Cirrhosis

Question:

The symptoms of cirrhosis of the liver can vary greatly from patient to patient. What were your symptoms at the onset of your disease? Submit Your Comment

Comment from: Sk, 65-74 Female (Patient) Published: September 17

I just found out I have cirrhosis of the liver, I'm sure from alcohol. I don't know how to find the right doctor to see if they could help. My stomach is extremely large, and I have swelling ankles, nausea and much more. I also have bad COPD. The doctor I saw told me nothing to do, not even gave me a diuretic. I don't know what to do. I can barely walk due to a broken back along with 3 herniated discs. I am not able to eat right. Also if no red meat and no processed meat, what do I eat! Wish all of you the best. Sad deal.

Comment from: ROBBSTER1969 , 45-54 Male (Patient) Published: September 09

About 20 years into hepatitis C I began to feel slightly fatigued. Then edema set in and ascites as well from liver cirrhosis. One year after the 1st paracentesis I had my 2nd. Then within a month it was weekly draining of 15L or more. I have extreme itching in my legs, cellulitis, etc. Now I'm told it is liver transplant or death. I just hope I get a liver in time.

Comment from: Carole , 55-64 Female (Patient) Published: July 09

My first indications of being unwell with liver cirrhosis were nausea, vomiting and severe fatigue and tiredness.

Comment from: Bobby , 35-44 Male (Patient) Published: June 25

When I was young and dumb I was an adrenaline junky for way too long and could have out-drunk anyone from high school, till my daughter was born when I quit. I have had many medical and pain issues. Five years ago I was diagnosed with hepatitis C and cirrhosis of the liver in end stages but didn’t think it was a problem, like my other issues. Now I have stomach pain, gas, bloating, constipation, diarrhea, side and back pain and leg pain, with no sleep and realized it’s my liver, after research. Might have to see a doctor soon.

Comment from: Mark , 35-44 Female (Caregiver) Published: June 10

I am 44 years old and have had cirrhosis of the liver since the age of 28. I am starting to have really bad pains in my stomach where my liver is. It feels heavy and bruised, I get stabbing pains at times, and it feels like my kidneys are hurting too, and right shoulder. I was wondering if anyone else has the same problems and if they have been told how long they have left to live. I have also been sober 4 years and got misdiagnosed with PSC (primary sclerosing cholangitis) which I was first told first.

Comment from: Toby.2, 55-64 Male (Patient) Published: April 14

I didn't have any symptoms of liver cirrhosis, when I was diagnosed in 1984. Then I was told it had progressed 5.5 years ago to stage 4. Recently I have been having bad pains. I'm taking opioids because of my injuries and the pills don't really help now. I have started vomiting, and now there is blood in it. I have a hard time sleeping and when I am able to I wake up if I turn on my right side. Now I'm wondering how much longer until I am not able to get out of bed or care for myself.

Comment from: DaveT, 45-54 Male (Patient) Published: April 07

I was released from the hospital to die from cirrhosis 3 years ago in September. I had intense neuropathy, couldn’t walk, ascites, rapid weight loss, vomiting, and no sleep. But I fought hard. Take your medicines! Gabapentin helps with pain, with strict diet. No processed anything, especially sugar! No alcohol ever again! Propranolol and spironolactone to stop water retention and varices from growing. Remove ammonia from brain with Constulose, and itching, jaundice with Questran. I now am pain free with normal bloodwork and minimal medicines.

Comment from: Lin mac, 55-64 (Patient) Published: March 31

I have had bleeding from the bowel and diagnosed with varices caused by liver cirrhosis. I have regular blood transfusion. My head is floating, walking is a problem, and I have a sore chest. I don't know what to do with the current situation.

Comment from: Enoc D, 35-44 Male (Patient) Published: February 19

I was diagnosed with liver cirrhosis two weeks ago. I gave up drinking, and am eating a lot better. I have very low sodium, actually almost none. I have swelling of the legs, and sometimes I feel bloated. I don't get fevers or chills but still I know I'm pretty bad. I have jaundiced eyes, and slightly jaundiced skin, but it's only been two weeks of this battle. I know I can beat this and help myself. For everybody out there, if you have an alcoholic liver disease please stop drinking and seek help because dying is not an option, neither is giving in.

Comment from: jeff, 55-64 Male (Patient) Published: February 12

I can't eat, have very dark stool, and stomach bloating. I am feeling very sick, tired and weak because of my liver cirrhosis.

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Hepatitis C, Hep B, Hep A: Symptoms, Causes, Treatment See Slideshow
Comment from: Marie, 55-64 Female (Patient) Published: February 11

I had swollen stomach, could not eat, my bowels were terrible, and I had fatigue with liver cirrhosis. I began an intense cleanse, prune juice, lemons, and lots water. Two weeks later, my AST and ALT were cut down to half. Third week, bowels are dark again, swelling going down. Still running tests, to see how far the damage is. Still there is hope.

Comment from: BiggDawg, 55-64 Male (Patient) Published: January 22

I have doctors that are treating me for liver cirrhosis already. I'm on a low sodium diet. I'm sure the hepatitis is cured because I'm going on the transplant list. I take 5 different medicines twice a day and have my stomach drained at least twice a month; between 20 and 30 lb. of fluid each time. According to my doctors I'm doing better but I don't really think so. It started with a ruptured hernia and that's when I found out about the hepatitis and cirrhosis. I quit drinking immediately. I'm surprised I'm still alive.

