Pelvic Inflammatory Disease (PID)

Question:

Please describe your symptoms of pelvic inflammatory disease.

Comment from: Caroline, 19-24 Female (Patient) Published: July 17

I had lower abdominal pain majorly by my right pelvic area. With two previous bacterial vaginosis infections that were unsuccessfully treated for over a month, I am currently diagnosed with pelvic inflammatory disease. I just started my two-week medication two days back, but am experiencing body weakness, sleepiness, big appetite and big headaches.

Comment from: Lyn, 25-34 Female (Patient) Published: July 07

I have, for the last 7 weeks, experienced abdominal and pelvic pain, loss of appetite, fatigue and pain radiating down my upper thighs, lower back, down my sides and some aching in my chest. I’ve had heavy discharge which is yellowish and light brown. I saw 4 doctors to all of which said I either had a urinary tract infection (UTI), sexually transmitted disease (STD) or stress. UTI and STD tests came back negative. I ended up in the emergency room last week but was sent home with no answers. My general physician finally said I have pelvic inflammatory disease, but after medications, the pain has come back mildly.

Comment from: Maggie, 35-44 Female (Patient) Published: May 11

A few weeks ago I had a urine infection and cloudy urine for a few days, burning and wanting to urinate constantly, but couldn’t. Yep, it was UTI (urinary tract infection). Fast forward a week or so, I had a stabbing sharp pain in my right ovary where I have 2 small cysts. I have been bleeding on and off for a week and a half now, and the pain is sometimes sharp but I am quite used to it from cysts and fibroids. Today I had a scan and my gynecologist told me I have pelvic inflammatory disease (PID), and it can be caused by non-sexual infection.

Comment from: Mercy es, 45-54 Female (Patient) Published: May 01

I have been on the treatment for pelvic inflammatory disease (PID) for 3 days now, but I still have severe pains; pains I never experienced before I started the treatment.

Comment from: Joy, 25-34 Female (Patient) Published: April 06

I have regular headaches every day and fever too. I treated my pelvic inflammatory disease last month with gentamicin injections for 5 days and with some other drugs, but I am still having the headache, and I don't sleep well with this headache.

Comment from: Keziah, 25-34 Female (Patient) Published: September 30

I’ve been diagnosed with pelvic inflammatory disease. I was given IV clindamycin and gentamicin. It’s been 3 days now and the symptoms are getting worse than before.

Comment from: Oluwadarasimi , 19-24 Female (Patient) Published: September 16

I started my treatment for pelvic inflammatory disease 6 days ago and today is the last day. My treatment is just for 6 days but I’m feeling very weak. I am throwing up and I’m losing appetite. Now I am wondering if I am pregnant.

Comment from: Baby, 19-24 Female (Patient) Published: June 04

I feel pain toward my back, uterus and my leg. I don't know if it is pelvic inflammatory disease and how to cope, my brain is shattered. My left side shoulder, hand and leg feel numb.

Comment from: zita, 25-34 Female (Caregiver) Published: May 19

I am having pains in my bladder and sometimes it feels like something is moving inside my tummy. I wonder if this is pelvic inflammatory disease.

Comment from: Homachi, 25-34 Female (Patient) Published: February 05

I went to see a doctor because I was having pain in the lower side of my stomach. The doctor ran a scan and said I have pelvic inflammatory disease (PID). I was then given an antibiotic infusion, injections and drugs but they are not working. I still feel the pain after much treatment.

Comment from: mariam, 25-34 Female (Patient) Published: December 03

I have lower abdominal pain and pelvic pain that radiates to the back. It’s been 2 months now, and I took antibiotics for a week for pelvic inflammatory disease, but it won’t go away.

Comment from: Mermaidkisses, 19-24 Female (Patient) Published: November 22

Past 2 or 3 months I have been suffering from lower left groin and dull pelvic pain. I felt nauseous, sometimes with pain radiating to my lower left back and in the left side of my leg and calves. I had done ultrasound and found I have pelvic inflammatory disease. I was afraid to go outside because one time I felt lightheadedness. I have consulted 7 doctors and no one can understand what’s happening with me. I took antibiotics for 10 days but still have pain. My 2nd ultrasound also is done, everything is normal in it, and I have done routine blood test.

