know I've had it relatively easy in terms of symptoms, but I'm really happy to have found a way to "fix" some of the things I thought were unfixable. Comment from: Scott, 55-64 Male (Patient) Published: August 03 I was diagnosed with graves after a very hard divorce. I suddenly got very anxious and got extreme tremors (body shakes) lost 30 lbs very quickly even though I was eating all the time. My first blood work showed a total t-3 of 430. I was put on tapazole to lower the t-3. All the while getting worse my total t-3 raised to 650. They increased my meds and my t-3 started to lower so they lowered my meds. As soon as my meds were lowered i went into what the doc said was a storm. My t-3 levels soared to 680. My body could not handle it as my heart beat was 120 to 140 all the time. My meds were increased again. This went on for 4 years and my thyroid was completely removed. I felt super energized for about a month. Felt great! It has been just over a year now and they can't seem to get my replacement meds right. I started on 112mcg's of levothyroxine and got worse. Doc reported that mt tsh was high so they lowered my dosage to 88mcg's. Next blood test showed my tsh to be high again so they lowered my meds to 75mcg's. I felt good for a short time but started to get more and more weak and lethargic. My body also ached all the time with no quality of life at all it just seemed that my body was under attack all the time. more blood work. This showed I was hypo but not gaining any weight. I am currently taking 88mcg's levothroxine and feeling worse by the day. I want to sleep all the time and am very weak with body aches all over. I can sleep 15 hrs and wake not feeling like I have rested and 3hours later i want to go to bed sometimes having to. I am unable to do any inside or outside chores. I have remained 30lbs under my healthy weight have now energy and my body aches all the time. I am wondering if there is another replacement medicine other than levothyroxine. My doc only goes by the numbers from blood work and I'm beginning to think that they should be going by what my body tells me. I have no quality of life and have not for the last 6 years. It is a terrible disease and has basically taken away the life I once had. Comment from: sarah, 75 or over Female (Patient) Published: December 09 My doctor said that my thyroid was not doing its job and that I needed a stronger dose of levothyroxine, after a blood test. He said that it would give me more energy like I don't have enough now! It seems that as we grow older we are on medicine that we were not before. One less pill to take is fine with me as I take too many now. Comment from: marie, 45-54 Female (Patient) Published: February 14 I had my thyroid removed due to 3 cancerous nodules. I am on levothyroxine. I can't get my doctor to even test my T3, so I'm learning all I can. Comment from: Shonnie14, 35-44 Female (Patient) Published: July 05 I am told my thyroid is large and have to have a X-ray. I'am 42 and have 4 kids ranging from 23 to 11. I sweat often especially at night my weight has been 225 for the last 4 yrs. I'am tired all the time get headaches the same time everyday. Comment from: Lindamcb58, 55-64 Female (Patient) Published: May 29 I gained weight for no reason, and I was always so sleepy that I had trouble doing everyday chores. Comment from: ss Hashimoto, 65-74 Female (Patient) Published: March 22 I have Hashimoto’s disease. Yesterday my doctor thought the right side of my thyroid was large and the left side very small. He sent me for a sonogram, which confirmed the situation. SLIDESHOW Hyperthyroidism Symptoms and Treatment See Slideshow Comment from: Jakethesnake, 35-44 Female (Patient) Published: December 24 I have a hefty cough, large swollen ankles and am very tired. Comment from: feeling good, 45-54 Female (Patient) Published: November 26 I have been on Levothyroxine sodium for the past 12 years. I have gained over 50 pounds. I just did not feel like doing anything. I finally tried a diet that has worked for me. The diet I am on is called Wellness Weighs. I have lost 35 pounds and feel great. I have 15 pounds to go. I have tried many different diets to no avail. This one worked for me because I was ready to face the fact that I put the weight on. I am now ready to take that weight off. I know having a thyroid problem has made things more difficult for me. I found a diet that does work when it is used correctly. Comment from: Mari, 75 or over Female (Patient) Published: September 21 A few years ago I started feeling more tired than I normally felt. That is when my Dr. did a test and she said I needed to start taking Synthroid. The next test showed I needed a