Main Article on Thyroid Nodules Question: What were the symptoms and signs you experienced for thyroid nodules? Submit Your Comment Comment from: Lisa , 35-44 Female (Patient) Published: April 02 I am going through something unusual for me. I'm 36 years old. I have had hypothyroidism for about 10 years. Recently a large left sides lower lobe thyroid nodule was detected in ultrasound. I have swollen lymph nodes in my neck and armpits, and muscle burning and pain in arms and shoulders. I am worried about thyroid cancer and it spreading to the lymph nodes. Comment from: Mimi001, 45-54 Female (Patient) Published: March 03 I was having difficulty swallowing which caused severe anxiety. Found a lump that was getting bigger, at first palpable but then visualized. I went to the emergency room (ER) for what I thought was thrush, the ER doctor was more concerned about the lump and did a CT. He stated there were two and referred for ultrasound. The general physician did an ultrascan in his office and found 3 thyroid nodules all under 2 cm but 2 were very close. One was 1.99. I was referred to an endocrinologist and she found 5, with 2 of them being somewhat worrisome. Fine needle aspiration is scheduled for 3/16. Comment from: Max, 65-74 Female (Patient) Published: June 27 I went on a keto diet six months ago. About the fourth month into the diet I noticed I was having very bad hot flushes and sweating at night. I thought it was because of the keto diet. I mentioned the sweating to my doctor and he ordered a CT scan. Last week the test came back that showed I have several nodules on my thyroids. I’m really scared because I had breast cancer eighteen years ago and the first thing that comes to the mind is the C word. My doctor said thyroid nodules are 90 percent noncancerous. Comment from: Kathleen, 55-64 Female (Patient) Published: February 12 I've had a sore throat that was feeling tight for a few months, and a few weeks ago, I developed an obvious goiter. It grew and became obvious within a matter of a couple of days. An ultrasound revealed a 3.6 cm thyroid nodule. My thyroid hormone tests were normal. I have developed a multitude of symptoms: vocal changes, dryness, constipation, easily short of breath, and occasional heart palpitations. I asked my primary care physician (PCP) to refer me to an endocrinologist who specializes in thyroid nodules. It takes more than a month to get an appointment with him. She refused to do so until my biopsy (scheduled for February 20) results are back, and that certainly won't be instantaneous. Due to the size and symptoms accompanying, surgery seems almost a certainty, and I am concerned about vocal cord or heart damage. The worst part is my doctor has given me no information whatsoever. I've asked a few times about how to deal with the symptoms and have gotten no answers. Everything I've learned about the nodule has been from reading the AACE (American Association of Clinical Endocrinologists) website or other reputable medical sites. Historically, my PCP has been wonderful, but she has really left me on my own on this one, and I feel her decision to delay referral is not a good one. Apparently, unless I want to get a second opinion, I'm headed for months of continued pain. I am less concerned about a 'bad' biopsy than the other potential damage while this drags out. Comment from: Jennifer, 55-64 Female (Patient) Published: May 16 Nearly 25 years ago I went to the doctor with the following symptoms: hair loss, weight gain (about 10 pounds, and fatigue. I was 33 years old at the time, and it seems that he didn't think much of the symptoms and made some healthy lifestyle recommendations. Around the same time I had a gynecology appointment and upon that examination the doctor physically examined my throat area and had me swallow. He detected a nodule and referred me for further testing. This led me to seek the care of an endocrinologist who ordered a biopsy. The facility that conducted it used a tool with a scoop on the end to extract the cells. The procedure was painful and left a small puncture mark. Results indicated some cancer cells present, and I ended up having surgery to remove the right lobe. I had the surgery and turns out that the gland did contain a very small malignancy (and multi-nodular goiter). I was placed on thyroid medication and have been taking it for nearly 25 years. My endocrinologist retired and my primary care physician has been treating me for the thyroid issue. Recently I decided to seek treatment with endocrinologist. Upon first exam, she felt a hard nodule on the left side and sent me for further testing. I had that biopsy. This time the procedure was done with needle and use of ultrasound so that physician was able to go directly into the nodule. It was still painful but not so much as my first. I'm now awaiting the results. I hate the thought of having to go through this surgery again. The reason that the other lobe wasn't removed at the time of my initial diagnosis is that it's statistically unlikely to have cancer in both sides of the thyroid. Or, at least, that's what my first endocrinologist claimed. Hope he's right. Comment from: JNgirl, 35-44 Female (Patient) Published: September 13 I was tested a year ago and it came back that my thyroid is fine and no problem. Now I got tested and I have low thyroid. We did ultrasound and I have these pea size nodules all over my thyroids. I don’t know what they are. My doctor tried putting my next