Colitis

Question:

What symptoms and signs did you experience with colitis? Submit Your Comment

Comment from: Hurting, 45-54 Female (Patient) Published: April 09

I'm in a lot of pain in my left side form colitis. I went to the emergency room last night, they took and x-ray and noticed I was full in my colon. They gave me prune juice with medication saying I would go in 1 hour. I didn't go to the bathroom till this morning. I've been drinking water and taking milk of magnesia, but still in a lot of pain and diarrhea somewhat.

Comment from: Diana, 55-64 Female (Patient) Published: February 05

At 25 I was diagnosed with arthritic Crohn’s disease. My bowel cleared easily with Azulfidine. Yet, my knees, shoulders, back, and hips continued to swell. Now at 58 tests show both irritable bowel syndrome and colitis contribute to it. My blood was occult and the colonoscopy showed where the bleeding is. I needed an appendectomy. My knees, and back are affected severely. My bowel has never caused pain compared to scoliosis in my back and swelling in my knees and other joints.

Comment from: mary, 75 or over Female (Patient) Published: January 24

I had severe diarrhea, no cramps from colitis. I have had colon cancer.

Comment from: vanessa, 55-64 Female (Patient) Published: October 08

I suffered for almost a year after having a colonoscopy, then had my gallbladder out. I had my reflux medicine upped even after that, 2 valves of the gallbladder removed, since I had a ventral hernia years ago repaired. Well, when the bloating and the pain hit, I spent a week in bed and running to the bathroom. The diarrhea was horrible, when I got to doctors he sent me for a CT scan, and they found I had colitis. I was placed on 2 medicines and felt good for a while, now I am having trouble again with bloating and constipated this time, ugh!

Comment from: Marilyn fischl, 65-74 Female (Patient) Published: October 01

I just had colonoscopy and they told me I had colitis. I have had severe diarrhea since August 4th. Every day I have pain, and a little fever, was awful to feel like this. I am 69 years young, have had problems with bathroom a very long time. The doctor put me on Linzess, I wonder if that triggered everything.

Comment from: Suggabel, 45-54 Female (Patient) Published: August 08

I went to the hospital yesterday with stabbing pains throughout my belly but mostly on my left side. The doctor I saw diagnosed me with colitis. I didn't have diarrhea or constipation but I did have a colonoscopy a week before this happened and I have been constipated for a week, no bowel movement. I drunk some tea to help move my bowels and I finally used the restroom and then the next day I was in pain. I am worried if once you have been diagnosed with colitis this will be ongoing.

Comment from: Terri , 45-54 Female (Patient) Published: July 31

I have had severe abdominal pain since I was a child. I was diagnosed back then as having swollen glands in my stomach, and just this Friday at the emergency room they told me it's most likely colitis. I have not had the diarrhea that everyone else talks about, sometimes just blood. Going to try to get in to the doctor today for a follow up. I am exhausted after all the pain and fever of this weekend.

Comment from: Blippy, 35-44 Male (Patient) Published: July 17

I have had pancolitis for probably 18 years, although I was only finally diagnosed 5 years ago after the doctors realized my normal complaints had turned for the worse. I haven’t had a solid movement since 2010 and all the biologics I’ve taken failed me or made me worse. I developed permanent type II diabetes from prednisone usage and I recently recovered from medicinally induced lupus, a side effect of Remicade. This disease is enough to make someone ok with dying.

Comment from: Tim, 25-34 Male (Patient) Published: March 21

I had pain in my lower left side for about 4 to 5 days and ended up having a CT, which showed colitis of the descending colon/sigmoid junction. I went on antibiotics and it came right, I still had a few sharp stabbing pains but nothing like it was. Couple weeks later I had a colonoscopy done and it showed up I have had diverticulitis. I am 26 and it just goes to show young people can have diverticulitis. I have more fiber in my diet and having diverticular disease doesn’t affect me at all now. It was a good outcome for my colitis.

Comment from: Nagpure, 55-64 Female (Caregiver) Published: April 19

My mother-in-law is suffering from colitis. But the doctor has not told us which type this is. Symptoms are pain in the left side of stomach, and she is suffering from some digestive problems. There is not visible blood flow in stool. Sometimes she has constipation. She has diabetes and high cholesterol. Sometimes she cannot bear the pain.

