Pulmonary Embolism

Question:

What was the treatment for your blood clots in the lung? Submit Your Comment

Comment from: Tara, 25-34 Female (Patient) Published: January 21

I was diagnosed with bilateral pulmonary embolisms (PEs) in October 2019 after a month of gradually increasing shortness of breath. I was put on tinzaparin injections for the first few days while in hospital and then switched to Xarelto 15 mg BID for 6 weeks and then 20 mg daily for the following 5 months. I had the worst leg cramps for the first month while on Xarelto. A few weeks after my diagnosis it was discovered that I have a large clot in my left arm that had caused the PE. No known risk factor and still no idea why it happened.

Comment from: Jennifer, 45-54 Female (Patient) Published: August 01

I am a 48 year old female, ex-smoker, on birth control pills since 18 (minus 2 pregnancies). I started getting shortness of breath last Tuesday, brushed it off thinking it was my asthma acting up. Pain in my lower right back started on Saturday. By early Sunday morning, my lower right back and upper right chest hurt simultaneously with shallow breaths. Emergency room diagnosed multiple small pulmonary embolisms, and also a small lung nodule. I was prescribed Xarelto for 21 days, then 3 months. I need to follow up with the pulmonary specialist.

Comment from: Bibi, 45-54 Female (Patient) Published: June 21

I came from work, and suddenly I was having trouble breathing. I felt a sharp feeling going to my shoulder. I waited thinking that it was going to go away. But I decided to go to the hospital hours later. When I got to the hospital, after a CT scan and other tests they found a pulmonary embolism. I am taking Xarelto 2 times a day and still feel lousy, especially a pressure on the side of my lung. I have gone back to the doctor a few times after that and they find I am ok.

Comment from: Amethyst , 35-44 Female (Patient) Published: August 10

I was admitted in the hospital for blood clots in the lung for about 15 hours on 7/27/18, then released on Xarelto twice a day. I saw the primary care physician 2 days later and she referred me to a cardiologist and hematology clinic. I have an appointment on 8/28 for cardiologist and no appointment has been scheduled for hematology yet and I have called every day. I am worried.

Comment from: Nelly, 25-34 Female (Patient) Published: July 10

To treat blood clots in my lung, I was first given a bolus of heparin and then a few hours later put on a heparin drip IV. After two days I was switched to Coumadin and Lovenox.

Comment from: SHELBY, 19-24 Female (Patient) Published: September 15

I'm 22. I had multiple blood clots in my lungs in April 2020. I did not get admitted because of COVID. I had to recover at home in the worst possible pain I have ever been in, in my life! I kept thinking I was going to die. Never got any test done to figure out why I got them in the first place. Here I am 4 months later with bad shortness of breath and burning side and back pain and heart pain for 4 whole months, and I am being told nothing is wrong with me. I'm too poor to afford the hospital. I'm so scared!

Comment from: Bella , 45-54 Female (Caregiver) Published: May 29

My longtime partner died on October 9. He went to the Urgent Care but they don’t admit him, and he died the next day. They knew he had blood clots in the lung and asthma that time I don’t understand why they didn’t keep him in the hospital. In 2016 it happened in a different hospital. The same treatment, and he survived that time in a different hospital, but this last one he did not because of negligence I believe.

Comment from: Robert, 45-54 Male (Patient) Published: February 19

I was watching TV when suddenly I couldn't breathe. I called 911 and when the emergency medical technician/paramedic checked my EKG, he gave me an aspirin. In the emergency room I was poked and prodded. I was given, among other drugs, morphine and nitroglycerin. A technician came and drew more blood and I inquired why and was told that enzymes in my blood indicated I had, had a heart attack. I was then sent to a cardiac unit in another hospital where I was promptly stripped of my clothing to ready me for surgery. A group of doctors began questioning me. I was a bit vague on the pain in my chest because I pretty much hurt all over. A doctor pressed me very hard and out of confusion I offered up, 'well, my leg has been bothering me for some time, but I don't pay attention to aches (I’ve been operated on everywhere). An ultra sound was done of my leg, and a chest x-ray. After which I was not allowed to get up to go to the restroom. I was told I had many clots in both lungs and lucky to be alive. After a 4 days in the cardiac intensive care unit I was sent home to administer my own shots in my abdomen. Further blood tests revealed I had some kind of hereditary defective gene that predisposed me to DVTs (deep vein thromboses). I have now been on warfarin for years and expect to stay on it for life.

