Crohn's Disease in Children and Teens


What symptoms did your child or teen experience with Crohn disease? Submit Your Comment

Comment from: Shawn, 7-12 Female (Caregiver) Published: September 15

My 8 year old daughter has been going through the symptoms of Crohn’s disease for about 3 months. When I first noticed it I ignored it thinking it was a hard stool. After the second month we had visited the emergency room and her pediatrician 5 times until we went to a gastrointestinal specialist. We were scheduled an appointment that following week but my daughter had a fever and had to reschedule and cannot get another appointment until October 12th. She is in constant pain and I don't know what to give her to eat or drink. I need help.

Comment from: elwell1624, 7-12 Female (Caregiver) Published: March 24

My 12 year old daughter has been having problems with her stomach since January this year. Today she saw a pediatric consultant after developing sores on her tongue and our general physician sent her to the hospital. They suspect she has an inflammatory bowel disease and we are waiting for an urgent appointment for a pediatric gastric specialist to check if she has Crohn disease. She is scared and confused at the moment as she was an elite gymnast and damaged her back, which ended her career. She now dances and is very good and she wants to make it her career and now this! I am sure it will work out fine but still really worried for her.

Comment from: Crawldad, 7-12 Male (Caregiver) Published: July 11

My son is 8 and his preliminary diagnosis from an upper and lower scope is Crohn's. He started showing symptoms about two months ago with stomach cramping. I also remember him have a sore in his mouth about a month after his first stomach cramp. About two weeks ago we took him for his annual well check and he hadn't gained any weight in a year and had lowered in his height percentage. The doc ordered blood work and that's when the big red flag came up. His blood count was low and his SED rate was very high (about 550). We are currently awaiting the biopsy results from the scopes.

Comment from: Nichol/Worried Sick, 3-6 Male (Caregiver) Published: June 21

I have 3 precious little boys. My youngest little man is five years old, and has had these symptoms for almost two years. I have made progress in getting him diagnosed after several doctors and ER visits. His current pediatrician has referred us to a gastroenterologist. It has been determined that he has inflammation in his stomach and small intestines. Also, his stool sample came back positive for blood. The gastroenterologist has ordered a second stool sample.

Comment from: Anonymous, 7-12 Male (Patient) Published: December 27

I am 13, recently diagnosed with Crohn's disease. For the past few months I stopped growing and puberty stopped. I would get very bad stomachaches after eating. Sometimes so bad it would result in missed school. I would have constipation and it would be difficult to eat until recently. I had a colonoscopy and the doctor was able to diagnose me with crohn's.

Comment from: 13-18 Male (Caregiver) Published: August 23

My son was diagnosed with Crohn's 2 1/2 years ago after suffering several years with stomach pain, diarrhea, difficulty eating without having to run to the bathroom. Finally just before being diagnosed at age 11 we realized he hadn't been growing for nearly a year and had lost 30 lbs in 3 months. He was eating almost nothing. He was cold and tired all the time and was very pale, and also having perianal problems. The minute the pediatric gastroenterologist saw him, he suspected Crohn's and ordered more blood work and tests. We found out his entire GI tract is affected from his mouth to anus. The disease affects him mostly in the perianal area with fissures, fistulas, and abscesses. He was recently hospitalized to have an abscess drained and surgery for his fistula. All in all he deals with it pretty well and participates in marching band in school as well as many church activities. Our current issue is making sure he is taking all his medications and vitamin supplements.

Comment from: BethCS, 7-12 Male (Caregiver) Published: July 11

My son was 6 when he was diagnosed with Crohn's Disease. His symptoms were failure to grow (for about a year) or gain weight. He had a poor appetite and had a fever about every 3 weeks (100-101 degrees) for a few days. The last bout of fever was while camping, and he was having weakness, fatigue and shortness of breath on a hike. This was due to severe anemia (his hemoglobin was 8) when he finally had labs drawn. When his pediatrician was thinking about what this could be, my own research said anemia can be a Crohn's related symptom, and my brother has Crohn', that was why he was sent to a GI pediatric specialist for diagnosis.

Comment from: Alfred, 7-12 Male (Caregiver) Published: June 14

My son had anal fistulas and had surgery to drain them (with antibiotics). After surgery and a blood test that presented a low white blood cell count, we were told that he has Crohn's disease. He is now on anti-inflammatory medication.


What is Crohn's disease? See Answer
Comment from: woodswaldorf, 7-12 Male (Caregiver) Published: April 04

My son suffered from intense abdominal pains for many years. He was misdiagnosed with having chronic constipation due to the fact that his symptoms were similar. He lost a significant amount of weight and became dehydrated prior to his diagnosis. An endoscopy and colonoscopy conducted showed inflammation at the end of the small intestine. After various medications did not alleviate the chronic pain, he underwent surgery to have the inflamed part of his small intestine removed. He has been doing well for the last 6 months, however we are aware that this symptoms will recur.

Comment from: Chris, 7-12 Male (Caregiver) Published: March 18

My child is 11. He started having frequent diarrhea and abdominal cramping. He occasionally would have a headache and fever. He became pale also. At first our pediatrician did testing on his stool to rule out ova and parasites, H. Pylori, etc. Those were all negative. His doctor seemed to think he had a virus and that his normal flora in his intestinal track was off and prescribed probiotics. After several weeks, it didn't help. That's when we were referred to a gastro-pediatrician. After blood test results, it appears to be Crohn's. We are scheduled for an upper GI and colonoscopy.

Comment from: kelly122066, 7-12 Male (Caregiver) Published: March 16

Seven years ago, my son was diagnosed when he was only 3 years old. He developed a fistula on his bottom that had to be drained. About 3 months later he developed another. Then he started having 10 or more loose bowel movements a day, weight loss, and lack of appetite. After several procedures and examinations it was determined he had Crohn's disease.

Comment from: cromom, 13-18 Female (Caregiver) Published: February 22

In the spring of 2009, my 11-year-old son complained of painful canker sores in his mouth. That fall, he had several episodes of fecal incontinence, chronic diarrhea, and constantly held his hand to his lower abdominal area because his "stomach hurt". I took him to a military clinic and they said he had food poisoning and would get better. He continued to lose weight, became lethargic, and was extremely pale. He only weighed 66 pounds by the time I took him to a civilian doctor who immediately suspected Crohn's disease and referred us to a pediatric gastroenterologist. I am very thankful I have other insurance through work and did not have to rely on the military system. If I had waited any longer I do not know what permanent damage my son would have suffered at such an important time in his development. He was diagnosed after having an EGD, colonoscopy, and upper GI series. His entire gastrointestinal system was affected from his mouth to his anus. He had a fistula in the anal area, gastritis, colitis, ileitis, and his transverse colon was impacted. His diagnosis came just weeks before his 12th birthday. His initial treatment was with steroids, antibiotics, and iron and calcium supplements. After three months and some horrible side effects from the steroids, he started infusions. He is not symptom free yet because he still has urgency, stomach pain, and feels tired all the time. However, he is now at a healthy weight and is hitting puberty at just the right age. He is 13 now and not as willing to share his bathroom habits with me so I can only tell you what I observe and am able to pull from him. Even though I'm saddened that my child has a chronic disease, at least I know what was causing him to be sick and can get him appropriate treatment. I am concerned about possible long-term effects from his treatment, but know that we had to get his disease under control because the alternative was not an option.


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