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Comment from: Margaritamixx, 35-44 Female (Patient) Published: October 16

I’ve had pain in my lower right abdomen and often in my bladder area. I also have extreme fatigue. Today is day 5 of being on antibiotics (doxycycline) for pelvic inflammatory disease, and I have very little or no improvement. Wonder how many days it usually takes for antibiotics to start feeling better.

Comment from: Fidelia, 19-24 Female (Patient) Published: September 09

My pelvic inflammatory disease gives me itches me with a very bad smell from the white thick discharge coming out of my vagina, and it started recently.

Comment from: Judy, 65-74 Female (Patient) Published: August 27

I have pain on the left side, and numbness in my left leg from pelvic inflammatory disease. I often feel weak and shaky, sometimes nauseous. I had a D and C because of abnormal bleeding, now the pain doesn't stop.

Comment from: Catherine, 19-24 Female (Patient) Published: August 21

I had abnormal discharge that was yellow in color and gooey like mucus, light cramping and vaginal itching. I was diagnosed with pelvic inflammatory disease and treated with 2 different antibiotics. The symptoms never changed but my pH swab came back normal. And my gynecologist sent me on my way.

Comment from: Annie, 19-24 Female (Patient) Published: July 30

I am 23 years old. I spent 9 months without meeting my doctor, and when I recently visited the doctor for a checkup I found I had pelvic inflammatory disease (PID). I have just been given tinidazole, doxycycline, Cipro and Brufen. Hope I will be fine because I really need a baby, also the people that research about this terrible disease should explain its cause, because I was reading it with my boyfriend and he was about to kick me off since they say it is sexually transmitted. He later went for checkup he had no any STD; I was about to be killed!

Comment from: Natalie, 35-44 Female (Patient) Published: June 18

I have pain in the lower abdominal region and low back with pelvic inflammatory disease. I also have shortness of breath with weak and faint feeling.

Comment from: Angel, 19-24 Female (Patient) Published: July 11

For the longest while now I have been getting shocking pelvic pain. I used to think my right ovary or kidney was swollen or something. My body was very hot and I have shortness of breath. I'd get dizzy, blurry vision, I'd be weak and moody too. I did an ultrasound this year and they found liquid behind my womb and they were also seeing my right tube on ultrasound which they said they shouldn't be seeing and it also looked a little crooked. During the transvaginal test they touched my tube and it hurt badly and they said it is pelvic inflammatory disease.

Comment from: Tiyema, 25-34 Female (Patient) Published: June 14

I am 34 years old. In 2001 I had an abortion with 3 months pregnancy. From 2010 I started having lower abdominal pains. I've been to different gynecologists and have been advised that it is just an infection and I was given antibiotics to treat it until last year. When I advised the specialist that the pains were now becoming severe and I could not conceive, they did a laparoscopy. When the results came back, I had pelvic inflammatory disease (PID) but not sure for how long I had it because my tubes were scarred and swollen. I was given antibiotics to treat it for 2 weeks. The pains have gone and no more discharge however I still cannot conceive. I did all the necessary tests including transvaginal ultrasound and did a Pap smear, and HIV tests. The results came back negative. I just wonder why I can’t conceive. Last week I visited the gynecologist again and he said I must not lose hope, and that he will refer me for pathology and they will try and bypass the tubes. I am looking for any help because I really want a child now.

Comment from: Iji maria, 25-34 Female (Patient) Published: April 30

I am feeling a pinching pain in my pelvic region down to my vulva. I had ectopic pregnancy last year November and was feeling a stabbing pain this year February so I had to go for abdominal scan and the scan revealed pelvic inflammatory disease (PID). I was treated immediately but I am still feeling the pinching pain.

Comment from: Lily, 19-24 Female (Patient) Published: June 22

I've been feeling pains in my left pelvis since March. I’ve been on antibiotics since then but it hasn't stopped. I've treated pelvic inflammatory disease over and over. Wonder what could be happening.