Comment from: Debby65, 45-54 Male (Patient) Published: January 07

I complained to my gastrointestinal doctor of mid-chest pain and he said I was due for an endoscopy in a few months because of GERD history, but requested a chest x ray and stress test before he would do it. Both came back normal so he did the endoscopy and discovered varices and said I have liver cirrhosis. I had fatty liver in the past but recent 3 month blood work was normal so I was shocked by the diagnosis. Even though I have been a heavy beer drinker for years, I stopped drinking immediately, and have not had a follow up appointment.

Comment from: Iron Girl, 45-54 Female (Patient) Published: December 11

I have hemochromatosis, and I have also recently been diagnosed with cirrhosis. I have so many issues that I don’t know which disease they belong to. Migraines, stomach pain, pain and swelling in my right lower rib area, nausea and at times feeling of sea sickness, pain in my bones and joints. Some days I feel like I am dying.

Comment from: Saddened, 55-64 Male (Caregiver) Published: November 14

My husband was diagnosed 5 years ago with decompensated cirrhosis, ascites, jaundice, everything. He has remained stable, but isn’t the same man, walks different, can’t do simple instructions, stays in bed, wont shower, and hasn’t brushed teeth in months.

Comment from: Shelly, 55-64 Female (Patient) Published: November 14

I have stage 4 nonalcoholic liver cirrhosis. I have been experiencing more and more symptoms. Bowel movements are always different. I have swelling and liver pain. I have been having really bad headaches, nosebleeds, and neck pain, wonder if anyone else has experienced this.

Comment from: Only sister, 55-64 Female (Caregiver) Published: November 14

My brother has had fatty liver for over 12 years now. The first 11 years, I would ask, 'how are you, how is the liver?' He would say he was fine. The last year and a half have been a nightmare and his cirrhosis is getting worse. The thing I was not prepared for was the ammonia levels from the fluid messing up his mind. He is still in denial that he is dying. I am a walking bundle of nerves.

Comment from: zelda d, 35-44 Female (Patient) Published: November 08

I have chronic hepatitis C. I’m in severe pain in my right side, and my abdomen is swollen because of liver cirrhosis. I feel very weak with fatigue. I have got yellow eyes, my tummy is very hard, and I have diarrhea.

Comment from: Zelda, 35-44 Female (Patient) Published: November 07

I have chronic hepatitis C and am having severe pain on my right side. I am so swollen on my right side, very dizzy, fatigued and weak from liver cirrhosis.

Comment from: 26 year old, 25-34 Male (Patient) Published: October 24

At 22 years old, I had been drinking heavily for about 4 years. I experienced vomiting, jaundice, confusion and of course withdrawals from alcohol. One night, I vomited 2 toilet bowls of blood and needed two blood transfusions. Luckily my mother was there to call an ambulance and get me admitted to the hospital or else I probably would have died. It’s been 4 years, almost 5, since I’ve been sober and although I have cirrhosis, my blood work and liver function are back to normal. There’s hope!

Comment from: Andie, 45-54 Female (Patient) Published: October 15

I am 46 with liver cirrhosis and been dealing with it for over a year. Pain, doctor visits, hospital stays; been through it all. Recently I went from almost 135 pounds to 200 from swelling, and spent 6 days in hospital. The main thing for me is to follow a very strict diet of low sodium, it is magic to lose fluid swelling and feel a lot better. Drink all the protein shakes you can for muscle loss, at least 20 gm. I love the chocolate Boost, some brands 30 gm but taste chalky. Boost is like a good shake. Good luck.

QUESTION

Long-term heavy alcohol consumption can cause: See Answer
Comment from: Justine, 35-44 Female (Patient) Published: October 08

I noticed on the morning of July 4th while taking a shower that my belly was sticking out. I went to a festival with my husband and kids, and when we got home my feet and calves were huge. I went to the emergency room on the 6th, and they said it is cirrhosis of the liver. They kept me there 9 days and let me go with a referral to a gastrointestinal specialist, who I only met 3 days ago 3 months later. And he told me to get drained every other week, which is now every week. I have been drained over 30 times, it fills up the same day, not in the legs. I am a skeleton with acne.

Comment from: Cirrhosis of The Liv, 35-44 Female (Patient) Published: August 14

Enlargement of the liver extends into right iliac fossa. Liver is inflamed. Fatty (alcohol related) infiltration. Diagnosis is early cirrhosis and chronic pancreatitis.

Comment from: Lori H, 45-54 (Patient) Published: August 13

My symptoms of liver cirrhosis are severe gas, neck and chest pain, bloating of stomach, pain in my lower left back, and pain in my left leg.

Comment from: PSC sucks, 35-44 Male (Patient) Published: August 13

I only started really being symptomatic of liver cirrhosis after starting to see specialists. I got high fevers post ERCP. I was on the list for liver transplant briefly but gallbladder malignancy was discovered. I had it removed a year ago. Fevers mostly stopped, I have had bleeding varices, have portal hypertension, little energy, muscle wasting, and fluid retention in both legs and abdomen. I can’t sleep properly, and am jaundiced at times. I’m frequently chilled, and have intestinal issues. Life is awful. I’m a wreck.

Comment from: Ginger, 55-64 Female (Patient) Published: August 02

I was diagnosed with cirrhosis of the liver in March 2019. I was told in 2010 that my liver was moderately fatty; my then-doctor wasn't concerned. I was taking the maximum dosage of acetaminophen for arthritis. I don't drink, but I am obese and somewhat sedentary. After a bad fall in July 2018, blood tests showed a spike in one liver enzyme and a drop in platelets. I was referred to a hematologist and a liver specialist. Only symptom was severe itching, now gone after adjusting diet, exercise, and sleep habits. Current weight loss 45 lb.

