REM Sleep Behavior Disorder


What caused your REM sleep behavior disorder? Submit Your Comment

Comment from: KASHAD, 65-74 Female (Patient) Published: May 19

I've had REM sleep behavior disorder (RSBD) since I was a child. I had extensive acting out of my dreams, to the point of putting on my clothes and attempting to leave the house. As an adult, I've had 2 concussions due to falling out of bed, reaching for something in my dreams. I have Ehlers-Danlos syndrome (EDS) and note that a study had 3/12 child subjects with RSBD who also had EDS. Klonopin works for me but now doctors are reluctant to prescribe both an opioid and benzodiazepine due to CDC recommendations.

Comment from: dwilly, 75 or over Male (Patient) Published: February 22

I have REM sleep behavior disorder (SBD). I have done the sleep studies, and wear a CPAP. Stress is the number 1 factor in all my SBD dreams. About 30 percent include parasomnia (acting out). Suggested treatment includes melatonin, clonazepam and perhaps prazosin. Stress is number 1 constant in my dreams. Stress and fight; fight is regulated by the hypothalamus, pituitary, and adrenal pathway. Someone needs to look at the health of this pathway/and hormones and relationship to SBD. Find and fix the cause and quit chasing symptoms!

Comment from: Jch, 55-64 Male (Patient) Published: May 04

I was recently diagnosed with REM sleep behavior disorder (RBD) and have terrible dreams where it seems like I work extremely hard to act out my dreams and I twitch, jerk, kick, talk, and yell. I've kicked the wall at the head of bed and injured my right big toe. I wake up feeling really exhausted and have bad headaches. I've been taking Klonopin which seems to help but I continue to run out of the medication before my next refill for some reason and the dreams return with a vengeance. Another thing to note is I have sleep apnea and use a CPAP machine. I was also just diagnosed with idiopathic hypersomnia which also leaves me exhausted every day. Things seem to be getting worse than better. I've tried Adderall, Ritalin and modafinil for the hypersomnia and nothing so far has worked for me. Good luck every one! This is a grind!

Comment from: 19-24 Female Published: September 01

I’m not diagnosed yet but I’ve had trouble sleeping for years. This sounds a lot like me, just more severe. I sometimes wake up with scratches that I didn’t go to bed with. If someone is next to me, they sometimes will tell me, that I kept moving and jumping a bit.

Comment from: jwhitney3, 35-44 Female (Patient) Published: August 24

I had sleep study 2 weeks ago it confirmed no REM sleep even though I take 1.5 to 2 mg Klonopin a night (for about the last 10 years). I am so very tired all the time, thought my depression was getting worse so Dr increased my prozac and added then increased wellbutrin. See the neurologist next month, hope I can just take higher dose of Klonopin and get back to sleeping and no more violent nightmares; most doctors I see do not want to prescribe Klonopin at all!

Comment from: MotownRocker, 55-64 Male (Patient) Published: April 18

I have suffered from absence of achieving REM sleep for many years. I recall being a preteen and having issues with staying asleep. Now, in my young 60s, I continue to sense that my sleep disorder is worsening.

Comment from: mark, 45-54 Male Published: October 21

Hi I have been diagnosed with rem but I am wondering if there are any more day time affects as I get very tired at periods during the day and also suffer from headaches. I also wake up with a muggy head and seem to need extra sleep. I would be grateful for any extra advice as I don’t seem to have a lot to go by. Many thanks.


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