Inflammatory Bowel Disease (IBD)

Question:

What type of inflammatory bowel disease do you have? Submit Your Comment

Comment from: drleac, 45-54 Female (Patient) Published: September 10

I am a sufferer of Crohns Disease and more recently diagnosed with Ulcerative Colitis. Double Whammy! My pain in my lower right quadrant of my stomach was so intense; I was literally bending in half. The frequency of diarrhea is still a consistent problem. (Appx. 7-10 times a day) Still losing weight; approx. 18-19 lbs. so far in almost 2 months. I was also told that I also have narrowing of small intestine, so therefore; I have been taken off any fiber, any fruit, with the exception of bananas and any skinned fruit in which skin has to be removed, and all vegetables except those are to be considered to be root vegetables, which to the best of my knowledge consists of potato, (white and sweet), beets, carrots, parsnips, and most recently discovered that onions are root vegetables. My Dr. has me on Entocort, Flagyl, and was just told to order VSL#3(Probiotics), consisting of live bacteria and germs. I have not yet started that method yet. I will be starting VSL#3 this coming week. I do not know if this information will be helpful to any of the other sufferers out there. All I know is that I am still suffering, though not quite as intense, but nonetheless, still suffering. I truly hope that something will soon help.

Comment from: loving daughter, 65-74 Female (Caregiver) Published: September 10

I have just read several posting’s and I can relate to several in the care my mother is receiving (or lack there of). She has been sick for almost three years and lost over 25 lbs. The doctors have treated her with anti-depressants and fiber. The symptons persit with swelling after the second meal of the day to the point of vomiting. She is mal-nourished and now on a liquid diet. We are pushing with the current GI doctor for some answers after several Barium x-rays and CAT scans we do not have any.

Comment from: 55-64 Female (Patient) Published: October 18

I had a surgery due to diverticulosis with pericolonic abscess, consistent with diverticulitis. I had a 7 to 8 months recuperation, and I am not bleeding from my uterus. I went to an obstetrician/gynecologist and he said I have scar tissues. I feel as though I am still not healed from the surgery.

Comment from: mselle, 75 or over Female (Patient) Published: May 02

When i have a flare up, I get gas, fecal incontinence, dry mouth, and fatigue. I have lost 60 pounds in two years. I feel terrible most of the time.

Comment from: BONNIE HewDx, 55-64 Female (Patient) Published: September 11

Since 2005 I have had sudden onset diarrhea attacks with no gas pain or stomach bubbles or cramps. I have been in public places when suddenly I have brown fouls smelling brown water running down my leg. I can sit on the toilet for up to fifteen minutes after it runs its course, then I feel no pressure. Over these years I have changed my diet several times and it never matters. I can sometimes go for months with no bowel issues and then have it hit me anywhere and happen one day or continue for a week. I have had two colonoscopies and one endoscopy. I don't go much in public anymore or I don't eat. Crohn’s is ruled out. I have hypothyroidism. I have two types of diarrhea. The kind you recognize after eating certain foods with warning bubbles and cramps. I have regular stools and 2-3 x a week, I have this rapid onset diarrhea with foul smell.

Published: June 04

I suffer from chronic diarrhea for the last 6 years. It started with pain in my stomach and diarrhea. Now I have no pain. The doctors I saw did colonoscopy and endoscopy, found nothing. One doctor thought it was cancer. Some thought it was my diabetes, but no one knows. I have to stay near a restroom or don't eat. Sometimes I can go without eating for a few hours and still go to the restroom. Late nights are real bad. I miss a lot of sleep sometimes.

Comment from: polly, 55-64 Female (Patient) Published: March 08

I had a diagnosis of colitis in the 70s, and throughout my life have had a "funny" stomach. Now though, things have gone from bad to worse. I have had extremely loose stools since 2011, and I started spotting blood. I use the loo countless times a day. I have severe pain and cramping whilst using the loo, and after eating have stomach and back pain, and then begin to frequent the loo even more.

Comment from: Janie, 45-54 Female (Patient) Published: November 18

For the last few months I have been having upper abdominal pain and quite often I actually look like I'm eight months pregnant and feel very bloated and I have a lot of gas. I will get diarrhea quite a bit. I don't know why this happens. The last couple of times it’s been full of blood and clots. I am 51 years old and I can't seem to lose any weight no matter how hard I try.

