Please describe your experience with lymphoma. Submit Your Comment

Comment from: Non Hodgkin lymphoma, 19-24 Male (Patient) Published: November 14

I am just 22 years old, and just completed my B.E. degree in 2015 August. I got symptoms like severe cough for 3 months. On January 16 the tumors were visible in my throat and my biopsy report revealed high grade non-Hodgkin lymphoma. I had a 6 cycle chemotherapy and 15 radiation treatments, but after completing radiation, within 2 weeks it reoccurred. I had another surgery and result is the same. They told me to have another 8 cycle chemotherapy and stem cell therapy, but I didn't do it.

Comment from: ditas, 65-74 Female (Patient) Published: October 06

I am a 73 years old female diagnosed with non-Hodgkin's lymphoma, follicular type, stage 11 early 2016. I underwent Rituxan IV immunotherapy once a week for 5 weeks. After 6 months, in a follow up PET scan the initial 3 lesions were gone but 2 new ones were detected. Since then I've been undergoing PET scan every 3 months for monitoring if these lesions are getting bigger, if there are more new lesions, or if it is converting to the aggressive type. I am due for the next PET scan next week. Thinking positive.

Comment from: Grace, 65-74 Female (Patient) Published: September 20

I am a 71 year old married female who started having symptoms of indigestion and severe belching after eating foods like plain oatmeal. I was also very fatigued. I saw a gastroenterologist who ordered a gallbladder functioning test as well as a CT scan of my abdomen and spleen. The same day after having my CT Scan I was called in by my gastroenterologist and told that I had lymphoma in my abdomen. I have been referred to an oncologist and am being sent to a surgeon for a biopsy of a lymph node in my groin as well as a PET Scan. The process will take approximately 3 weeks. I know I have to be patient, but the wait is hard. I have never smoked or really drank. I know that carrying around extra weight, in my case 80 lb can contribute to cancer.

Comment from: Chip Baish, 55-64 Male (Patient) Published: May 08

About the middle of 2014, I started to get these weird headaches. If I coughed or sneezed it would trigger an extremely severe headache on the top of my head, which made it hard to work, but I worked anyway. No medicine worked on the headache and they would eventually go away, I thought it might be allergies because I had moved to San Antonio 4 years earlier and people said that the mountain cedar tree affected a lot of people who never had allergies before. After several months, I went to my doctor and she could not find out what it was. She was persistent, and finally, something showed up in a blood test where they smear your blood on a piece of glass and put special lamps behind it. I was sent to the hematology/oncology department and had a bone marrow biopsy. The doctor confirmed I had Waldenstrom's lymphoma, a non-Hodgkin lymphoma. That was February 2015. I went on watch and wait mode because it was smoldering. Also, my headache doctor, a neurologist, prescribed indomethacin, which took the headaches away and they have not come back. In January 2017 I was admitted for emergency gall bladder removal, while there I had to urinate into a clear plastic bottle. My urine looked like cherry cola. I had not been feeling well, but was scared to start chemotherapy because some people had told me chemotherapy was the beginning of the end. The doctor said I have got to start chemotherapy, so I did in Feb 2017 through July 2017 and it actually helped. I'm in partial remission. I worked the whole time through this, but I have an office job, which is stressful, but not too physical. I'm in partial remission and I feel pretty good right now, but I am not the same stud that I was before all this. I am very grateful to the army hospital for all they did for an old Infantry soldier like me. I've taken the whole experience pretty much in stride, but compared to most of the stories I have read on this site I have had it pretty easy. I just hope it doesn’t jump up to slap me down hard. Every little ache and pain is worrisome. I have two great twenty something daughters and a wonderful Korean wife of 29 years and I plan to be around them a lot longer. The reason I contributed to this web site is to put the information about the weird cough and sneeze headache I had. There really was no information on that type of headache on the Internet, so I hope it helps someone else.

Comment from: marytinton, 65-74 Female (Patient) Published: August 11

I was diagnosed with non-Hodgkin’s lymphoma almost 2 years ago and have been in remission. I have had follow up CAT/PET scans and nothing appeared abnormal. However, after the last CAT scan (7/20/15), a 5 mm nodule was detected.

Comment from: lymphy, 55-64 Male (Patient) Published: July 29

I have follicular lymphoma, there is pain where the swelling is. It gives me headaches and earaches that verge on severe.

Comment from: Annie McGill, 55-64 Female (Patient) Published: June 12

I was diagnosed with stage 2 Non-Hodgkin’s Lymphoma in 2009 at the age 59. I was initially diagnosed when I had an MRI for back and leg pain that was thought to be a pinched nerve. The MRI showed a 'shadow' near my spine and further tests revealed enlarged lymph nodes in my chest, abdomen and in my left femur. It caused my left femur to fracture. I had been diagnosed with rheumatoid arthritis several years earlier and was on immunosupressants at the time of diagnosis. I underwent six rounds of chemo, during which I also developed a severe pneumonia. Later, I also had 21 radiation treatments on my left femur. I went on an IV induction or Rituxin for 18 months and have been in remission for four years.


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