Main Article on Infectious Mononucleosis Question: For infectious mononucleosis (mono), what were the symptoms and signs you experienced? Submit Your Comment Comment from: Livelifefun56, 19-24 Female (Patient) Published: March 14 I am 19, and my first symptom of infectious mononucleosis showed about a month before I was diagnosed. I had severe stomach pain on the left side so I went to the Instacare and was diagnosed with gastritis. A couple weeks later I checked and had white spots on my tonsils. I tested negative for strep, then my nodes became so swollen and painful and my tonsils so big I went to Instacare again and tested positive for mono. I'm about 2 weeks in, and the left side of my neck is so painful I can't eat or sleep though I'm exhausted. Comment from: R923, 25-34 Female (Patient) Published: November 20 I am a 32 year old fit female. No recent history of sexual activity/kissing. No idea how or when I contracted EBV (Epstein-Barr virus) or what has triggered my mononucleosis. I am a sonographer and remember it starting when I dropped my probe - my hand just gave out. The muscle aches and joint pain became so intense over the next week I went to urgent care; I was convinced I was dying. I was diagnosed with mononucleosis and acute hepatitis. Swollen hands, joint pain, extreme body aches and malaise. I wonder if anyone found EBV to be linked with anything autoimmune. Comment from: CJ, 55-64 Female (Patient) Published: November 07 I was first diagnosed with infectious mononucleosis at age 55 after experiencing a cold that wouldn't go away. A flare up 6 years ago put me out of work for weeks, main complaint being muscle and joint pain and overall weak feeling. Currently, I am experiencing another flare up, at age 64, and symptoms change every few days! Moved from body aches to tingling in arms, chest and face that comes and goes. I am working with a nurse practitioner to strengthen immunity. Constant struggle with depression and anxiety. Horrid virus! Comment from: Cass102, 19-24 Female (Patient) Published: September 27 I first got mononucleosis when I was 20, in November. I felt immense fatigue and that feeling never seemed to go away for 2 weeks so I went to the doctor, and they diagnosed me with mono. They told me I needed bed rest and I surprisingly slept 18 hours each day for the next 3 days. Felt better three weeks later but didn't fully shake off the fatigue until February. Fast forward to a year later, November. I got mono again, same recovery time. This was last year and I'm incredibly nervous I'll be sick again. Comment from: Dee, 45-54 Female (Patient) Published: September 14 I've had a host of mononucleosis symptoms for 5 or 6 weeks now; extreme fatigue, intermittent low grade fever, headaches, swollen/painful lymph nodes, abdominal pain, gas and bloating with diarrhea, shortness of breath, chest discomfort, severe hair loss, joint pain, and muscle aches. My doctor did a ton of lab tests for all kinds of things. The only thing that came back positive was Epstein–Barr virus (EBV). I did have mono at 19 and I'm now 53. I had no idea mono could return and no idea that all these symptoms could be related to mono. Comment from: Mono, 3-6 Male (Caregiver) Published: October 19 My son was really sick for 2 weeks. I took him to the hospital and they said it was the mononucleosis virus. He was in hospital for 3 weeks, then I went home with him but he was still sick. He was tired, didn't eat, his stomach hurt, and he was sleeping the whole time. I took him back to the hospital and stayed a week. They did all kinds of tests and at the end they said it was inflammation in blood cells and juvenile arthritis. They gave prescription for the inflammation of blood cells and stomach pain, and it went away. Comment from: LisaKay, 25-34 Female (Patient) Published: September 06 I became sick in June with repetitive strep, mouth ulcers, and later vaginal ulcers. I was extremely worried about my immune system and the doctors could not figure out what was wrong with me. I did not get diagnosed with mononucleosis until late August when I had severe left side pain and flu like symptoms. Come to find out during that visit that mono can represent itself differently during early stages. Some people have no symptoms, others get strep, or even ulcers on their bodies. Comment from: Branney325, 25-34 Female (Patient) Published: September 05 I am 31. I started with symptoms of dizziness, weakness, and intermittent nausea. Then I got a mild sore throat for about a week. I had just started Plaquenil and thought it was side effects. Two weeks later the nausea got so Intense I couldn't eat or drink, was very dizzy, and had malaise, fast heartrate, etc. I felt febrile but if I checked it wasn't. I went to the emergency room where the doctor found swollen lymph nodes and labs showed mononucleosis. It's been 2 more weeks, total of about 6 weeks since first symptom and I am still sick! Comment from: Valeria Saenz, 25-34 Female (Patient) Published: August 17 I started in June with fatigue, headaches, nausea, and dizziness. In July I got diagnosed with mononucleosis, then a few week later I got more symptoms; chills, internal tremors, loss of appetite, weight loss, abdominal pain, muscular aches, pain in my knees and my nausea got worse which made me vomit all the time. I also had a lot of chest pain. I have been getting a lot of x-rays and EKG for the chest pain and they all come back fine and the doctor keeps on telling me my heart is healthy. I wonder if anyone else has had chest pain with mono. QUESTION Bowel regularity means a bowel movement every day. See Answer Comment from: Albizia, 25-34 Female (Patient) Published: July 12 I'm 31 and until this spring I'd always thought of myself as a person with a very strong immune system. Until I ended up with mononucleosis, that