Restless Legs Syndrome (RLS)

Question:

Please describe your experience with restless leg syndrome. Submit Your Comment

Comment from: Nazz, 55-64 Female (Patient) Published: November 03

My restless leg syndrome (RLS) started about 2 am and I couldn't sleep for anything. Shacked till about 5 or 6 am and finally fell asleep from being so tired, maybe 1 hour. I woke up hot, sweating and worse RLS. This is the second night in a row. I don’t know how to make it stop. I'm going crazy, so sleep deprived.

Comment from: Agata, 45-54 Female (Patient) Published: October 28

Lately, I discovered a very interesting thing about restless leg syndrome (RLS) syndrome. I got drip a few times and I had no RLS at all then. I wonder if others have similar experience. I'm testing the elements and vitamins of drip separately, but with no effect. I have no idea why drip could have such effect when it comes to RLS.

Comment from: Mary C, 75 or over Female (Patient) Published: October 12

I discovered that after my before-bedtime urination, I would get restless leg syndrome (RLS) when in bed. I would also feel like I still had to urinate a bit more but couldn't do it any more when back on the toilet. I now use a cheap plastic thin bedpan while lying in bed and always go a bit more. My RLS then goes away. Who would have thought! No medicines needed.

Comment from: Cathy, 45-54 Female (Patient) Published: October 11

I have had restless leg syndrome (RLS) for 35 years. I rub holes in sheets, can’t sit to watch TV, or ride in a car or airplane. I took Valium years ago, got Requip 15 years ago, it seemed to work, but I had to keep increasing the dose up to 4 mg every night. I tried Horizant. Currently, I am taking 3mg Requip and 3 mg Neupro patch. Now it is in my arms too. I am trying to taper off Parkinson’s drugs due to augmentation with low dose oxycodone. I sleep maximum 4 hours/night for the last 3 years. My doctor wants to try methadone, I just can’t go there. Nothing works.

Comment from: Jennifer, 35-44 Female (Patient) Published: August 17

I am 36 and have had restless leg syndrome (RLS) for about 15 years. About five years ago, I had a doctor's appointment and she had done some blood tests. My results showed that I was anemic (she stated that my heavy bleeding during my periods could be a cause), so she recommended that I start taking iron supplements. After about a month or two of taking the iron, I began noticing that my RLS symptoms were not bothering me as much anymore. If you're female and have heavy periods and RLS, I suggest trying iron supplements.

Comment from: Ljmoore13, 65-74 Female (Patient) Published: July 26

I ran for sport and for fun for 30 years but had to give it up due to increasing pain from an army parachuting accident many years ago. Within 3 months I developed restless leg syndrome (RLS). I would sleep around 3 hours and RLS would wake me up. I started taking tramadol for the pain from my hip injury and was shocked that after one day of medication the RLS was completely gone. It's possible that the tramadol was replacing a chemical in my brain that running used to supply. Look into this.

Comment from: Khadijah, 25-34 Female (Patient) Published: July 22

My pregnancy time restless leg syndrome (RLS) was related to low ferritin level (lower than 15 ng/mL). the doctor prescribed iron supplement in liquid form, but after a month of using it, ferritin dropped almost to zero, so I had iron IVs twice a week during a 5 week period. My symptoms were very severe, some days I slept only 45 minutes in 24 hours, sometimes 2-3 hours. Only after iron IVs, I started to feel better and thankfully, by the end of treatment, there was no sign of RLS left.

Comment from: Ana, 55-64 Female (Patient) Published: July 09

I have been suffering from restless leg syndrome for many years, and I have tried many things. Eating acidic food at night made my symptoms worse, and nothing has worked well. Now, as soon as I feel discomfort in my legs I eat a few almonds (10-20, depending on their size), and drink some water after it. It stops my symptoms quickly and relaxes my legs.

