What were the symptoms of your encephalopathy? Submit Your Comment

Comment from: Squish, 55-64 Female (Patient) Published: July 23

I woke up one morning unable to walk very well. My balance was off and I felt nauseous. Unfortunately my encephalopathy is due to alcohol abuse which results from childhood emotional trauma. I went to the emergency room and they discovered my B1 level was deficient.

Comment from: Joy M, 55-64 Female (Patient) Published: December 13

I was diagnosed with non-traumatic brain dysfunction encephalopathy, septic shock, respiratory failure, acute renal failure, hepatic failure, and cardiac arrest. I had multiple organ failure. I had been suffering with a urinary tract infection and went through a 10 day supply of antibiotics, it eventually led to a bladder infection, and then I ended up with Campylobacter, along with bilateral pleural effusion with bilateral thoracentesis. I went to the hospital with severe back pain and abdominal pain. I wasn't able to keep anything down, and anything I ingested went straight through me. I was extremely dehydrated and hadn't urinated in three days. I had gone to my general physician and saw one of his APRNs (advanced practice registered nurse) and she sent me home with more antibiotics, oral Compazine, and suggested drinking Pedialyte. I had told her that I wasn't able to keep anything down. The next day I had my husband take me to the emergency room (ER). While there they did many tests, gave me morphine for the pain and then I ended up going into cardiac arrest. I coded in the ER and the staff resuscitated me after 6 to 7 minutes. I was intubated and placed on life support for 11 days. I had to have continuous dialysis for 11 days and after I was extubated I had dialysis 3 to 4 hours a day for four days. When I woke in MICU, I had zero muscle strength and had to go through three weeks of physical and occupational therapy. I also received a slight injury throughout my MICU visit; my right thumb and index finger suffered with radial nerve damage. I had to go on gabapentin for over a year until the nerve regenerated. I still have some residual nerve pain, but have weaned myself off of the gabapentin. I was in the hospital for 1 and a half months and 26 of the days were spent in ICU.

Comment from: JMS, 75 or over Female (Patient) Published: January 16

Ammonia build up was my symptom of encephalopathy.

Comment from: Tracy Dean, 75 or over Male (Caregiver) Published: May 16

My elderly dad is in hospital with encephalopathy after being hospitalized with a urinary tract infection. Then he was diagnosed with Klebsiella and moved to another hospital. His mental function and bodily functions went from good to terrible in short order after this infection set in. Now he can only mimic what I say to him and cannot form his own thoughts or sentences. I wonder if this will subside or if it is terminal. I am so worried.

Comment from: pgeskimo, 45-54 Female (Patient) Published: March 31

I became critically ill with multiple diagnoses. When I first became ill with toxic encephalopathy it was originally thought to be caused by multiple medications. Later on it was diagnosed as secondary to sepsis. I was sick with sepsis secondary to urinary tract infection and gram-negative bacteremia, sepsis, rhabdomyolysis, fever and leukocytosis, acute renal failure, lactic acidosis, electrolyte imbalance and elevated troponins. I was unresponsive for the first few days.


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