visit off for 8 months and I asked for a referral to a specialist. I don't know anything about what these things are. Comment from: Nancy, 65-74 (Patient) Published: September 04 I have severe pain on the upper right side of my back. The pain has been there for at least 6 months or more. Two weeks ago it got much worse and doubled me over. It is a constant pain. I wonder if it is from thyroid nodules. SLIDESHOW Hyperthyroidism Symptoms and Treatment See Slideshow Comment from: Cherie, 55-64 Female (Patient) Published: December 24 I began having trouble with intolerance to cold and heat, but mostly cold. I would also wake up with near extreme night sweats to where I would have to change my gown. I had trouble getting to sleep or staying asleep; low energy, an all over weak feeling as if I had low blood pressure, dizziness, and memory problems. I would also get these weird tingly sensations down my arms and legs and part of my body. I had hand tremors that varied from light to ridiculous. My hair, when in health, was fine and thick. By the time I finally got medical attention, my hair was course and thinning fast. I also had a lump or swelling in my neck. Often, in the area of my thyroid there was pain to the touch (on a scale 1 to 10, usually 1 to 4). I had trouble getting my doctor to do anything about it. When I found out that I could go to a specialist without his referral, I went on my own (much to his chagrin afterwards). My TSH was low, and I took the medicine for 3 months. Upon my follow-up, my ENT specialist took me off it because it raised my levels too high from the lowest dose he had prescribed. All this happened in September 2012 to April 2013. Oh, by the way, the ultrasound revealed nodules in my thyroid, biopsies were benign. The specialist said he would just watch it. After all this, the night sweats, temperature intolerance, memory stuff all but went away or stopped. Then fall of 2015, night sweats began again, I finally just butchered my hair because it looked so ragged. The swelling never did go away, nor did the on and off again soreness, but my TSH levels were always normal. And the temperature intolerance began, so I went to my new doctor. I just had another ultrasound, lots of nodules this time, TSH levels still normal, so now it's off to the biopsies again. Comment from: LMA1986, 25-34 Female (Patient) Published: November 17 For the past year, I have been trying to lose weight like crazy. I reduced the amount of bad foods and started bringing in healthier foods, such as eating egg whites and whole wheat toast for breakfast, broccoli for lunch, etc. I noticed that my weight was slowing going up. Over the past year, I have gained around 30 lb. and I am actually eating healthier and exercising more now than ever. I have noticed pain, especially on the right side of my neck, and there is also a bump there. I decided to mention this to my doctor and she had me get blood work done to check my thyroid, and an ultrasound. My doctor said that the blood work came back normal with my thyroid, but the ultrasound showed that I have multiple nodules on my thyroid and a possible cyst on the one side. I found this out back in October and was referred to an endocrinologist. My appointment isn't until December 10, so I have to sit and wonder exactly what it is. I was told that they would do a biopsy and possibly MRI to see how serious it is and then they will decide what to do from there. With my symptoms, I have experienced weight gain, feeling more tired than usual, memory problems, and period issues (being light or not on time). Comment from: feeling concerned 36, 35-44 Female (Patient) Published: April 10 Last week, I had a painful lump come up on the right side, back of my neck. Very painful to touch, and I could barely turn my neck from left to right. I asked my spine doctor and he said I needed to see my family physician for blood work. I have an appointment in 2 days. After reading similar stories from others, I may have to watch out if my issue is thyroid nodule. Comment from: Rational Thyroid, 35-44 Female (Patient) Published: June 10 I went in to see the Ob/Gyn for my regular physical, and the doctor found a nodule on the right lobe of my thyroid (I hadn't noticed it, myself). Ultrasound confirmed a 2.5 cm nodule. I have now been referred out to an endocrinologist, so I am waiting until my appointment to find out if it's benign or malignant or caused by Hashimoto's. I have some symptoms of hypothyroidism (a 15 pound weight gain I cannot shake, very low energy, some memory problems, etc.), but the symptoms are so non-specific and/or have come on so gradually that I cannot say for certain they are caused by hypothyroidism. I think I have always been a little low energy, and I have certainly always been intolerant of cold. I lost quite a lot of hair, but that was several years ago, not recently (I thought it was normal for your hair to thin as you aged). I have noticed my skin is much drier than it used to be--but I noticed it more during the winter, and so the dryness could have been caused by indoor heating and outdoor wind (or, once again, it could just be aging). I am nervous and scared, but I am trying to remain rational. Comment from: whats real at 46, 45-54 Female (Patient) Published: September 10 Looked in the mirror and noticed a lump under my "Adam’s apple" (but I'm a woman). Ultrasound indicated several nodules and cysts in both lobes and the isthmus. Awaiting official