What symptoms did you experience with your rhabdomyolysis? Submit Your Comment

Comment from: Cruze, 3-6 Male (Caregiver) Published: July 02

My son passed away last September from rhabdomyolysis and severe hyperkalemia causing cardiac arrest. His potassium levels were 11 and his CK (creatine kinase) was 22000. Before that he had a common cold and a bit of a vomit bug, nothing abnormal for his age (6.5). Genetic testing was performed and he was diagnosed with Lpin1 metabolic disorder. My now 6 year old has also been diagnosed and is living with this. As a carrier we are not able to take statin drugs as this can cause rhabdomyolysis in carriers.

Comment from: dave, 65-74 Male (Patient) Published: April 18

My rhabdomyolysis symptoms were extreme tiredness, exhaustion, and weakness for 3 days, then total collapse and was unable to get up. I could not move at all, blue light ambulance to hospital for 15 days, on drip fluids, antibiotics, fluids and catheter for 7 days, and then antibiotics for further 7 days by drip. I still have muscle pains and am very tired 6 weeks later.

Comment from: Le, 35-44 Female (Patient) Published: May 30

Almost two weeks ago, out of nowhere I got rhabdomyolysis. I got a feeling of severe nausea with pain and couldn't catch my breath, and my arms and legs went weak and tingly. I was light-headed and dizzy, I blacked out, came to, and called 911. I continued uncontrolled nausea and vomiting, severe pain, severe cold and hot flashes, and sweats. I was hospitalized in the cardiac care unit and monitored for a little over 24 hours. They were concerned letting me go early but I have two kids. I was given medicines for nausea and pain but they wouldn't last long. I had blood test and blood draws. Lactic acid levels were high, CK (creatine kinase) levels were high and myoglobin was high. Upon returning home almost two weeks later I continue having muscle weakness, fatigue and just not feeling the same.

Comment from: MDANIEL, 35-44 Female (Patient) Published: May 29

I have excessive muscle strain in shoulder region because of rhabdomyolysis. I cannot hold my arm up for a long period of time or hold my purse or carry groceries for a long period of time.

Comment from: Cassie1227, 45-54 Female (Patient) Published: April 15

I am a 54 year old female who has been taking blood pressure medicines for about 16 years. But 3 years ago after a yearly physical my primary care physician (PCP) prescribed different statins because of elevated cholesterol, simvastatin, then pravastatin. Then about 1 month ago I developed what I thought was the flu. But upon arriving in the emergency room (ER), I was giving an EKG, chest x-rays, and lab work to find out I had pneumonia of my left lung, rhabdomyolysis, and a dangerously low potassium level. It will be 2 weeks tomorrow since I was discharged, and I am still very weak. The ER attending physician suspects that the rhabdomyolysis was caused by the pravastatin. I have since seen my PCP, and all he did was take me off the statin and suggest I drink more fluids. I'm confused the hospital made me think my diagnoses were serious, but my doctor didn't suggest any treatments at all.

Comment from: d breaux, 45-54 Female (Patient) Published: November 14

I was a marathon runner training at 90 miles a week, swimming 12 hours a week and cycling 12 hours a week. After about two years I noticed strawberry color u/a which over a month turned to cola color. I'm an RN and my husband is a OB/GYN and we didn't know what it was! Went to urologist and had cystoscope and was diagnosed with rhabdomyolysis. We runners are stubborn and I kept running and increased my water intake. This worked. I did develop a kidney stone the next year due to dehydration and it was a huge stone. It had to be surgically removed with a basket through urethra and I had stints. Still ran until I damaged my nerves which triggered fibromyalgia (no one really knows what causes fibromyalgia, though). After that diagnosis, I retired from running and walked 10 miles a day at a 9 minute pace. Miss running a lot. Be careful!

Comment from: chihuahua pup, 65-74 Female (Patient) Published: October 14

In my experience with rhabdomyolysis, I had very severe thigh muscle pain almost like a paralysis; back pain, tendons under my heel and feet painful, shortness of breath, palpitations, reduced kidney function, and elevated creatinine levels.


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