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Digestive Disorders: Common Misconceptions See Slideshow
Comment from: sheila 0770, 45-54 Female (Patient) Published: March 18

After two days of horrible pain and stools that was only blood I went to the emergency room. I spent 8 hours there and finally got diagnosed with colitis. I don't know where to go from here. I was put on two different antibiotics and am waiting to see my doctor.

Comment from: anon, 35-44 Female (Patient) Published: February 04

I was diagnosed 5 years ago with mild ulcerative colitis (UC) after going through a year of abdominal pain and misdiagnosis that caused me to lose an ovary. I rarely have diarrhea but have had a couple of accidents and they involved work as well as home. Mine is mostly constipation with left side gut wrenching abdominal pain and horrendous gas. Most of the time I can't tell anymore If I need to go or not, hence the accidents at work. I've noticed the worse the gas, the more the urgency seems to be. Which is the lesser of 2 evils, diarrhea or constipation! Being able to have a bowel movement or not for days to a week at a time. I have the fatigue, fevers, night sweats (thought that was due to menopause) and no appetite because I can't tell anymore if the pain is because I'm hungry or it is due to the UC, and I'm scared to ingest anything. I also developed internal hemorrhoids so even when I do get the chance to expel, I feel like my backside is on fire all the time. Thanks for talking about the mucus part. I didn't know about that and thought some weird things when I saw that because it was orange. I find lying down for a few hours and not moving, helps with the abdominal pain. I am also trying the probiotic trick. After 5 years I have learned which foods are a trigger for excessive pain and avoid those in my diet. The main one was red meat. Lately the other one has been dairy. I drink Silk now and there was an immediate difference. I'm glad I found this site.

Comment from: norm, 65-74 Male (Patient) Published: July 13

The pain was so intense I thought of suicide, I had to sit to pass urine, the worst pain in the world. Cramps, then a drop of stool for 5 hours, then a large stool with a lot of water; the colitis goes on for days and then goes away for months.

Comment from: [email protected], 55-64 Female (Patient) Published: February 17

My first attack of colitis was at age 8 out in the farm’s outhouse. My mom was with me and carried me inside. I rarely had episodes as a teen but they increased in duration and severity. Mine starts with a sudden urge of diarrhea, and I get so hot that sweat pours off. Since I've been older I can't lie on the bathroom floor to stay close for the next round of diarrhea so I have to make it back to my bed. I've been passing out and falling more and more. After the sweats I get cold and shiver for a while but that's usually the signal that it's over. Some episodes last a few hours and some up to a week. Two weeks ago I just had two rounds of sweats and diarrhea. But the chills were worse and lasted about 6 hours even with several blankets and heating pad. I was so thirsty and kept drinking water. When my home provider came she got in touch with my family and I went to the emergency room (ER) with bad dehydration, damaged kidneys, very low blood pressure and the worst backache ever. I spent a week with IV fluids, sting antibiotics, potassium three times, clear fluids, and 8 Imodium a day. Now I've been home for a week with two antibiotics, the same Imodium, on fluids and now stepping up to soft foods but I still have diarrhea all day and night. I've fought delusions and the worse shakes you can imagine. My mom had the same thing and three others in the family have much simpler episodes. The hospital gave her lots of tests during the 70s but never found anything. I'm waiting on biopsy reports to find what type it is and the treatments to help. The ER doctors said I made it just in time or I'd have died.

Comment from: jenny, 55-64 Female (Patient) Published: June 02

I have had severe emotional stress so frequent loose bowel movements occur all the time. I wonder if menopause causes you to have more frequent loose bowel movements, although I always had this colitis problem, it just got worse as I am older. Perhaps it helps to avoid milk and bread and red meat and too many tropical fruits and cooked vegetables, anyway I hardly eat bread mostly milk. I just want to stop opening my bowels, it is draining and embarrassing.

Comment from: Bebe, 75 or over Female (Patient) Published: April 27

I just had a colonoscopy and was told I have colitis. I do not have rectal bleeding, stomach pain or diarrhea.

Comment from: mrsrag, 7-12 Female (Caregiver) Published: March 09

My granddaughter has been sick with vomit and nausea and the doctor informed her mother that she suffered from colitis. She does not have diarrhea.