Comment from: Mr T, 65-74 Male (Patient) Published: June 30

I have suffered with restless leg syndrome (RLS) for many years, but just lately nothing the doctors have given me works, so I did some research. I have been taking CBD oil for a couple of weeks, my RLS has practically gone and I am sleeping all night long, which I haven’t done for many years, I take two 10 mg drops morning and evening, both on an empty stomach so maybe this can help others.

Comment from: Linda, 75 or over Female (Patient) Published: June 14

I had serious restless leg syndrome (RLS) for many years and I have found that using a weighted blanket at night takes away the restlessness and pain. Now, I sleep through the night every night, what a blessing! I also take iron, magnesium, B-12 and folate that really help to calm my legs. I normally take up to 5 Mirapex a day, now only one and soon no prescription will be needed as long as I stay on the iron, etc., as this is extremely helpful.

QUESTION

What kind of disorder is restless leg syndrome (RLS)? See Answer
Comment from: Richard W, 65-74 Male (Patient) Published: April 28

Like my father, I too have occasional restless leg syndrome (RLS) symptomized by involuntary leg muscle contractions. I use open toe compression socks over the calf. They stop the issue immediately and can be worn for hours with no discomfort. I take no medication for RLS.

Comment from: Rodney, 65-74 (Patient) Published: July 31

I'm 70 years old. I've had restless leg syndrome for years. I was lying in bed this morning and out of the blue both of my legs jumped over a foot in the air. It is becoming more frequent lately. I wonder if I have more to worry about!

Comment from: Jen1177, 45-54 Female (Patient) Published: July 20

I've had restless leg syndrome for a few years. I found something that really works at relieving the symptoms. I bought leg massager cuffs online. They are like 2 blood pressure cuffs that tighten around your calves. They have 2 settings and 3 levels of pressure. It's noisy so I fold a heavy quilt and lay it on the controller. It drowns out the noise. I fall asleep with them on. The timer goes off after a few minutes. When I wake up in the night I turn them back on. The pressure relieves the symptoms.

Comment from: Dale, 55-64 Female (Patient) Published: June 03

I have now been awake for 2 and a 1/2 days and am being tortured with restless leg syndrome (RLS). I just bought from amazon something called a yoga vibration ball and it arrived this morning. It has 4 different speeds, vibrates like crazy and costs under USD 40.00. There is one that sells for a bit more. Of late my RLS is starting in my feet. This ball is fantastic for relieving the symptoms. How long the symptoms will stay away after using the ball I don't know but any relief is a bonus.

Comment from: Michael , 45-54 Male (Patient) Published: June 02

I have had restless leg syndrome for about ten years (51 now). It has worsened over time and now is almost a nightly problem. I haven’t taken any medications to date. Instead I’ll walk 4-5 miles a day in the late afternoon or early evening. I started about a month ago and this greatly helps lessen the symptoms.

Comment from: DAO, 65-74 Female (Patient) Published: May 12

Restless leg syndrome is literally driving me crazy! My legs will not stop the urge to move. If I'm lying down, sitting watching TV, even standing still when brushing teeth, I seem to move around in place. It's absolutely horrible. The only thing I can do is walk. Walk around the house, walk outside, but then my legs begin to hurt.

Comment from: Ted, 45-54 Male (Patient) Published: April 27

I’ve had restless leg syndrome (RLS) on and off for years. Something new that has been happening, which hasn’t happened in the past, is that my right leg becomes restless when I try to sleep on my left side. Wonder if anyone has ever noticed RLS increase or decrease in a particular sleeping position.

Comment from: Can't Sleep, 55-64 Male (Patient) Published: March 10

Nothing works for my restless leg syndrome (RLS)! I am very frustrated. I take pramipexole 0.5 mg, clonazepam 0.5 mg, 1 to 2 hours before bed, and I fall asleep, sleep around 2 hours, RLS kicks in and I cannot get back to sleep. I get up, move around for 1 or 2 hours, try and sleep some more, but the cycle just keeps repeating with less sleep each time.

