Pernicious Anemia (Vitamin B-12 Deficiency)

Question:

What symptoms did you experience from pernicious anemia (vitamin B-12 deficiency). Submit Your Comment

Comment from: gtrgrl, 45-54 (Patient) Published: June 16

My vitamin B-12 deficiency must have been coming on for years. My B12 level was at 55 when my pernicious anemia was discovered. I immediately started injections. I had gone to the doctor for canker stores and weird welts on the inside of my mouth. My dentist and the tongue specialist he referred me to, both thought the red achy tongue was due to something called geographic tongue. I had benign tumors removed from my abdomen years ago and maybe that caused it.

Comment from: LatvianLady, 65-74 Female (Patient) Published: November 09

After about a year of gradual hair loss I went to my general physician. Feeling a little embarrassed that I was perhaps wasting his time, I said I wanted to see if there was a link to my type 2 diabetes or any other medical reason. After 2 blood tests I was told I had pernicious anemia today. My first course of 6 B12 injections start next week. Apart from brittle nails and some slight loss of balance now and again I had no other symptoms.

Comment from: Celia, 45-54 Female (Patient) Published: July 25

I was diagnosed with pernicious anemia in September 2017. My symptoms were intense muscular pain in my upper back and shoulders, smooth shiny tongue that bled, and cracks in the corners of my mouth. I also had a very noticeable breathlessness on climbing stairs or on an incline, odd tingling in my lips and upper thighs, and a feeling that something was stuck under my toes as if my sock was kind of creased in there. I'm on 3 monthly B12 injections. Some of the symptoms have improved but not all.

Comment from: mamaw, 65-74 Female (Patient) Published: February 09

In 2008 I was diagnosed with pernicious anemia (vitamin B-12 deficiency) through blood tests. My symptoms built on each other daily until finally diagnosis and injections reversed the symptoms. I have to take injections for the rest of my life, 2 times a month or more to keep symptoms away. My symptoms started with nightly bad leg cramps (charley horses multiple times in the night that just would not relax no matter standing, lying, whatever), depressed feeling like something bad was coming, and feeling very tired. I would be so sleepy I would fall asleep sitting up, but when I lay down flat I would be wide awake and unable to get to sleep. This went on for about 6 months. Then started extreme frequent urination 7 times a night, multiple times in the same hour daily; I began to enter stores scoping out where bathroom was as sure I would need it soon. I didn't have any kidney infection present but unable to hold bladder. Then there was decrease in smell, taste was off, I could not taste if salty or sweet enough when cooking, others eating would say seasoned fine. I had extreme itching at nose, rectum, privates, crease of legs, under my breasts. My hands were obviously shaking and dropping dishes without warning when you knew you had good grip; just fell out of hands without warning. While walking I would side step and stagger like a drunk and then go on straight. Mental problem was I would tell something over and over and not realize I had told multiple times, would get words tangled up in talking, would ramble in talking and realize it but take a few minutes to control. Memory was very fuzzy, hearing muffled, and finally mouth ulcer present few days sent me back to the doctor who said any mouth sore, ulcer or cold sore that lingers is major sign of pernicious anemia as disease progresses. He ran tests for multiple sclerosis as precaution due to same symptoms possible, but negative, blood tests for pernicious anemia were positive. Injections reversed symptoms in few weeks, some that I realized in hindsight had been going on for years, but until they became numerous didn't raise flag for concern. I had stomach surgery in 1980 for ruptured appendix with gangrene, peritonitis, and endometriosis and 1982 again exploratory stomach surgery for numerous ovarian cysts, and my doctor said any type of stomach surgery or someone having chemotherapy could be reason for pernicious anemia as you lose intrinsic factor that absorbs the B 12 and could be years later before it surfaced.

Comment from: Betty, 65-74 (Patient) Published: April 05

The symptoms I experienced from pernicious anemia were severe fatigue, burning tongue, and memory loss. My daughter in her 40s has it as well as my father. I take B-12 injections.

Comment from: Kushal Q, 45-54 Male (Patient) Published: August 27

I have had shoulder pain off and on, and sensitive mouth and tongue for months, I think from vitamin B-12 deficiency. I opened a Becosule capsule and let it dissolve in my mouth for 15 minutes before sleeping. Next day all symptoms vanished. Repeat this ritual at night for a week.

Comment from: Miami, 55-64 Male (Patient) Published: September 23

Pernicious anemia caused painful cramps in my legs, severe ringing in my ears, loss of appetite, walking with a loss in balance, serious memory impairment, swelling of my jaw, pain in my chest, severe depression, and numbness in my feet. I have started injections. Ringing in ears and numbness in feet continue. Some impairment of memory continues.

Comment from: Kent L, 55-64 Male (Patient) Published: March 20

Being a vegan for 3 years caused low levels of B12 (pernicious anemia) revealed in a blood test. I had been suffering severe leg pain and could not work out the cause. It has taken 6 weeks of supplements put in my breakfast smoothie to bring B12 back to normal and the pain is going away. The pain felt like it was in the nerves. Raising the legs did not help and sitting made it worse. Yoga, massage and an electric massager would temporarily relieve the pain and, along with the supplements, have been the cure. The pain is reducing daily and my doctor says because I did not get to the stage of tingling in the legs no permanent damage was caused. Glad I had the blood test to find the cause.

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