is (finally diagnosed correctly during the 4th fever episode). So far it's been 2 and a half months of recurrent high fever and throat infection episodes (to the point of bleeding), swollen glands, neck, back and arm pain and stiffness, dizziness, fatigue, increased heart rate during fevers, and irregular periods. Still waiting for it to go away. Comment from: ANNIVY75, 55-64 Female (Patient) Published: May 23 I was a small child when I first had mononucleosis and only remember a bout in hospital. Fast forward to age 55, I had such a severe relapse, it took 2 years to have a normal life. However, since then I have had small 4-day relapses of muscle fatigue, short of breath, anxiety, severe fatigue and fog brain. I feel it coming on and fight it until I have to go to bed, working short hours and resting. I spend my time when I am ill writing children's books to get my mind off of my illness. I have good months and then I have times where the relapses are more often. I cannot find a link in doing too much. When I am feeling well I go 100 percent all the time, when I am sick I still try to stay as active as possible, I refuse to give in to this illness. Comment from: Tired , 19-24 Female (Patient) Published: May 10 I am a 23 year old female who was diagnosed with mononucleosis around 2.5 months ago. It first started off with flu like symptoms, extreme fatigue, dizziness, and the whole right side of my body began twitching and tingling. Additionally, vision in my right eye became blurry. Since then I have my good and bad days but still suffer from extreme fatigue, occasional nausea, muscle aches and pains, my vision is still blurry and I have occasional twitching still on my right side. Although I did not experience a sore throat or common mono symptoms, I had random lower back pain, jaw pain, sensitive teeth, and soreness that has slowly subsided. Anything excessive I do makes this virus 10 times worse. I have had blood work done numerous times thinking that I was crazy but they all came back normal except for testing positive for Epstein-Barr virus. I hope this helps anyone else who is struggling and thinks they are losing it! Comment from: Greg, 45-54 Male (Patient) Published: February 14 I first had mononucleosis at the age of 18, when I was a senior in high school. Football season had just ended and it was right after the holidays. What an awful time to get sick! I had it really bad, too. Temperature around 100, extremely swollen lymph nodes in the back of my neck, and no energy at all. Just the opposite of an athletic 18 year old male. It took more than three months to get over. Fast forward to today, I'm 53 and have been diagnosed with mono, again. But, this time I'm the one that told the doctor what to look for due to the same extremely swollen glands in my neck and general malaise. Positive test! It's been a week of doing nothing and it doesn't look to be getting any better. I'm going to try going back to work, but I'm afraid it may only get worse. I don't wish this on my worst enemy! Comment from: futureRN81, 25-34 Female (Patient) Published: June 27 I initially got mononucleosis when I was 17 (that time period is a blur). I think I was out of class for at least a week or two, and slept a ton. I know I had to make up two classes over the summer. Fast forward 8 years later, I had a relapse of the mono. Stress from moving across country, new job, new life, and enjoying too many happy hours in the city really did me in. I remember getting lab results on 12/15, but being well enough to enjoy New Year's Eve events two weeks later. Now I'm 34 years old. I'm a full time nursing student (career switcher), and was just diagnosed with yet another relapse of mono. I've been sick for 16 days, and last night my fever was 101.5. I put my gym membership on hold, and am pretty much on bed rest when I'm not in class or clinical. This is the absolute worst. I don't know if this round is so bad because I'm older, or if it is because I was also diagnosed with Lyme disease at the same time. I'm exhausted and getting really worried that this is going to go on and on for a very long time. My current symptoms are headache, fatigue, fever every night, night sweats, and lack of appetite. Comment from: monosucks, 35-44 Female (Patient) Published: May 03 I am 38 years old, female, and was just diagnosed with mononucleosis, even though I have been feeling terrible for several months off and on. I feel nauseous, internal chills with no fever, night sweats, extreme pain in my hair follicles (so weird) and swollen lymph nodes behind ears. I also have sore throat, headaches and major fatigue to where it is extremely difficult to keep my eyes open. My husband is currently going through chemotherapy and I need to be the rock right now. We have two small children and I work full time. I cannot be this ill while my husband is too. I am panicked. Comment from: Courtney, 19-24 Female (Patient) Published: April 12 With infectious mononucleosis I had swollen lymph nodes, swollen tonsils, a swollen liver, muscle aches, fatigue, muscle weakness, joint pain, a fever, and headaches. Lots of fun. Comment from: Kara, 35-44 Female (Patient) Published: January 14 I am a 41 year old mom and consider myself very active and in good shape. I was at my son's baseball game on July 11th, when I started feeling weird, I had pain in my fingertips and my whole body started to ache. I went home and lay down, and I couldn't get out of bed for 3 days! I had all over body aches, worse than I have ever had in my life; I truly thought I was dying. I had terrible night sweats and kept getting very hot and then very cold. I imagine I had a fever but was too ill to get up to check. After I was well enough to drag myself to the doctor, I tested positive for mononucleosis. Two days ago marked 6 