Comment from: RN, 65-74 Female (Patient) Published: January 14

I experienced sudden shortness of breath but ignored it for several days (very stupid). Finally I went to the emergency room. D-dimer result was high, CAT scan showed bilateral pulmonary embolism and ultrasound showed a DVT (deep vein thrombosis) in right leg. I was very fortunate to have a cardiologist who had done a lot of research on the use of what he called safe dose thrombolysis. He used low dose TPA (tissue plasminogen activator) and within 3 hours my oxygen went from 86 to 98. No more shortness of breath and was released on Eliquis 5mg twice daily. It has been 3 months and so far so good. I had no pain or swelling in my leg and no pain in my chest only the shortness of breath. Doctors called it an atypical case. Take shortness of breath seriously, it can save your life!

SLIDESHOW

Spider & Varicose Veins: Causes, Before and After Treatment Images See Slideshow
Comment from: Jim, 45-54 Male (Patient) Published: June 01

Two weeks ago I fell from the railing on my deck and tore my ACL (anterior cruciate ligament). I was placed in a knee Immobilizer until an MRI determined the damage. I started experiencing pain and slight swelling in my calf. Ten days after the fall an MRI confirmed the ACL tear and an ultrasound confirmed multiple DVTs (deep vein thrombosis). At the emergency room the doctor got concerned because I had low oxygen levels and high respirations. Sure enough, there were multiple PEs (pulmonary embolisms) in both lungs. This was 2 days ago and yesterday I was sent home with blood thinners and no other instructions. I have to admit I'm a little scared.

Comment from: Bullit, 55-64 Female (Patient) Published: April 14

The treatment for my pulmonary embolism (PE) was oxygen, nebulizers, inhalers and warfarin. I had the PE in May and by August 20th all of the above were taken away with the exception of warfarin. I was taken off warfarin on March 1st this year and will have blood work done on May 1st of this year.

Comment from: rosy, 55-64 Female (Patient) Published: January 23

I am a 58 year old female, very healthy and active until 5 months ago when I had an outpatient minor knee surgery. I developed a blood clot in my back of my knee that led me to the emergency room with chest pains to find out some of the blood clot had broken off and ended up in both sides of my lungs. I was hospitalized for 4 days in intensive care for treatment of the pulmonary embolism. I am now on one pill a day Xarelto. After 5 months, the clot in my leg is still there and I have been told the clots in lungs will never go away and leave scars in time that may give me problems later in life but the clot in the leg should dissolve in my body in time. I don't feel like I will ever feel the same, I am tired easily and get out of breath. I may have to be on Xarelto the rest of my life but it seems a lot better than some of the other blood thinners on the market.

Comment from: Aussiejo, 25-34 Female (Patient) Published: December 06

I had a car accident which led to three DVTs (deep vein thrombosis) in my femoral artery in my leg, from my knee down. I was give Clexane injections for a week and started on Marevan (warfarin), at the same time. I was taking warfarin for about four weeks before I started getting chest pains. I went to the emergency room and they did some tests then sent me to another hospital for another test which confirmed I had bi-lateral pulmonary embolism. They took me off warfarin because my blood had antibodies in it that they could only explain as, ‘my body was fighting the warfarin', instead of the clots, and put me back on Clexane injections. I had another ultrasound before I left the hospital and they found three more clots in me, another in the top of my leg and the two in my lungs. I have been injecting myself twice a day for the last two near three weeks, at home. My chest hurts every day and this lets me know what I can do for the day, I am trying to lay down and not do too much but I'm an active person and am hating it. But if I'm sitting up straight or walking around my chest hurts more and I feel as if someone is pushing on my lungs so I can't breathe properly. I was sent home from hospital with an appointment date for the hematology unit at the hospital and just told to go back then, with no confirmation that the injections will work for me or what kind of time frame I'm looking at.