Comment from: Babygirl9500 , 45-54 Female (Patient) Published: March 05

I recently had to have neck surgery to replace disc 4. The surgery was a success except since 1 month ago I've been having symptoms of restless leg syndrome. I started to get worried because I've never had these symptoms until after the surgery.

Comment from: Aussiesue, 55-64 Female (Patient) Published: February 13

I have suffered with restless leg syndrome for over 20 years. I even have it in my arms, at times. Medicinal cannabis helps a great deal, but Panamax has helped me in the past. No matter what workout you do, it can still come and attack you. Good luck everyone. I hope you find relief.

Comment from: DaBob, 55-64 Male (Patient) Published: January 09

Restless leg syndrome (RLS) has come and gone throughout my life, but is far worse since around age 50 (now 60), and not just at night. Seems associated with foot neuropathy now, but I didn't have that as a child and I'm not diabetic. I have ropinirole but even that isn't working. I have been slowly tapering off long time, moderate daily use of tramadol and heard RLS can be a withdrawal symptom, but it has become so horrible, I'd rather just start back on tramadol after total knee replacement than suffer these feelings indefinitely!

SLIDESHOW

Sleep Disorders: Insomnia, Sleep Apnea, and More See Slideshow
Comment from: JKH, 45-54 Female (Patient) Published: December 03

My restless leg syndrome (RLS) hasn’t been bothering me for a while but last night it kicked in hard. It had rained here all day and the weather is colder, I’m not sure if those are contributing factors or not. Using muscle rub on my legs seems to offer enough relief that I can fall asleep, I wonder if the burning sensation from the muscle rub interrupts the RLS sensations. I also take ibuprofen p.m. when I have a flare up that is preventing sleep. Sometimes I will also add a prescribed Vistaril. I hope this helps someone.

Comment from: dale, 65-74 Female (Patient) Published: November 15

I have had restless leg syndrome (RLS) for years and it is getting worse and worse. I also lose 1 or 2 nights’ sleep when it is bad. I am sleep deprived, and life takes too much energy. This has ruined the quality of my life. I take Mirapex which I guess helps but 'break throughs' are horrid.

Comment from: Gigi, 55-64 Female (Patient) Published: November 06

My doctor is the one who diagnosed me with restless leg syndrome (RLS), however, I'm experiencing a different kind of RLS. I have severe cramping of the muscles at night. My feet cramp up, my toes become disfigured, and I get muscle cramps from the knee downward. I get cramps on the sides of my legs. I sometimes get finger cramps that appear as if I have arthritis. I've tried everything. My doctor prescribed cyclobenzaprine 10 mg which made me feel horrible the next day. I wish I could fix this!

Comment from: CarJC, 25-34 Female (Patient) Published: October 15

I am a 26 year old female with restless leg syndrome. My ankles, knees and wrist get it bad. They all will crack and the discomfort is so bad and unbearable. I smoke marijuana as soon as it starts getting bad and it instantly takes it away and heals it. That is my truthful experience and medicine for a solution to restless leg syndrome.

Comment from: Soren, 45-54 Female (Patient) Published: October 08

I've had restless leg syndrome (RLS) for 20 years, but in the last 5 it has gotten bad. For me, it begins in my calves. They begin to ache and I need to move. The weird part is that I can't stand to be touched at that time. If my husband tries to massage them, I just want to kick him. I can't even massage myself. I take gabapentin, to help with nerve issues, but it doesn't do much. I did find that using a car orbital polisher (read Black and Decker) on my calves can release some nerve tension.

Comment from: twitchylegs69, 19-24 Male (Patient) Published: September 20

I've had symptoms of restless leg syndrome for about a year now. It's getting worse every week; an uncontrollable need to kick as hard as I can, trying to crack my knee to get relief, rapid fire twitching as fast as I can to itch the scratch. Mostly in the calves, below the knee. Sweeping motions with my legs or flexing, and locked all the way out to get sleep. Mostly at night, sometimes at the office, when I lie down, or it will wake me up just after falling asleep. Very healthy, I exercise 4 days a week. No idea how to fix.

