What leukemia symptoms and signs did you experience? Submit Your Comment

Comment from: KBMitch, 45-54 Male (Caregiver) Published: November 26

My husband was a healthy active 51 year old retired chief petty officer. He was diagnosed with acute myeloid leukemia (AML) on June 18, 2019. His symptoms were headaches, and he was being treated for sinusitis. June 18th I took him to the emergency room because his gums were swollen and the back of his head had a huge lump. He was hospitalized for 45 days. He came home for a month. We were excited there was a donor. Remission ended before the transplant, and my husband passed October 28, 2019.

Comment from: Kk, 35-44 Female (Patient) Published: August 27

I had acute myeloid leukemia. I had stomach pains similar to terrible constipation and nickel to quarter sized sores in my mouth. After a round of failed chemotherapy, a second round that worked, a third round for good measure, and radiation, I finally had bone marrow transplant and I’m a year out as of last week. Hoping it doesn’t come back and I can regain my strength... but so far so good! To everyone going through this, just take it one day at a time, you are stronger than you know! My heart is with you.

Comment from: Morgonious, 45-54 Female (Patient) Published: July 02

I was diagnosed with acute lymphoblastic leukemia, Philadelphia positive, in January of 2019. My diagnosis followed a 4 day period wherein I thought I had the flu, or a bad cold. I went from running 10 hours a week to not being able to make it from our bed room to our kitchen. I was sleeping 14 to 16 hours per day. An emergency room doctor was curious enough to put me as inpatient to understand why my platelets were only 23,000.

Comment from: Sb, 45-54 Male (Caregiver) Published: June 02

My 53 year old husband had reoccurring fever from October to December. He would run fever up to 104 for several days and then none a few days. He had nine bouts of fever in 8 weeks. He was hospitalized and no infections were found except a little fluid in his lung. The fever started back on February 28 of 2020. He had two bouts of fever up to 103 in a month, severe leg pain, weakness and fatigue. Then several weeks fever free. Then he had fever from April 30 to May 20 with the pain. Worried if this could be leukemia.

Comment from: SpecialK, 45-54 Male (Caregiver) Published: June 25

My husband was diagnosed with acute myeloid leukemia (AML) a year ago. He had stem cell transplant last July. He now has GvHD (graft versus host disease) and has been struggling with chronic fatigue. I wonder if I should I be worried that the AML is back.

Comment from: ROBB, 45-54 Female (Patient) Published: June 25

I am now 50 years old and was diagnosed in 2013 with triple negative polycythemia. In the past 5 years I have made a big effort to drop some weight and keep it off, also cut back sugar and salt, with 30 minutes of walking and keeping as active as I can, that my blood counts have stayed very stable for some time.

Comment from: jkf, 55-64 Male (Caregiver) Published: November 14

My friend is in the early stages of chronic leukemia. I noticed last night about a half cup of blood drained out of his ear.

Comment from: pv, 65-74 Male (Caregiver) Published: August 02

My father was diagnosed with leukemia within a week of his 67th birthday. He had been having a pain in his left leg for 20 days before that. There were no other symptoms. The next day after his birthday, he started developing a fever. This went on for another four days. He experienced fatigue and weakness as well. When the fever wouldn’t subside, his doctor asked him to undergo a blood test. There were small red and purple spots on his thighs. He was immediately hospitalized. He passed away the next night, but I'm glad he passed away peacefully without much pain or suffering.

Comment from: jbottorff3, 65-74 Female (Patient) Published: August 02

I was diagnosed with acute myeloid leukemia 12/09, my doctor is very surprised that I am still here. My family doctor found my blood counts to be low and sent me to oncologist, I am 69 and have heart and lung disease it’s hard to treat leukemia. Does anyone know of any treatment that would help besides transplant I don’t think I am strong enough for that. Just now starting to have a lot of pain around kidney area. Good luck to all of you that have this terrible disease and god bless you.

Comment from: 13-18 (Caregiver) Published: August 02

My son was diagnosed with ALL BCR-ABL Positive on August 20, 2010. Prior to diagnosis he was just tired and said he felt dizzy if he walked around a lot. The end of July he suffered a severe sunburn only on his shoulders that blistered, I took him and they laughed at me and said the blisters would go away on their own only a second degree burn. A week later he complained of ear pain and had lumps on his neck around the ear that hurt. I took him in and saw the Doctor’s Assistant who gave him an antibiotic which helped the ear pain. He did not seem physically better so I made another appointment and insisted on his normal DR. He took a blood test, called the nearest Children’s Hospital and sent us on our way that very same day August 19th. My son is 15, not the normal age to have this disease. He has gone through chemo and is on his 2nd round. He is in Protocol that offers a new drug called Dasatinib which supresses the Philadelphia Chromosome and appears to be working. His last spinal and blood work came back extremly good. We are praying for a positve outcome.


