Temporomandibular Joint (TMJ) Syndrome


What was the cause of your temporomandibular joint (TMJ) syndrome? Submit Your Comment

Comment from: Acheybreaky, 55-64 Male (Patient) Published: September 23

My doctor retired, my new doctor said I had to stop taking clonazepam after 15 years to twice daily use for GAD (generalized anxiety disorder). I was very ill in 4 days, and I began reporting what I later found out were symptoms of temporomandibular joint (TMJ) syndrome, repeatedly. I was treated dismissively repeatedly. Sixty days later another doctor diagnosed TMJD. I will never trust another doctor again.

Comment from: browneyes, 45-54 Female (Patient) Published: September 03

Back in 2011 I was rear-ended and at first, I seemed ok. Then the ear pain started, then came the headaches, dizziness, neck pain, and ear ringing, and I was having panic attacks. Eight months later in March of 2012, I saw a temporomandibular joint (TMJ) specialist and was told my jaw was out of alignment and I had TMJ. That explained why when I lay down it felt as if I was not breathing 100 percent. I was fitted with an appliance that realigned my jaw and I finally was relieved and felt normal.

Comment from: (Patient) Published: December 21

I have a stinging itchy roof of mouth and sores on inside of cheeks. These symptoms are from my cheeks getting into and bitten by my grinding of teeth, and when I talk, my cheeks and tongue also are bit by my teeth. I have been in awful pain for over one month. I am already receiving physical therapy for my temporomandibular joint (TMJ) syndrome, with which I get relief in my jaw for one or two hours. My tongue is moving at all times, as if it does not belong to me. Recently my lips have swollen up and are sore.

Comment from: Pain and click sound, 35-44 Female (Patient) Published: July 24

I started to feel the pain every time I open my mouth too wide, or hear click sound after I got teeth removal. Sometimes it hurts so bad but seemed like nothing I do or my dentist do could make the temporomandibular joint (TMJ) syndrome disappear. It is always coming back.

Comment from: Betty, 55-64 Female (Patient) Published: April 06

I have such a painful ear and jaw pain but my primary care physician keeps giving me antibiotics and my oral and maxillofacial specialist wants thousands of dollars, so I just suffer with pain from my temporomandibular joint (TMJ) syndrome. I have dentures and have had them for 20 years, just in the past 1 year it has been in constant pain. I do not know where to go but I do have a good health insurance PPO plan. Wish I knew who can help me.

Comment from: odel c., 75 or over (Patient) Published: February 02

I was diagnosed with temporomandibular joint (TMJ) syndrome some 27 years ago and advised to do some movements with my neck and mouth and the problem, if not disappeared, at least didn't bother me that much. I was given 3 doses of Prolia (one every 6 months) and I started having aches on my jaw; the dentist thought it could be a molar, and fixed it, but the jaw continued to bother me and I stopped Prolia treatment. Month later I was given ibandronate sodium tablet 150 mg that I took for 3 months and my problems got worse. The worst thing now is a noise almost like the tick tack of a clock mostly at night. I'm really scared, I've had neck MRI and my doctor does not see any problem with the neck. I don't know what doctor I can see in my neck area.

Comment from: jm, 25-34 Female (Patient) Published: November 12

I just found out last night that I have this. My headache was so bad it was a stabbing pain in my head. The emergency room doctor knew right away what it was. It surprised me! He has referred me to a dentist and I’m actually just reading about all of this online to educate myself.

Comment from: CAThomas, 65-74 Female (Patient) Published: August 10

TMJ makes me feel terrible. Some days I wake up and I'm fine and other days I feel really sick. The symptoms I have are subtle and sometimes I'll mistake them for a sinus infection or an ear infection. I have ringing in my ears and an awful pain in my neck and shoulder. I experience dizziness and mild nausea. I've tried the mouth pieces but they don't seem to help. For many years I saw an Asian doctor who gave me injections that helped tremendously. The injections were places in areas similar to the acupuncture points. The doctor passed away and now I can't find anyone to treat me. On the bad days I experience mild nausea, dizziness and mild mental confusion. I have also been diagnosed with fibromyalgia but I actually believe that the TMJ is the biggest culprit. The problem seems to be getting worse. I never know how I'm going to feel from one day to the next. I think other people just think that I'm a hypochondriac.

Published: August 10

I got shouldered in the jaw during a lacrosse game and have suffered from TMJ since then.


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Comment from: 45-54 Female (Patient) Published: May 30

My TMJ was caused from an auto accident in which I sustained whiplash and thoracic strain.

Comment from: 45-54 Female (Patient) Published: March 19

My TMJ was causes by overextended opening of the jaw for insertion of a breathing tube during surgery.

Comment from: SLC, 55-64 Female (Patient) Published: March 12

My dentist referred me to a sleep specialist and he is certain I have sleep apnea which is causing the lower jaw to go back and open the airways but the teeth to clench. I am doing a sleep study to see if it will be of any help.

Comment from: Flower, 65-74 Female (Caregiver) Published: March 08

The greatest relief and cure anyone can get from TMJ problems is with Bowen Therapy.

Comment from: wolfLady12, 55-64 Female (Patient) Published: January 13

The reason for my TMJ is a severe misalignment of the lower and upper teeth. The cause of my TMJ stems from a couple of blows to the jaw area and a fall where my face hit the sidewalk which caused broken teeth. TMJ is a very painful condition.

Comment from: SnowA, 35-44 Female (Patient) Published: January 10

I have severe osteoarthritis in both TMJs, although the right side (which was broken when I was young) is definitely worse. I had also had a tooth removed when I was a child and did not have my teeth aligned afterwards. My lower jaw is smaller than it should be (so the doctors say) which could also be a contributor. My TMJ is severe.

Comment from: Granny, 65-74 Female (Patient) Published: February 19

I never had any jaw pain until I had a tooth removed and the dentist sent my partial lower denture away to have a new tooth put on. Since then I have had chronic pain in the left side which stops me eating properly. When I cough, sneeze, yawn the pain is terrible. I had physio for 3 months. It helped a little (stopped jaw clicking) but didn't stop the pain. Exercises have not relieved the pain.


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