Comment from: Jo, 45-54 Female (Patient) Published: September 17

I have had restless leg syndrome for several years. It has been diagnosed as uncontrollable. I basically have it 24/7. I am currently taking 0.125 mg pramipexole, 6 pills per day. Recently the medicine has stopped working. My iron levels are good. I need relief!

Comment from: Louis, 55-64 Male (Patient) Published: July 24

I have had restless leg syndrome, indeed due to compressed intervertebral discs in my neck. I had pains in both feet, legs, hands and arms. I was in severe pain, having cramps, fidgets, involuntary kicking, poor sleep, etc. I was really bad. I was on tramadol and Valium, for five months, which helped a little, but turned me into a zombie. Then I was prescribed pregabalin. I take 100 mg in the morning and 150 mg at night. Problem solved. Ask your doctor, it is a controlled drug, but it worked for me.

Comment from: Snookums, 75 or over Female (Patient) Published: July 10

I think I have pretty high pain tolerance. I had 3 babies without epidural. So a hysteroscopy was uncomfortable. I could feel the tube of the camera as he moved it further into the uterus. That gave me a slight to moderate cramp. These feelings of discomfort are bearable. I took 1 Ativan 0.5 mg 1 hour before the procedure. I was still very nervous at my appointment time so I took another. It took the edge off slightly, but these pills never seem to do much for me. Just breathe ladies!

Comment from: Karaline, 75 or over Female (Patient) Published: December 02

I have restless leg syndrome; I experience RL just about every night. Even sometimes in the day if I should perhaps choose to take a nap. It starts in the buttock area and works its way down. If I take a 0.5 mg ropinirole at 7:00, another at about 9:00 then hopefully the last one at 10:30 or 11:00, sometimes the first pill will work, but mostly I need the second one to finally feel relief about an hour later. I take the last one just because I know if I don't, I will wake up within 1/2 to one hour with RL. After this, I can sleep without RL. But I cannot stay in bed for any length of time in the morning because it will start again. I won't take any more pills in the daytime.

Comment from: Christi, 45-54 Female (Patient) Published: April 14

I wonder if restless leg syndrome symptoms include even ache in the buttocks and leg cramps like I have.

Comment from: Mu66stanger, 65-74 Male (Patient) Published: May 26

Restless leg syndrome (RLS) is usually treated with Mirapex (pramipexole) taken just before bed. If you take the drug throughout the day, say every 8 hours, it's much more effective. Now, they have developed an extended release version on the drug, pramipexole ER. This is more expensive, but saves you the trouble of remembering to take it 3 times a day.

Comment from: RLSnomore, 45-54 Male (Patient) Published: October 04

I am currently on a micro-dose methadone treatment for restless leg syndrome (RLS). I tried everything before I finally found this and it has been good for me, no more RLS.

Comment from: Robert T PhD, 55-64 Male (Patient) Published: August 14

Moderate dose Ritalin (methylphenidate) works miracles for restless leg syndrome. It 95 percent of the time controls nearly 100 percent of nerve pain and muscles. Intellect returns to normal. No grogginess, narcolepsy, haze, or irritability. Methylphenidate CD 40 mg q-am (it is time-release, sustains a 20 mg level for 6 hours), 6 hours later 20 mg regular Ritalin (lasts 4 hours), and 5 to 10 mg for evenings. Use carbidopa levodopa and pramipexole mainly at bedtime and low PRN doses soothe rare daytime or evening exacerbations.

Comment from: dave, 55-64 Male (Patient) Published: December 06

I have had it for at least 15 years and it has worsened. It kicks in as early as 10 am, but most times 4PM on. Mirapex 1gm takes edge off, but takes too long to take effect. I am willing to be part of a study if located in Great Falls, MT. I am tired of the same routine of pain and restlessness every single night, I need a permanent solution.