Comment from: 55-64 Female (Patient) Published: August 12

I got violently ill after a 4th of July cookout and by the third morning of running to the toilet every one to two hours. Noticed bloody mucous as well in the diarrhea. Went to my primary after a week and got lab tests; all blood work and stools came back normal. Had to go to e.r. twice to get rehydrated and finally they advised go to a gastro doctor which I did and just had colonoscopy which confirmed ulcerative colitis. He said this is auto-immune related disease and stays with you for life and you need to be on meds. and steroids (prednisone, temporarily) to keep it in remission and reduce episodes. It is quite life altering and as a previous writer noted, I need to make sure I don't eat or drink much before I go out in order to feel safe. Never had this before in my life and I also had taken antibiotics for dental work shortly before my attack, but they ruled out C-diff infection. Good luck to all!

QUESTION

Ulcerative colitis affects the colon. The colon is also referred to as the... See Answer
Comment from: Blondie, 55-64 Female (Patient) Published: July 25

I began experiencing bloody diarrhea and mucus in the stools at 28 years of age. I was given a prescription with so many side effects that I decided to look into controlling the disease with diet. I have had two other relapses, the last being over 15 years ago. During the last relapse I went to a very good Naturopathic Physician who told me I was full of Candida and he helped me get rid of it. No Colitis ever since. I just had a colonoscopy in the past 9 months and was given a clean bill of colon health! I am positive that diet is the answer, but a person must see a good Naturopathic or Homeopathic doctor. Things didn't look so well for me 30 years ago, but I can say I am happy I did what I did and didn't settle for drugs with all the side effects.

Comment from: judy, 55-64 Female (Patient) Published: August 05

I was recently diagnosed with colitis after a colonoscopy. My doctor said it was probably from the radiation I received for anal cancer five years ago. After my treatment, I didn't have a bowel movement to speak of for several months. I've tried changing my diet and it's helped somewhat, but I'm hungry for regular food.

Comment from: bon, 55-64 Female (Patient) Published: September 20

I have had ulcerative colitis since I was 18. Three years ago I got very sick with a carbuncle that poisoned my system and then the antibiotics made it worse. Someone mentioned to me that I need to take a probiotic. Probiotics are good bacteria that eat the bad. Probiotics have live bacteria, so you have to keep them in the refrigerator. I have tried other kinds and these work the best for me.

Comment from: georgina6, 55-64 Female (Patient) Published: February 25

I was diagnosed with colitis about 40 years ago I am now in my 60s. Until the last couple of years I have been fairly clear of attacks but picked up a Norovirus about 18 months ago and since then have regular attacks, with excruciating pain, passing blood and wind. I am unable to take traditional drugs as they make me worse and have found that the herb Slippery Elm which coats the intestines really helps. It allows the bowel to heal naturally. I also take probiotic tablets regularly and also manuka honey. I have to be careful with my diet and avoid dairy and gluten. This last attack was my own fault as I succumbed to cream cheese and am now paying the price.

Comment from: neelie, 75 or over Female (Patient) Published: November 12

I seemed to be a little constipated the day or so before. I awoke in the middle of the night with a pain in my left side. I started feeling more pain in all of stomach and went to the bathroom. The pain became extreme and I felt like wanting to vomit. I think I had some bowel movement. The pain so severe my husband called 911. I spent 5 days in hospital and felt weak and got a colonoscopy. On IV and bland diet. Doctor said I had colitis and one very small diverticulosis and it was an infection. I got antibiotics through the IV. I had about 3 previous diverticulosis attacks, and somehow don’t believe it was colitis, but diverticulosis because it was the same symptoms as that. He also said there was a piece of stool far back in my colon.

Comment from: indrajit, 35-44 Male (Patient) Published: August 10

I am a confirmed patient of colitis which developed 5/6 years back, and I still have this disease. From the beginning I had fever, headache, neck pain, diarrhea, stomach tenderness, heartburn, etc. I was diagnosed as different diseases like heart problems, fever, etc. After suffering a lot the actual disease was diagnosed.

Comment from: 35-44 Female (Patient) Published: July 31

I've been dealing with it for about three years now. I get diarrhea, excruciating abdominal pain and dehydration. Just left the ER yesterday had to get rehydrated via IV. I feel awful

Comment from: sandy, 45-54 Female (Patient) Published: June 21

Just came home after a nine-day hospital stay. I was diagnosed with colitis. It started out with vomiting and diarrhea, then severe stomach cramps and much more diarrhea. I got hydrated and sent home from ER three times. I went back in an ambulance the fourth time, admitted, and given an IV w/Levaquin Flagyl and saline, and morphine for pain. Have lost 20 pounds in one month. I was discharged in 3 days and went to another hospital in an ambulance in two days. I stayed for six days with the same diagnosis. I had not eaten in one month! I had diarrhea the day they discharged me, but insurance said I had to go.