months of struggling with this virus. I have extreme fatigue and my body aches are still very present, not responsive to OTC Tylenol or Advil. I am miserable and I too, want my life back! I am told that only rest will help, specifically 3 plus weeks of lying in bed doing nothing! I am a mom of 6, I work, and have a lot of cleaning, laundry, homework-helping, etc. That kind of rest is not an option! I wish there was a cure for this virus. I also wish someone could tell me when I will feel normal again! SLIDESHOW Bacterial Infections 101: Types, Symptoms, and Treatments See Slideshow Comment from: Sharona80, 45-54 Female (Patient) Published: September 16 I'm 53 and have rheumatoid arthritis (RA), for which I use Enbrel. For the last 8 months, I've had unexplained pancreatitis. I've been exhausted, had severe muscle and joint pain for months, but I chalked it up to my RA. I blamed the Enbrel for the pain and fatigue. Last week, I woke up and I had swollen lymph nodes that I didn't even know existed. I literally could see the nodes in my groin, armpits, near my collarbone and in my neck. They didn't hurt, though. I saw my nurse practitioner (NP), and she examined me and found more swollen nodes. She told me I most likely had mononucleosis. Mono! I didn't even have a sore throat! She told me that mono can cause chronic pancreatitis. Test came back today positive for mono. Unfortunately, there isn't a treatment for my type of mono; just rest and it could take up to three months to get better. Thank goodness for that NP, because every other doctor told me my symptoms were from stress and that my depression needed to be treated more aggressively. I wasn't depressed; I was discouraged because no one was listening to me! Best wishes to those of you going through this. It is awful! Comment from: tsarge, 35-44 Male (Patient) Published: August 04 I'm a 44 year old fit male. I started with a really bad cough and congestion in April. It felt like seasonal allergies. Never went away. Not until my second doctor's visit was I tested positive for mononucleosis! I'm in a high stress job so this isn't what I needed. No energy, sore throat, crazy amount of mucus, and crazy bad rash on both arms that hasn't gone away after 2 months. Advil, Tylenol and rest are what help but I want my life back! Comment from: Dr deb, 45-54 Female (Patient) Published: July 29 I had mononucleosis as a teen, it began with a rash, then severe headache and very high fever. Test results came back positive for mono. Later in life I would run fevers and be tired for no reason. A friend who is doctor told me that mono can flare up repeatedly! Now I'm much older, whenever I exercise too much I get sick with tiredness, aches, fever and headache. I did a 3 hour mountain climb recently and then ran a fever up to 102 F with headache and 4 days later still running the fever, 100 F maximum, and headache. Comment from: Ifeellikeimdyinglol, 19-24 Female (Patient) Published: March 20 I'm now 19 years old. I was first diagnosed with mononucleosis in January when I was still 18 (about 2 months ago), and my worst symptoms were sore throat, swollen tonsils, and fatigue. I'm an athlete and a college student, so I had to stay away from school for a week and away from my sport for 4 weeks. My tonsils were so swollen, they were almost touching. I couldn't even swallow my own spit, so my doctor put me on a steroid and the swelling went down enough for me to eat after a few days. However, getting out of bed was out of the question for a solid couple weeks. Anyway, after I went back to school and started feeling better, I got cleared to start playing my sport again and everything. Three weeks later and I'm sick again with mono. I relapsed and it's so much worse this time. My tonsils were swollen and pus-filled again, my gums are swollen, I have canker sores in my mouth, and I get really bad stomach aches and heartburn when I try to eat. I've already lost 11 pounds in 5 days. My headaches at the beginning were so bad that I would cry with every step I took. I'm also congested on top of everything. I'm sure I'm leaving something out because there's just too many symptoms to keep track of. I would not wish this on my worst enemy. If you have mono and you're reading this, I sincerely hope you feel better. Take care of your body the first time you have it so you don't relapse. Comment from: Jl787, Female (Patient) Published: March 10 I was 16 when I was diagnosed with mononucleosis. I really didn't know what it was though I had heard of it before. It started with a fever that escalated into a very bad sore throat and my throat only started to get worse, something I've never felt before. When I went to go see what was wrong with my throat my tonsils were the problem, they were so swollen with patches of white surrounding it. Only one side of my neck was in pain, really weird. When I found out I was diagnosed with mono I only knew things would get worse before getting better. I do understand that I won't see myself getting better for a while. Comment from: CrazyMono, 45-54 Male (Patient) Published: February 19 I'm 46 years old. It seems like I had mononucleosis since the beginning of November 2014 but did not get diagnosed with EBV (Epstein–Barr virus) until mid-December 2014. I had to suggest an EBV blood test from my primary care doctor. After the New Year of 2015, I started to feel better but I can tell that I'm weak as I cannot weightlift like I used to. But this past week, I started to feel very weak, and have dizziness, low grade fever, and brain fog. Comment from: Recovering Slowly, 45-54 Female (Caregiver) Published: February 09 I have been fairly healthy with an occasional cold once in a while. My 74 year old mother had severe osteoarthritis and I had to stop working to take care of her. In November 2014, I