Main Article on Neuropathic Pain Question: What is or was the cause of your neuropathic pain? Submit Your Comment Comment from: Just me, 65-74 Female (Patient) Published: March 25 Spinal stroke was the cause of my neuropathic pain. Comment from: Weedy, 65-74 Female (Patient) Published: November 25 Chemotherapy gave me peripheral neuropathy, and I also had a heart attack. Comment from: Stacy, 45-54 Male (Patient) Published: August 07 Multiple sclerosis, cancer and a patella dislocation of the right knee caused my neuropathic pain. Comment from: Dar, 45-54 Female (Patient) Published: June 26 Myelitis is the cause of my neuropathic pain. Comment from: Soo, 35-44 (Patient) Published: May 02 I was stabbed in my right wrist and upper left torso which is the cause of my neuropathic pain. Comment from: Ashhat34, 35-44 Female (Caregiver) Published: August 27 My mom has nerve pain, she says it's like electrical bolts of lightning shooting through her body. Some rare days she's ok, but then there are days where she's stiff as a board, then she can't move. No one believes her, doctors tell her it's in her head. I am wondering how I can get my mother referred to a nerve doctor with no sign off from another doctor. I just want to help my mum, thank you. Comment from: davtd, 55-64 Male (Patient) Published: June 19 I have neuropathic pain in neck and left arm, I don’t know the cause. Comment from: jgilson, 25-34 Female (Patient) Published: November 21 I have had severe pain mostly in lower back and legs for about 16 years. I have been to many doctors that have either told me "you are too young to have pain like this" or "you have spinal problems". And MRI after MRI has proven that I have multiple back problems, yet none of my doctors want to help my pain. All they want to do is give me a prescription that I could pretty much double the dose of the OTC version and send me on my way. I finally, After 16 agonizing Years of being in pain, that no one else understands, went to a neurosurgeon to discuss surgery, I had written down ALL of my symptoms for him to go over. He did his evaluation and immediately said, "I am going to refer you to a neurologist because the majority of your symptoms sound like neuropathy. I will find out tomorrow who I was referred to and hopefully will, finally, after 16 years, get some REAL answers and maybe, some REAL HELP! Comment from: Laura , 45-54 Female (Patient) Published: November 14 I have had chronic pain for over 4 years now. It started after I was diagnosed with breast cancer in both of my breasts. I had bilateral mastectomies with immediate reconstruction. I have burning pain in my chest wall. My surgeons and family practice physicians didn't know what to do except give me more narcotics and put me in physical therapy. I have been through 2 rounds of physical therapy, pain management clinic, breast reduction (I wanted him to take my implant out but he talked me into reducing first, I was never big just a small C cup) and injections by anesthesiologists. I even did a trial of the implanted spinal nerve stimulator, I really hated that. So now the good news is, I am seeing a doctor that practices alternative medicine. In the past two months she had reduced my fentanyl patch from 67mg to 25mg. We reduced only 12.5mg every two weeks. And reduced my Lortabs from 12 a day to 9. She has used acupuncture and other medicines called Vistaril (helps with opioid withdrawal), desipramine (antidepressant), clonodine (opioid withdrawal), Gralise (this was used instead of my Neurontin, used for nerve pain). I also have a muscle relaxant but rarely use it. It has been almost 2 months since I started working with her but I am so pleased. Comment from: wannabbetter, 35-44 Female (Patient) Published: January 30 Almost a year ago I had two flu types A and B. This lead to sepsis and D.I.C. God healed me and I have recently been released by most of my doctors. My swelling was so severe that I now have neuropathy in both my feet and hands - amputation was once a possibility. I have been in so much pain -burning, sharp "knife like “pain. I have tried neurontin, which helped but me gain weight. Now have a RX to try Topamax. Wish me luck! Comment from: Abby1980, 25-34 Female (Patient) Published: November 16 I have been in pain for about 10 years. Having had bad experiences with doctors telling me I'm depressed, etc, I just learned to live with it. But 4 years ago, it crossed the line and became unbearable. It sent me to the clinic, as I have no insurance. It was hard to describe this pain, until my neighbor who is a diabetic said her neuropathy feels like "breaking bones". I'm like aha, yea, that’s it! Breaking bones mixed with electricity, on every inch of my body. As of now, not sure what I have 2 mri's of the brain and one of the spine, herniated disc and lesions, and "nonspecific" white matter lesions on the brain. I feel for all of you I know it’s a living hell especially when people don't believe you. SLIDESHOW Fibromyalgia Symptoms, Diagnosis & Treatment See Slideshow