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Comment from: Fifi, 25-34 Female (Caregiver) Published: April 14

I have pain on the lower left abdomen with pain in my left leg, from pelvic inflammatory disease.

Comment from: Gloria A, 35-44 Female (Patient) Published: March 18

I have been feeling this pain on my pelvis, and my stomach is bloated down to my pelvis. My urine come in bits and is frequent, and I have more gas than stool when I go to the toilet. I wake up every morning with pain on my pelvis. I am worried it is pelvic inflammatory disease.

Comment from: Pleaseadvise1, 25-34 Female (Patient) Published: September 17

I am a 30-year-old with no kids. I had a urinary tract infection a few weeks ago, took antibiotics, it went away for a bit, and then came back. I took the same medication but it didn’t work. I have been feeling discomfort in my lower abdomen and lower back, and the last few days my appetite hasn't fully been there. I feel a little nauseous, I feel like I have shortness of breath, and my upper legs feel discomfort as well. Unfortunately it's the weekend and I can’t get a hold of my doctor until Monday. I am scheduled for an ultrasound next Tuesday to see if I have pelvic inflammatory disease.

Comment from: Looking for answers , 45-54 Female (Patient) Published: June 24

A couple of days ago I noticed numbness on the right side of my pelvic area after I had experienced a weird pain on the left side of my head like dull stabbing accompanied by a slight headache. The numbness has gone to a larger area to the right side of my body. I also experience soreness in my lower back and right side. I am wondering if these are symptoms of pelvic inflammatory disease.

Comment from: Sarah, 45-54 Female (Patient) Published: June 05

I have had bacterial vaginosis for almost 8 months. I have been given 4 antibiotics which have not worked. The last few weeks I have been having headaches, dizziness, blurred vision and exhaustion. I wonder if this is pelvic inflammatory disease. I have a date to get a pelvic exam done.

Comment from: mommy1, 25-34 Female (Patient) Published: August 16

I have pelvic pain on the left side and feel pain in the hip area. This my second round of antibiotics. I have been diagnosed with pelvic inflammatory disease (PID) twice this year. There isn't enough information online. My PID is because of bacteria and not an STD. I'm not sure if this ever goes away. The doctor wants to do an exploratory surgery. There isn't enough information about that procedure either.

Comment from: worried, 35-44 Female (Patient) Published: March 05

My pelvis hurts because of pelvic inflammatory disease and it is numb and I can’t walk.

Comment from: Dare, 55-64 Female (Patient) Published: December 03

I am a 58 year old grandmother, who has been having the symptoms of PID. I am just now getting over several months of severe lower abdominal pain, cramps and low grade fever. I have a history of cysts on my female organs, including a cyst that ruptured and made me believe I was dying. My daughter is now going through a much deeper case of this disease. She is consumed with cysts that have become infected and she had hospital care for days. She is on antibiotics for four weeks now. A hysterectomy is coming, I am afraid. What really makes our situation strange is my 8 year old granddaughter has the same pains and fever and was seen by a doctor today. She could possibly have the same thing.

Comment from: hayley3, 45-54 Female (Patient) Published: October 27

Mine was severe and I developed reactive arthritis after and I have found very little information about that so it has been a fight for years to get a diagnosis even though my sacroiliac started bothering me a month after being released from the hospital. I did have a baby after two or three surgeries to fix the tubes. But my lower back pain has been hell all these years and doctors are clueless as to what a bad case of PID can do.

Comment from: 35-44 Female (Patient) Published: September 21

I had severe pain on my right lower pelvis area and my husband took me to the ER. Come to find out I had diverticulitis with a perforation. I spent a week in the hospital in antibiotics and pain meds. Another week of oral antibiotics and then after a week without them I had a rebound of the pain. Back on antibiotics, but still had pain. Surgeon referred me to a GYN and now I'm diagnosed with PID. In my research online, diverticulitis can cause PID. I really wish the basic web sites that explain PID would mention this. Granted it is rare (especially at my age of 42) but it's also misleading to have the sites put STD's as pretty much the only reason for PID. This won't allow me to put the web sites where I found this information but I did a search under tubo-ovarian abscess which is what happened because of the perforation. I've been off work for 5 weeks now and the doctors still don't know if they are going to do surgery. This is very frustrating!