caught a severe cold on the 5th and recovered after 10 days which is longer than usual because I had to still cook meals and some household chores, in addition, to helping my mother. After my mother had her hip surgery in December 2014, I spent 3 to 12 hours at the hospital, doctor's offices, and rehabilitation. On December 23rd, I became very sick with severely sore throat, fatigue, coughing, sinus congestion, loss of appetite, and overall weakness. I was sweating so much that despite drinking 1.5 liters of water, I did not need to go to the bathroom. When I recovered from most of the cold symptoms, I still felt very tired, and weak unlike anything I felt in the past. I decided to get a checkup and had an extensive blood test. I was shocked to hear I have mononucleosis. I thought mono was something which afflicts teenagers and college students. I honestly believe that I caught the virus at the doctors' offices, hospital or rehab because I spend the majority of my time at home alone when I am not taking my mother to her doctor's appointments or visiting her at the rehab. There are days when I feel better, then, I have a moderate sore throat and painfully swollen lymph nodes in my throat, no appetite, weakness, upper left abdominal pain ( one episode lasting 1 to 2 hours daily), and extreme fatigue. It is now 5 weeks and I am forcing myself to eat despite having no appetite. I am so happy to encounter this site and reading about other people's experiences. I had been extremely depressed and scared that so much time has passed and do not understand why I do not feel better yet when I have been fairly healthy and slim my entire life. I will be getting another blood test soon. Hope I get well soon because work is piling up due to my brain not working properly and extreme fatigue. Comment from: madrilenya, 35-44 Female (Patient) Published: July 12 I´m 38 years old. I was diagnosed with mono about 2 weeks ago though I had symptoms for one month before that. My doctor told me that I was also exhausted. My symptoms were swollen lymph nodes in my groin and on one side of my neck, plus one swollen node under my chin. I had fever and bad headaches for about 3 days and general malaise for two weeks. I was depressed, my eyes were more sensitive to the light and I had a little cough but no sore throat at all. I was relieved when my doctor told me that mono is not serious and very common. Now the nodes are going down very well but I have funny sensations in my neck sometimes. I suffer patchy spells of extreme tiredness which I recognize as not normal because I´m very fit and active. I get shivers if I´m in an air conditioned room when other people are fine. Occasionally I feel nauseous after eating. A medical student friend tells me that you can get mono from drinking from a dirty glass, or even a dentist!! I feel I´m getting better and I eat tons of fish, salads and fruit as always, but my recovery is much slower than I expected. I´m glad to read that it´s ok not to be 100% fit after 6 weeks because I started to worry. Your page has helped. Published: August 27 I found out I had mono about 2 months ago. I've always slept a lot like any normal 18 year old but I had been getting so tired I would sleep for 12 hours and still be exhausted when I woke up. One morning I woke up to the worst sore throat I have ever had and very swollen glands in my neck. I went to my doctor a few days later and she immediately sent me to an ear nose and throat doctor because my tonsils were so swollen they were almost closing my throat. The ENT doctor took one look and said it was mono. I was put on steroids amoxicillin and pain medication. It hurt too much to swallow my own spit let alone any meds and all I could do was basically drool to avoid swallowing. I was brought to the emergency room. I was down to 97 pounds with no strength or energy left. Out of school and work for a month. Now 2 months later I have relapsed and am very sick again. All of the same symptoms are back and worse. Tonsils will be coming out but that won't get rid of the mono. Aches and pains and swollen glands and UTI are back. This has been the worst illness I've experienced ever. I pray it goes away but I know that won't be happening anytime soon. Comment from: 65-74 Male (Patient) Published: September 08 With infectious mononucleosis (mono), I have pain in throat to no feeling in throat. Comment from: Eric, 25-34 Male (Patient) Published: March 16 I am 34, I suspect I have mononucleosis, also presenting swollen (really huge) tonsil in the right side only. All the pains are also on the right side. It started with acute neck and shoulder pain, mild sore throat, right tonsil exudate, and very mild fever. I felt really tired the first 4 days. I am recovering but the neck pain is the most troubling, it is almost same symptoms as of a herniated disc. Really surprises me, this asymmetry of the disease. Comment from: sickofbeingsick, 25-34 Male (Patient) Published: February 25 I am a 30 year old male and I just got diagnosed with mono 2 days ago. I thought this was just something teenagers contracted from kissing, people always made jokes about it in high school but it is no laughing matter. I unfortunately did not get it from kissing, I have no idea how I contracted it. The symptoms were going on for about a month and I thought that I just had a stubborn flu but then I woke up one morning to weak to get out of bed and decided to go to the ER where I was diagnosed. The sore throats have been ridiculous, I can barely eat because of the abdominal discomfort, and the fatigue is the worst I have EVER felt in my life. I get night sweats and chills from the on-again off-again fever. I can sympathize with anyone who has caught this nasty bug as an adult. Hopefully things will get easier. Published: August 27 I am now 56, but