Comment from: kpain, 25-34 Female (Patient) Published: October 24 I had multiple reconstructive surgeries on my left ear to replace an eardrum I lost at the age of 4. All the skin grafts were taken from the same site. A minor infection a year ago triggered a pain response that has not gone away but only gotten worse. My ENT washed his hands of me when the ear infection went away. So far my insurance has only authorized narcotics for treatment and I am fighting for alternative treatments. My primary care doctor has been treating me and was the one to take time to do research to figure out what I had. Comment from: Gail, 65-74 Female (Patient) Published: September 27 All my Neuropathic pain came from me being depressed and sitting and sleeping in the same chair for two years, not getting up except to go to the bathroom. I lost from 135lbs to 87lbs because of this. The bones in my butt had either severed or mashed the nerves. I can't sit without pain pills, I haven't found a doctor who will help me, other than helping with the pain. Comment from: Marjorie, 65-74 Female (Patient) Published: September 27 I am a polio survivor and have had late effects including sensory loss and wasting in shoulder girdle and upper arms, and central sleep apnea and chronic fatigue and fibromyalgia. Neuropathic pain in my feet is horrible. It seems that my polio is the most likely cause, as other causes you list do not relate for me, and polio is mentioned in other references. I am helped quite a bit by gabapentin, ibuprofen and Diegetic, but the stabbing pains are still inhibiting. Comment from: Katzeyz, 55-64 Female (Patient) Published: July 09 Severe lumbar spine stenosis, diabetes type 2 , accidental fall off a ladder onto a table that resulted in a piece of wood embedded in my calf, osteoarthritis and rheumatoid arthritis, fibromyalgia and sleep apnea - all of these are considered to be the cause of the severe pain (almost continuous) that I have in my left leg, both feet and lower back. Sometimes i have it in my arms and hands. my leg feels numb all of the time. I take Lyrica(pregbalin) and mobic and use lidocaine patches. I'm not allowed to take anything stronger than paracetamol because of my apnea. Sometimes, I'm unable to walk the pain is that bad. It also keeps me awake. Waiting to go to the pain clinic Comment from: 45-54 Female (Patient) Published: July 02 I have multiple sclerosis and my doctor recently prescribed gabapentin for me because my leg pain is getting much worse. Comment from: TCP36, 45-54 Female (Patient) Published: December 24 I had ME/CFS for many years and then suddenly developed neuropathic pain all over my body. I have it intensely in my hands, feet, arms, and legs. The pain is relentless burning and prickling and cramps in the muscles after light walking/movement. I also have autonomic dysfunction which means nerve damage to my heart, liver, bladder and bowel. My breathing is affected and I have tachycardia. Lying down is the only time I feel no pain. Origin possibly from the ME/CFS. Use Gabapentin and Duloxetine. I also keep to the low carb, sugar, gluten and dairy-free diet to stop the bloating. Pain always worse when bowel is full...so drink plenty of fluids and eat lots of veggies! I take supplements like alpha lipoic acid and B vitamins to repair nerves and keep as relaxed as possible and move around as much as I can to keep blood flowing. Comment from: Biologybrain, 25-34 Female (Patient) Published: August 29 Chemotherapy induced neuropathy of my finger tips and toes. I also have Thoracic Outlet Syndrome/Brachial Plexopathy that was caused by several surgeries for breast cancer treatment. At the root, my breast cancer diagnosis at age 28 is the cause of all my pain. Stress only increases the pain. Comment from: David Oakes, 55-64 Male (Patient) Published: October 13 I suffered a stroke five months ago and fortunately did not lose the use of either my arm or leg. However ever since then, I have suffered from upper body aching on my left side. Having just read an article which mentions that neuropathic pain can occur after a stroke, I am about to see a specialist and will mention this condition to him. Comment from: haymaker, 55-64 Female (Patient) Published: October 10 The neuropathic pain started 11 years ago following surgery to remove melanoma in my groin. I also have nerve damage and lymphedema. I have tried every painkiller ever invented. Some made me feel really ill. Nothing helps the relentless pain. I am taking pregabalin, but I don’t know that it helps much. At least I feel OK on it. I have tried nerve block, acupuncture, and all kinds of therapies. All that is left is a spinal implant, but I'm terrified of more surgery. My pain is from my knee to my hip, and now with all the unevenness of gait, my joints are suffering from wear and tear, which means more pain! I'm at my wit's end! QUESTION Medically speaking, the term "myalgia" refers to what type of pain? See Answer Comment from: mandm, 35-44 Female (Patient) Published: September 16 No