results of fine needle aspiration biopsy; although radiologist and pathologist think they are benign. TSH over the years has always been slightly under the "normal" range. But the T-3 and T-4 have been slightly above the normal range. There was no concern from doctors over the years regarding the blood tests. No other obvious symptoms. No rapid weight gain or loss. Hair loss, but its not thinning. Skin is not dry, but no longer oily either. Hard to tell if heart beat occasionally is rapid or if I'm imaging it. Tired, but who isn't these days. Comment from: Lila, 35-44 Female (Patient) Published: September 10 In 2006, I had a lot of pain in my muscles, joints and long and heavy periods, acne, weight gain, etc. I was diagnosed with Hashimoto’s thyroiditis and insulin resistance. I am on .025 Synthroid and 500 mg Metformin. I have been OK until last May 2008 when they discovered two swollen nodules on my thyroid. They are going to perform a needle biopsy. I have a hard time swallowing and even touching my throat. My hormone levels are normal, but my autoimmune antibodies are high. I am in tons of pain in my joints and muscles. I sleep all day long and night, my face is breaking out, and my periods are heavy again. My specialist said that it can't be from Hashimoto’s, but my family doctor said it is. I feel like I am going crazy, but the signs are all there that it is Hashimoto’s. I am just waiting on my biopsy to see what the next step is. QUESTION Where is the thyroid gland located? See Answer Comment from: jean, 55-64 Female (Patient) Published: March 22 I'm 58 and enjoy my life. My doctor found a 3cm nodule on my right thyroid. I have been tired and not very sociable, and I’ve had problems swallowing. I went to the endocrinologist and he wants to do iodine radiation. I have been told that I can't be around anyone or small pets for four days after the treatment. Comment from: 35-44 Female (Patient) Published: February 25 I experienced pain in my neck and sometimes a sore throat if I raised my voice too loud. I'm supposed to be going in to get an ultrasound and I am so afraid. Comment from: Janetm127, 55-64 Female (Patient) Published: December 03 I am a 56yr old female who has been dealing with a thyroid problem for over 10 years. I am on a thyroid replacement hormone. Recently, I woke up with pain on the right side of my neck. I thought it was from how I slept but the pain persisted for over a week. I called my doctor for an appointment because I noticed a lump developing. By the time I had my appointment the lump had gone down but as a precaution he sent me for a CT scan which showed I have enlarged lymph nodes and he is sending me to a specialist. I am scared due to the fact that cancer has already taken four of my siblings and one had her larynx removed and now speaks thru a tube. I pray that this is not serious. Comment from: Scared, 35-44 Female (Patient) Published: April 30 I’m 38. I went to see my gynecologist and he asked me how long my throat been swollen. I didn't know it was swollen. He sets up and ultrasound. The doctor calls me with the results saying my thyroid is very enlarged and I have nodules on the right side so he is referring me to an endocrinologist. I'm scared but waiting for my appointment to see the endocrinologist. Comment from: MamaT, 35-44 Female (Patient) Published: April 04 I too had the right side of my thyroid removed 2 years ago. I was having problems with dry skin, dried out hair, very cold all the time and I could not breathe properly and also my teeth hurt. The swallowing part was the worst, couldn't eat or drink some days. Went for a fine needle biopsy and it came back negative, the specialist said nothing was wrong and it was all in my head!! Well I went for a second opinion and that doctor put me in for surgery right away!!! Comment from: annie, 35-44 Female (Patient) Published: August 09 During a physical, my doctor felt a knot on my throat and suggested that I get it checked out. I never noticed any signs or symptoms and had just had a hysterectomy a few months before so, I was dreading any more doctor’s visit. I went to an endocrinologist and I had a sonogram, which showed several nodules. I had a few biopsies and I was told they were benign and that they were watching them. This process is very expensive and I am being told that I should have my thyroid removed. Comment from: 55-64 Female (Patient) Published: June 21 Last week a chiropractor that I was seeing for the first time told me that he saw something on my thyroid in the neck x-ray he had taken for other reasons. My doctor ordered an ultrasound and called me today to see a nodule. I am being sent for a fine needle biopsy, which will be done in the screening centre. I hope that this is appropriate. Like many of the others who had posted I am scared. I always worried about gynecologic and breast cancers but did not worry about the thyroid--I have never had any kind of thyroid trouble but my brother was diagnosed with thyroid cancer one year ago. This has come to me from left field and I am trying to stay strong but am dazed and confused. Comment from: Lopress, 55-64 Female (Patient) Published: June 07 I noticed swollen glands on both sides of my neck. I never experienced pain or difficulty swallowing. The ENT doctor suggested an MRI which picked up a nodule on my right thyroid. I then underwent an ultra sound/fine needle aspiration (very uncomfortable). The doctor who performed the procedure said