Comment from: Annie, 55-64 Female (Patient) Published: April 22

I have read everyone else's comments and am so amazed that this is a "condition" and that it is painful! I have had this ever since I can remember. As a little girl, I used it to rock myself to sleep and I still do. It's worse at night, especially in front of tv or when I work at my computer. My right leg will rock at a very fast speed but with no discomfort or pain, as long as I keep on rocking it. Once I get up and do other things it disappears. Just before I fall asleep it happens again. I have never used any medication for it and will not seek any for it. I assume it could be connected to ADHD children and adults. Although I only started taking 5mg Ritalin pd at the age of 58 it has had no effect on my RLS. By the way, the Ritalin is the best thing I ever did! Good luck with your painful RLS!

Comment from: Shell, 25-34 Female (Patient) Published: October 25

I have had RLS for a few years now, that deep ache, which turns into a burning sensation, which in turn causes my legs to twitch, and I mean twitch. I can be flapping about all night, this twitching or jerking has now started to happen during the day if at rest. I’m 32 and find it extremely embarrassing if I start to twitch when I’m out, not to mention making trying to sleep at night a nightmare. I have spoken to GP, who just grinned and said restless legs syndrome and basically sent me packing, why do they not understand the impact this can have on someone’s life!

Comment from: datmybaby, 45-54 Female Published: June 09

I have had RLS ever since I was a child first my doctor said it was growing pains, then when I got older they said it was anxiety attacks. I thought something was seriously wrong with me because when I tell people about it they don’t have any idea what I was talking about. Then finally they came out with a name for it RLS. It is great I know what I have now but that is no comfort when they have no cure for it. Yes I take medicine for it and it was great (requip) then it got worse they increased my dose I am now at 5mg a day of requip and I also take klonopin and trazodone. It all worked great in the beginning now it is so severe I can’t handle it. When I get an attack I move my legs a 100miles and hour and shake my arms till it hurts and it doesn’t take away my need to move. Nobody understands what I go through. My attacks are now lasting days. I go sometimes without sleep for two or three days. YES ITS THAT BAD!!! I need help with this and fast it’s getting out of control the older I get. I work out 5days a week for 2hrs. It doesn’t help I have tried warm baths and it doesn’t help me. I have tried so many different things and they don’t work. I don’t know what else to do. Why can’t there be a surgical procedure that can take this away forever? If there is a doctor out there reading this please I will try anything just help me.

Comment from: flamingmagic1871, 19-24 Female (Patient) Published: November 02

I work in home health as a CNA and I am 24 years old. I just recently started having symptoms and it’s about enough to drive me crazy. When I sit or lie down I get this feeling mostly from my knees to my toes deep inside of my legs and it feels tingly and stiff. My legs feel charged with energy. It feels like if they were to detach from my body they could run a marathon. Just feeling the extreme movement like that would make it go away, it takes forever to fall asleep. It’s very annoying and very uncomfortable.

Comment from: njb, 55-64 Female (Caregiver) Published: October 28

I am a retired hospice nurse, also lapsed lawyer. I have had symptoms since I was a teenager, requiring to stop on a car journey and stretch my legs, interfering with my ability to enjoy going to the movies or to the theater. I found yoga at bedtime, with gentle stretches, very helpful. Now, however, I need more extensive stretches for the "twitching" that comes on as I wind down to sleep, or sit for prolonged periods, such as on movies, in a plane or car journeys. And my leg restlessness has progressed to include arm discomfort and full body clonic jerking which wakes me at night. I have tried calcium/magnesium/zinc liquid supplements at bedtime, with initially good, eventually diminished, effect. The most effective and fast relief I have found is the traditional remedy of a couple of tablespoons of organic cider vinegar in warm water, with maple syrup to ameliorate the taste. It works within a few minutes, and can be repeated if I wake during the night. This remedy was given me by a patient 10 years ago, and although it tastes vile, I swear by it.