Comment from: amanda_baybeee, 19-24 Female (Patient) Published: May 24

I am 20 years old and have a 2 year old son. About a week ago I began getting really bad pains that felt like my uterus was cramping (like it did after childbirth). I honestly thought I was having a miscarriage but didn't even know I was prego. I have an IUD (Mirena) and was like there’s no way I'm prego. Finally the pain became unbearable and my boyfriend took me to the ER. They diagnosed me with a UTI (which I'm prone to anyways- nothing new for me to hear) but as they ran my labs, they found I have PID. As soon as they said that I broke down crying because I didn't know what it was or how it happened. My boyfriend wants a kid of his own so for me it was devastating that I might not be able to have anymore. But they gave me a shot (haven’t heard anyone else talk about getting a shot, so now I’m curious) and put me on an antibiotic. Hopefully I get better soon. It’s been 2 days and I'm still in pain, but it doesn't feel as bad today.

Comment from: Gemini, 35-44 Female (Patient) Published: September 10

I am 38 and have been diagnosed with PID two days ago after about a month of vague symptoms that included low grade fever, extreme fatigue, lower back pain that spread to legs on occasions, and lower abdominal pain. My fear is that I have had PID for much longer than a month, as I had had some of these symptoms over the course of the last two years. I was given two antibiotics to take over 14 days, hopefully this will clear it altogether. I am now worried about potential damage to organs caused by this condition. It may be worth mentioning that several GPs completely misdiagnosed me, and I was persistent enough to eventually find one that would listen and actually put some thought into the whole case. One of the wrong diagnosis included "irritable bowel syndrome"! The full onset of PID can - from my experience - make you feel beyond miserable. I have been listless, unwell, exhausted and sleepy all along. Can't wait for the antibiotics to kick in! I am still waiting for the results of a full scan to STDs, but presumably it is clear as my partner's came back clear. Earlier this year a bacteria (Ureaplasma urealyticum) was found in my vagina, and I wonder whether the onset of PID has to do with this particular bacteria.

Comment from: brittanypowell, 13-18 Female (Patient) Published: September 10

I was recently told I have PID and I’m only 17 and it scared me and my boyfriend because I thought I was pregnant because I had nausea, decrease in appetite, and minor lower stomach pain one night. the next morning I woke up crying cause I was in so much pain I could hardly move I ended up falling on my way to the restroom cause I felt like I was going to vomit, but got to dizzy before I got there I had to call 911 to get me to the hospital where I found out I have two cysts on my ovaries and I have PID and I might not be able to have kids which is depressing to me and my boyfriend, but we are still trying to find a way to get around the pain and we are still talking to the doctor for help.

Comment from: Amaka, 25-34 Female (Caregiver) Published: June 18

I have left abdominal pains and worried that it might be pelvic inflammatory disease.

Comment from: Kenny, 25-34 Female (Patient) Published: June 05

I have a very hard pain on my lower abdomen, feeling feverish, body is swollen, lower back pain, shortness breath, tiredness, and teeth pain. I am worried about pelvic inflammatory disease.

Comment from: Susan, 25-34 Female (Patient) Published: July 15

I had a horrible pain under my belly button, like something was ripping apart inside, I vomited and felt dizzy. I went to the doctor and none of them including the gynecologist could figure it out what was wrong. I also had my legs numbs, urinate very often, and some pain while having sex. Period pain became unbearable. One year later I had to go to ER because the pain came back worse. Finally I am getting treatment for PID. I am so angry it took a year for being taken seriously.

Comment from: Jane, 45-54 Female (Patient) Published: May 21

I am a nurse of 30+ years I was horrified to be diagnosed with PID at 48yrs old, married for 23 yrs. Horrified because I too thought that PID was only caused by STD. I had fevers extreme left sided pain radiating to my back, constant nausea, and I just felt dreadful. My symptoms came on quite quickly and exacerbated rapidly, it was all due to a perforated appendix swiftly followed by a ruptured ovarian cyst. I just cannot believe how almost all websites I have researched identify STD as the main cause of PID with minimal information regarding other causes. Whatever the cause, it is a dreadful disease to have, manage, and live with.