that the right side of my thyroid was very cystic. He also said that this condition is very common and thought the cysts were benign. I’m nervously waiting for the results. Comment from: [email protected], 35-44 Female (Patient) Published: April 19 I have regular blood work done every 4-6 months, since I have diabetes, high blood pressure, and a myriad of other health issues. Well, on the last blood work-up there were abnormalities with my thyroid and so I had an ultrasound done. They found nodules on both sides. So, now I have to have more blood work done. After that I don't know. After reading the article I noticed that I had some of the symptoms and didn't realize. Like EXTREMELY heavy periods, that started to get heavier and longer, about 6 months ago. The longest lasted for 19 days!! Comment from: 45-54 Female (Patient) Published: February 08 I was diagnosed with a multi-nodular goiter when I was 29 years old. It gave me an occasional full feeling in the neck and also some weight gain and dry skin and hair. There was no attempted therapy and I was told it was not needed. 20yrs later, I had the same symptoms… a little worse and less tolerable. My goiter is now noticeable and with my hair thinning and I have cold intolerances, I'm getting kind of worried. My labs come back uneventful, but this thing is starting to inhibit my swallowing. My doctor finally referred me to an endocrinologist. I hope it’s not too late to fix and I hope I don't have to have surgery! Comment from: optimistic, 55-64 Female (Patient) Published: January 27 I am a 58 years old woman. I had breast cancer in 2006, went through lumpectomy, chemo and radiation. As a routine checkup I was sent in 2009 for a complete body Pet-scan where they discovered activity on the left thyroid. I followed with a sonogram of the thyroid and it was found that I have a nodule on the left side of the thyroid. My doctor sent me to an endocrinologist to follow up with blood tests and biopsies. Right now I am in the process of making my appointment with the specialist. Time will tell what else...Ladies do not despair. Majority of nodules are benign and treatments have excellent results. Good luck :D Comment from: 65-74 Female (Patient) Published: January 21 During a routine physical, I had an ultrasound and the nodules showed up. I now have to have a scan done. Comment from: jessib1977, 25-34 Female (Patient) Published: August 31 Last night my GI doctor sent me to the ER. She wanted a CT scan of my neck, chest, and abdomen. I've been having pain in my stomach and chest for two days. I was sent home after being told they didn't find anything. This morning my doctor called and told me they had found a nodule on my thyroid. I go tomorrow for an ultrasound. I have sat here and been thinking over the last year. My health has been steadily declining. For the last 6 to 9 months I have had constant pain, fatigue, hair loss, sensitivity to temperature, and weight gain. I had a total hysterectomy last year. I had attributed all of these to that. Now I wonder. I've had problems with my vocal cords, swallowing and even breathing well. I'm now completely terrified. I'm a single mom of three. My family has a strong cancer presence in our history on both sides. I just don't know what to do at this point. Comment from: worriedsick, 13-18 Female (Caregiver) Published: November 18 My daughter is a teenager and has a nodule on her thyroid that was detected 2 years ago. We have had a biopsy which was indeterminate. The nodule is growing and my doctor has given me the choice of another biopsy or surgical removal. I don't know what to do if the biopsy still says indeterminate there is still this nodule growing. She has no pain, but she is really fatigued and seems to get more colds than the average person. Comment from: Neglected, 55-64 Female (Patient) Published: October 28 I am 56 years old. My family doctor wanted to have tests done on my thyroid for the past 3 years. I was sent to a Specialist in November last year. He just ignored me after I went to see him. He told me to take iron pills as he thought I was anemic. I am experiencing severe chills and fatigue in my body. I finally took my friend's advice and went to her family doctor. He told me that I have a complex thyroid condition. He is sending me to a specialist of his choice on the 18th of November. The doctor that I just saw says I need a biopsy and surgery to remove the cyst and nodules that I have in my thyroid. I will be so relieved to finally get some medical treatment after 3 years. Comment from: 65-74 Female (Patient) Published: October 28 Nodules were found on both sides of my thyroid during a neck MRI and a biopsy. The doctor doing the biopsy said that they could only get fluid out of the right side and would have to have a nuclear biopsy on the left because 2 were buried to deep. My doctor was afraid of hitting an artery. When I finally called the referred doctor for the results and to schedule the nuclear biopsy she said she did not see anything to worry about. She asked when my next visit was which is next month and said we would look at this again. I am concerned. Comment from: shelly, 45-54 Female (Patient) Published: July 19 My ears hurt, swallowing seems to be difficult at times, mouth has been on dry side, I'll start sweating, feel like I'm going to faint, and feel lumps on my neck. I thought it was something else. I’ve been on Synthroid 0.125 for 3 months, with a level between 9 and 13.8.