little more. I was having trouble swallowing and I was sweat profusely with small amounts of activity. I continued to be tired and needed naps. Comment from: Chavez, 19-24 Female (Patient) Published: August 10 I am 19 and had have my thyroid problem since I was 9 years old, my parents tried to get me the care I needed they had to drive four hours in order for me to see a specialist. At the age of 14 I stopped the medication we were no longer able to afford the meds and the long drive. My thyroid was fine up until I turned 19 after I gave birth to my son. I am always exhausted, sad and terribly cold. Comment from: MAvis, 65-74 Female (Patient) Published: July 05 My symptoms of thyroid disease were difficulties swallowing; some soreness on the left of the neck; very hot when other people are feeling cold; depression/anxiety occasionally; headaches; tremor of the hands on some occasions; have put on weight even though not eating any more or any differently; a feeling of bloating of the stomach and swelling in the stomach. Comment from: BB, 25-34 Female (Patient) Published: April 30 My signs and symptoms of thyroid disease were fatigue, tremors, palpitations, weight loss or gain, and diarrhea. Comment from: the woo, 55-64 Female Published: April 30 When I was about 40/41 I started to notice that I was tired a lot and had to have a doze in my car during my lunch hour and when I took my young daughter to ballet I would go back to my car and fall asleep. I'd had my first child at 36 and put it down to being an older mum but then I noticed a lot of hair in the bath tub when washing my hair and decided to see my doctor. After a blood test I was diagnosed as having an under-active thyroid and put on thyroxine. Published: April 16 I am a 52-year-old female. My thyroid is painful to the touch and has been for a long time. My doctor can’t seem to figure out why this is. All he does is just keep me on medicine and will occasionally adjust it. I am also very tired all the time and have been for a long time. Recently I had a cyst removed from my pituitary gland. The doctors had hoped that the surgery would help with my excessive sweating and low energy level but to no avail. Comment from: concerned guy, 75 or over Male (Patient) Published: April 10 A blood test determined that my thyroid is inactive. I began taking Levothyroxine, but I have lost my sense of smell and taste. Comment from: k, 25-34 Female (Patient) Published: March 27 I found out last year that I have thyroid disease. I went to the doctor, who did a blood test and found that my thyroid is overactive. I don’t know what that means, but I am now on medication. Comment from: cece, 35-44 Female (Patient) Published: January 25 I have dry mouth, fatigue, body aches, heart flutters, high anxiety and weight gain for no apparent reason. I’m not a heavy eater at all. I also have dry skin and hair loss. My father had an overactive thyroid in 1996. Comment from: Wanda, 45-54 Female (Caregiver) Published: September 21 I encountered symptoms seven months after the birth of my first child. With my mood, energy levels dropping, weight increasing, and sleep pattern disrupted I continued to take an antidepressant. It took me four years to get pregnant with my second child. After this pregnancy I hit rock bottom. I had fibromyalgia symptoms and could not function daily. Some more testing revealed that I had an ANA antibody level of 1/100. At which time my doctor sent me to a rheumatologist to find that it wasn't other autoimmune diseases such as rheumatoid arthritis, lupus, but Hashimoto’s thyroiditis. The new medication made me feel alive again. Energy increased, sleep pattern was better and best of all no more aches and pains. I have had it for 24 years and struggle daily as once you have the antibodies you continue to have symptoms. Comment from: Gmama, 45-54 Female (Patient) Published: September 06 I was sleeping day and night with no energy to do anything. My fingers always felt like they were numb and I was also on medical diet. I did everything I was told to do and I even tried to make myself workout three days a week at YMCA and couldn't lose any weight. I didn't know I had a problem until I had my yearly checkup. I told the doctor was I feeling badly. He tested me and got my answer to my problem. I never thought it would be my thyroid. Please talk to your doctor, have yearly checkups it may save you a lot of wasted time. I wish I would have spoken up sooner. Comment from: judith, 35-44 Female (Patient) Published: August 24 I had gained a lot of weight and was seeing a dietician. I had lost 25lbs with diet and exercise and just stopped losing. I started having problems sleeping, and my heart