What symptoms did you experience with labyrinthitis? Submit Your Comment

Comment from: AB, 35-44 Female (Patient) Published: November 03

I had the worst cold I’ve ever had. I carried on working through the cold even though I felt rough but thought it’s just a cold! I then got struck with labyrinthitis. Felt like I wasn’t stable on my feet. When you’re a 35 year old mum of two, it is very debilitating. I had no appetite and couldn’t drive. A week and a half later from onset, I woke up and the labyrinthitis had gone. I was so relieved, but now I ache. My body aches. I’m fatigued like never ever before and I’m fed up!

Comment from: Clare 758322, 55-64 Female (Patient) Published: October 28

I have had labyrinthitis for 7 weeks now. My balance just keeps getting progressively worse and I have ear pain in both ears. My ENT says he cannot see anything wrong with my ears, but 4 other doctors I’ve seen say it is my ears. I’m feeling scared and lost as I am not sure what to do to make this go away. I’ve seen my primary doctor, an urgent care doctor, neurologist, ENT, and no one can help. I am taking antibiotics and steroids and they are not helping.

Comment from: Rizzo, 35-44 Male (Patient) Published: October 20

I have had permanent labyrinthitis (diagnosed) for about ten years now since the hairs in my left ear got damaged by a cold going to my ear. It is a truly horrible thing to get. Sometimes I’m ok, but recently it’s got worse to the point I can hardly walk straight. At the beginning I tried tablets from the doctor but they made no difference and even CBD oil, but nothing has worked so far. It makes my head spin and is a bit like being drunk, plus I’m often tired and it gets depressing.

Comment from: Nisha, 25-34 Female (Caregiver) Published: September 30

I woke up one day feeling unsteady and shaky. I was told I had a viral ear disease and the discombobulation would disappear. Two months on and the discombobulation has died down, yet all the other things has deteriorated. I've had extreme uneasiness, gloom, heart palpitations just as pounding torment in my ears, neck and head, shortcoming in my body constantly. It's so alarming and I am concerned it is labyrinthitis. I've taken various drugs, yet nothing has made a difference.

Comment from: H, 19-24 Female (Patient) Published: August 24

My labyrinthitis came on suddenly, I had a headache all around my head and experienced dizziness. The next day the constant headache passed but I get the occasional pain here and there in my head, the dizziness is still here. Sometimes the room is spinning, and I lost my balance once. Sometimes my ears hurt, face hurts, this is horrible. I'm experiencing brain fog with it, can't concentrate, and feel very lethargic. It's been a week, and no improvements. I hope I get better soon.

Comment from: Amy2021, 35-44 Female (Patient) Published: August 31

I wonder if labyrinthitis make any of y’all feel crazy! I’m having so many panic attacks and scared to death.

Comment from: J, 25-34 Male (Patient) Published: July 07

Labyrinthitis randomly occurred during one morning, started with tinnitus and escalated to full hearing loss on the right ear. Nausea and uncontrollable vertigo started after 3-4 hours after meeting up with doctor, which caused lack of eating and sleep. Initial possibility of moving is quite impossible due to instant vomit reaction. Admitted to hospital a day later, vertigo improved, however hearing loss does not. Still suffering from vertigo almost 3 weeks into oral steroids, Serc, and other medications.

Comment from: Marathonrunner, 45-54 Male (Patient) Published: June 07

When what I believe was an episode of labyrinthitis or some type of vestibular nerve issue started, I felt like I was about to die. Anxiety, shortness of breath, heart palpitations, equilibrium way off kilter, and horrible nausea were my main symptoms. I spent that night pacing outside just trying to feel better, not knowing what was going on with my body. Whether I was I about to have a stroke, heart attack… I had no idea. I couldn’t focus. It was truly horrible.

Comment from: Vernon, 65-74 Male (Patient) Published: April 26

I was diagnosed with labyrinthitis in May 2020 after suddenly collapsing, feeling dizzy, sick and unable to open my eyes, because the whole room spun around when I did. I was sent home 3 days later when I was just able to walk. I am still suffering from dizziness and imbalance, although not as bad. Also, I am having to walk with a stick just in case I topple over. I have tried exercising my eyes using a ball, and various maneuvers which did help in the early days, but now it is nearly 12 months and little has changed.

Comment from: Kay, 45-54 Female (Patient) Published: April 23

I woke up two weeks ago and couldn't sit up. I was feeling fine the day before and labyrinthitis gave no warning at all. I was nauseated and dizzy. First day I had my eyes shut all day to avoid vomiting. Almost three weeks later I'm still dizzy, and have ringing in my ears, awful headaches, problems concentrating and focusing. Haven't been able to do anything.


What is vertigo? See Answer
Comment from: Shadesofgreen, 45-54 Female (Patient) Published: October 07

I have been suffering with labyrinthitis for over a month now. It started very suddenly while talking to friend, and out of nowhere, everything spun around. My symptoms are nausea at times, severe pressure headache, eye strain and inability to focus, tinnitus, and I am so tired. I’ve been off work for 4 weeks now and starting on reduced hours, as I am not sure if I feel well enough to go back. Doesn’t help being told by the employer, a colleague who had it, is surprised I’ve been off work! Looking forward to being normal again.

Comment from: Sammy, 65-74 Female (Patient) Published: September 29

I have suffered on and off from labyrinthitis that lasts for a few days and taking travel sickness tablets help a little. Then 4 weeks ago I woke to feel the room spinning around and felt so ill I had to call 111 and they sent a general physician out. He was worried I had a stroke but after all tests said it was labyrinthitis and gave me stronger tablets for it and anti-sickness tablets. Two weeks later I was feeling no better and had to go to the doctor and was told it could last up to 3 months. It comes and goes and makes me so ill.