Comment from: sugarbaby21850, 45-54 Female (Patient) Published: October 13

I cannot go one day without having diarrhea. I have to take anti-diarrheal medications just to be able to eat. I never know when it's coming. I single piece of bread can trigger a cascade of events. I stay very depressed from having this disease. I've had it now for about 10 years and will probably die with it.

SLIDESHOW

Inflammatory Bowel Disease (IBD) Causes, Symptoms, Treatment See Slideshow
Comment from: hurting in nebraska, 25-34 Female (Patient) Published: April 15

I have had persistent diarrhea for 3 years now when I get my flare ups sometimes it is slow course I eat and then 20 minutes later I have to use the restroom and this cycle goes on for months and sometimes resolves itself other times it turns into painful cramps and watery diarrhea and nothing I do helps. If I go to the ER they just pump me full of pain meds and send me home so I try to handle it on my own. I have been diagnosed with diverticulitis, then gastroparesis, then colitis without ulcers, then Crohn’s. I am just ready for some answers because when I do have flare-ups I am taking oxycodone and only drinking water until my symptoms subside. I don't know where to turn to find out the real answers.

Comment from: 45-54 Male (Patient) Published: February 07

I have had this problem since birth. I have all was been told that I would need a small operation, and would need to wear a pouch for the rest of my life. I had a test done last week and was told that I have a long line of disused and looped bowel and it needs to be taken out.

Comment from: embarrassed lady, 75 or over Female (Patient) Published: December 27

My bowels can be very active for several hours, so it means having to stay near to the bathroom as it can get more urgent each time and I have to make quick dash.

Comment from: Skippy, 55-64 Male (Patient) Published: July 28

I suffered the symptoms of IBD for many years. This happens to me at least several days a week, sometimes every day for weeks on end. Until I discovered what my problem was, about 3 years ago. I discovered, by accident and coincidence really, that I am very sensitive to monosodium glutamate including all its analogues (yeast extract, autolyzed yeast, hydrolyzed protein, etc). Since I began carefully avoiding MSG, the frequency of my IBD symptoms has declined - to ZERO. In 3 years. I don't know if it's genetic, but even very small amounts of MSG give me IBD symptoms - Every Time. No MSG - No symptoms. I would suggest that anyone experiencing IBD symptoms try really hard to avoid MSG for a week and see what happens. You might be pleasantly surprised.

Comment from: Discover Life, 55-64 Male (Patient) Published: June 30

This is excellent information. This problem has run in my family for generations. I have gotten a handle on my problems through diet and exercise. My third and fourth sons have this problem also. It tends to be more prevalent from my father's side of the family. This condition is very painful for those who do have this problem.

Comment from: Gwen, 45-54 Female (Patient) Published: October 25

I was told I have IBD. The first time I had a flare up was about 4 years ago. I thought it was over. The next time was this year. I and a colonoscopy and the doctor said I have IDB and it would be with me the rest of my life. My symptoms have returned and I need medicine bad. I do not have insurance. My job has laid me off. Maybe a diet plan etc.

Comment from: MyBellyHurts, 45-54 Female (Patient) Published: August 01

I have had broken bones, back surgery, illnesses that are normal, but nothing is worse than the stomach pains that keep me curled up in a ball on the couch or keeps me from enjoying normal food. I have been self medicating on Zantac, sometimes 6 a day when the pain is really bad, but usually only the standard dose. The worst culprit is my denial after having a few good days that I can once again be a normal eater, so I have some chips, or peanuts, or heavy steak or hamburger or fiber rich brown bread and then find myself curled on the couch again for hours, until the Zantac takes effect. Peanuts and small seeds are the worse, but fibrous meats are 2nd and alcohol makes me feel like I have eaten cut glass. Thanks to everyone who leaves comments. It really helps to look at the info you leave.

Comment from: Gigi, 55-64 Female (Patient) Published: July 25

Three weeks ago I started suffering pain in my right upper side. I thought it was my liver. I started to detox with a program called Liver detox, I was drinking my water with 1/4 teaspoon vit. C cristals, but to no avail. I went to my doctor and determined my colon was the one causing my pain. It got inflammed. He prescribed Librax. The pain subsided but the inflammation is still there. No diarrea, not blood in my stool, no fever, appetite is normal. What could it be? The pain goes to the back at intervals. I sleep well, but I wake up and the pain is there.

QUESTION

Bowel regularity means a bowel movement every day. See Answer

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