would beat really fast. I felt like I was going crazy. It went on for months. I had no energy. I kept going to my doctor, and finally I remembered the dietician talking about my thyroid. Although you could not see a lump in my neck I asked the doctor to check my thyroid, he could not feel anything, and my thyroid levels were normal. I think he did an ultrasound to make me happy, and it turns out I had a tumor on my thyroid that was malignant and I had a follicular cancer. The tumor had ruptured and was pressing on my windpipe, which explained my inability to sleep. I had a total thyroidectomy and continue to take thyroid medications. Comment from: mandy, 45-54 Female (Patient) Published: August 12 I am 45 years old and I have been diagnosed with overactive thyroid. I sweat all the time and I don’t sleep very well and I find it very hard to swallow. I am always out of breath all the time, even though I do a lot of walking as part of my job. Sometimes I feel high the next day and now I’m feeling down in the dumps. I have put on some weight and I ache a lot. Comment from: kalpana, 13-18 Female (Patient) Published: August 08 My eyes have swollen due to a thyroid imbalance. The size of my waist is also increasing. Comment from: Blondie, 45-54 Female (Patient) Published: August 01 I am female and was diagnosed with Hashimoto disease at about 35 years old. I suffered huge weight gain, face broke out in rash, and my hair fell out. Comment from: Theo, 65-74 Male (Patient) Published: July 18 I am a male of 69years age. I have had thyroid problem for about 26-27 years now. My first symptom was weight loss and there was lot of sweating at night with loss of sleep shakes in my hands and legs with palpitations I didn't know what was. After several visits to my GP he finally sent me to see a specialist. In fact he came out to the house due to my heart problem .Three to four days later, doctors diagnosed an overactive thyroid. I was then sent to a larger hospital and given a radioactive iodine swallow, which stopped my overactive thyroid but left me with palpitations. Comment from: no better, 55-64 Female (Patient) Published: July 18 I have had hypothyroidism since 1990. Before being diagnosed, I could not wake up less than 12 hours after going to sleep. My doctors did not listen to me and told me that I was just lazy. I never gained weight and nothing was ever wrong with my hair, but I did have dry, flaky skin. I went to a new doctor who found out I have hypothyroidism. Comment from: ruth vallejo, 35-44 Female (Patient) Published: July 11 My symptoms where gaining a lot of weight, hair loss, fragility, fatigue. Comment from: 45-54 Female (Patient) Published: July 05 I was diagnosed with antibodies for both Graves and Hashimoto's diseases about 12 years ago. My thyroid was supposed to have been deactivated with radioactive iodine. Comment from: gardener, 55-64 Female (Patient) Published: July 05 Tired all the time, fatigue after smallest exertion, big weight gain, muscle aches and pains, dry skin and hair, poor sleep, depression - with classic symptoms of Hashimoto’s. I was diagnosed very quickly by my GP, who told me that tablets he prescribed would take me back to 'normal' immediately. This has never happened. Comment from: Starburst, 55-64 Female (Patient) Published: July 05 When I was 30, during a gynecological appointment, my doctor found that my thyroid had a growth on it, or that it had grown larger. At that time they told me I had to have the thyroid partially or fully removed depending on what they found. Since they didn't find any thyroid cancer, they only removed 85% of it. I have been on Synthroid ever since Comment from: sgs1969, 35-44 Female (Patient) Published: July 05 I am 41 and was diagnosed at 23 with a small goiter and hyperthyroidism. Over the years I have been on and off medication. at the age of 36 I was diagnosed with Grave's Disease, and left to my own devices. I wasn't sent to a specialist or anything. Never understood what it really was nor what would happen to my thyroid over the years to come. I went back to the same GP who sent me for an ultrasound in January 2011 to discover two small "cysts" on the right side, one being 3.4ml and the other 3.8ml.. Just recently I went to my new GP who sent me for another ultrasound to check the known "cysts" only to discover I have three more "cysts" on the left side of my thyroid. The smallest is 4.7ml, another 5.2ml and the larger being 6.3ml. I am yet to see an Endochrinologist to find out what is to be done with these "cysts". It's a very daunting thing to know now what possibly lays ahead. The worse part is the not knowing. To anyone who is suffering from thyroid problems, don't