Comment from: Maya, 25-34 Female (Patient) Published: September 15

I woke up one day feeling dizzy and off balance. I was told I had a viral ear infection and the dizziness would go away. Two months on and the dizziness has subsided but everything else has gotten worse. I’ve had severe anxiety, depression, heart palpitations as well as throbbing pain in my ears, neck and head, weakness in my body all the time. It’s so terrifying and I am worried it is labyrinthitis. I've taken numerous medications, but nothing has helped. I’ve only just been referred for an ear scan. So hard to stay positive.

Comment from: DaHoobs, 35-44 Male (Patient) Published: September 14

Three months ago I had a sudden pressure headache and massive dizziness. I went to the emergency room for a CT head and neck angiogram, and they found nothing. I was told I had a possible neck strain with labyrinthitis. Today I am still unwell, jaw pain, neck pain, fatigue, depression, and chest pain on left of sternum with heart palpitations and racing heart. Hasn't been fun. Still no answers beyond chronic labyrinthitis.

Comment from: A surgeon, 45-54 Male (Patient) Published: August 13

I have had labyrinthitis for 17 months. It was horrible initially. I was very weak, unstable, and if I get hungry, I could collapse. I had every system tested; had steroids for over 5 weeks last year. It fluctuates, but over all a bit better. I have been miserable for a long time. I never had vertigo, only dizziness, severe fatigue and unbalanced feelings. Occasionally I get headaches and my hands get cold. I tried so many therapies including acupuncture. Nothing works except Valium when I am very bad.

Comment from: Kath, 55-64 Female (Patient) Published: July 31

Seven weeks ago I started hearing distortion and fullness in both ears, and also had muffled hearing. Then, 4 weeks later, I had a dreadful vertigo attack whilst driving, felt as if I'd been pushed, and it took 2 hours to subside. Last 3 weeks I have vertigo and tinnitus, but ear fullness is much less. I am not sure if it is labyrinthitis, I can't be examined because of COVID but am taking Serc which helps a bit. I have good days and bad. Just want a diagnosis.

Comment from: Joanna, 55-64 Female (Patient) Published: June 19

Completely out of the blue, I lay down on the bed at 10.30 pm and the room swam around me. Labyrinthitis is terrifying. I was sick. Thought I’d had stroke. I was taken to the hospital in three days with banging head. CT and MRI scans showed no stroke. I don’t know how to sleep propped up. My neck is very painful. I can’t sleep on my back.

Comment from: Mom of three, 25-34 Female (Patient) Published: June 16

My labyrinthitis started from a cold and it lasted around 3 days. I had mild dizziness, it cleared up, and then a week later it came back worse. I have terrible dizziness, vision problems, trouble concentrating, and am off balance. I have trouble sleeping as it is causing me a lot of anxiety and depression. I hope it clears up soon and I never experience this again. I live in Australia and my doctor prescribed Stemetil tablet.

Comment from: Carings, 25-34 Female (Patient) Published: April 21

Four weeks ago I had cold symptoms -- stuffy nose, chest pressure, and sore throat which cleared within a few days. One morning I woke up and felt extremely dizzy as if my body could not coordinate itself and someone had pushed my head. I didn’t feel like the room was spinning but felt like the inside of me was spinning. Labyrinthitis was coming on suddenly in the afternoon. I’ve had bad days and sad, but I’m trying to be positive and hopeful.


Tinnitus: Why Are My Ears Ringing? See Slideshow
Comment from: L77, 35-44 Female (Patient) Published: April 07

I was feeling well, no cold or virus, etc. I got up one morning and 5 minutes after waking I suddenly felt my legs go and everything went black. I was at the top of the stairs so had to grab on to the rail so I didn't fall down. I have low blood pressure so thought it was that. I felt like the room was spinning all day and was very nauseous. The next day I phoned my doctor and he diagnosed acute labyrinthitis. I'm on day 5 now. Yesterday I felt better but it hit me hard again today. It's horrible!

Comment from: Friend , 35-44 (Patient) Published: February 05

I’m grateful for finding this site and to all those who’ve shared. I know of no one personally who’s had labyrinthitis. I’m 2 months in. I feel like I’ve forgotten what normal is and I wish I could take it for granted again. Some days I feel like I’m improving and relax, and give a sigh of relief. Then I’ll feel the onset of the dizziness and the all too familiar pressure in my head. I want to know what recovery feels like. I get nausea, extreme headaches, lethargy. I wish you all health again!

Comment from: Chrissy, 45-54 Female (Patient) Published: January 28

I have labyrinthitis for the second time in 30 years. I have the usual dizzy and off balance sensation. I wonder if anyone has experienced constant pins and needles in their hands and forearms with this. I also feel like I don’t have energy. And I also have burning sensation around my shoulder blade. Also wondering if it make you depressed. I feel really quite pathetic at the moment.

Comment from: AfraidToGoHike, 55-64 Female (Patient) Published: December 03

I had a cold sore, no big deal. While backpacking in a remote area, I woke up and the world was spinning. I tried to stand up but kept vomiting. Getting off the trail and into town was hard. I was told it was BPPV (benign paroxysmal positional vertigo). It resolved with exercises and Antivert. The next time I had a cold sore, labyrinthitis was back. I think there is permanent damage. It keeps happening. Last time was terrible; and we had been in an even more remote area again. We now have a 6 month trip planned. I’m afraid to go too remote.

Comment from: Kat, 25-34 Female (Patient) Published: December 03

I was 9 months pregnant when labyrinthitis hit out of the blue. I went to the emergency room (ER) and they said I had low blood sugar! I’d been vomiting for hours and everything was spinning so bad. Needless to say I went to a different ER. They admitted me and I had to stay there for days. I finally went home and had to deal with 3 more weeks of spinning. No medicines.