Comment from: Lou, 65-74 Female (Patient) Published: October 31

I started having pain in all my lower extremities, making it difficult to walk, and thought it to be arthritis. I was going to the doctor, taking pain medications and muscle relaxers. Early one morning I started for the bathroom when I felt dizzy, reached to steady myself and passed out, waking up on the floor and every time I raised up would pass out again. I was finally able to crawl to the phone and get the ambulance. The fireman got there first, and it was such a relief to get the oxygen offered by the fireman. I was sweating profusely and had several bags of fluid on the way to the hospital. I thought I was just dehydrated and exhausted but was told by the emergency room doctors that I had multiple blood clots in both lungs. I was in the ICU for 3 days and hospital for 4 more days. It has been a little over 3 months and I am on Xarelto. I am still told to take it easy, I am wondering how long it takes to get back to normal. By the way, the night before I passed out, all the pain went away, and have had no pain since.

Comment from: hope to get better, 35-44 Female (Patient) Published: June 17

I’m a 35 year old female who has 4 blood clots on my left lung. One is the size of a 50 cent piece. This is not my first time getting blood clots, I had pulmonary embolism 2 times before these ones. I took warfarin the first time for 7 months. They went away for not even 3 months and I started having pains again in my chest and finding it hard to breathe. My doctor told me to go to the emergency room (ER) and get a CAT scan done of my lungs and then they found out I had 4 more blood clots on my left lung. I’m told I’ll be on blood thinner warfarin for life. I had to take injections in the stomach for two weeks, which made my stomach so sore and looking like someone beat me up. My stomach hurt to touch and even to sit down. This is a very life threating condition if you or anyone you know have symptoms of having difficulty in breathing, or if a touch or any part of your body feels like it is on fire, get to the ER and get medical help right away. If not it could cost you your life. These blood clots changed my life. I get short of breath, it is hard to breathe and I pass out and can’t be active with my wife or kids due to not being able to breathe. To anyone who has this pulmonary embolism, I wish you all the best.

QUESTION

Deep vein thrombosis (DVT) occurs in the _______________. See Answer
Comment from: Pam, 35-44 Female (Caregiver) Published: March 24

My daughter developed a pulmonary embolism after being on chemotherapy. She has been on Lovenox for 6 months and had a CT yesterday which showed the clot wasn't any smaller. She was told to continue with Lovenox for another 3 months, then more testing.

Comment from: Dr Rady, 25-34 Male (Caregiver) Published: October 18

My wife is 25 years old, she has given birth to our first child 3 weeks back. After one week she has suffered from severe stabbing chest pain radiating to shoulder, increasing with inspiration. There is no dyspnea, no cough, and no fever. Firstly it was diagnosed as muscular pain as the pain was relieved by analgesics for a few hours, but the pain returns again. X-ray was done and showed mild pleural effusion, she was diagnosed as having pleurisy, she received high doses of antibiotics and analgesics with no relief till the pulmonology doctor advised her to do CT angiography which showed a small peripheral pulmonary arteriole embolism with infarcted area in lower lobe of right lung, D-dimer is high, double the normal, ESR is 115. Now she takes anticoagulant therapy (Clexane 80 every 12 hours, warfarin 5mg once daily), antibiotic (clarithromycin 500mg 2tabs once daily) and analgesic.

Comment from: Nan, 65-74 Female (Patient) Published: May 09

I am a 69 year old woman....I work in my home office and I was working late one night when I felt like I was going to pass out (I had been particularly tired for weeks so I was sleeping round the clock and then getting up to work a few hours and going to bed again.....when I almost passed out I called 911 and 6 strapping young men came and helped me slide down my stairs on my bum before we reached first floor where there was a rolling gurney to carry me out to the ambulance.....after three days in the hospital and multiple tests the doctors finally ordered a CT scan and diagnosed PE; and I figured out I had been a bad girl -- I was taking HGC - a weight loss product that was a hormone.. the heart doctor who came in to see me said -- you know, taking hormones can cause blood clots! Well then I remembered too that 3 months before, I had fallen hard against the corner of a table where the corner dug into my hip really hard and that may have caused the long blood clot I had deep in my leg.....and it threw off multiple tiny blood clots in both lungs -- the hardest part of the whole thing was...after they determined I had blood clots in my lungs they became real scared for me. I had to wait an afternoon and all night through without seeing a doctor who could tell me if I could get out of bed to use the toilet....so I had to use a bed pan in bed because they wouldn't let me out of bed -- and I hate bed pans! Now I am on Coumadin, but I am not very happy to read here that Coumadin - Warfarin is rat poison, only in different doses!