Comment from: Wendy N, 55-64 Female (Patient) Published: July 30

I have been diagnosed with cirrhosis of the liver and my symptoms are swollen belly, legs and feet. I bruise easily and bleed out of my mouth, only in my sleep! I wonder how bad I am and if it can be reversed.

Comment from: Sharon, 55-64 (Patient) Published: July 02

My symptoms of cirrhosis of the liver are pain, vomiting, constipation, hemorrhoid, and my stomach looks like I'm 6 months pregnant. Along with constipation, I am never hungry and have lower back pain. I am wasting away except for my stomach.

Comment from: jjackie, 65-74 Female (Caregiver) Published: July 02

My husband is diagnosed with liver cancer, and in the bile duct. He's so tired and in so much pain. He starts chemotherapy in 2 days (diagnosed 3 weeks). Did the doctors forget to tell me he's dying! Based on him sleeping all day, not eating, fluid in his abdomen and the giving up... No one told me; I need to be talked to.

Comment from: Stupid beer drinker, 55-64 Female (Patient) Published: June 11

I went through 2 1/2 years of being stalked in 1987. That caused paranoia and in order to keep my children safe, I would be up all night patrolling. The man had entered my home before, and I was terrified. In order to stay awake I drank beer. I knew I could go to sleep after 4 am thanks to the cop who told me that was when he started work. I finally took my kids out of that state, but the beer drinking didn't stop. In 2006 I was told I had cirrhosis, 1 year to live without transplant. It is 13 years later now with the same liver. Yea!

Comment from: mr mike, 45-54 Male (Patient) Published: September 11

I have F4 cirrhosis of the liver, a large swelled up spot from ribs down to the belly button, severe stomach pain, and am sensitive to foods and alcohol. I am constipated one minute then have diarrhea. I have feet swelling and back pain, feel like I'm doomed; does it get better! I also have hepatitis C. I am supposed to start medicine this week to help or stop this disease, which I believe I have had for 30 years.

Comment from: 7faced, 35-44 Male (Patient) Published: September 11

I am experiencing extreme fatigue from liver cirrhosis, and muscle waste to where I look like a child. I have ascites, mental grogginess due to hepatitis, jaundice of the eyes and flesh. I am an insomniac zombie living on the thin line of life and death. I can’t handle it any longer.

Comment from: Lin, 55-64 Female (Patient) Published: August 13

I have several symptoms of liver cirrhosis: skin showing bleeding, black spots, bones hurt, swelling in feet and legs, and sores everywhere. I have a lesion on the liver.

Comment from: Daphne , 65-74 Female (Patient) Published: August 02

Ascites and stomach bloating are my symptoms of cirrhosis of the liver. It is still there even though I've had it drained 4 times.

Comment from: Madcompany, 55-64 (Patient) Published: July 16

I used IV drugs when I was 18 due to experiences I had at the start of age 3, and I'm 57 now. I have now come to learn I have liver cirrhosis, hepatitis C genotype 3. I got my act together, at about 20 years of age, although now I have refused all treatment other than pain relief. I have pain under my right ribs and shoulder. I quite often lose my balance, and tummy is a lot extended due to poor eating habits.

Comment from: Rocky, 65-74 Male (Patient) Published: July 12

Seems I have cirrhosis after going through an endoscopy for dilation of a Schatzki’s ring. The doctor discovered stage 1 varices which indicates cirrhosis I was told. I have a follow-up with the doctor in 6 weeks. I was a heavy drinker (wine). I stopped drinking 3 years ago, hope that helps in the prognosis. No jaundice or ascites. I had gastrointestinal upset and constipation for years. I'm 70, so whatever happens, happens.

Comment from: Denise , 0-2 Male (Caregiver) Published: July 06

He has drunk Vodka for years. The whites of his eyes are yellow and so is his face. Complains of bad stomach pain and his stomach is distended. He also has a lump down below his sternum. Has severe back pain. He is constantly sleeping in bed, hardly ever gets up but to go to the restroom yet never gets rest. His doctor said he needed to go to the emergency room about the lump but he won't. He has shortness of breath and states he can’t breathe, but won't go to the hospital.

Comment from: Critter, 55-64 Female (Patient) Published: June 15

I drank more than I ate, and lost lots of weight. With cirrhosis my legs, feet and ankles swelled so bad that I could not wear shoes.

Comment from: Kimberly, 45-54 Female (Patient) Published: June 14

I was feeling very short of breath and went to the emergency room, ended up there for a week and they found liver cirrhosis. I was sent to a transplant specialist and began the process of getting on the list. In the meantime my life is completely different. The tired shaky feeling never goes away, the medicines keep me on the toilet all the time, and the diuretics and lactulose make it difficult to leave the house. Also my lack of mental clarity and feeling tired keeps me in bed a lot. I have lost the ability to walk without a cane and am not able to enjoy the things I used to do, like garden, fish and drive myself. I am totally disabled and need a care provider but for now use a walker during the day when my partner is at work.