Comment from: Beale, 45-54 Male (Patient) Published: November 26

I had significant vertigo the first day, and the first week with labyrinthitis was rough. Vertigo is slowly improving, now starting week 4. I have had a terrible headache throughout - mostly in my temples, but early on it seemed to move around a bit. I have had headache day and night. Started vestibular rehabilitation and am hoping for relief from headaches and improvement on dizziness. Doctors said it often can take months to recover. Hang in there everyone!

Comment from: scottm77, 35-44 Male (Patient) Published: November 19

It’s 2.5 months now I’ve been suffering with labyrinthitis. I went to the hospital to get tests done, and they told me I had chronic sinusitis, and infection in my jaw line. They sent me home with antibiotics after having had a CT scan (where they found the chronic sinusitis and infection in the jaw. I hope this is it, like I have the answer. I was never stuffed up, or had a cold. I had infection in my jaw before, but no balance issues from it. Looking around is almost scary. It's like everything does not look real; hard to explain.

Comment from: miriam, 45-54 Female (Patient) Published: November 14

After waking I experienced fast spinning. I thought that maybe I needed some nutrition, ate, and then while the room wasn't spinning as fast, things felt off balance. So I thought I'd lie down to see if it would pass. The minute my head hit that flat angle, I started about 7 hours of vomiting, spinning, and vomiting. If I moved my head an inch, stood up, or sat down I started vomiting. Eventually the labyrinthitis sort of lifted. Two days later I’m feeling better although nauseated after eating.

Comment from: CD, 45-54 Male (Patient) Published: November 06

Two months ago I had a serious dizzy spell with labyrinthitis and almost fell down. Next day I experienced ear ringing and weird eye issues. Eyes have gotten better and the dizziness is pretty much gone. However I have gained a shaky feeling in chest and hands… kind of like a nervous shaking spell. Also the ringing in my ear has gotten slightly better. Wonder if anyone else has a similar situation with the shaky hands and muscle twitches.

Comment from: Mustanglydia, 55-64 Female (Patient) Published: October 28

I received the shingles vaccine about 5 weeks ago. About 30 hours later I woke up to severe head spins. I could not walk or even sit up. I have been nauseous, with terrible headaches, sinus pressure and pain. Ocular migraines. For the first two weeks I needed a cane to walk. Though the symptoms have improved I am still quite dizzy most days. I was finally diagnosed with labyrinthitis. I wonder what the prognosis for this disease is and if I can expect a full recovery.

Comment from: Majic, 45-54 Male (Patient) Published: September 23

I have very short spells of severe dizziness from labyrinthitis, which made me literally hold my head in my hands. It was an ongoing virus because of which I eventually lost my job over as driver and forklift truck engineer.

Comment from: Chloe, 25-34 Female (Patient) Published: September 06

I’m a 27 year old female. I first started having dizziness and a feeling of being on choppy water after suffering with a bad cold and chest infection, and was under a lot of stress at the time. It got so bad I went to Accident and Emergency as they thought I might have had a stroke. Test came back clear and doctors said it’s probably labyrinths. It cleared up after three weeks. However it has returned five weeks later after being really stressed again. So frustrating!

Comment from: Gemma, 19-24 Female (Patient) Published: September 06

I had severe flu for 2 weeks and was bedridden. The dizziness came on when the flu started to clear. I assumed it was because I spent 2 weeks in bed, it is 1.5 weeks later, I have now been off work for almost 3 weeks, and I work in sales so my desk is getting colder. I cannot walk or stand without help and haven't had a proper day with eating in 3 weeks because I am so ill. I have also been banned from driving, by my doctor. I'm hoping one day it goes away, I am not sure I can deal with this!

Comment from: Dc, 55-64 Male (Patient) Published: September 05

I have labyrinthitis and now I have had it for 7 weeks. It is very bad, my skin hurts, I feel numb on the right side, and I had vision problems. I can’t hear, feel awful all the time, and had vertigo so bad I threw up a lot. I have been on all kinds of medicines, steroids and antibiotics for virus, and now may have nerve damage and hearing loss, they say. Then they say it could be a tumor. You feel like you are in loopy land, this is crazy, no one knows how it is till it happens to you. Death might be better.

Comment from: noah, 19-24 Female (Patient) Published: August 27

My symptoms of labyrinthitis are nonstop dizziness, nausea, and vertigo. This is the worst I've ever felt and I won't be able to see a doctor for three weeks.

Comment from: NotPsychotic, 25-34 Female (Patient) Published: July 30

I felt a weird type of dizzy thing, like someone had pulled a rug from under me. Felt like I couldn't control my body properly like I was a puppet with loose limbs. I went to bed, as I was already extremely tired. Later next day same thing, but worse. I felt like I was about to pass out or have a seizure. Felt like the inside of my head was shaking and needed to hold myself still. I had to lie down as I couldn't sit or stand. Very scary. The doctor did brain exam, diagnosed me with labyrinthitis, and gave prochlorperazine (antipsychotic).

Comment from: JAB, 55-64 Female (Patient) Published: July 16

I started with a stuffy nose, cough, stuffy ears and bloody nose. I experienced this type of thing for about a mouth. During this time, I noticed feeling an imbalance while standing. About a week or so later I was driving down the road and experienced a dizzy spell and had to pull off the road. Followed up a general physician (GP) and ENT. I received antibiotics from the GP. ENT diagnosed labyrinthitis and prescribed prednisone for two weeks. It has helped but I still feel some symptoms. Follow up with ENT as needed.

Comment from: N77, 35-44 Female (Patient) Published: July 02

My bout with labyrinthitis started about a week after a cough and cold. I woke in the morning, and took a moment to focus my eyes. Then throughout the day I felt dizzy on bending. Come the same evening it was awful, I got really anxious, and panicked. I called 111, the doctor called me back and said it sounded like labyrinthitis. He said to take travel sick tablets. I got some, and this is helping. Yesterday I felt so much better, but today I have woken feeling a bit fuzzy-headed again. I guess it's just running its course!