What is leukemia? See Answer
Comment from: chance8911, 45-54 Male (Caregiver) Published: August 02

My 53 yr old husband was very ill with a bad cold in Feb and had a blood test done during a physical and it came back that he had leukemia. He was tired but we thought it was from the bad cold he couldn’t shake. He seems fine now, only a pain in his left shoulder/back. Nothing makes it go away to let him sleep. He just had a blood test done this morn, 3 month test and it came back a little elevated. Still under 25. So it’s very hard not to cry or wonder what life has in store for us at his age with this happening to him. He has worked in the trucking industry since college, just wondering if anyone else in that field has been diagnosed and if it could be related to working in oil and products connected to the that kind of trade. Mechanics, maintenance of fleets.

Comment from: Sal, 55-64 Male (Patient) Published: August 02

I have a brother who had leukemia 3-4 years back. He was then back to work for few months. They have asked him to leave. He never was sick before until this sickness. This guy was the most punctual man on his job. He worked there for more than 10 years. What I am saying is how Leukemia is so bad. It makes a healthiest human body the sickest. When my brother talks, I can see, he also tries to pronounce right. His speech has changed as well. He is very depressed. He has no jobs n no much income. There is no consideration from the US Govt where he worked. No financial help for all those years of service!!! This depression might cause again the cancer. This is what I am worried about.

Comment from: Emryses H, 25-34 Female (Patient) Published: June 19

I have been suffering fever since February 2009 with severe flu and cold. I was in the government hospital on May 25, 2019. I was tested for HIV, HCV, Widal, malaria, urine culture and chest x-ray. All are negative. I took a high dose of antibiotics and it reduced my fever, but the fever does not go away. I have low grade fever all the time. I have no other symptoms, I doubt I have leukemia. I will test complete blood count on this Wednesday. I am afraid to know about the whole blood count result.

Comment from: Alo, 19-24 (Caregiver) Published: April 30

My grandfather passed away from leukemia in 2008. It started as shingles. He lasted about 4 years until the doctor told him he could either have his last round of chemotherapy and probably die or go home and last about 3 days and die peacefully. He chose to go home. I will never forget the night he died. We were very close all during my childhood, I was 13 years old and he just stared at me, couldn’t talk, and couldn’t move. But I knew he was telling me he loved me and would see me soon. I’m 24 now.

Comment from: a concerned citizen, 13-18 Male (Caregiver) Published: July 07

My friend did a chemotherapy it cured her leukemia. It started in 2014 and it took a year and 3 months. Then in 2016 it came back stronger and the doctors told her to do another chemotherapy for blood cancer but only this time it had a possibility if it works it might shorten her life of kill her. She chose not to do the chemotherapy because she had been through much pain and suffered a lot later. This year during 2016 July she died because of blood cancer.

Comment from: survivor1977, 25-34 Female (Patient) Published: August 02

The symptoms and signs I experienced were very subtle, and looking back, I had several of the symptoms; I just didn't put them all together. The symptom that finally caused me to go to the emergency room was serious swelling in my lower legs/ankles/feet after buying new shoes. This swelling was due to was due to the lack of oxygen (red blood cells) in my body. I also had bruising, major petechiae on the back of my hands, and I was pale in color.

Comment from: tvs, 45-54 Female (Patient) Published: August 02

I have CLL, and fought multiple sore throats and upper respiratory infections for about 5 years. Double doses of antibiotics never touched my problems. I was constantly fatigued and then developed pain in my upper left abdomen. Went through CT scans, ultra sounds, and throat exams. Finally a doctor did an extensive blood work panel and discovered it.

Comment from: ted, 45-54 Male (Patient) Published: August 02

I am a 52-year-old male. I had a bone marrow transplant march 2009 for AML. Now the AML is back in my sinuses.

Comment from: MichCoccaBene, 35-44 Female (Patient) Published: August 02

My symptoms were extreme fatigue. Also, I had terrible, horrible, awful headaches. Another thing was my blood wasn't clotting. During menstruation, I bled quadruple the amount I normally had. Additionally, I had bruising, like, tiny little dot bruises, looked like a rash, all over my legs, arms and then started spreading even to my face. The only other thing I experienced was that one of my eyes experienced almost a loss of vision. I was getting very large prisms floating around. The day I was diagnosed my white cells were almost 200,000 when normal is 10 thousand.


Signs of Cancer in Men: Could it Be Cancer? See Slideshow
Comment from: lee, 25-34 Male (Caregiver) Published: August 02

In February, my son, (34 years old, a father of two) was diagnosed leukemia. He is a robust person and athletic. We almost can't believe that was it. For about a month he was feeling weak and looked pale. His bones were painful so he had his blood examined by a hematologist and immediately he was confined to a hospital and bone marrow was taken. After 3 weeks the results are in confirming leukemia.