I became ill with mono when I was 28 years old. My symptoms of severe sore throat, enlarged lymph nodes, and muscle and joint pain persisted for 3 months. After 3 months, I developed an enlargement of the liver, so my doctor gave my Cortizone, which I responded favorable to. In hindsight, I believe my fibromyalgia began one month after I got over mono. The muscle pain and deep tissue knots are something I live with every day. Comment from: Luisa, 25-34 Female (Patient) Published: August 17 I wonder if anybody got chest pain with mononucleosis like I did. Comment from: Cindy, 35-44 Male (Caregiver) Published: June 09 I had cold and chills, I wonder if they are side effects of mononucleosis. Comment from: tessa, 25-34 Female (Patient) Published: December 16 I am a 34 year old female and was diagnosed with mono back in October. My symptoms included dizziness, headaches, sore throat, and just an overall feeling of 'being off,' or brain fog. I also had a tremendous amount of head pain in the back of head near my skull, which was I believe related to lymph node enlargement. The fatigue was incredible. For those of you who need some encouragement, I did some research on the benefits of coconut oil and mono and it has helped tremendously. I feel like a new person! Mono is a very nasty virus and can make you quite ill. Comment from: Shadrach, 65-74 Female (Patient) Published: November 04 I am a 68-year-old retired nurse. The end of September 2014, I got so tired that I wished I could collapse. My doctor diagnosed mono! I have had fever, headache, severe muscle aches, marked fatigue, and I could sleep anywhere, anytime. I did not dream a woman my age could get mono. My electric blanket helps. Comment from: Abarrow1, 25-34 Female (Patient) Published: August 05 I am 26 and I am currently on week four of mono with bronchitis. I never had a sore throat but, I also don't have tonsils. I have had fevers and chills, then extreme sweating and vomiting. This has all been going on about 4 weeks and while I was starting to actually have some good moments, I still feel very ill. Comment from: Femmevixen, 25-34 Female (Patient) Published: July 15 I'm a 28 year old fit female, and this virus has done quite a number! It started with fatigue maybe five weeks ago. Especially after eating, I would feel fatigued all the time and I had a decreased appetite with nausea. The nausea went away, but when my menstrual cycle started last month the fatigue became extreme. All of a sudden I had join pain, leg stiffness, and tingling feelings in my legs and toes. I visited the doctor several times before they ran blood tests. When they took the blood I was so fatigued with back of the neck pain I almost threw up and fainted. Tests came back, all levels were normal in the body, but EBV was positive. Comment from: 45-54 Female (Patient) Published: June 05 I went to the ENT specialist for severe sinusitis. He ran blood tests and told me I had active EBV and my neck glands swollen. That explained why I was getting fever and chills, aches and pains and feeling tired. He put me on bulk vitamins and vitamin B shots. That was about 6 weeks ago and I gradually recovered. Just last weekend I started getting what I thought was a cold. I had a sore throat, runny nose, sticky eyes, and a headache. Then I started feeling achy again. It's not as bad as last time but I hope it passes soon. I'm trying to take better care of myself. Comment from: 19-24 Male (Patient) Published: June 03 I was diagnosed with mono about 10 months ago. It started with abdominal pains. I got an ultrasound, and had an enlarged spleen. They then tested me for mono, and I tested positive. Five months passed, and I still had these pains. Another blood test showed that I didn't have mono anymore, but I still have the pains. A month ago, I got a CT scan because I still had these pains. All the CT showed was that my spleen was still enlarged. I have no idea if it's my body still recovering from mono. Either way, these pains are really annoying. I constantly am reminded of the pains and they give me constant anxiety. I wish this upon no one. Comment from: Amanda, 25-34 Female (Patient) Published: June 18 I am 30, and after three weeks of feeling down, I just found out I have mono. I was really tired and had headaches more than normal. I woke up one morning to my body being so swollen, it hurt to move. I went to the ER where they told me I had an allergic reaction to Macrobid, a medication I had been prescribed four days before for a UTI. Amazingly, the doctor told me that it wasn't his job to diagnose me and that it was his job to make sure I wasn't going to die that day. I went to see my doctor. I was sick as a dog, but it was no big deal to her. She was just going to send me home until I insisted that something be done. She tells me she is a physician, not God! Today I went to a new doctor and within 30 minutes, he told me I had mono. So far my symptoms have been swelling of my body, mainly my hands, fatigue, and headaches. Comment from: Mamaof5, 25-34 Female (Patient) Published: June 08 I just found out today that I have mono. I'm a 33 year old female. A few days ago I was cooking and out of nowhere I got a sore throat. The next day I still had it, it seemed worst, and then I started vomiting, quite a few times. I got hot flashes and then would be downright cold to the point of freezing. As the days went on I realized that my throat hurt unbearably and I have had strep throat quite a few times. I went to the doctor, they took a swab of my throat to check for strep, a substance came out that was bloody and pussy. I just knew it was strep, she took a blood test too and lo and behold it's mono. I feel depressed about it. Comment from: 12315, 13-18 Male (Patient) Published: April 18 I'm 15 and I have mono. My lymph glands are