Comment from: 19-24 Female (Patient) Published: February 24

I am a 20 year old female. I was diagnosed with several blood clots in both lungs about 3 months ago. I was admitted into the hospital for over a week, receiving warfarin, and another blood thinner injected into my hips twice a day. I have been taking warfarin since I have been home. Three months later I am still getting blood work done every week to ensure my INR levels at a safe place (without being too high, or too low). I have been told I will be on warfarin for a minimum of 6 months, but could possibly be on a blood thinner for the rest of my life. Upon being admitted, I was close to having a stroke, or going into cardiac arrest. If anyone is ever faced with any symptoms of a pulmonary embolism, go to the ER right away, it could mean life or death.

Comment from: tink, 65-74 Female (Patient) Published: January 30

I had pulmonary embolism in both lungs. Was in ICU for 7 days and in the hospital another 7 days. It is almost six months and due to extreme inching all over my body my doctor took me off Coumadin. He had planned to take me off in two weeks anyway. I still have some shortness of breath and itching and it has been 4 days that I am off Coumadin. I hope it disappears in the next few days. I am 69 years old and have always been fairly healthy.

Comment from: jbben, 55-64 Female (Patient) Published: February 02

I had a PE in Sept 2010. I was admitted and it took quite a while to regulate my Coumadin level. Once stable they sent me home. They could find no source, though I had had a DVT in 2008. My doctor checked the INR level for a while. I was surprised when my INR went from 1.5 to 1.4 and he didn't adjust the Coumadin. A week later I had a second PE. They immediately started me on Lovenox with Coumadin. My hematologist was out of town when I was admitted and when he returned he said "no more monkeying around!" and had me taken off Coumadin and just treated me with Lovenox. I have been giving myself 2 Lovenox injections per day without any further problems. Apparently it is very hard for them to regulate Coumadin levels for me. I was told I would be on Lovenox for a few months and then they would try to switch me to Coumadin and would likely be on that all my life. It's been 4 months on Lovenox. As long as I have no further embolisms, I don't mind the injections.

Comment from: dshelton, 45-54 Female (Patient) Published: January 19

I recently had an episode at work walking up the stairs and I was short of breath that evening driving home. I had sharp pain on left side/ shoulder area, I went to the doctor and he sent me to the emergency and diagnosed a blood clot in the left lung. I am on Coumadin and 2 shots per day of Lovenox for 4 days now and had a sharp pain. Just short sharp pains on the left side of my neck, but I am fine now. Probably just a pain, but doc said the blood clot is stabilized and won't break off and even if there are other clots they are stabilized with medication.

Comment from: Ktazz1967, 45-54 Male (Patient) Published: September 08

I have pulmonary embolism, a saddle they call it. I don't feel like I am getting any better, still in a lot of pain and can't take a deep breath. I’ve been to the emergency room so many times I know them by name. All they keep telling me is be patient.

Comment from: macca, 55-64 Male (Patient) Published: June 02

I am on warfarin – Coumadin for pulmonary embolism.

Comment from: No name, 45-54 Male (Patient) Published: February 20

For pulmonary embolism I had Arixtra injections until warfarin became therapeutic.

Comment from: jfs79, 25-34 Male (Patient) Published: October 22

I am 34 year old and workout almost every day including cardio. I had a sharp pain in the left side of chest and thought it was indigestion related. The pain intensified and I noticed I was short of breath and felt like I could not inhale enough oxygen. The pain worsened and went to the emergency room to find out I had multiple PEs (pulmonary embolisms) including a large one in my left lung. I am on warfarin now for 6 months and can breathe again. It takes some time to get used to a new diet, but not too bad. A section of my left lung was damaged and has not healed.

Comment from: Tippy, 35-44 Female (Caregiver) Published: April 18

My best friend was diagnosed with a pulmonary embolism. She is in consist pain. She has clots in her groin and a new one has formed on her lungs, with smaller clots. The clots don’t move, and harden up. She was treated with pain meds, but they aren’t working any longer and the doctors say there is nothing else left for them to do. She is giving up. She has been like this for two years. The doctors say it’s too risky for them to operate.