Comment from: Jane, 65-74 Male (Caregiver) Published: June 14

My husband was losing weight, having fevers, and periods of weakness; then he would feel better. The doctor could find nothing wrong although he was steadily losing weight. Finally he was diagnosed with early stage cirrhosis. He does not drink and never has but was given blood transfusion in the Vietnam War and contracted hepatitis C. He went through treatment years ago. Now this! He is tired a lot, has varicose veins, portal hypertension, and has lost his muscle mass and 35 pounds. He is feeling ok otherwise, I would love it for him if he could gain weight. He has a good appetite and eats a lot but still losing. It is so hard and we are both still in shock and very sad.

Comment from: Gracie, 55-64 Male (Patient) Published: June 14

My father is an alcoholic and I've had him living here with me since his fall 3 months ago. I've noticed that he'll get chills, lightheaded, clammy feeling and I'll go buy him some beers. I'm guilty but I'm scared for him. I'm no doctor but I believe he has cirrhosis. He's been complaining of abdominal pain and discomfort. He had swollen testicles about a month ago. He doesn't want to go see a doctor. He says if it's his time then he's ready. I'm sad, mad, confused and not sure if there's something I can do to help him.

Comment from: Tanya, 35-44 Female (Caregiver) Published: May 11

My 35 year old daughter has been an alcoholic for at least 10 years. A year ago she was diagnosed with liver damage, to what extent cirrhosis has progressed, I don’t know. She now has a very painful enlarged stomach (she looks 9 months pregnant) very yellow eyes and skin, and insect bite like marks on her chest and arms. She has lost a lot of weight, her teeth are rotting and her hair has thinned out a lot.

Comment from: Marymac, 55-64 Female (Patient) Published: May 02

Swelling, pain, pancreatitis, and vomiting were my symptoms of cirrhosis of the liver.

Comment from: sugarmagnoliazme, 45-54 Female (Patient) Published: January 29

I am an alcoholic with stage 4 cirrhosis of the liver. I have been sober for 9 months and am on a liver transplant list. I felt fine and good and had to rush to the hospital in August with terrible pain in my stomach and diarrhea along with a fever. My eyes had yellowed and so had my skin. I had not had anything to drink for 3 1/2 months at that time, but as it turns out, I had an infection in my intestines (Clostridium difficile) which caused my enzymes to spike. I took 3 courses of vancomycin and it eventually worked. My eyes went back to being white and my skin looked good. Now, I am 9 months sober and my eyes have turned bright yellow again. My levels have gone up again, especially bilirubin and I am baffled at why this could be. I wonder if it is common for levels to fluctuate that much for no reason! I do not take drugs, I do not have hepatitis and I do not take any medication or vitamin supplements other than a breakfast replacement drink (Ensure), which my hepatologist told me was ok. I am getting really scared and I really hate these yellow eyes.

Comment from: SoBear, 45-54 Female (Patient) Published: March 14

Alcohol had me in chains. I drank vodka every day for 20 years. I was diagnosed 7 years ago with alcoholic hepatitis and stage 4 liver cirrhosis. I didn't think I could go one day without a drink. I am so grateful today that I have stayed sober ever since. My life has meaning, and it is so wonderful to wake up sober. Don't get me wrong, because some days I get really depressed and I've been hospitalized 4 times for hepatic encephalopathy. I have to plan my day around the toilet. I'm on Xifaxan, lactulose, and diuretic. I think only people with this understand how much gas we get. Yea, it bites but I am so glad I don't have to lie to doctors anymore. I've been on transplant list 6 years.

Comment from: candy, 65-74 Female (Caregiver) Published: March 07

Male patient diagnosed one year ago with cirrhosis of the liver. I am his wife. He was told to stop drinking. He cut the number of drinks in half, as best I can tell by the amount in the bottle. He is still progressively going downhill: ascites, swollen legs and feet, even with low sodium and diuretics. He has bouts of irritability and rage before lunch every day and again late evening before he has a drink. In between he sleeps. I wonder if I would be able to tell his doctor to see if he could give him something to make life bearable for me. If the doctor were to tell him I 'tattled on him', there's no telling what he would do.

Comment from: 45-54 Female (Patient) Published: May 11

I was just recently diagnosed with cirrhosis of the liver. My stomach is extremely bloated and I'm having stomach pain.

Comment from: Loving wife of Jack, 55-64 Male (Caregiver) Published: November 16

My husband is 57 and found out in 2005 that he had alcoholic liver disease and continued to drink. He started losing strength in his arms around the early part of 2009. During the past four years he had intermittent bouts of jaundice, very dark yellow eyes and skin. His testicles started swelling in April 2009 to the size of a cantaloupe and soon his lower right leg and eventually both legs were swollen very big. I had noticed also, a couple of months before the swelling, his abdomen was getting really big but I just thought he was eating too much. The doctor ordered a CAT scan, which revealed cirrhosis, and the doctor said my husband only had about 10% of his liver left. On June 9, 2009 I had to call 911 because he started having seizures and couldn't stand or walk without having them. He was admitted to ICU and was told that his blood pressure was terribly low and ended up getting a blood transfusion. The next day he started having extreme DT's while in ICU, he was there for one week and was able to come home. He went straight to a 30 day rehab and no longer drinks alcohol. He had done amazingly well since rehab but just last week (Nov. 6th) he has started having hepatic encephalopathy and has been very confused and very short attention span, doing and saying very bizarre things. I understand this is all part of it and I'm trying to get him to take his medication to help get rid of some of the ammonia in his blood. I NEVER had any idea that alcohol damaged so much of your body. It has made a non-drinker out of me and hopefully our 15 year old son.