Published: August 27

It feels like someone is running their finger up the sole of my foot (I'm quite ticklish) and it makes my legs jump. Generally one side is stronger than the other, though both seem to be active at the same time. I can never tell when it's coming, and sometimes it only lasts a few minutes, but other times it can go the whole night. Sometimes a hot bath helps, or doing some exercises or stretches centered on my feel (calf lifts or walking on my toes). It doesn't always work though, and I've found sleep aids most definitely don't help. Just last night it kept me up all night, and I had to call in to work this morning. I was finally able to get some sleep after a cup of coffee with muscle relaxers and Ambien.

Published: August 27

I have suffered with painful RLS for a few years. My symptoms are present 24 hours a day and are in my legs (upper and lower), hips, arms, neck and chin. I have been on many meds but Tramadol is the only one that if I take it 3 to 4 times a day actually provides any relief. I also get the symptoms so bad at times that I can't walk. This happens at least once a week.

Comment from: Pam, 55-64 Female (Patient) Published: June 20

I have had RLS for several years, but it seems to be getting worse as I get older. I used to just get it at night, now if I don’t take my ropinirole, I am miserable.

Comment from: RLS sufferer, 55-64 Male (Patient) Published: May 20

I suffer from both restless legs and arms and have tried every medical treatment along with diet, exercise and supplements. Normally my wife and I sleep far apart so I do not wake her up. One night we wanted some snuggle time. We fell asleep spooning and found that I did not get restless. During the night we separated and the restlessness started up. My wife suggested we try snuggling again and to our surprise the restlessness stopped. Since then we have experimented to see if this would consistently work and it has. We do not have to be spooning. We can both be on our backs with just legs wrapped around each other but it does seem to require some significant skin to skin contact.

Comment from: Valda, 55-64 Female (Patient) Published: July 07

I have experienced RLS for many years, but the condition became worse 18 years ago after I had lower back and neck surgery. The crawling sensations moved into my torso and my arms so I now have a crawling sensation throughout my body when I relax in the evening and when I go to bed. I must get back out of bed almost every night and walk around. I many times can sleep on the couch for a period of time after walking around and after two hours on the couch I can go back to bed without symptoms. I will be tested in a month for a possible gene defect that may be contributing to my other symptoms of peripheral neuropathy and fibromyalgia pain. This gene defect is MTHFR, which is a gene defect that interferes with an uptake of folic acid.

Comment from: hoping.ca, 55-64 Female (Patient) Published: March 21

I have "extreme" restless leg syndrome and periodic limb movement disorder. I still get terrible pain and writhe in my bed for up to two hours a session. I have peripheral neuropathy and am a patient at an excellent Pain Management Clinic where I received meds and spinal injections. However, even additional breakthrough meds do not touch this pain. I live in dread of these attacks! They usually occur within an hour of lying down, only at night.

Comment from: M.sewell, 19-24 Female (Patient) Published: March 18

I have had RLS since I was 13. It’s so annoying. It seems like things like rubbing my head or any sensitive touch causes it to react more.

Comment from: Will, 35-44 Male (Patient) Published: January 24

I have suffered with this RLS since I was around 10 or 11 I am now 36 and it still happens at least 3 days a week. I sleep on the couch on most night when it occurs so I don't wake my girlfriend. When I was a child, I used to run my feet under the tap at night because they felt like they were on fire. They were so hot and itching/tingling, but from the inside.

Comment from: Jay72, 35-44 Male (Patient) Published: October 08

I have horrible RLS, up to 6 nights a week. Now I must say that I am a kidney dialysis patient and this is stated to be a cause of RLS. I have read other comments and have to agree on some parts, one thing I can say is that absolutely nobody understands how bad it is. It is strictly in my legs and mainly in my right leg just above my knee, but I do have it in both legs. It is so bad that as I start to finally fall asleep I yell and holler because it just drives me crazy. My poor wife has a very hard time sleeping in bed with me because my legs kick so badly.

