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Pick Disease

Question:

Was a loved one diagnosed with Pick's Disease? Please describe your experience. Submit Your Comment

Comment from: Amy, 45-54 Male (Caregiver) Published: November 14

My father was diagnosed with dementia in his early 50s. The Pick's disease diagnosis wasn't confirmed until an autopsy of his brain. His death was caused by a choking incident in his day care facility. Dad was supposed to have 1:1 care to supervise meal times since he would shovel food into his mouth faster than he could swallow. He managed to sneak away crackers and choked on them in the bathroom. All of the described symptoms were seen in my father with the exception of aggression (thankfully).

Comment from: JO, 65-74 Male (Caregiver) Published: May 11

My husband was misdiagnosed with Pick's disease a year ago. I was concerned about him since his sister was in end-stage Alzheimer's disease, and died from it this year. Our physician only sent us to a psychology group who specializes in Alzheimer's disease. After only a three hour interview with a guy with an MS degree, they diagnosed him with Pick's Disease. No other testing, and most of the questions they asked me were misinterpreted on the evaluation. After conferring with his other physicians who have known him for 20 plus years, as well as a trusted psychologist, I was advised to throw away the report of Pick's Disease and seek a malpractice lawsuit. Be sure to get all the answers before some guy tells you to start looking for nursing homes like they told me.

Comment from: caregiver1, 55-64 Male (Caregiver) Published: February 17

My mom had Pick's disease for 11 years. It was not hard on her; hard on everyone else! She had behavior issues so bad that when she finally went to the long term care facility, she knocked over an elderly lady and caused damage to her. Although she had lost some of her memory, she was physically fit and misplaced in that facility. They thought she was symptomatic enough to be in the Alzheimer's unit, but those poor people were fragile toothpicks and my mom was extremely healthy and strong. We warned them, but the administrator had total disregard for our input.

Comment from: Biddy, 55-64 Male (Caregiver) Published: February 10

My husband has had frontotemporal lobar degeneration (FTLD) for approximately 5 years. He only eats ham sandwich or meat pie and chips but is now beginning to have difficulty eating them also. He is passing urine more frequently, so will not drink enough.

Comment from: Grammy1969, 75 or over Male (Caregiver) Published: August 08

My 81 year old husband passed away in March with Pick's disease. His last 7 months were spent in a memory care facility. I was there most of the time because he needed one on one care.

Comment from: stewboy, 55-64 Female (Caregiver) Published: June 30

My partner Jacky was diagnosed with Pick's just after Christmas this last year. Our local social service has offered all sorts of help. The trouble has is she has got worse. She's doing unusual things.

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