Comment from: glenda, 45-54 Female (Patient) Published: October 07

I'm 44 and have been a heavy drinker since my teens. About a year ago I began gaining weight in my mid section. I've always been thin but never blessed with a waist. I just attributed my new belly with mid-age spread and went up a size in pants. This Spring I began having problems with my bowels, cramping, bloating. With all of the new products, and extensive advertising promising to cure such problems, I went the home remedy route... Needless to say, June 26th I couldn't take it anymore and went to the doctor whom immediately sent me to the E.R. There I experienced the joy of having my abdomen tapped and drained. Luckily I was able to go home the next day to continue treatment. I was your typical hard core girl. Work hard play hard. Thought as long as I was maintaining my house, family and finances everything was o.k., never knowing my liver was being damaged beyond repair. Right now I'm on a restricted salt/high protein diet. Diuretics daily(one helps maintain potassium) Next week they scope my esophagus to my intestines, looking for possible bleeders, that they will band if necessary or start me on a prescription of beta blockers to reduce pressure in those veins. Hopefully I won't have to do either. This is my future, something I will forever have to be mindful of if I choose to enjoy the rest of my life. Did I ever expect to do it without a cold beer in my hand? No. But, perhaps if I hadn't ever done it, that delicious cold Bud Light wouldn't just be a memory.

Comment from: pllfngr7, 25-34 Male (Patient) Published: August 27

I am 34 years old, and I went to the emergency room about week ago for extreme stomach pain. I had occasionally vomited blood; I believed it was an ulcer. I didn't think anything about the dark color of my stool, except that I haven't made a solid bowel movement in months, if not a year. I figured it was all related to my ulcer problem. Boy was I wrong. At the ER, I underwent an ultrasound and three CT scans. I have been a heavy drinker since I was about 16 years old. The CT scan revealed my ulcer, which was no surprise, and then the ER doctor asked me to sit down. I did, and he then revealed to me that I have cirrhosis of the liver. He told me in the best case, I have 17 to 24 months to live. Since I don't have insurance, this is my fate. My hands are shaking as I type this. Sorry, I just can't believe that I have just been given an expiration date like what's on a battery or a gallon of milk. The only thing I can say to this is: If you have children and they like to party like I did, please inform them of the fate that might be in store for them.

Comment from: Em, 45-54 Female (Caregiver) Published: August 27

I am 32 years old and cannot remember a day when my mother did not have at least one drink. The summer of 2008, she was diagnosed with hepatitis C and cirrhosis of the liver. She experienced rapid weight loss, jaundice, weakness, swelling in her legs, redness of her hands and feet, and lethargy. Even after her diagnosis, she continued to drink. She has since stopped drinking; however, the damage has been done. My days consist of shuffling my mom to and from different doctor appointments to treat the different ailments that keep arising from her cirrhosis. Now that sobriety has set in, she can understand the consequences of her actions. It is a shame that she has come to awareness too little too late. My advice is this: Pay attention to your body, get regular check-ups, and if you suspect something is wrong with your liver, insist on a blood test. It only takes one test to see if there is a problem. Early detection and treatment is essential to living a long life.

Comment from: Aashi, 19-24 Female (Patient) Published: March 17

I have had hepatitis B two years ago. Last week I had alcohol and it’s been 1 week I've been having stomach pain. Now I’ve started to have black stool. Worried if it indicate liver cirrhosis.

Comment from: Raja, 55-64 Male (Patient) Published: February 25

I don't drink. Sugar is border level. Initially my foot then leg and tummy started swelling from liver cirrhosis. I had more diuretic tablets like Lasilactone and Dytor plus 5. Now my left knee is paining a lot.

Comment from: Rmaria, 45-54 Female (Patient) Published: February 06

My abdomen is very swollen and extremely uncomfortable. And I am having pain where my liver is. Earlier it was making weird gurgling sensation. It hurts quite a bit. I have 3rd stage liver failure with advanced fibrosis. Doctor says no cirrhosis. I have finished 4 weeks of 8 weeks of treatment on Mavyret. This is the first I have had so much pain in my liver and swelling of abdomen.

Comment from: Kim, 65-74 Male (Caregiver) Published: October 28

I have high ferritin levels, 2400, and have noticed my ankles are swollen and so is my belly. I am constantly tired. Wonder if I should go to the doctor; worried if I have cirrhosis.

Comment from: Ms. P, 55-64 Female (Patient) Published: October 02

No clue I had hepatitis C when my doctor told me in January of 1994. And then I become an alcoholic, at times, very severe alcoholic. I haven't had enough problems to mention until the past year when I was diagnosed with liver cirrhosis. Today I'm hurting so bad all over I can't even go get blood drawn.

Comment from: Timbo, 45-54 Male (Patient) Published: October 01

I have terminal liver disease. Found out that I have cirrhosis and my liver is only functioning 30 percent. I am very depressed at times. I'm only 49 years old. My body is really red all over, especially at night. Hoping for non-painful death.

Comment from: In pain, 25-34 Male (Patient) Published: September 10

I have fatty liver, alcohol related. I have a swollen abdomen, right under my left rib, swollen ankles, and feel constipated. I am worried about cirrhosis.

Comment from: Someday, 35-44 Female (Patient) Published: August 27

Liver cirrhosis can be overwhelming at times. I can’t sleep. I lost significant weight. I lost my ability to walk due to pain on my side. I also have kidney issues.