Comment from: wsu_cougars, 25-34 Male (Patient) Published: May 26

My RLS persists in the calf muscles, and symptoms usually wake me at night after I've been asleep for 1-2 hours. I find it impossible to sleep when my RLS is active.

Comment from: Pain, 45-54 Female Published: May 13

I noticed a discomfort in my right leg. It has progressed to both legs. When I’m lying in bed, I can feel the sensation start to tingle and ache from below my knee to my ankles and when I fall asleep, it wakes me up with the aching and tingling and I toss and turn until I get up and start walking around. As long as I’m on my feet, I don’t feel any discomfort, but as soon as I sit down or lay down, it starts back up. Even when I’m sitting, I have to rub both legs because of the aches and pain.

Comment from: gypsey rose, 55-64 Female (Patient) Published: May 03

I’ve had restless legs for as long as I can remember. In fact, I can’t remember what it feels like not to have it. My legs are restless in my lower legs and sometimes in my thighs. I do take gabapentin, but it takes a long while to get any relief. I take a hot bath and then massage a heating rub into my legs. Sometimes that lessens the feeling in my legs. I’ve done the walking thing and I have literally fallen asleep walking. I can’t wait until someone finds a cure. I’m sure everyone else with this condition is waiting for one, too.

Comment from: grammycarlew, 45-54 Female (Patient) Published: April 19

I would just about do anything for a good night’s sleep. I have been in cancer treatment for two years now with both chemo and radiation. The RLS was bad before all of this, but now is just excruciating and unbearable. I am up all night, bothering my hubby, getting in and out of bed. I cannot tolerate car rides longer than 30 minutes, and I can't sit through a movie at the theater. We always pick a seat where I can get up and down. I am still trying to work but think I may very well be at the end of my work career due to the severe fatigue. The sleep deprivation is havoc with my memory also. I take gabapentin but it no longer helps. People who do not have this do not realize the severity of the situation. I’m due for another sleep study next week.

Comment from: SC, 55-64 Female (Patient) Published: March 08

I have been diagnosed with Fibromyalgia and have used medications for about 10 years now. In the last 6 or 7 years I have been experiencing intermittent tremors in my legs and this is increasing. This happens when I am standing only and I also feel that I cannot quite stand on my feet as though my feet are uncomfortable that is to say they are not balanced. I have to support myself back and forth on my feet or sit down. Recently while on a trip I found that I could not take a decent photograph because of these tremors. I had to sit down or steady myself against a tree or railing. Sometimes, not often, I get restless legs in bed, as though I need to go running to burn off energy in them.

Comment from: 45-54 Female (Patient) Published: February 22

I used to get RLS symptoms at bedtime when I was a young child. I would turn around in bed, and put my legs up leaning against the wall, thinking that if I got rid of the old blood, that it would work. It did sometimes and didn't sometimes. My parents said I had growing pains. I have been getting it off and on for decades now, but never so bad as last week, when I went OFF Gabapentin. Lord, it was a week of hell while I went back on the Gabapentin. The RLS attacked me with a vengeance, like if I could jump out of my skin, I would. And having this feeling minute after minute, for hours at a time, at night, in the dark, and all alone. I'm MUCH better now, and hopefully will never make the same mistake of going off of Gabapentin, again.

Comment from: bubbasmama, 55-64 Female (Patient) Published: January 26

I have RLS. I have a lot of medical problems, serious ones. I take a ton of medications. I am on medicine for RLS also. If I ever had to chose, I would take the RLS medicine over all others. I can hardly ride in the car when it starts. The twisting and turning is exhausting. I could probably walk a hundred miles just so I can keep moving my legs. I hate it. By the way, my daughters have it.