Comment from: Theo, 65-74 Male (Patient) Published: July 02

I noticed a red circle about the size of a silver dollar on the inside of my left thigh. I thought it was a symptom of Lyme disease. So when I started feeling dizzy and nauseous, I thought it verified the Lyme disease diagnosis. When I went to the local clinic the doctor looked in my ears and diagnosed labyrinthitis. She put me on antibiotics but after reading about the condition, it states that the bacterial form is rare and the viral form is more common. Wonder if anybody else has been given antibiotics.

Comment from: John, 35-44 Male (Patient) Published: June 19

I’m going on 1 month now with labyrinthitis. It’s been really tough just lying down all day, but that’s the only thing that makes me feel okay. I went to the emergency room, ENT doctor, and took medication but nothing you can do except wait for this Illness to naturally go away on its own. I am starting to feel better, not at 100 percent but much better than before. My advice is, if possible don’t go to work, eat healthy, and get a lot of rest. I have difficulty sleeping so I take sleep aid every night. Good luck to everyone!

Comment from: Idahoegirl, 65-74 Female (Patient) Published: June 19

I had purring in my left ear for 2 weeks, then loss of hearing in the left ear, and dizzy spells. I was on all fours in the garden, got up to great dizziness, and got worse with severe nausea, Thought I would die. I had CT scan and blood work the next day. The doctor said it was viral labyrinthitis. Meclizine a godsend. It is 7 days in, I have vertigo, but am up and about a bit. Hearing in my left ear has not returned yet.

Comment from: Shane, 35-44 (Patient) Published: June 12

I was on a train with my partner when I turned my head and got this sickly spinning sensation, was uneasy on my feet and had total panic. The following 7 days I was quite lightheaded and tried to return to work which resulted in me going into total panic and taking myself to Accident and Emergency because I thought it was a stroke, etc. There I got diagnosed with labyrinthitis. I am into this a week or 10 days and slowly making progress with long walks and leaving home without the lightheadedness coming through after a few minutes.

Comment from: Glen, 65-74 Male (Patient) Published: June 06

I had labyrinthitis in 1988, and am now 65. I have continued balance problems daily, nausea when bending over, etc., especially first thing in the morning. Very frustrating, have to be careful constantly. I wear Dr. Martens, Birkenstocks, and wide soles boots for better balance walking, otherwise I fall off my shoes. ENT doctor says that's about all I can do, and it's not going away. I have to be careful what I eat too, trying to stay away from white and beige foods, i.e. sugar etc.

Comment from: June G, 65-74 Female (Patient) Published: May 08

I had chronic labyrinthitis last year for four or more months, which gave me panic attacks and general fatigue. I sort of came out of it but two weeks ago had an attack! I had felt tired and fatigued for a month. The tinnitus was terrible after the attack which didn't last long, everything spinning and out of control. I felt awful for two days. It is ten days in and my usual Serc tablets don't seem to be working. The fatigue is dreadful, I can't do very much at all, just want to sleep.

Comment from: Kat, 55-64 Female (Patient) Published: February 04

I was standing drying my hands in the ladies’ room when I felt like the inside of my head was pushed to the left (like an old-fashioned typewriter carriage). I then got an ocular migraine which lasted about 30 minutes. I felt so sick and dizzy I couldn't walk in a straight line. It felt like I was still and the world was spinning around me. As this was just before Christmas I couldn't get a general physician’s appointment till 31st December where after an in-depth consultation I was diagnosed with acute labyrinthitis. It comes and goes.

Comment from: Milly, 35-44 Female (Patient) Published: January 29

I literally went to bed one night and woke up next morning and the room was spinning. I couldn’t walk and was sick straight away. I felt very panicky and could hardly breathe. I was so scared, I thought I was having a stroke or something. I rang 111 and they sent an ambulance, they pretty much diagnosed me with labyrinthitis straight away and gave me intravenous anti-sickness medication. It’s the worst thing I’ve ever had, all I could do was lie down and let it run its course. I took car sickness tablets and it lasted 3 weeks.

Comment from: Gee gee, 35-44 Female (Patient) Published: December 20

I've had labyrinthitis around 3 months and it comes and goes, but 3 weeks ago it came back so bad I was in bed for 2 weeks. My face and head numbness is bad. I went out today for the first time in weeks and nearly passed out, so fed up now I just can't cope.

Comment from: Jill, 35-44 Female (Patient) Published: December 18

I have been dizzy on and off for 6 weeks, and have face and head numbness. The doctor said it is labyrinthitis. I am still in bed and don't feel any better.

Comment from: LouD, 25-34 Female (Patient) Published: August 23

I started experiencing dizziness about 2 months ago. I was feeling spaced out, and had vertigo, nausea and shaking on and off. I have been to the doctors several times. Hopefully my labyrinthitis clears up soon, some say I feel better than others.

Comment from: Jenny, 45-54 Female (Patient) Published: August 07

I was asleep and felt a pop in my head and it woke me up. When I opened my eyes, everything started spinning fast. My body felt weak, my hands started shaking and tingling. I got so scared that I couldn’t breathe, so husband had to call 911. They did a blood test, EKG, and gave me an IV. The doctor gave me Antivert for dizziness, and it helped a little with the labyrinthitis. For a couple of days, I felt I couldn’t function and it was the scariest feeling! It’s been 5 days now and it comes and goes.