Comment from: 55-64 Female (Patient) Published: August 02

My leukemia symptoms were an elevated white blood count, dry mouth, dry skin and I was always tired and sluggish.

Comment from: Daisy, 55-64 Female (Caregiver) Published: August 02

My sister, 63, just diagnosed with leukemia after blood test revealed extremely low red cell count. She had been very fit although she had smoked most of her life. Her symptoms began with feeling tired and unable to walk for more than a few metres before feeling faint. At night in bed her heart would palpitate wildly. She thought it was because she had finally given up smoking and was in withdrawal. Upon her doctor seeing her blood test results she was sent straight to hospital and was told she would need to be there for 3 months. Had she brushed off her symptoms as nicotine withdrawal she would have died. She had 2 blood transfusions on admittance and next day a bone marrow biopsy. It will be 3 weeks before a complete diagnosis is made.

Comment from: disappointed, 65-74 Female (Caregiver) Published: August 02

My sister kept going to the doc with a rash. This went on for three years, and was told it was a non-descript dermatitis, and was treated unsuccessfully with various creams, etc. The last six months she started feeling extremely fatigued and having severe dizziness. When finally discovered she was severely anemic, she was admitted to the hospital. After various testing, she was discovered to have AML and died 19 days after having been diagnosed.

Comment from: kentucky, 35-44 Female (Patient) Published: August 02

I am 39 years old. I was diagnosed with lymphoma on July 29, 2009. I was also pregnant at the time. My symptoms were fatigue, cough, bruising, weight loss, headaches, pain in my left side, feeling full after just a few bites of food and somewhat was feeling like I couldn’t concentrate. The bruising had been going on for about 2-3 years the rest happened within about 6 to 8 months. After blood tests we discovered that all my blood counts were extremely low. I didn't start any initial treatment due to pregnancy, but at about 5 months pregnant I was started on Interferon due to increasing pain in my left side. I stopped the Interferon in November due to some side effects. I delivered with no problems on December 29th and now I’m having blood drawn monthly to monitor. It's now been 3 months since chemotherapy. I am noticing a lot of bruising again and the cough has been back for about 3 weeks. Also a new symptom that I never had before edema in the feet and in the eyelids. I’m hoping that is unrelated. Due for a blood draw again, then go back in to see my oncologist in July. Here's to hoping for the best!!!

Comment from: Gita44, 45-54 Female (Caregiver) Published: August 02

My son is 22 years old and has leukemia. He was told of this condition on November 16, 2009. His signs were coughing blood and fever. He also slept quite a bit and he never had any energy. Also, he was black and blue all over his body. He is now on chemotherapy treatments and his cancer cells have gone from 44% to 1%. We are very happy to see that the chemotherapy is working.

Comment from: Mother, 13-18 Female (Caregiver) Published: August 02

My daughter was diagnosed with Leukemia (AML). She is 17 years old and is responding well to the treatment. She starts her 4th round of chemo and will be finished totally by the end of February. Anyone reading this who is experiencing this life-changing disease, know that the medication works and you can get through it.

Comment from: ben, 25-34 Male (Patient) Published: August 02

I have leukemia and I have been feeling ill. I have no energy and I just lie down all the time with headaches.

Comment from: 45-54 Female (Patient) Published: August 02

Signs and symptoms of leukemia that I experience were high platelet counts, unknown bleeding, swelling legs, aching at the soles of my feet, general weakness, loss of potassium and a high fever.

Comment from: asd, 3-6 Male (Caregiver) Published: August 02

My four-year-old nephew has got a fever and a lump on his neck. Within three days, his illness was diagnosed as acute lymphoblastic leukemia. He is under medical supervision now.

Comment from: Ginger, 45-54 Female (Caregiver) Published: August 02

My husband is 50 years old and has been diagnosed with Leukemia (AML). He went to the hospital emergency room with a severe cough and chest pains. He was released after being admitted for a night after a blood test found a low white blood cell count and irregular platelets. Since then, he's been feeling great. He's on an antibiotic and doing fine. His blood tests are coming back with no change, still at half count. It sure does suck that he feels great and has to go to chemo for a month and be made sick to get well. We don't even know what caused this, so we are still in denial.

Comment from: Diana, 45-54 Male Published: August 02

My best friend's husband has just been diagnosed with the rare lympho/luekemia cancer. They are now doing a bone marrow test to see if it's gone into that area. It all started with a sciatic nerve problem- given steroids, antibiotics- which he had a negative reaction to. They've just taken him to another hospital to start intensive chemo treatments for 10 days straight. I obviously know how serious this is- but looking for a little hope so that I can help my best friends.

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