Comment from: Dolly, 65-74 Male (Caregiver) Published: August 21

My father was diagnosed with decompensated cirrhosis of the liver. The doctors can't explain why he has it, as he never drank a lot or did drugs. He has ascites and has lost a huge amount of weight. We put him on a diet of no sugar, very little salt, and no processed foods. He eats 6 small meals a day, including two shakes with protein powder, vitamins, CBD oil, turmeric powder, and milk thistle. Honey with bee pollen and royal jelly are good for the liver. The CBD oil has helped the most.

Comment from: Suffering spouse, 65-74 Male (Caregiver) Published: August 21

My husband is 73 and has been a drinker since he was 18. His drinking became heavier about 9 years ago and he was diagnosed with liver cirrhosis. He was sick for 7 months, was drained 1 time a week averaging 4 liters. He still drinks and now suffers from leakage from his rectum. I am wondering if this is from the cirrhosis.

Comment from: Twyskie, 35-44 Female (Caregiver) Published: August 13

My wife just came home from the hospital after being diagnosed with liver cirrhosis. I wonder if it is normal to only want to sleep all the time. Im worried about her.

Comment from: Neen, 45-54 Male (Caregiver) Published: July 30

I took my husband to the hospital 4 weeks ago, he was diagnosed with hypokalemia and sent home the next day. One week later I took him back to the doctor, he did no tests, came in and said he has cirrhosis; I just about snapped my neck. He told us he needs an outpatient procedure done. We have just moved and no insurance... he is now the same, fluid in belly but it has moved into his legs and feet. I am worried and wondering if I should take him back to the emergency room.

Comment from: Virginia, 55-64 Female (Patient) Published: July 24

I’ve noticed my stomach is bloated from liver cirrhosis.

Comment from: Korky, 55-64 Female (Caregiver) Published: July 23

I just had a gastric bypass and was told my liver was shot and I have cirrhosis and need a transplant, but was told I also have a colon bladder fistula that needs to be fixed before I can get on the transplant list. I have to be drained every 2 weeks and they take out about 10 liters every time. I have been back and forth from the hospital to the rehabilitation center where I am now trying to get strong enough to have the fistula surgery.

Comment from: Estee74, 65-74 Male (Caregiver) Published: July 05

My 66 year old husband refuses to eat and has gone down to 128 from 155. He is in fourth stage cirrhosis of the liver, he contracted hepatitis C over 20 years ago after a hip surgery. He is on the 12-week hepatitis C program with no dairy, salt or sugar. He has no appetite and he refuses to eat. I am looking for recommendations for prescription medicines to stimulate his appetite. He is depressed, frustrated and angry.

Comment from: Tunabean, 35-44 Male (Patient) Published: February 14

Right now I have such pain in my joints and muscles and swear my bones hurt (if that’s a thing). I can tolerate no more. I have asked for something to treat the pain from my liver cirrhosis. My current doctors run for the hills when I bring this up to them. Nothing has been prescribed and I suffer every day and sometimes can’t stand to even move. Even my bedsheets hurt my skin. Don’t know why they won’t help.

Comment from: Liverish, 55-64 Male (Patient) Published: October 03

I am an ex-intravenous heroin addict. I had hepatitis C for 20 years but I was not offered treatment until I had a 12 week drug therapy for hepatitis C last year that worked really well. I have cirrhosis of the liver, type two diabetes, lymphedema and I am overweight, all caused by hepatitis C. Now I am clean of hepatitis C and waiting for a gastric by-pass which will stop the diabetes and obesity and hopefully give relief from the lymphedema. Don't despair people, you can get treatment.

Comment from: Maggie , 45-54 Female (Patient) Published: September 12

My symptom of liver cirrhosis was fluid buildup.

Comment from: Hippy, 55-64 Male (Patient) Published: July 06

I have alcoholic cirrhosis. I checked my fingers and eyes for yellowish color daily. I became constipated for 10 days before I was able see a doctor. My eyes became yellow as blood was drawn for testing. They told me it was end stage cirrhosis and sent me to a transplant hospital. I stayed a week and was seen by one of the top liver specialists in this hemisphere. No chance of transplant and I was told I had less than 14 days to survive. No drinking, low protein and sodium diet, and 14 years later I live. No beef!

Comment from: MANJULA, 45-54 Female (Caregiver) Published: June 26

My mother is suffering from knee pain, leg muscle pain, vomiting, constipation and hair loss, I think from liver cirrhosis.

Comment from: Dances, 25-34 Male (Patient) Published: May 25

I’m 31 years old, and I have an appointment with a gastroenterologist on Tuesday. I already know he is going to tell me I have cirrhosis. It’s so frustrating because I’ve been to two different doctors in the past 14 months about this and both of them told me I was perfectly healthy. I even had blood work done and everything came back normal! I don’t know why, but I can just feel that I have it. I have zero pain but many symptoms. These include hemorrhoids, nose bleeds and more recently light sensitivity. On Friday I was having a few beers and I spit up some streaks of blood. I already know what that is, esophageal varices. I don’t even need to be told. The nearest appointment I could get was two weeks out. So now I’m just waiting and preparing to fight this with everything I have. I feel physically different after what happened on Friday. I am constantly tired, my body feels different. I know I have it but I’m hoping I’m wrong. My bachelor party is in 6 weeks and I have people flying in from all over the world for it. I hope they don’t mind that’s I will be teetotal.

Comment from: jackie, 55-64 Female (Caregiver) Published: May 01

My husband had stage 4 liver disease and just about died a couple times. He has got a swollen stomach, is losing his mental ability and can barely walk. He has never turned yellow I don’t know why. He was given a certificate of incapacity.