Comment from: shelly, 45-54 Female (Patient) Published: November 21

I am on week 6 of this terrible labyrinthitis. I've had the nausea, and also it has really affected my eyes, to me they get very sensitive, but I guess they call it eye strain. I have it for 3 or 4 days, have body ache and headaches, and it makes me so cranky. I have a few good days then it hits me again. I have to lie in a dark cool room. I am so tired of lying around but it helps. I've tried a sinus spray and medication. The doctor says to wait it out. Now I think he may prescribe me a steroid; although he feels it won't help. I have not worked yet and see no possible way until I am at least good for a week. When it hits me it knocks me down hard. I had never heard of this. Constant feeling of body like stone, and light headedness or somedays it feels like a vise in on my head. Terrible.

Comment from: Amanda, 55-64 Female (Patient) Published: March 31

I had labyrinthitis last July 2015. I was walking my dog and suddenly out of the blue I couldn’t carry on to get home as I felt the world was moving. I had to call out for help, luckily someone heard me and helped me and my dog back home. I then had this for 2 months where I couldn’t step out of my home and everyday chores were difficult. I thought I was stuck with it! A horrible debilitating illness. It did eventually subside but even now I feel very anxious about going out. Some days are worse than others and I seem to need to chew humbugs wherever I go; not good for teeth or tum but it does help.

Comment from: ROMRIZ, 45-54 Male (Patient) Published: November 10

I was going on a drive when I suddenly felt that the swaying I have been feeling for a month that I thought might be the cause of cholesterol had started again. I ignored it. Then I felt that my lower body is like fusing off and it all was going to my head. I never felt any spinning surroundings or ringing of bells. I then went to the doctor who is my elder brother and he diagnosed me as suffering from labyrinthitis. I have been feeling only swaying previously. But that night I felt like that my body is going to turn off. I am very thankful to all those people who wrote in this forum.

Comment from: Cathy, 55-64 Female (Patient) Published: September 23

I got in a bad car accident. And ever since I have had headaches, pressure in my head, pressure in my ears, nausea, and some ringing in my ears, and I am really off balance. The accident was over 2 years ago! I have been living with this for so long, I was just about ready to give up. And then I googled my symptoms and I was so happy to see that there was a name for this. And everything everyone wrote and was experiencing the same as I was. I also quit drinking, my head feels so messed up. I feel like I am 100 years old. I have an appointment next week with an ENT doctor and I can't wait. Hopefully he can help me get back to my normal self. Thank you everyone who has written on labyrinthitis.

Comment from: bobbo, 55-64 Female (Patient) Published: September 15

I was fit and healthy. I tipped my head back in the shower 5 years ago. The world began to spin and I had vomiting and diarrhea. I was hospitalized for 2 days. I have seen 2 ENTs and 3 neurologists. I have had every test there is, including spin chair. I did vestibular therapy, acupuncture and cranial massage. They guess at diagnosis of vestibular neuritis. I took drugs for migraine associated vertigo (MAV) or labyrinthitis. Nothing helps. I have oscillopsia and BPPV (benign paroxysmal positional vertigo). I still feel drunk every day. There is no medical fix for virus damaged cranial nerves. I quit going to doctors. They know nothing and treat me like a mental patient.

Comment from: nick_30_male, 25-34 Male (Patient) Published: February 19

Every time I get a cold or sinus infection I end up with labyrinthitis. It never fails. I had superior canal dehiscence last year and repaired with surgery. Usually 1 or 2 weeks post-cold, everything I look at overwhelms me. I get dizzy and panicky. Not necessarily dizzy, just overwhelmed. After getting Antivert, steroid burst and benzodiazepines usually 2 or 3 weeks later I feel better. Hang in there friends! It gets better.

Comment from: Pinky, 65-74 Female (Patient) Published: July 09

Most of my labyrinthitis symptoms were similar to those of the people who had written on this forum. Mine started back in March, lasted about two weeks and then went. In April, it came back with a vengeance, and by the end of April it seemed to go again. Then in the middle of June, it came back and is still here. Although I hate how it makes me feel, I found it reassuring that I wasn’t alone. Thank goodness for this page.

Comment from: irenc, 65-74 Female (Patient) Published: September 25

I had been dizzy for a few days, then suddenly my legs would not hold me. I held onto a wall and got home, by which time I was vomiting. I lay down after this and slept for 2 hours. But since this I have no energy. I can’t do my gardening and need to sleep lots. I could not see my doctor at the time due COVID so I am struggling on alone. Wondering if this is labyrinthitis.

Comment from: Sarag, 35-44 Female (Patient) Published: March 19

I had a really bad cold where my nose was running like a tap. Not long after that I had dizziness. The doctor said I had an ear infection in the inner ear and there was fluid buildup in my right ear. I was getting awful dizzy spells from labyrinthitis like I was drunk. This has been going on 4 weeks now. I have seen 5 doctors and also been in Accident and Emergency, and none of them said I needed an MRI scan. I'm really worried about brain tumors but they have all said it isn't that. My anxiety is really bad.

Comment from: Scrowmusic, 25-34 Male (Patient) Published: April 30

For anyone who is experiencing labyrinthitis I would like to give hope. A lot of us who have recovered have unfortunately put this behind us and never spoke of it again. But back in 2010 I was diagnosed and it took about maybe 2 years to fully go away. I thought I was going to be stuck with it for the rest of my life but the best thing you can do is to get out and face it head on. Eventually through daily walking and skateboarding I woke up and it was gone. Recovery is around the corner. Good luck to you all.

Comment from: 8thdwarfdizzy, 25-34 Male (Patient) Published: May 16

I was very healthy and worked out frequently. I had no sickness just prior to the onset but it showed up in a matter of seconds, felt like I stood up too fast, and my legs felt foreign. Long story short it has been a month now and my symptoms are at about 20% of what they were, the doctor said it could take 3 months to feel normal again. Now I feel dizzy anytime I move my head. I have good days and bad days, but I am getting better.