Comment from: Sudha, 35-44 Female (Patient) Published: January 24

I have severe pelvic inflammation which causes unbearable pain during periods.

Comment from: beatrice malisa, 25-34 Female (Patient) Published: December 06

I have been ill since 2007 and I have taken several treatment of UTI as recommended, but I never healed since that time. On September 2011 medical check-up showed that I have PID.

Comment from: 19-24 Female (Patient) Published: October 31

When I have PID, I had abdominal pain; pain in the pelvic region, and bleeding even after my menstrual period.

Comment from: ashanti, 13-18 Female (Patient) Published: August 11

I have pelvic inflammatory disease and my symptoms are a strong smelling discharge, as well as pain in the belly and in my back.

Comment from: Tyyt, 19-24 Female (Patient) Published: June 28

Abdominal pain, increased vaginal fluid and back pain are symptoms I've had with PID.

Comment from: Eric, 55-64 Male (Patient) Published: May 02

With my PID, I have hip joint pain that shoots down my right leg when trying to stand, and I get fevers at night.

Comment from: AshleyElizabeth, 19-24 Female (Patient) Published: January 10

I was diagnosed with pod at the age 16. I am now 21. I was in extreme pain going back and forth to the doctor. I had a cyst that has ruptured and the doctors didn't know so they kept giving my antibiotics and sending me home. Finally I went back after that and they did a pelvic exam and it was very bad. I was admitted into the hospital right away. I had a very high fever and I was very weak. I thought I was dying. They put IVs in me and started antibiotics I was on the highest dosage they could give me. After 3 days it didn't work and I was told I had to have an emergency surgery and that they were going to remove everything and I was only 16. I went to surgery and they didn't have to take anything they just cleaned the infection out and I now have a big scar. I am now engaged to be married and I was told I would never have kids. This hurts me every day of my life. All I ever wanted was to be a mommy and I can’t. Girls, listen to your bodies. PID is a very serious illness.

Comment from: Hepsi, 35-44 Female (Patient) Published: December 20

I have endometriosis and right ovary was removed 6 years ago. About a month ago, I suddenly had pain in the lower right abdomen. When the bladder empties, pain spreads towards the groin and the lower back. It was weird and I never had such a pain. I went to GYN and she examined me said it is PID and put me on a course of antibiotics and after vaginal suppositories. I felt alright, pain had totally gone. After stopping the medication, in 3 days pain is back all over again. Pap smear report suggests cervical inflammation. Doctor had asked me to do urine culture and complete blood picture (CBP). Hope my condition is diagnosed correctly soon.

Comment from: Katelyn, 13-18 Female (Patient) Published: November 17

Today, I just found out that I have chronic PID. I really haven't had many symptoms, the only one being I have be on my "period" for over a month. I really hope it hasn't traveled to my tubes, and I caught it in time. Me being only 18, I always gets UTI's at least once or twice a year. The last time I was in the hospital (this was before I found out I have PID) I had thought I needed my appendix removed, but they said I had a "Kidney infection" But from what I’m hearing from everyone else’s comments, it makes me wonder if it was really miss diagnosed and was really PID. My doctor told me that I have had it for at least 8 months. I am so scared. I hope I don't have this for the rest of my life. I wouldn't want anyone to have this. I’ve only known I have had it for a day, and I am so stressed out.

Comment from: s, 25-34 Female (Patient) Published: September 07

I've been having the worst stomach pains for about a week and a half. Each day they get worse to the point that I can’t stand up straight or breathe right. I went to the gynecologist and was told it must be a bowel problem based on the area of my stomach that hurt. I ended up going to the emergency room but left with no answers. The next day I went back to the ER with stabbing/piercing pain in my stomach. After a CT scan, they tell me I have PID. I was given an IV antibiotic and another one in pill form for 10 days. I have never felt pain like this in my life! I hope the pain subsides soon. I wouldn't wish this on anybody.