Comment from: Gus, 45-54 Male (Patient) Published: February 19

I'm 47 years old. Two years ago while working I coughed up blood. I panicked when to the restroom and wiped the blood. A couple of weeks later while helping my brother in law the same thing happened. I got home and it got worse. I could hear a bubbling sound from my lungs and the coughing began followed by blood. I decided to go to the emergency room. When I got there panic took over since I was a carrier of tuberculosis I thought it was that. I was let in right away. I had tests done. I was in the hospital for six days. They told me that I was fine and sent home. The setback was that they began giving me TB medicine.

Comment from: Jmorgan15, 25-34 Female (Patient) Published: January 31

Hi, I was diagnosed with pulmonary embolisms in both my lungs about a week ago, I am 27 years old and a non-smoker. The only reason they believe caused this could be birth control. I am on lovenox shots and Coumadin until my blood will thin out, it has been over a week and my blood still is not thin enough.

Comment from: Harry, 25-34 Male (Patient) Published: November 06

Hi, My name is Harry and I am 29 years old. I have been diagnosed with Pulmonary Embolism (clot in my left lung). I am on warfarin now (10mg) a day and getting injected in stomach twice a day. The treatment will continue for at-least six months.

Comment from: Yaniasmailbox, 55-64 Female (Patient) Published: October 18

A week ago today, I noticed shortness of breath after running up a flight of stairs which was unusual for me but my first thought was that I must be getting out of shape. So I dismissed it as just that. On that same day I noticed sporadic involuntary gasps for air every so often. That's what prompted me to research such symptoms. It was advised that I seek medical attention immediately, which I did. I went in to see my doctor and a saturation test indicated something was very wrong. My doctor suspected PE and sent to over to our local hospital for further testing, including a CT scan. He was correct. I had some blood clots in both lungs. The pulmonary specialist determined I was a rare case because there is no indication of deep vein thrombosis (DVT) having taken place and no other factors to support a diagnosis of PE. He remains baffled. I was discharged from the hospital yesterday after a few days on Heparin via IV and Coumadin.

Comment from: Robyn, 55-64 Female (Patient) Published: September 26

Oxygen for 8 days, Clexine injections twice daily for 10 days, bed rest for seven days, mild exercise after one week, and Warfarin.

Comment from: barbie doll, 45-54 Female (Patient) Published: August 15

I am a 45 year old female who is very active and usually outside as much as possible, until June 18, 2012. I had step throat and went into the Fastcare for it and when she gave me a nebulizer I developed a severe pain down my left arm and heart. So, they took me into the ER to see what was going on. They took some blood, did a CT scan, X-rays etc. They came in a little while later and told me I had a clot in my left lung, which could be treatable. I was so shocked and scared. They admitted me into the hospital for 3 days and I had to take coumidin and lovelox for a couple of weeks. I still go now every Tuesday to get my blood work done. I might have to be on coumidin for the rest of my life, but it is worth it to be with my family. So if you have shortness of breath, and pain in the left side go right away to the hospital and get it checked out and if they don't do nothing find another doctor.

Comment from: CJ, 45-54 Female (Patient) Published: August 14

After having shortness of breath and pain in my left lung, went to urgent care. Was told it was a virus and they gave me cough suppressants. Feeling being in a few days, then suddenly had difficulty sleeping, breathing, coughing. Pain then transferred to right side. I thought I had pneumonia. Husband took me to ER, where I was eventually diagnosed with multiple PE in both lungs. I asked for antibiotics so I could go home, as I did not know how serious this really was. Doctor could not tell me how much longer I would have lived had I not gone to ER. First thing the nurses asked me was are you on birth control pills (which I was). I ad four-day hospital stay and now I’m on warfarin for six months.

Comment from: BlueMtMom, 55-64 Female (Patient) Published: August 10

I was put on 80 mg Lovenox injections every 12 hours and Coumadin 7.5 mg every evening until my INR stabilized at 3. Then the Lovenox was stopped and my blood tests went from every 2 days to 2 x a week until we knew the Coumadin was maintaining my INR at 2.5 to 3. I am still getting tested once a week and on 5 mg Coumadin now. No idea how long this will last but a weekly blood draw is far better than going through the nightmare of the PE again!!