Comment from: 25-34 Female (Patient) Published: September 26

Female, 28. Felt like I was getting a cold, funny throat. Following morning throat felt very tight and ached but not sore. Few days later at work kept feeling dizzy legs would go from under me. Went to gp had low blood pressure. That weekend felt sick unsteady on feet and stayed in bed. First day out of house in three days, feel like i am drunk everything spinning, Been to doctor today and diagnosed.

Comment from: Fastbuick2 , 65-74 Male (Patient) Published: November 01

He would be walking just fine then all of a sudden he would be walking with his whole body leaning to the side. I wonder if it is labyrinthitis.

Comment from: Binkey, 45-54 Female (Patient) Published: January 13

I did not know what was going on. I thought I was having a stroke! I stood up and the room started spinning. I put my head down, and when I held my head back up, I started spinning again! I took my blood pressure and it was up so my husband took me to the E.R. where they told me I had labyrinthitis.

Comment from: Charlie, 19-24 Female (Patient) Published: October 30

I've been diagnosed with labyrinthitis 10 days ago and I have a 6 month old baby. I've never felt so ill.

Comment from: Barataria, 55-64 Female (Patient) Published: October 25

I have been experiencing dizziness and extreme headache for over ten years. Slight movements of the head or entering stores with certain lighting would bring on excessive sweating on my forehead and face. Cat scans and MRIs show nothing. This feeling is debilitating and ongoing. Every day I experience some degree of headaches and dizziness. Meclizine helps the dizziness sometimes. The headache I was told was occipital nerve neuralgia. I need to live a normal life again.

Comment from: juls, 55-64 Female (Patient) Published: October 07

I was diagnosed by closing my eyes with my arms stretch out and try to stand on one foot. It is impossible to stay balanced. I was given a methylprednisone pack and it works for me. Antiverts do not. My eyes get sore if I don't get the meds sooner than later.

Comment from: Bobblehead, 65-74 Female (Patient) Published: July 05

The first time it happened, the room stayed spinning for 2 1/2 weeks. Was nauseated, vomiting for the entire time. Finally, the spinning stopped, but my equilibruim and depth perception was way off. It took a month I before I could return to work. That first day back I was about 85% better, with no dizziness but the dept perception was not back. As I work in the medical field, I felt confident I could do my job, About 2 hrs after I started work, I heard a loud "explosion", the only way I can describe it, in my head. Everything went black for about 5 seconds. When I came back, I was at 100%. I have periodic bouts to this day, which is very frustrating as you can never know when or where they will appear. I take each day at a time.

Comment from: 55-64 Female (Patient) Published: April 23

I had loud ringing in one ear, followed by dizziness.

Comment from: Sarah, 25-34 Female (Patient) Published: April 18

I'm a 32-year-old female and have been experiencing I guess you could say vertigo, for about a month now. I don't recall the exact day my symptoms appeared all I remember is thinking it'll go away soon but it still hasn't. I wasn't sick though and I don't recall any "ringing of the ears". I am and have been under a tremendous amount of stress. I’m a nursing student and that alone is extremely stressful but I'm also raising 4 kids and I have been having problems with my husband, so I thought maybe it was stress. I decided to go see my doctor where they ran a CBC and all blood work came back normal, the doctor even gave me a clean bill of health but I'm not so sure. Now I'm thinking about going to the ER just to rule out any tumors. When I went to the doctor she did a bunch of little neurological tests but no CT or CAT scans. I just want to know what's going on, I know there is definitely something wrong! I'm so scared! I have read so many posts on other people's experiences with labyrinthitis and I so appreciate it cause I don't feel so alone, however, I don't have severe dizziness where I'm falling down or vomiting (not yet anyway) I can keep my balance but I constantly feel like I'm swaying especially when I've been concentrating on something for a while then move my eyes. This is really affecting my life in a negative way and causing depression.

Comment from: garden girl, 35-44 Female (Patient) Published: December 24

I awoke spinning from a good night's sleep. I went into panic and went to the emergency room. My symptoms started with extreme spinning and dizziness for about 3 days. Now, 2 months later I'm still experiencing lightheadness and swaying every time I stand still. I was just diagnosed yesterday, finally at 2 months. My symptoms are decreasing, but, everyday is different. I try to rest on my side as much as I can. Now, I am getting bad headaches. After emergency room, and ENT doctor I finally went to a neurologist. He suggested VRT. Therapy for your inner ear.

Comment from: Jean, 55-64 Female (Patient) Published: December 12

I'm a 62 female, a caregiver. I was fine on Friday through the night except I felt hot. I awoke at 4:30 in the morning and my ear had this rushing sound so loud and couldn't hear anything out of my right ear. I got up to vomit, and was very dizzy. I had this about a month ago. Last time my doctor gave me meclizine for the dizziness and it worked, but this time it's not working as well. I developed a cold right after this episode had happened.

Comment from: Anonymous, 35-44 Female (Patient) Published: October 02

I had a high fever and cold like symptoms plus sore throat the week before I became dizzy. Then after 6 days of having a fever I became dizzy. Friends said it looked like I was drunk when I was walking around. Riding in the car is a nightmare because I feel dizzier and sick. Turning my head is also not good. Laying still works the best. The cold symptoms have gone away but I am still dizzy. The doctor said it is viral labyrinthitis and should go away in about three weeks.

Comment from: Veronica, 35-44 Female (Patient) Published: July 20

First, I'm thankful to finally see information on labyrinthitis. I have experienced all of these symptoms and a few more since childhood. Tumbling and jumping in gym class were a nightmare for me. Everything was spinning and I would fall down. Audiologists, ENT specialists had no clue, especially as to why my blood pressure would spike after an incident. The migraine headaches were the worst, starting at age 12. Regular exercise, low sodium/low sugar diet did help a lot. Finally, at age 29, a new family physician diagnosed the Labyrinthitis, gave me antibiotics and orders to rest only after a 10 minute visit - I cried when he retired. I felt like a new person the very next day; usually it took about 4-5 just to walk normally. Reduce your stress, get regular rest, drink plenty of water, so the onset of symptoms are more noticeable earlier and not as severe. Hang in there!