Comment from: judy, 45-54 Female Published: May 03

I was diagnosed with pelvic inflammatory disease. I had lower abdominal pain, fever, severe weakness and headache. I was in the hospital for two days recently. They thought I had a ruptured cyst on my ovary. I’m now taking medications, but I don’t feel any better.

Comment from: Angie, 19-24 Female (Patient) Published: April 09

I am 22 years old. I was diagnosed with PID just last night after being extremely ill for a week and half. I have a history of interstitial cystitis and polycystic ovarian syndrome so when I started getting pelvic pain again I thought it was no big deal. My doctor ordered a pelvic ultrasound but everything came back normal so we just left it alone. That has been about two half weeks ago. Unfortunately, I started running a fever and then I got chills really bad. I developed nausea and loss of appetite, and headaches. Two days ago I was on my way to school and almost passed out. I called 911 and they took me to the emergency room. I have a cardiac history so instead of investigating why I felt so poorly the ER doctor assumed it was a flare up of my heart problem and sent me home without ordering hardly any tests. Last night the chills got horrible and so did the abdominal pain so I went back to the ER and the doctor ran several tests before concluding that he felt it was PID. I am now on two antibiotics but unfortunately they have caused me to start vomiting. As soon as my OB/GYN's office opens in the morning I am going to call and make an appointment. I hope I have not done damage to my reproductive organs but I have had chronic pelvic pain for years so I wonder if I have been misdiagnosed for a period of time now.

Comment from: knowledgeableone, 19-24 Female (Patient) Published: January 05

Wow! PID is the worst feeling ever. I got mine from a brand name IUD and ever since I got my IUD taken out, I get PID every time I go into the doctors. To me, having PID is like always being sick to the point where the medications don’t help and won’t work.

Comment from: Janice, 25-34 Female (Caregiver) Published: December 22

After my period, I would get an abnormal discharge, sometimes with traces of blood. Then it could turn yellow. The cramps were so unbearable that I had to go see a doctor who later told me I had PID. I was put on medication, and after a few days, I got better. I got my next period and there was no reoccurrence of the cramps after the period. My only worry is that I hope it did not damage my reproductive system because I want to have children some day.

Comment from: lisa, 19-24 (Patient) Published: October 19

I had just gave birth to my son, he was about a week old my mom told me it was just my uterus going back in its normal shape. The pain was way worse than child birth, after a week I went to the hospital they did exploratory surgery said it was pid. That was worst pain ever hospital stay was 2 weeks.

Comment from: M . K., 25-34 Female (Patient) Published: March 08

I am a 28 years old female from india. I had fever, stomach ache, back ache, nausea, loss of appetite since last 8-10 days My doctor suggested ultrasound of abdomen and pelvis. I was diagnosed suffering from pelvic inflammatory disease. The disease is treatable according to the doctor.

Comment from: AndiTTCwithOneTube, 19-24 Female (Patient) Published: June 29

I'm 19, and I have chronic PID. They diagnosed me when I was 14, and I have had recurrent episodes ever since. They can't find anything to help me. I have already had Hydrosalpinx in my left fallopian tube. They removed it April 20th, 2010. Now PID is attacking my other fallopian tube. I was in the ER twice yesterday. Ultrasound to see if it has affected my right side is appointed for tomorrow. It's an awful disease and I wouldn't wish it on anyone.

Comment from: 19-24 Female (Patient) Published: November 11

I was diagnosed with PID a few months after I gave birth. I was given antibiotics (Doxy Metronidazole and vaginal suppositories) for two weeks and I got better. A few months after, there was an unusual vaginal discharge which is yellowish and greenish in color and stabbing pain below my stomach. I have a poor appetite, I urinate a lot and my legs are sometimes numb. I feel nauseated and I feel like vomiting sometimes, I also feel feverish most especially before menstruation. I went to see several doctors, but I was told I have UTI and they don’t seem to believe that I have had PID before. Now I’m feeling so much worse. I can’t wait for the antibiotics to kick in. I’ll be going back for my follow up check in two days and hopefully things will get better.

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