one was able to figure out my neuropathic pain. Feeling like I am being bitten by fire ants, numbness, tingling all over, feeling like I am being stuck with pins, etc. At this point I am so disgusted I gave up. It stopped for about 7 months, but now it is back. So are the migraines and light sensitivity, fatigue, brain fog and intermittent muscle weakness. One neurologist stated it was not neurological - but it responded at least reasonably well at first to neurontin. No known cause... Comment from: andreeh, 25-34 Female (Patient) Published: September 08 I had no problems with my back or spine until I had my spinal for my C-section. I am a stay at home mom with two young kids and a farm to care for as my husband works away from home all week and I am not allowed to take any pain medications or use ultrasound therapy as I am also pregnant again. I don't know what to do anymore as I am in constant pain and have no help with the kids. I've been to every doctor I know of and no one can help me. Comment from: Ken, 35-44 Male (Patient) Published: June 21 Wow I felt like I was the only one with neuropathic pain. Within 8 months I went from bodybuilding, and working two jobs, to not even being able to walk some days. The pain is all over my joints, and it’s insane. It’s unreal from the top of my neck to the tips of my toes. I also have fibromyalgia, and arthritis all through my knees, hand, and back. Comment from: SJL, 55-64 Male (Patient) Published: April 26 My neuropathic pain in my face was caused by a mini-stroke. Five out of seven days a week I have this stabbing pain, mostly under my nose and around my chin. I've tried all different kinds of facial cleansers, oatmeal soap, aloe, neem and trying to freeze my face to relieve the pain. I read here that someone had a stroke and was going to see a specialist to treat the pain. What kind of specialist? My family doctor is at a loss for any kind of treatment, except when he prescribed me Prednisone for knee pain. That relieved the pain in my face, but I can't keep taking strong doses because it weakens the bones. Comment from: Marina, 45-54 Female (Patient) Published: February 01 I developed neuropathy after bacterial meningitis caused by a mass in by frontal lone. It took me a long time to get relief from the pain but Dr.'s were treating me like I was a druggie or something. It really ticked me off! Luckily I found a doctor who put me on the Butrans patch and I have no pain whatsoever! Better living through chemistry :-) Comment from: Waverunner, 55-64 Female (Patient) Published: November 22 I have had Reynaud’s syndrome in my feet for many years. It has been getting progressively worse and now I have full-blown neuropathic symptoms. I went to a neurologist who said it is not neuropathy. If my feet start to get cold, I get severe cramps on my feet and legs. I also get shooting pains; my soles are ultra-tender, like walking on exposed nerves. I think the Reynaud’s and the neuropathy symptoms are closely linked. I have good blood sugar, non-diabetic, am active. Comment from: Shellibee, 35-44 Female (Patient) Published: November 07 I got shingles in the region of the lower right side of my back which has now resulted in phn. My doctor and I are still trying to find the right pain management for me. Gabapetin made me loopy to the point of not being able to think, Cymbalta gave me uncontrollable kind of violent ticks. Currently on pain meds only until my next appointment with the neurologist. I keep hoping someday I will wake up feeling good not writhing in pain because my meds wore off. Comment from: sue, 55-64 Female (Patient) Published: October 24 I had a ruptured baker cyst which left my right foot numb. I am in pain all the time it’s down the right side i can't sit or bend. I have had loads of pain killer but does not help. I have gone back on pregabalin it just takes the edge off. My consultant doesn’t know what to do because this is very near. Hope someone out there can help. Comment from: cleaner, 55-64 Male (Patient) Published: September 27 My pain started about 7 weeks after an operation for a hip replacement. If I don't move there is no pain. The slightest movement causes the pain to start. It is in my large muscles of the legs. If I do physical work the pain intensifies to where I must quit and lie down. I also get very tired. I do not have diabetes. Comment from: 55-64 Female (Patient) Published: August 30 I have extreme burst of burning pain that are primarily in my upper body. Some days the pain is also in my feet and it hurts to walk. Wind blowing on me can trigger the burning; the clothes touching my body can trigger it. They say I have Fibromyalgia, and Chronic Pain Syndrome, and nothing I have tried stops the burning! Good thing I pray! Comment from: roberta13, 55-64 Female (Patient) Published: July 21 I had a surgery and doctors accidently cut 2 major nerves by my spine I was in a wheelchair for 3 years, God healed me enough to get up and I just graduated from college but right now my neuropathy has worsened. My