give up hope. If you are not happy with your treatment, seek other ulternatives. The side effects from a thyroid problem is not pleasant. Always know you are not alone as there are thousands of us out there with different yet similar stories. If you find yourself a good doctor stick with them. Please be sure to ask your GP for information and ask questions about your illness as you are better off being pro-active in your treatment and understanding what is going on. Use your internet to research your problems but don't take everything you read on board. Most information given comes from thousands of case studies by doctors who specialise in our problem. Wishing each of you all the best. Published: June 10 Before I was diagnosed with thyroid disease, I experienced sweating, nervousness, pains in hands and feet, and dry mouth. Comment from: Male (Patient) Published: March 22 Hi! I’m a 44 year-old male. My swollen right hand few months ago, now just not feeling right in the head, sort of dizzy, heart pounding, constantly clearing throat, 3 doctors said it was anxiety. I’m finally getting tests. Found a high infection but source is unknown, thyroid came back showing problems. I have more tests to be done, glad to find others have similar problems. Comment from: elaine, 45-54 Female (Patient) Published: March 21 I was very weak and tired and blurred vision and unable to focus on words written down. I unable to concentrate on things and had a feeling that I just can’t be bothered with anything. Comment from: tajammal, 55-64 Male (Patient) Published: March 02 I am a male of 62years age. I had thyroid problem about 6-7 years ago. My first symptom was weight loss and there was lot of sweating at night with loss of sleep. Three to four months later, doctors could not diagnose it. Some say that it is due to diabetes, but I was sure that this problem was not due to diabetes. So, I started checking all medicines leaflets which I was using for diabetes. I reported my findings to the doctor & he took the blood test & found that there was a thyroid problem which was too much active. I was cured and I am ok now. Comment from: Anita, 75 or over Female (Patient) Published: February 28 I have had severe hypothyroid problems for the past 3 years. I have seen several specialists and no one has been able to help. Also tried numerous combinations of thyroid prescriptions and my body has rejected them all. Comment from: 35-44 Female (Patient) Published: February 28 I am a thyroid patient since 15 years. I have tremors in my head and I’m nervous all the time. Comment from: ani, 35-44 Male (Patient) Published: February 24 Early on in 2010 I caught a cold that just wouldn’t go away. Every month I had to see the doctor at least twice a month. Then I started feeling almost all the symptoms of hypothyroidism (I didn’t know it then), friends and colleagues started commented on my "puffy" face and weight gain. Then I went for a physical checkup in July 2010 and discovered that my thyroid was almost destroyed. Now, almost all the symptoms have reappeared and I am at a complete loss. Comment from: 65-74 Female (Caregiver) Published: January 18 Before I was diagnosed with thyroid disease, my voice was weakening and I was having trouble swallowing. Comment from: elizabeth , 45-54 Female (Patient) Published: May 26 I have thyroid problem I had it for a few years. The doctor always telling me the same thing. It’s nothing but how come I always feel sick. My hair is falling out I am gaining weight. I feel tired all the time and I don’t have any energy. I am always gaining weight. Always feels like I have a cold my head hurts all the time and I hurt all over. I cant live my life the way I want to because of this disease. Comment from: hopennels, 45-54 Female Published: April 21 My throat hurts often, has a raspy sound often and I work out with a high impact program. I lose and gain the same weight. I get tired easily; have to take a nap everyday sometimes 3 hours straight. Comment from: pauline, 35-44 Female (Patient) Published: February 03 I was diagnosed with an over active thyroid 16 years ago, and a goiter, but I am not on any medication. Have not been for at least 15 years. My symptoms are palpitations, swollen ankles, hair loss, and weight loss. My toes and the tops of my fingers go numb as well. Comment from: somecalifornian, 45-54 Female (Patient) Published: April 12 I had cold thighs, sleep problems, afternoon fatigue and difficulty concentrating. Later my voice was hoarse and I had difficulty swallowing and muscle weakness. Comment from: Ms. MW, 35-44 Female (Patient) Published: January 27 I am always fatiqued, cold, losing hair, and I had difficulty swallowing.