Comment from: Kandid, 45-54 Female (Patient) Published: July 31

I was diagnosed with a massive PE in December 2007. I was hospitalized for two weeks, in which I was injected with blood thinners alongside tablets. I did not have any "classic symptoms" as asked me by the consultant. I was breathless and on two occasions I felt very light headed but that was all. It took sevenweeks to diagnose my PE, by which time I was advised to contact my children and close family as I had 50-50 chance of surviving. July 13th 2012 I went into hospital with same symptoms and again they found a clot on my lungs. Consultants have told me they have no explanation for me as I "don’t fit the classic features of a PE." I just need to understand what causes PE’s in a 45 year old who is relatively fit.

Comment from: Wendy, Female Published: July 11

It took me two months to seek medical attention because the symptoms of three pulmonary clots were so transient. I would have a moment of breathing faster and tachycardia, then back to normal. I was in Cambodia and received care of bed rest for four days with heparin, then flew to Singapore for a ten day stay, where the lungs were evaluated. I was lucky. Warfarin for a year, and then stopped. I also was taken off HRT and Celebrex.

Comment from: Micah, 13-18 Female (Patient) Published: July 11

I'm a 17-year-old female. I thought I was healthy minus the fact I had to be on birth control to help with cramps. I was totally fine all day then I got up, took a few steps, and couldn't breathe. It was the scariest thing to ever happen to me. I waited a few days it just got worse so I went to the doctors who then sent me to the hospital. After two days of testing they finally did a CT scan. I was told I had a large right pulmonary embolism. My doctor told me it was one of the largest he's ever seen. I was giving Needles upon needles to run tests and so much morphine I barely remember my hospital stay. I was there for 3 weeks. I still don't know what cause it but I get tested every week. They think it might of been the pill. I take 2-3mg of warfarin daily.

Comment from: Florida Flyer, 55-64 Male (Patient) Published: May 11

I am a 60 year old man who thought he was in great shape. Low BP, low pulse rate, slim, very active. I fly a lot and after a three-hour flight, layover, and another three-hour flight. I became out of breath after climbing two short flights of stairs in the airport parking garage. Two days later at home the pain in lower back was too much to sleep. I finally went to the ER where they told me that I had clots in both lungs.

Comment from: classydiva60, 55-64 Female (Patient) Published: February 13

I am a 60 year old female asthma has always been a part of my life. As I grew it clearly began to subside and I don't have flares ups. At the age of twelve I developed a blood clot in my right leg. Needless to say I had spent my birthday at Ireland Army Hospital - a month and three days. Back then I didn't understand how serious it was all that mattered to me I was getting a lot of attention from everyone. Well, here I am again with another blood clot this time in the lower left lobe of my lung. Thank God for technology had it not been for a doctor ordering and CT scan the blood clot would have been missed. I suffered no pain but I did experience difficulty breathing actually couldn't breathe out. I did stay in the hospital three days and half my discharge sent me home with blood thinning injections and a pill. After taking the injection and pill I am monitored by a nurse who checks my progress with the treatment everyday even on the weekends. I am home two days and doing fine with the treatment.

Comment from: Tweety, 35-44 Female (Patient) Published: January 24

I am a 37 year old female. I have been visiting my GP on and off for years with sweating, cough, shortness of breath, severe pain between the shoulder blades. Last week went for a walk, got severe chest pain, rang ambos and ended up in the local hospital. Blood tests were taken and the belief was that I had had a heart attack. Next day sent to Brisbane, underwent numerous tests and was diagnosed with PE. Looking back I have had the symptoms of PE for about five years.

Comment from: 65-74 Male (Caregiver) Published: December 05

While on a walk I passed out. Went to emergency, was hospitalized, but no diagnoses. Two months later I passed out three times before my wife could get me to emergency. I was then diagnosed with multiple clots in both lungs and a deep vein thrombosis. My brother also fainted and was given a clean bill of health after many tests including an angiogram. He told them of my situation. They did a lung scan and found a pulmonary embolism. I now know I test positive for Leiden V factor..

Comment from: 55-64 Female (Patient) Published: December 01

I experienced a saddle pulmonary embolism two days after outpatient knee arthroscopy. I received heparin, Lovenox and warfarin in the ER. A CT scan revealed bilateral emboli. An echocardiogram revealed a slightly enlarged right ventricle. After two days in ICU the ventricle had returned to normal. I was transferred to the cardiac floor on Lovenox and warfarin.