Comment from: Russell, 25-34 (Patient) Published: April 04

Nine months ago I went to the doctor and was told my liver couldn’t handle the amount of beer I was drinking. I had a gastrointestinal bleed about 3 weeks ago and went to the hospital. They said it was probably a stomach tear for throwing my guts up the night before. I went to the general physician a week later and he said I needed to have my liver checked, and fatty liver was very likely. I got the test back and was told I have severe fatty liver and a swollen spleen added to the possibility of cirrhosis. I am terrified, I have quit drinking, and I am exercising and dieting. I have pain in my right side and stomach aches but none of the other symptoms. I feel great like I could climb Everest, no yellowing, no fatigue, appetite is ok, and I feel great. I have a history of gout which could put extra stress on my kidneys which also stresses out my liver. I really hope I can reverse this and it is not cirrhosis, if it is I might just crawl into a corner and die.

Comment from: Sladep, 55-64 Male (Caregiver) Published: August 16

My husband was diagnosed with follicular lymphoma 2 years ago. He had chemotherapy for almost a year. We traveled to Tampa, Florida in March so he could get his hernia fixed. While they were doing surgery they discovered he has cirrhosis of liver, 20% of his liver is working. He had a drain put in abdomen 6 months ago because of fluid buildup. They said it was from cancer. We come to find out it was from the liver. Recently they took the drain out because of infection in the fluid. They don't want to put it back in. Now we go to the hospital once a week to get it drained. Now his legs and feet have swollen so badly. All they do is give Lasix and water pills. He needs the drain back in. He should be able to get it in. He knows the problem he could have in future. He wants quality of life. The cirrhosis is not from drinking or drugs, or some disease, I think it was caused by chemotherapy.

Comment from: D Lucas, 45-54 Male (Patient) Published: September 06

I had bleeding in my stomach and varices because of cirrhosis of liver. I had shunt TIPS (transjugular intrahepatic portosystemic shunt) procedure done in February of 2015, and still having problems. I have coronary artery disease plus COPD. I still have problems.

Comment from: 45-54 Male (Caregiver) Published: April 26

My boyfriend is 47 years old. He never drank and was tested negative for hepatitis, autoimmune disease. His liver enzymes are fine as well as the rest of the numbers of the liver. Doctors are baffled as to the origin of the cirrhotic liver. He has portal hypertension and had esophageal varices banded. He had tarry stools for a couple of days furthering the decision to go to the emergency room. He wasn’t jaundiced however. Doctors said people can survive 20 years with a cirrhotic liver. He's just scared and feels like his clock is ticking. I'm so sad.

Comment from: Rose, 55-64 Male (Caregiver) Published: November 02

Almost within 2 weeks my husband had lost a large amount of weight, his head looked very skeletal and his shoulder bones stuck out. My husband had not had a drink for 28 years and was not a needle user or sexually active. But 5 years ago he was diagnose with Hep C and the doctor made his diagnoses sound as if it was a common cold and did not provide much information, other than don't drink alcohol, stay away from red meat and that was it. So we thought it was something that went away. Shortly after that my husband had been sick from his hernia and then hospitalized for getting C-DIF, supposedly being overly medicated by the doctor, and for many years my husband took Tylenol and Bayer Aspirin for chronic headaches. Now my husband has been diagnosed with cirrhosis of the liver due to the doctor’s lack of information and our lack of knowledge. This could have been prevented with a good doctor and of course health insurance which we have none and now no insurance will even consider him. It is a lose, lose situation. I can only trust in God.

Comment from: eprn, 55-64 Female (Patient) Published: November 02

I had no symptoms other than elevated enzymes. I was told I had fatty liver disease and I assumed it was a benign condition since there were no further tests at the time. I have an occasional glass of wine, but I had gained about 60 pounds over about 8 years. When my liver enzymes remained elevated over several years, I was sent for a liver biopsy and given the diagnosis of cirrhosis (non-alcoholic fatty liver disease). I'm a nurse, but I had never heard of it. Who knew my obesity could lead to killing my liver?

Comment from: Mike, 55-64 Male (Caregiver) Published: April 21

I had liver cancer and still have cirrhosis of liver. Since my operation my liver feels like 10 lb. weight. I had hepatitis C, took treatment, and now hepatitis C free. Read others’ stories and it's scary to know my future with it if I live that long.

Comment from: Tim, 45-54 Male (Patient) Published: December 12

I have had severe diarrhea and stomach pains, more than usual, the past few days. I am going to have a colonoscopy next week. Hope to get some answers if it is liver disease.

Comment from: SD, 35-44 Female (Caregiver) Published: October 15

My son had hepatitis C for years. He was finally put on a new drug you take once a week for 12 weeks and your hepatitis C will be gone. His is completely gone!

Comment from: FeelingGood, 45-54 Female (Patient) Published: September 24

I believe early stage liver cirrhosis due to advanced liver fatty liver can be reversed as long as you do all the right things: lose the extra weight, control diabetes (if you have it), avoid certain medicines, and definitely no more alcohol... it should be zero.

Comment from: Me, myself, and I , 45-54 Female (Patient) Published: August 21

I've had hepatitis C now for 26 years. I am not sure what I can expect to happen and wondering if it is worth having the new treatment. I've tried interferon and ribavirin 3 times and my levels have never moved. I was told I have alpha 1A hepatitis C and associated liver cirrhosis.

Comment from: Robbk22, 55-64 Female (Caregiver) Published: August 14

My husband has been sick of his stomach and pain on his right side just under his rib cage. Wondering if he has liver cirrhosis.