swollen and my throat is sore. My tonsils are all white and they hurt badly. I have a high fever and I can barely sleep. I hope this will be over soon. I'm taking medication for pain and resting and drinking a lot of water. I've also been drinking hot tea and eating chicken noodle soup. They both really soothe the pain. Comment from: kristi, 25-34 Female (Patient) Published: March 19 Iron helps build white blood cells. It was given to me for mono by my doctor to regain my strength. Comment from: Heather, 35-44 Female (Patient) Published: December 16 I had a headache and slight sore throat early in the day. Then by evening I developed bad chills and body ache and my throat worsened to feeling like I was swallowing razors. When I looked down my throat I saw white patches almost stringing from my tonsils which I thought for sure it would be strep but ended up being "mono." Comment from: JR, 45-54 Male (Patient) Published: December 13 I had a high fever, up to 103 at one point, with accompanying headache. The fever lasted about six days before subsiding, and I received a positive diagnosis from a blood test taken at day five. Although I did not have a sore throat, my tonsils were enlarged. Comment from: Karen, 45-54 Female (Patient) Published: October 12 I had mono when I was 17, with typical symptoms. Now I'm 46 and I'm sick with EBV infection again. Whether a recurrence, a flare-up or something new, the whole EBV panel shows I have mono. I got sick just after my youngest daughter got mono, and I thought it was a cold. Then I started sleeping excessively and was getting migraines. The headaches got worse and I kept getting more stuffy and more tired. 3 weeks later I now have a sore throat but no real swollen glands or fever. The headaches are my biggest issue. I have fibromyalgia, spine issues, frozen shoulder and general chronic pain disorder so any viral infection flares up my pain. The doctor said if symptoms are still there in a week they will try an anti-viral medicine. He also plans to monitor the EBV panel through labs over the next year to help clearly determine what my status is with this virus. Feel better everyone. Comment from: Jesse, 25-34 Female (Patient) Published: September 08 I'm a 33 year old female. I have been feeling tired for nearly a month now. I've been battling to get out of bed. Terrible headaches, upset stomach, vomiting, swollen glands, sudden fevers and chills, sore throat… I got my results it clearly showed that I have had mononucleosis before (without knowing it) and that is currently active in my system. They have no idea how long I will be sick. I have been on the antibiotics for seven days. Today, most of the symptoms have gone but I feel very tired. I have returned to work today. After half days at work my headaches are back and I have a stiff neck. The tiredness is the worst. Don't know how I'm going to get through a whole day. I should have stayed in bed for at least one more week but I have no more sick leave. Hope nobody else gets it from me. I stay clear of everybody. I try to take in as much fluids as I can. This is not a nice illness to have and the fact that nobody knows for how long I will be sick does not help much. Comment from: Stacey, 35-44 Male (Caregiver) Published: August 23 My 40-year-old husband started with body aches and being very tired. Within two days, he developed an extreme headache, the worst he's ever had in his life came on with a fever. He was brought to the ER because the headache got worse, which he didn't think possible. After a battery of tests, 2 days in the hospital and one more ER visit, the acute issues from this started to subside. It was a terrible experience. After about 10 days, he started to feel a bit better and now continues to recover, resting as much as possible. Comment from: 55-64 Female (Patient) Published: July 11 About five and a half months ago, I felt as though I was coming down with the flu, even though I had a flu shot. I went to the doctor who diagnosed a sinus infection and put me on antibiotics. Though the sinus pressure got better, I was unbelievably exhausted no matter how much sleep I got, had muscle weakness even though I'm very fit and active. After three months of feeling awful and seeing my now former internist who did essentially nothing, I finally found an internist who asked lots of questions and ran a bunch of blood tests. She called me with the diagnosis - mono! It's now two months since the diagnosis. I've been resting a lot and am still exhausted. This illness is the worst! Hopefully I will start to feel better soon because I am so sick and tired of being sick and tired! Comment from: arlenecarm63, 45-54 Female (Patient) Published: April 21 I am 47 with Mono/Epstein Barr Virus. I have run a low grade fever for almost 2 months now. I am tired and ache all over. Other symptoms have been stomach pain, swollen adenoids, lower back pain, brain fog, blurry vision, dry mouth, sleepy, neck and shoulder pain. I have been off from work for the duration of the virus and now plan to return to work in a couple weeks better or not. Tired of being sick but hope I can pull off my 12 hour shifts. Infectious Disease doc said it should last 1-2 months and I'm counting on it. Comment from: caramel wafer, 35-44 Female (Patient) Published: January 07 My mono started with a severe headache and flu-like symptoms. The glands in my neck were very swollen and I had a nasty rash on one arm. Two months later, the glands in my neck are still visible and I'm still tired. I feel very washed out, but I do feel a lot better. Comment from: pippa, 13-18 Female (Patient) Published: June 30 About a week before I was diagnosed, I felt an enlarged gland in my neck, but I wasn't too concerned. I was feeling really depressed and tired, but I thought it was due to stress since I'm in