Comment from: 55-64 Female Published: October 25

I am a 59-year-old woman. One Saturday night when going to bed both of my arms were hurting and my heart was skipping and felt as if it was going into atrial fibrillation. On Sunday, I felt really tired and my heart continued to skip an awful lot. In addition to these symptoms, my back was hurting as if I had pneumonia. I remarked to someone that I thought I had a touch of pneumonia. It was not until my heart felt flush and burning that I went to the emergency room. I had multiple small blood clots in both lungs and one large blood clot in each lung. I was later told that I had a bunch of small blood clots in each lung and that the two large blood clots could have easily taken my life. I was hospitalized for eight days and am now on Coumadin. It was only because of a slight increase in my clotting factor that the physician decided to run a CAT scan that showed the blood clots.

Comment from: Renee, 35-44 Female (Patient) Published: September 27

Shortly after turning 40, I was diagnosed with severe anemia and received a blood transfusion. Two weeks later I developed bilateral multiple pulmonary emboli, thought to have come from a DVT in my left arm from the transfusion. I was hospitalized for five days, during this time I was treated with a Heparin drip and Coumadin. I was taken off the Coumadin a year and a half later and suffered a single pulmonary emboli, and I was treated with Lovenox and Coumadin. I remain on lifelong Coumadin therapy. I also have chronic pulmonary emboli as a result.

Comment from: Andrea, 55-64 Female (Patient) Published: June 28

I was hospitalized initially for CHF with an ejection fraction of 25-30%. After discharge I was finally able to lay flat and had a CT done which showed bilateral scattered pulmonary emboli. I was readmitted to the hospital immediately. I am in my second week now of oral warfarin. I still am having right-sided chest pain, sharper on deep breath and worse as the day goes on. I am right handed so wondering if this attributes to it. I am sixty yrs old. Doctors are not sure why all this has occurred.

Comment from: Toto UK., 55-64 Male (Patient) Published: May 11

Following a small operation for bunion correction on my right foot, I had DVT four days after the operation. The pain in my right calf lasted only for the best part of the day and went. two days after that, I had a sharp shooting pain in my left lung and my chest and throat felt crushed, as if all air was being vacuumed out of my lungs. I could not breathe for a long while and felt I was going to meet my maker. Luckily, my body relaxed and I was able to live. I went to hospital on an emergency. They gave me an injection of heparin, took blood samples, X-ray and CT scan. I was told I had PE. My breathing was shallow and I was kept in hospital for 2 days. I was injected on a number of times with "clot buster.

Comment from: 45-54 Female (Patient) Published: May 02

48 yo female, had a robotic assisted hysterectomy. I was doing great and went home. I experienced chest pain, coughing up blood and shortness of breath. I attributed these to gas pains, breathing tube, etc. I was ordered back to hospital when I called doctor, and after chest X-ray and lung CT scan, it was determined that I have multiple clots in lungs. I was hospitalized for four days, and treated with thinners. I’m going home today with and injectable and Coumadin. I’m grateful to be alive.

Comment from: Queenof Clots, 45-54 Female (Patient) Published: April 01

On January 30th, I received Heparin, Lovenox, and Coumadin for a submassive saddle clot in the lungs and a DVT in the right leg. I am on 10 mg Warfarin/Day for 2 months so far. I thought I had an asthma attack that would not resolve. I also had lower back pain. I did have a knee scope in December. I had no visible signs of a PE until I had abnormal EKGs when admitted in the hospital. A CT scan confirmed it.

Comment from: sylvia, 45-54 Female (Patient) Published: March 11

I just got out of the hospital for my second pulmonary embolism attack. I’m having to take shots and warfarin. I still have pain all over, but I also have fibromyalgia, so I had no idea I was having a pulmonary embolism attack until I couldn't breathe and started to pass out. I had three small clots in one lung and a very big one in other lung this time. Last time, I only had a small one in my lung.

Comment from: kitty wink, 25-34 Female (Patient) Published: March 04

I suffered a pulmonary embolism 2 weeks and 4 days after having twin girls by emergency c-section. My treatment was weekly blood tests and 6 months of anti-coagulants (warfarin) until my blood was correct.

Comment from: Dee, 35-44 Female (Caregiver) Published: December 20

My friend was diagnosed with blood clots on both her lungs. She was asked a lot of questions. Mostly about sitting for an extended period of time. She had not. Then as I was talking with the nurse and mentioned birth control pills she said that is mostly likely how she got the clots. PLEASE MAKE SURE TO MENTION BIRTH CONTROL when going in for any of the PE symptoms.