Comment from: Female-San Antonio, 65-74 Female (Patient) Published: June 08

Not only do I have Irritable Bowel Syndrome (IBS), I am also diagnosed as Celiac Disease (severe gluten intolerance--oats, wheat, rye, and barley). I was diagnosed with colitis many years ago and was on medication, but I do believe it has flared up again. I have begun experiencing water stools with blood and mucus and running to the bathroom constantly. Just decided to call my Gastro doctor for an appointment. It is really difficult to work, travel to and from the office, and also deal with this. I literally have a small porta-potty I carry in my car for emergencies and locate the bathroom every time we eat out.

Comment from: Beverly, 75 or over Female (Patient) Published: May 22

I am 81 years old and I have had constipation problems for years. I was recently in the hospital, and I fainted with intense pain in abdomen, resulting in violent vomiting and constant diarrhea. I was diagnosed with ischemic colitis.

Comment from: Vicky, 55-64 Female (Patient) Published: April 30

Severe abdominal pain, diarrhea, bloating.

Comment from: naf8070, 55-64 Female (Patient) Published: April 30

I have very bad cramps and watery stools. I have been to the hospital and was told I had colitis. They also said I have PAD. The doctors want me to have stents inserted but I have no insurance. I have watery stools at least four times a day and have awakened during the night, and did not know I soiled myself. I have done this several times.

Published: April 10

I’ve had colitis for little less than six years now. I have occasional nausea and abdominal pain but the diarrhea is the worst part. Sometimes I get no warning. I can’t always get to the bathroom before I have an accident. My female family members all have it and experience the same symptoms but nothing is worse than getting awakened up out of a deep sleep to run to the bathroom so you don't soil your bed and clothes.

Comment from: kclark5180, 35-44 Female (Patient) Published: February 15

Strangely, I haven't had diarrhea, just severe pain on my right side. I went to the ER thinking I was having problems with my gallbladder or appendix, but the CT scan showed colitis.

Comment from: helpinohio, 45-54 Male (Caregiver) Published: February 02

My husband has been sick for four years just recently was told it was colitis. He has abdominal pain at least six days straight every month and was in the ER 26 times last year. He has had to retire at the age of 45. It is very stressful.

Comment from: gopi, 55-64 Female (Patient) Published: December 15

I was on a dinner cruise and started abdominal pain. My pain was not so severe. About an hour later I had excruciating abdominal pain and I fainted. A few minutes later I had a bloody bowel movement. I didn't have any loose stool anymore but every time I had an urge only blood came out. I had a CT scan and my doctor told me I have colitis. I am on an antibiotic now. I don't have diarrhea. I still have stomach cramps.

Comment from: JGVat, 75 or over Male (Caregiver) Published: December 13

I am 86, in reasonably good health, and have recently developed an intermittent colitis as evidenced by occasionally loose stools.

Comment from: 75 or over Female (Patient) Published: October 31

I have had colitis for 3-4 weeks, with watery bowel movements in the early morning 3-4 times one after the other. My dr. sent me for a colonoscopy and the result is colitis - hasn't said which kind - he will see me next week for treatment.

Comment from: Wanting Relief, 55-64 Female Published: October 18

I was diagnosed with ulcerative colotis in 1993. I am now 60 yrs of age. I have had several Flare up over the past years. I have a regular coloscopy every year, but always clean. i was on Pentasa, one time my family dr. put me on pretsone, which cured, but side effects were awful. I am now having a bad flare up. I have trouble going to bathroom. It is usually only gas. I am seeing a lot of blood, which still scare me. I normally don't have any stomach pain. I don't know what brings those flare ups on, but they draim me . I am working, so i find it hard. Any suggestions

Comment from: Katy, 55-64 Female (Patient) Published: September 26

I'm not sure what I have but have had stomach problems since my late teens. A doctor told me I had colitis about 4 years ago. I don't have vomiting or terrible bouts of diarrhea. I do experience stomach pain in places and in waves with a touch of fever and I have or feel like having a bowel movement often.