school. About two days later, I woke up with swollen eyelids and a swollen face. I went to the doctor who told me I had either tonsillitis or mono. The final result was mono. About two days after my diagnosis, I started to feel severe symptoms. I had a very sore throat, dry mouth and pain in the neck. I am also experiencing insomnia and depression. Generally, no one understands how I feel, so it's good to read about other's experiences here. Thank you. Comment from: boblitt, 55-64 Male (Patient) Published: April 12 I caught mono at 23. I am now 64 and I just had my gall bladder and kidney stone removed. I have had stomach problems for 40 years. I have been hospitalized five times with jaundice-like fever. I get sweats every night. I'm very tired and if I do anything, I have to take a nap afterwards. I can't figure out why it's so hard to get information on the side effects of this disease. Comment from: [email protected], 13-18 Female (Patient) Published: March 22 I had mono for about a month, and it wasn't as bad as I thought it would be. It started out feeling like a sore throat and I was coughing and sneezing like crazy. I was very tired and I never wanted to do anything. I stayed home and rested for about three weeks, and my symptoms went away, but I still have fatigue and I'm very weak. After you have it, your immune system is very weak for about six months, so you have to be very careful about who you're around. Just take it easy and soon enough you will feel a lot better. Comment from: kimberly, Female (Patient) Published: March 17 Hello I'm a 33 year old female been ill for 10 months now. The illness first began with abdominal pain meaning stomach and bowels, also have pain under left rib cage and right rib cage, blurry vision at times, extreme fatigue, sore throat, muscle aches, and joint pains, sweats, rashes, and on again off again, have no appetite. I have lost 50 pounds. My hair is thinning and everything that comes around, I catch. I was exposed to mono when I first got ill. These symptoms are still going on. Sometimes feel like I'm getting better and the symptoms return. This is the worst I've ever been sick. Comment from: Jessica, Female (Patient) Published: February 25 Hi, I'm Jessica. I was diagnosed with the disease mono about 4 months ago. It all started with really swollen neck glands, and the pain in my throat would not go away. It was so bad, I was crying. And the next morning I went to the ER. The doctor did not know what was wrong with me, so he took 3 tubes of blood for testing. Four days later, I found out I had mono, and strep throat. I still have very bad pain, all over my stomach. It's so bad that I had to go for an ultrasound, but it turns out my spleen is swollen, so I can't do any sports for three months. Comment from: virginiagirl, 35-44 Female (Patient) Published: February 22 I'm a female, and was 39 when I got mono. It was diagnosed with mono after-the-fact, and it's the sickest I've ever been. I didn't have the severely sore throat, but had a swollen throat, airway and vocal cords with a crazy amount of sinus drainage. It felt as if I couldn't swallow due to an obstruction, and I would stop breathing at night. I couldn't eat, resorting only to liquids for a couple of months. The sinus drainage was choking at times. I was treated for sinus infections and asthmatic reactions several times during this period, and tested for allergies (I showed positive to all but 2 allergans - later determined this was because of the undiagnosed mono - today I have few allergies). Each doctor kept treating the symptoms they were familiar with, with long-term oral and inhaled steroids, antibiotics, and rest. I had several of them tell me "it's only stress, and you're imagining the symptoms." In total, I was down for over 3 months, and could barely leave the house. I had to wear a surgical mask when I walked outside because the allergens would cause breathing problems. It took several months for the lymph nodes around my throat to go down. I was not tested for EBV at all during that period, but I had been tested a year earlier in late 2006 -- EBV was negative at that time. In 2009 my tests show I've been positive for EBV, so I assume it was during the period I describe above. Two years later my immune system hasn't recovered, and I'm starting weekly gamma globulin infusions to help. Comment from: KeepThe Faith, 45-54 Male (Patient) Published: February 22 I am writing this to offer encouragement to anyone suffering from mono for longer than normal. I am a 52-year-old male. I came down with a sore throat and fever about 2 years ago. At first I had a great deal of fatigue but it slowly improved over the course of the year. During that time I did not rest or take care of myself. Just when I thought it was over (1 year later) WHAM! My lymph nodes got painful, malaise, fatigue, head and ear pain with tinnitus, and an overall "swollen" head feeling hit me hard. I went back to my doctor and checked positive for EBV & CMV. Apparently, I had one or both for some time and just ran myself down, not allowing my body time and rest to heal. My primary care physician also consulted with a hematologist to corroborate his diagnosis. I am slowly recovering as I have dug a huge hole for myself. Mono can affect you for much longer than the "textbooks" say depending on a lot of variables. My symptoms are slowly improving; they are changing like the hands of a clock, but getting a little better every week. If this describes you, don't lose your faith. Do what your doctor tells you. You WILL get better. It takes rest, low stress, plenty of fluids and most of all, time and patience. Comment from: numberlnan, 55-64 Female (Patient) Published: January 28 Just before Christmas I went to the doctor and found out that I have mono. I had gone to 4 doctors