Comment from: gillyb, 55-64 Female (Patient) Published: June 25

I had a severe dizzy episode at work just over a week ago. I was feeling very lightheaded. I had another episode 10 days later and am still feeling lightheaded two days later. My head also feels very heavy, and I don't seem to focus very well. I went to my GP this morning and diagnosed Labyrinthitis and gave me some medication to help with the dizziness. I have to go back in a couple of weeks to see how I am doing. I have a brain tumor but he doesn't seem to think this is the problem. I do hope he is right.

Comment from: HELPME, 25-34 Female (Patient) Published: June 04

It was weird I woke up from a goodnight's sleep and the room was spinning. I then had the feeling that I was going to vomit. I have been this way for almost a week now. I am in the process of getting a referral from the doctor see an ear, nose and throat doctor. Hopefully this will help because I cannot function at all. This is the worst feeling ever.

Comment from: Aw, 13-18 Female (Patient) Published: May 30

I experienced sickness and dizziness.

Comment from: Chimom, 45-54 Female (Patient) Published: May 01

Sudden onset of severe vertigo with extreme vomiting. I was taken to the ER by ambulance. I couldn't get off the floor, or stop vomiting, or answer questions. I also had nystagmus and an extreme high-pitched squeal in my ears.

Comment from: Larry, 55-64 Male (Patient) Published: April 02

Last Tuesday, after work, I had to fix a problem with the skirting of my mobile home. As I was working on my hands and knees, I became dizzy so I stopped for a few minutes. When I felt better I started to work again and the dizziness returned with a fury. I couldn't stand up and crawled up the steps to my home and when I got to the to step, pulled myself up and tried to lay down on my recliner when I became very nauseous and ran to the kitchen sink and started dry heaving (throwing up) violently. Nothing came out but some black bile a thick green phlegm. I was sweating profusely and in between throwing up I would try and sit on a chair but the entire room was spinning and sitting made it worse. So I lay out on the floor which was nice and cold and called an ambulance. They took me to the hospital thinking I could have been have a series of mini strokes in my cerebellum so they took a CAT scan and an MRI of my head and neck areas to make sure the blood flow was fine. Finally I was diagnosed with labyrinthitis given the meds and sent home when my balance somewhat returned. It's been 5 days now and though I'm free of the nausea and vomiting, the vertigo is still present and I have to use a walker to get around the house. They say it was brought on by in my case, by stress. I had had a very small cold but had not been sick.

Comment from: His Princess, 45-54 Female (Patient) Published: March 21

I have just been diagnosed with labyrinthitis today. I had a nasty virus couple weeks ago and since then feeling of the world being 'surreal.' Today I woke up with a crazy spinning in my head and an urge to vomit.

Comment from: Richard, 55-64 Male (Patient) Published: March 19

I attended a job interview & felt slightly 'spaced-out.' I put this down to the stress of the pending interview. I started vomiting. The last time I was vomited was when I was 16 years of age, almost 40 years ago, so I knew there was something wrong. I got home and my wife called the doctor who, following some tests, diagnosed labyrinthitis. It is now day four and I am feeling 100% better than I did.

Comment from: 35-44 Female (Caregiver) Published: March 08

I was fine yesterday and out of knowhere I got very dizzy and the room started spinning. I am on day 2 now and I feel lightheaded, foggy,and lethargic all the time. When I move my head fast, the symptoms are worse. I have nausea but no vomiting. I am off balance and I feel as though I am in a dream. The doctor I work with gave me meclizine so hopefully it works. It's a waiting game now.

Comment from: mike, 35-44 Male (Patient) Published: January 30

I first had a bout of this going to hockey I stepped on the ice feeling a bit weird like the ice was moving. I got off the ice and got sick while I was driving home. I was very scared because I felt like I was going to crash. I got sick 5 more times that night I have since had two more bouts of it the most recent this weekend.

Comment from: Norm, 65-74 Male (Patient) Published: January 24

My dad has 40% labyrinthitis. He is not on any medication. It drives him mad. He gets headaches too. He is 70 years old.

Comment from: Nurse Rose, 65-74 Female (Caregiver) Published: December 27

I have had tinnitus for more than 10 years, using a sound machine masks the sound. Then I noticed my ears where not making wax anymore. I started having balance concerns. A health column in the local newspaper told his readers that there was an across the counter product developed by an ear, nose and throat Dr. The product is called LIPO-FLAVONOID. It improves circulation to the inner ear. It is not a quick fix. I have been taking it for 6 months and my balance has improved my ears are again producing wax. The tinnitus is not as bad. I want you to know there is HOPE.

Comment from: 45-54 Male (Caregiver) Published: December 02

Thank you everyone for all your helpful comments. Last night my husband had a sudden onset of severe vertigo and vomiting. This morning he went to clinic and was admitted to hospital for labyrinthitis. Antivert has not been helpful yet and he is already on prednisone. Hopefully tomorrow brings more relief.

Comment from: Tony Paul, 55-64 Male (Caregiver) Published: November 21

I have had it for a year now and my doctor says it is permanent and my balance is never coming back. I feel drunk all the time and when I sit down I fall rather than go down gently also lying down turning over or trying to sit up or get out of bed is hard work.

Comment from: Bonnie, 65-74 Female (Patient) Published: October 31

I had been feeling very tired and lethargic for at least a week. I woke up one morning and when I tried to stand up, I was unstable, couldn't walk to the bathroom without holding on to the wall. My ears felt blocked, but I had no pain. I went back to bed and for the next five days. I felt so nauseated I could not eat, except for forcing a piece of toast and black tea. I finally got to the doctor where I was diagnosed with labyrinthitis, no follow-up tests, just a verbal diagnosis. Not impressed.