Comment from: zahid H, 25-34 Male (Caregiver) Published: July 16

My wife has cirrhosis allergy in her head.

Comment from: Kanwar, 25-34 Female (Patient) Published: July 08

I do have liver fibrosis stage 3 and diarrhea.

Comment from: shane, 55-64 Male (Patient) Published: June 24

I have lived with cirrhosis, for 40 years. I was in my 20s when I had my first test, but I didn’t go back to the doctor thinking if I didn’t hear from the doctors I would be alright, but not so. I’m very sick today. If I had listened to the doctors I would not be in so much pain today, so listen to your doctor.

Comment from: Robert, 65-74 Female (Patient) Published: June 11

I am extraordinarily annoyed. December 29th of 2018 I slipped and fell, hit my head and went unconscious. I had holes drilled into my head and didn't know what was going on for 2 months but that's not my bigger point. They told me at the hospital that I had stage 4 cirrhosis. I have been going to my doctor for 10 years. Why ever did he not get a hint or conclusion that I had any type of cirrhosis during the 10 years that I was seeing him!

Comment from: Trisha, 45-54 Female (Patient) Published: May 15

At the end stage of cirrhosis of the liver wonder if your abdomen become hard.

Comment from: Toni, 45-54 Female (Patient) Published: October 03

I'm 51 and I have been told for years I had a fatty liver but the doctors never suggested anything. I have never drunk before so I didn’t understand why my liver was fatty. So I just found out during a gallbladder CT that I have a large liver, 22.6 cm, and it shouldn't be more than 15 cm. They said I have portal hypertension that is 17 mm. I have called 3 doctors today and I can’t get an answer what I'm supposed to do. I'm scared, and all I do is read horror stories about liver cirrhosis.

Comment from: Mitesh, 45-54 Male (Patient) Published: August 07

I am diagnosed with liver cirrhosis since a year and on medication at the moment, but I have lost my muscles.

Comment from: cejellison, 65-74 Female (Patient) Published: March 20

I have recently been diagnosed with biliary cirrhosis. I am a non-drinker. Right now they are saying no specific cause. I'm concerned with where this is headed. I have many questions and no answers. I do have a history of rheumatoid arthritis and fibromyalgia, both immune disorders.

Comment from: Ripvanwinkle, 45-54 Female (Patient) Published: July 20

After having ongoing elevated liver enzymes for more than a year, I just today was diagnosed with cirrhosis of liver. I have no family and no one really close to tell. I just don't know what is down the road for me in terms of medical examinations. I refused a biopsy, and now there wouldn't be any point doing one would there, seeing as I have the diagnosis! I was a periodic binge drinker, but only 3 times a year at the most. Two bottles to myself at most. I can't believe it was beer and wine, though I'll never touch them again. I think it was amoxicillin that the doctor prescribed for me a number of times, that and paracetamol. I regret the day I ever left the homeopathic doctor. I just don't want to be on medication of any sort. I would appreciate finding perhaps a support group.

Comment from: barbara gregory, 75 or over (Caregiver) Published: April 06

My aunt never drank and she never smoked. She is 91 and they told her she has cirrhosis of the liver. She went for her checkup in 2016 and they told her everything looks good. In March of this year they took fluid off her and they sent her home. Now she is back in the hospital with her lungs filling up with fluid and now they say her kidneys are failing, and she is in pain. I feel my aunt is dying. She is 91 and I just don’t want her to suffer but they are really working on her.

Comment from: Vivian, 55-64 Female (Patient) Published: January 05

In April 2015 I was diagnosed with cirrhosis of the liver and had a close to dead episode, but I never drink alcohol, and there is no hereditary factor. Apparently it was the consequence of the flu I had for too long, and a urine infection that get worse. My immune system couldn't take it, and attacked my liver, creating a liver failure, and now I have cirrhosis. It is important to check and follow with your doctor.

Comment from: lynn, 35-44 Male (Patient) Published: September 09

Well, not much known about my symptoms of liver cirrhosis but when my mid-section hurts I don't drink much anymore, but when I get 1 beer or shot it quits hurting.

Comment from: Draciron, 45-54 Male (Patient) Published: July 13

I have lost at least one friend and a relative to liver disease. When I was in my late 20s an insurance physical noticed an enlarged liver. Several follow ups over the next couple years as well as early symptoms of liver disease made it pretty clear my liver was going. It took 3 different doctors to tell me to quit drinking now or die before I got the message. I quit drinking and drastically reduced my use of OTC pain killers. That was 20 years ago. Part of my liver grew back, many of the symptoms went away or stayed away most of the time. I still eat the same way. A diet high in red meat. I've seen low fat and no red meat suggested in other posts. If that were true I'd have been dead 15 years ago. Main things are drinking, OTC painkillers and watching what medicines, if any, you take. If you have Irish heritage it'd be a good idea also to get your iron levels checked. Hemochromatosis (Irish disease) is sneaky and often targets the liver. I lost another uncle to that.

Comment from: okoemensah, 65-74 Male (Patient) Published: November 04

My daddy has liver failure from drinking. It has cause his legs and stomach to swell and he also had a stroke.

Comment from: mugroom, 55-64 Female (Patient) Published: August 05

I lost my husband 2 years ago due to cirrhosis of the liver. Last week, I was told I had cirrhosis of the liver plus plaques on my lung. I was never a drinker or smoker I don’t know why I have this.

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