and all said I was depressed, etc. Finally had a mono spot done and bam! Mono. My doctor did not really tell me anything other than her nurse calling with the results. I still feel horrible very tired, headaches, and now I am getting horrible pains just beneath my rib cage. I am a 58 yr old grandmother who got Mono. No clue on how - that's what bothers me. But I guess I will have to pursue this on my own because the doctor did not give me any information. Comment from: cayenne, 65-74 Female (Patient) Published: January 26 Two weeks ago I was admitted into the hospital with severe chills, high temperature and weakness. They diagnosed me with acute mononucleosis, c. diff, MRSA and a urinary tract infection. I was very sick and had no appetite. I stayed in the hospital for 5 days with antibiotics and fluids dripping into my veins. I have been home now for a week and now have enlarged lymph nodes in my neck and head, plus my throat is swelling shut. I can barely swallow water and pills. I'm afraid I will choke on my food so am I am not eating. Comment from: Worried Mom, 7-12 Female (Caregiver) Published: December 30 My 10 year old daughter was diagnosed with mono just last week. She had been sick for about 3 weeks previously. One morning she was so weak that she passed out in the shower. I took her to the doctor and insisted blood tests be run. They were run for everything but mono. A week later when she could hardly swallow, eat, or talk, I took her to the doctor again and this time they ran the test for mono, which back as acute positive. She has missed a lot of school and still tires easily, but at least we finally know why. Comment from: mitch, 35-44 Female (Patient) Published: October 06 I got strep throat at the end of May and I was given antibiotics. Three days later, it was so much worse that when I swallowed the water came out of my nose my throat was so closed up, I was admitted to hospital and given steroids, morphine and serious antibiotics. 5 days after antibiotics I developed another sore throat. Testing was positive for glandular fever. I have since been on antibiotics several times for throat infections and they keep coming back. Now am on permanent antibiotics until I see an ENT specialist at end of October. Meanwhile, I do not have sore throat but all lymph nodes are swollen tender and very painful especially one side of neck and also groin area. The fatigue is even worse and I can never get enough sleep. Even if I sleep 10 hours a night, I'm still exhausted. I have to nap for couple of hours before picking up kids and an hour later, my legs and arms are so weak from standing and just doing things that I have to rest again. I am on antidepressants also now. Comment from: Shake1228, 55-64 Female (Patient) Published: June 30 Mono/Epstein Barr -- I'm a 55 year old, active and fit female. Thought I was battling a flu bug on and off for a couple weeks. Fever, sweats, chills, loss of appetite, fuzzy thought process, body aches, fatigue. One day couldn't get out of bed to save my life. Finally went to my doctor. Mono? Seriously at my age? Jokes abound of course, but if you've had this you know it's no laughing matter. I have never been so miserable and if you have never had it I hope you never get the experience. I have always thought of myself as a fighter. This has shown me that I am pretty much a wussy cry baby! Finally after two weeks feeling half way human and finally awake more than not, but still have a minimum 2 week recovery. Comment from: ladybug54, 55-64 Female (Patient) Published: April 15 I am a 56 year old female with auto immune disease and I was diagnosed with Mono about 1 month ago. I am having all the symptoms but the most difficult is the acute anxiety attacks and the fatigue. My eyes were very yellow that's what brought me to the doctors and my urine was very dark we thought at first it was my liver. I have no idea how I contacted this but it is worst than Dermatomyositis that I have. Comment from: Dixie, 45-54 Female (Patient) Published: February 11 I was so tired, rather exhausted that I could not get out of bed. I really thought my fibromyalgia was flaring up. I slept all day and night and still felt just as exhausted the next day. The doctor did a monospot test and it was positive. I also had an ultrasound which showed my spleen was somewhat enlarged. I am to be out of work for about a month. It takes all of my energy to get up and shower. I am trying to "hang in there" but this sickness is kicking my butt"! I think this is a relapse from when I was sick in December. The doctor thought it was the flu even though it didn't show up as the flu. I felt just like this. I got really stressed and overtired in January and I think it just jumped back on me but worse this time! Comment from: shocked2010, 45-54 Female (Patient) Published: January 12 Christmas day of 09, I woke up ill with a severe sore throat, fever and what I thought was flu type symptoms. I went to the doctors the next day and was diagnosed with strep throat. Immediately I was put on an antibiotic for 10 days. I started to feel better however about a week later my throat and neck began to hurt. I thought it was the strep coming back and made another doctors appointment two weeks later. They ran some test and told me I had mono. I never would have thought I could get something like this. It is very painful for me and I am tired all the time. Comment from: vivule, 25-34 Female (Caregiver) Published: October 16 Before I was diagnosed with mono, I had fatigue, headaches for a short period of time and rash(itch). Comment from: Becky, 65-74 Female (Patient) Published: August 24 My fever started in June and has not gone away. I have no energy and try to stay out of bed just to keep myself going. Have no appetite and have lost pounds. I am 72. Doc said it is Mono.