Comment from: Michelle, 35-44 Female (Patient) Published: September 13

Mine started with a severe tightening band type headache mainly on my forehead only. Then later severe vertigo followed by sleeping for 15 hours straight. Luckily I didn't progress to vomiting mainly because I slept for so long I think. The next day I still had vertigo (nowhere as bad as the previous day) and again I just wanted to keep sleeping. Not particularly interested in eating, just sleeping. Day 4: still experiencing slight vertigo, sleeping whenever I can, eating only when necessary. Still experiencing tight headaches, but severity is much reduced.

Comment from: Jan, 55-64 Female (Patient) Published: August 24

After mowing the lawn on a hot day I came inside and began making breakfast and suddenly felt like I would fall backwards and felt dizzy and clammy. I sat down but it did not resolve itself. Concerned I may have been having a heart attack, I called an ambulance. On way to hospital had nausea and vomiting. I could not move my head even slightly or would vomit and was very weak. IV antinausea meds did not help much. Possible heat stroke or exhaustion was suggested. Was given meclizine orally but threw it up. I had never felt this ill. I had CT scan of brain that was normal. Admitted to hospital with IV fluids for dehydration and did not feel better until next day though still weak and dizzy. I was discharged from hospital. The doctor wanted me to follow up with an MRI of the brain. The next day went to family doctor who diagnosed me with labyrinthitis which I never heard of. Almost a week later I still have unbalance issues, but I am taking meclizine, which helps and I scheduled and MRI to rule out any other issues.

Comment from: Jennifer, 35-44 Female (Patient) Published: August 11

I woke up with vertigo yesterday. If I moved my head a certain way during the day, I would get vertigo. The whole day I felt like I was in a fog. I was very tired when I got home from work and took a nap. I never do that. Going from a sitting to a laying position is a nightmare and I get very nauseated but I have no vomiting. My doctor diagnosed me with labyrinthitis over the phone.

Comment from: jadimoto, 35-44 Female (Patient) Published: August 03

I had a spinning sensation, off balance. This was followed by very severe vomiting, which was triggered by even very slight head movements.

Comment from: Cannelle, 55-64 Female (Patient) Published: July 18

I have experienced all what has been described for labyrinthritis that is recurring vertigo, spinning, vomiting, cannot function for few days but something I would like to point out is that I noticed that 2 or 3 days before the vertigo starts I feel extremely tired and I have no energy. I just had a CT scan for my ears and I will know the result in two weeks when I go to my doctor's appointment.

Comment from: 45-54 Female (Patient) Published: July 11

I felt fine when I woke and was eager to take a morning bike ride. I dressed and applied sunscreen and after bending down to touch my toes I stood up and about fell over with dizziness. I hate to sit at home and I live to ride, but I've had to reverse that plan for today. I had this once several years ago and after taking antibiotics for three days I was fine.

Comment from: Racheal, 25-34 Female (Patient) Published: June 06

With labyrinthritis, I had dizziness, nausea, ringing in the ears, motion sickness, and lethargy.

Comment from: Angm, 45-54 Female (Patient) Published: April 28

It started mid-day, with a ringing in my ear. Later, I was in the middle of instructing a moderate fitness session early evening, when I had the sensation I was going to be sick and I started to vomit. It was like being on a boat in severe weather conditions. I was unable to stand up and I was driven home. Then I started to experience everything in the room spinning round. I kept vomiting and I was unable to get out of bed for five days. It was three entire weeks before all my symptoms had disappeared.

Comment from: kenalp, 65-74 Male (Patient) Published: April 05

My symptoms were very typical. I had extreme vertigo and vomiting that lasted about three hours. I was admitted to the hospital where several tests were performed, all of which were normal. Unfortunately an ENT was not consulted until after I was released from the hospital. Two years later I have a moderately severe balance problem which is manifested when I stand or walk. I also have a permanent hearing loss which has been diagnosed as "profound" and cannot be resolved in any way with a hearing aid. So, I have pretty much learned to live with this condition.

Comment from: Judy, 65-74 Female (Patient) Published: March 24

I started with a severe case of vertigo that included vomiting. I was given cortisone, and antibiotic; I used allergy medications, and nothing helped. This was 1 month ago, saw and ear, nose and throat specialist today, scheduled for an MRI tomorrow, as of right now I have no hearing at all in my left ear and am still off balance in my movements. I am on a very strong dosage of prednisone for the next 2 weeks.

Comment from: Tony R, 65-74 Male (Patient) Published: March 15

I have had a severe headache on the right side of the head. Labrynthitis has been diagnosed but there is no explanation for the severe headaches.

Comment from: patspix, 55-64 (Patient) Published: March 10

I have been very dizzy since yesterday, especially when I get up from sitting down. I am going to try these exercises I’ve heard about. I also take motion sickness pills that help a little.

Comment from: Mark, 55-64 Male (Patient) Published: October 21

I was asleep on my side one night when I turned rapidly from side to side. I have used this method of turning in my sleep as long as I can remember only this time something different happened. When I turned I felt my skull turn with my body but my brain felt like it lagged behind my skull and then snapped into place like a rubber band. I have never remembered that happening in the past and it was painful. I went to work that day as usual but later in the afternoon when I had to climb and examine some equipment I became so dizzy that I had to sit down and thought that I may need to call emergency services. After 10 minutes I was well enough to drive to an emergency health care facility where I had a CT scan and all was clear. I was diagnosed with labyrinthitis and given an antibiotic and motion sickness pills. It has been a week and I still feel dizzy and am hoping to feel better soon.

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