Comment from: morgan, 75 or over Female (Patient) Published: January 26

My problem occurs more in my feet (both of them at once, at the same time) than in my legs. I'm 68 and this has been progressive for about 5 years, so of course I'm attributing it to "growing pains." Growing old, that is... It usually occurs shortly after I have lunch and put my feet up to watch television for a couple of hours before I move on to do other chores, at which time I'm up and down but never just sitting thereafter. It's that time of day (2-4PM) when the sensation in my feet is the worst. And as someone else commented, it feels like electrical charges racing all through my feet. I have found that some relief can be had by popping a B-12 vitamin, so I hope the medical scientists are investigating the properties in B-12 in their studies to resolve this extremely annoying and in some cases debilitating medical problem.

Comment from: bullybear84, 65-74 Female (Caregiver) Published: January 19

I have had restless legs for 50 years. It runs in my family. I only found some relief 2 years ago through my aunt who also had it. She found a company that makes natural oils and this stuff really works. It's called Nature's Inventory Nighttime Leg Calm. I have been using this for the past 2 years with great relief. I had to retire early in my career as a nurse because of the sleep deprivation I was having. This oil has been a godsend! I don't know how it works but it does and that's all I care about!

Comment from: MaureenR, 45-54 Female (Patient) Published: December 02

For years I suffered with restless leg syndrome (RLS). It affected my work and life in general until my doctor prescribed Requip (ropinirole). Now I sleep better and I feel more relaxed. I am so much happier now, and that goes for my family, too!

Comment from: traycrls, 45-54 Female (Patient) Published: November 12

I have had restless leg syndrome for more than 30 years. It had become a nightmare for me. I lost so much sleep over this and over the years, I have also gotten it in my arms. Also, it not only happens at night, as I can get it any time during the day or night. I can’t even sit in a car for too long. The best thing to do about this nightmare of a disease is to take a medication called Requip. I have had this for so long that I take 2mg per day. It has been my life saver.

Comment from: winter girl, 65-74 Female (Patient) Published: May 24

I'm a 68 year old retired Admin Asst w/Fibromyalgia. The RLS is HORRIBLE - I HATE IT! It seems to be getting worse (had to be taken off my Fibro meds recently due to stroke and a needed heart procedure and this may cause it to be so much worse.) Only thing that helps me is to get out of bed, go to the living room, turn on TV and get on the floor braced up on my elbows with my chin sitting on my hands and lay like that for about 15 to 20 mins. The RLS subsides and I can go back to bed. Only trouble is I'm old and getting up off the floor is becoming a problem!! I don't have any idea how this extreme position helps but it’s the only thing that does!! I sympathize with ALL of you!

Comment from: Ro, 65-74 Female (Patient) Published: February 25

I am 67 years old and experience RLS in my thighs the most but also from knees to ankles. Only recently did I discover the name of this condition and that it is a condition. My first recollection of this is when I was a young child. At that time it would occasionally be in my wrists and hands, causing a strong desire to clench my fist while at the same time not feeling the strength to do so. Through the years this has continued, though infrequently. Then as an adult I found it intolerable to remain seated in the theater and so my legs also come into the picture.

Comment from: ergie, 55-64 Female (Patient) Published: February 03

I have had restless leg syndrome for nearly 10 years and it is getting worse. I cannot stay in bed, when I lie down as it disturbs my husband, so most nights I sit in a chair praying that it will subside long enough for me to get an hour of sleep. Mine is worse in the winter which could be caused by not being as active but of that I am not certain. I sure wish that there was something that could be done for this very annoying problem.

Comment from: redhead, 55-64 Female (Patient) Published: January 21

I have suffered with this condition for years. It is never constant but comes and goes. I have periods of many months without symptoms then I may also have periods of many weeks or months with the problem. Usually at night and it prevents me falling asleep. It can sometimes be unbearable and I have to get up and move about. I dislike long haul flights and even going out in the evenings; theater or friends for dinner because once the itchy sensation starts, I cannot relax and enjoy what I am doing. I have tried most things without any relief but exercise helps.

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