Comment from: hamlu, 45-54 Female (Patient) Published: November 17

One week ago today. I started coughing up blood clots and large amounts of blood. I went to ER at my local hospital, after CT scan/ chest x-rays. The doctor said I had bronchiectasis. I was admitted to the hospital for 5 days. I was on antibiotics/breathing treatments. They didn't give me any blood thinners, which is one of the 1st I thought they would have did. I've only been home one night and I'm having trouble breathing. Scared to death. Need advise on what to do ASAP.

Comment from: luckygirl, 45-54 Female (Patient) Published: July 26

I too had shortness of breath for around 8 months; I also had a swollen calf and foot. DVT test was abnormal, so they sent me to a cardiologist who did an echo and stress test with negative results. Dr. insisted it was asthma. Finally I begged that "somethings got to give" and was sent for a CT. I also mentioned that I had done my own research and thought it was PE. Low and behold, yes it was- in both lungs. WHY WHY WHY don’t doctors take patients symptoms more seriously??? I just don’t understand.

Comment from: Heather, 25-34 Female (Patient) Published: May 05

I am 28 years old and was recently diagnosed with having a pulmonary embolism. I am a very active mother of two and do not smoke, so for the cause of my PE was birth control pills. My symptoms began as sudden chest pain on my left side. At first, I was in pain only when I took a deep breath. Then, my pain began with every breath. I knew something was really wrong when I found that I could not lay down and sitting down was a chore. After one misdiagnosis of a pulled muscle, I finally went to the ER, where they did a CT scan (which was about impossible, since I could not lie down) and found the clot in my lung. This has really been a nightmare which could have taken my life. If anyone may have these symptoms, do not take them lightly because you may not be so lucky.

Comment from: patient, 35-44 Female (Patient) Published: March 17

I am a 39 year old woman who was very active on my feet every day. I kept nausea all the time and shortness of breath, pains in legs shoulders and arms, sharp pain every now and then in my chest. I’m a smoker now for about 28 some years. Recently I got to where I just could not walk for the pain in legs went to doc found out I had a blood clot in leg and 2 in left lung. I was in hospital 6 days was given lovenex injections once daily and Coumadin once daily. Now on Coumadin 7 .5 mg daily. I am still active but have to rest often. I will be on Coumadin for 6 months unless I clot more. Then I will be on it for the rest of my life.

Published: March 16

My husband is 39 and was in awesome health until 3 yrs ago. He has since started having seizures, progressive blood clots, and high blood pressure. He is in very poor health now, since all this has happend. He continues to battle daily with the pulmonary embolism in both lungs, the clots keep growing on top of old ones and still there is no answers to why he keeps developing the clots, while on warfarin and lovenox injections. His blood keeps getting thicker by the day and the Drs are starting to bother me not wanting to do anything. I live with him and see what he's going through on a day-to-day basis. Anyone have any suggestions??? Please help before it's too late! Thank you

Comment from: wendy, 35-44 Female (Patient) Published: February 14

I am 40 years old and had been having shortness of breath for a few days and suddenly started passing out, ended up in hospital for three days with bloods clots in each lung, the doctors were very thorough throughout my stay and determined that being on birth control for 19 years was the culprit. Needless to say, I am no longer taking BC, on blood thinners for the next 6 mos. and slowly recovering.

Comment from: jodigil1965, 45-54 Female (Patient) Published: January 26

I am a 46 year old female. I was diagnosed with a blood clot in my left lung on 5th of January. I was admitted to the hospital for 5 days, but my blood count is so low that I cannot take blood thinners. I had a filter put in my right leg 7th of January. I just don’t understand why my doctor is not trying to help me. He is not even worried about it growing!

Comment from: ej, 45-54 Male (Caregiver) Published: January 19

I am a 45 year old African American male. I've had 3 separate blood clots. The last time my aftercare doctor told me the score of my Coumadin. Instead of taking 5, take 5 one day, and the next day take 2 in a half. I was rushed to the ER, only later to find out we had a misunderstanding. I was to take 5, and then 7 in a half. So please get a good understanding on how to take meds, because that one mistake could have caused me my life. I was in the hospital for 10 days.

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