Comment from: ang, 55-64 Female (Patient) Published: August 29

As an RN, I thank you for this excellent article. I have been diagnosed, twice with microscopic colitis, once w/lymphocytic colitis as a result of C. diff from antibiotic over prescribing and treatment w bismuth therapy. I had massive diarrhea, a negative stool culture but a good response to Flagyl, and kept myself hydrated and out of the hospital.

Comment from: Ashes, 19-24 Female (Patient) Published: July 14

I was diagnosed first with irritable bowel syndrome there isn't a cure for it so I would just deal with certain weird feelings in my stomach I was also taking a anti bacterial medication 3 days after taking the medication, I started having stomach aches first light then slowly got more severe aver a few days then I wasn't digesting anything and still felt like going to the restroom 4 or 5 times a day one of my days I got sensitive skin like I was going to get a fever but it went away I had bad diarrhea and my stool changed a weird bright brown color then eventually there was blood mixed in with it. It was time to see a doctor! My doctor diagnosed a inflamed colon and gave me magnesium for the pain (over the counter drug ) . After taking the first pill, there was immediate relief. It’s not 100% gone, but it’s at least bearable.

Comment from: Rita, 45-54 Female (Patient) Published: May 25

I woke up at 3am with violent vomiting and non-stop diarrhea. This was followed by severe stomach pain coming in waves. I went to the hospital where I was diagnosed with colitis.

Comment from: 35-44 Female (Patient) Published: May 02

Frequent watery stool for more than one month sometimes black with stomach cramps. This is my twelfth year with ulcerative colitis.

Comment from: Gailsy, 55-64 Female (Patient) Published: March 07

I was diagnosed 2 years ago with ulcerative colitis. I am now 61. My health is otherwise good. Two days ago, my UC reappeared with bad cramps and bloody stools. I went to the ER, on advice from my doctor. Doctors performed a CT scan and the diagnosis was correct: mild colitis. Next week I am going for my 4th colonoscopy. I was not put on antibiotic. The bloody stools are gone and the pain has subsided quite a bit. I hope this stays away for a long time, as it was very painful.

Comment from: Claire, 25-34 Female (Patient) Published: February 22

I am 29 and I was diagnosed with ulcerative colitis just over 2 years ago. I have always had problems with my bowels since being a child. 2 years ago I started with a throat infection and I was given 2 different antibiotics which didn't work as I started taking the antibiotics I suffered bad diarrhea, weight loss, a mouth full of ulcers and no energy, I went to the doctor who took one look at me and sent me to hospital. I was put on steroids amongst other tablets and given a IV drip. After a week in hospital and many tests they confirmed I had UC. I have good and bad days and I'm currently on 15 tablets a day and still going to the hospital to see the doctor as they don't know what to do with me.

Comment from: not happy, 45-54 Male (Patient) Published: February 08

I have been diagnosed with chronic colitis. Three days ago, it came back and it started with diarrhea and blood in the stool, then multiple bathroom breaks.

Comment from: Snoozles, 25-34 Female (Patient) Published: July 27

Had a baby in 2007 by c-section. Came home on my hands and knees trying to tend the baby b/c I was in so much pain. Had constant diarrhea and constant abdominal pain on the left side. I have been to the doctor several times and they said I was fine. Finally went to the hospital and four months later they did a CT scan and diagnosed me with colitis. Haven't seen the doc again yet but got the report from medical records. I have constant pain on the left side of my stomach and the best way I can describe it is it feels like a blood pressure cup constantly squeezing me. Very painful!!

Comment from: jump4joy, 55-64 Female (Patient) Published: July 21

I get terrible pains in my stomach, severe diarrhea and a decreased appetite.

Published: March 09

I am a 23 year old female. I went to urgent care because I had a mole on my shoulder and it fell off causing my shoulder and back to have pain. The doc prescribed Cephalexin 500mg. Anyway, after I finished those pills, I noticed something strange. I was having very bad cramps and had the urge to go to the bathroom almost every 10 minutes but the only thing would come out was like mucus and small little "turds". I went to urgent care again and she said it could be colitis. So they did blood work, it came back normal and now I am waiting on the results from my stool taken. I am now taking Cipro and Flagyl for the infection and Levisin for the cramps. I hope all is well because those Cephalexin messed me up.

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