feet burn and hurt when I first get up but I keep going and it gets better but it now burns over my entire body. I have reflux sympathetic dystrophy, fibromyalgia and neuropathy. Comment from: porterhouse, 55-64 Female (Patient) Published: July 12 Neuropathic pain is in my ankles, feet and toes. I have shooting and stabbing pains in the side of my feet. Also numbness, tingling and soles feel like they are frozen. Taking Tramadol only works half way. I have tried Lyrica and it made me crazy I could not function at work. I think I will look for a pain management group. I'm being treated for Lyme at this time. My symptoms have migrated from muscle pain in leg and arms to headaches, Reynauds, swelling hands, feet, legs, arms, ankles. Neuropathy in feet, skin on my feet. Pain moves up my legs. Comment from: hand..some, 45-54 Female (Patient) Published: July 05 For the last five years I have had chronic neuropathic pain in my hands. My hands burn and have throbbing pain with weakness. I am a bank teller and counting money all day is not good. Pain relief does not help much. I have seen numerous specialists but recently my doctor put me on Lyrica. I feel like a new person. I do not wake up in extreme pain anymore and am not living on pain killers. The pain has not gone but is so much better, I feel like a new person. Comment from: 55-64 Female (Patient) Published: June 30 My neuropathic pain began as a domestic beating of my head and then a bad fall that pinched a nerve in my lower back and one of my legs atrophied to half the size of the other. I could not walk for about 3-4 months. Comment from: Mary, 45-54 Female (Patient) Published: May 18 I have a serious pain in my head and I was told that it is neuropathic headache by a local doctor. I have tried many kinds of medicines, but no one can work in a long term. I can feel more pain when I cannot get enough sleeping and bad mood can also cause a serious pain. The pain was all started from a family argument which caused my head hurts at that time and the pain happens constantly. Comment from: Dannybouy, 45-54 Male (Patient) Published: May 17 I have noticed that no one has mentioned the use of opiate based patches. These stick on the skin like a regular plaster and release the opiate over and 24/7 basis on an even dose. They are then changed at the end of each week. I have found this to be a great help as there is no need to swallow tables and no sudden "rush" of the pain killer that invariably wares off after a few hours. I found that for severe spinal nerve pain I use 15mg of Butrans and it has helped! Speak to your Doctor. Comment from: Tracey, 35-44 Female (Patient) Published: May 03 I have had 3 back operations. The 1st was due to a bulging disc and I had to have it removed. I take 120mg of morphine per day and 40ml of oramorph medicine. I`ve been diagnosed as having Chronic Neuropathic pain and the specialists have said there is no more they can do for me. I`m unable to walk and spend most of my days in bed unable to move due to tremendous pain. Is there any advice that anyone can give me as I am very depressed and don’t know what to do. Comment from: VikiMason, 55-64 Female (Patient) Published: April 12 I'm two years out from chemotherapy for breast cancer. I'm enjoying a fine remission, however I've been told my sundry symptoms indicate neuropathic pain. My fingers and toes buzz and tingle. I also frequently have what behaves like gouty arthritis in my feet and hands. My uric acid levels are generally good when this happens. I get more and more confused about the nature of this condition. I'm also pretty discouraged. Comment from: Fate, 35-44 Female (Patient) Published: April 08 I was caught in a crossfire and got shot 7 times, 2 to the torso, 2 to the left arm and 3 to the right thigh. I was also injured in the grenade blast, multiple fragments to my entire body. I was inside a car then that crashed on a 30 feet cement wall causing concussion and abrasions. I've been diagnosed with Neuropathic & Nociceptive Chronic Pain Syndrome. This was 23+ years ago. Comment from: Tewey, 45-54 Male (Patient) Published: February 17 Diabetes (Type 1) was the cause of my neuropathic pain. For a few years the pain in my calves (left more than right) was more of an irritation than a disability, but about three years ago, after a serious hypo which I over-treated (too much orange juice) I found I could not walk at all. For almost a year I was unable to walk more than a few yards without crippling pain, but after a few months I was able to ride a bicycle, and now I can walk a couple of miles (though not very fast) and I can ride my bicycle for an hour or more. The pain is still there, and it is worse when I walk, but it is never as severe as three years ago. I think the daily yoga is helping. Comment from: jrg, 65-74 Male (Patient) Published: May 26 Adult-onset diabetes. Classic stocking-mitten distribution, with numbness now radiating up my arms and legs. Requires pregabalin and hydrocodone for relief of burning pain in my feet.