Chronic Fatigue Syndrome (CFS, Myalgic Encephalomyelitis)


What were the causes of your chronic fatigue syndrome? Submit Your Comment

Comment from: SouthBrz, 55-64 Male (Patient) Published: June 03

I have had chronic fatigue syndrome symptoms for 30 years with 3 or 4 major episodes. This one is the worst. I just want to point out to a shared story here which is surprisingly similar to my case. I had 3 colonoscopies at different times and after each of them I also felt great for about a week or two. And then fatigue relapsed.

Comment from: Bobo, 65-74 Male (Patient) Published: June 19

I fought chronic fatigue syndrome (CFS) for a year. By accident, I had a colonoscopy, and after the irrigation I felt great! About two month later, I relapsed. My doctor put me on probiotics, and I have recovered. I was on probiotics 3 times a day of 50 billion, after 2 weeks cut to 2 times and then after 2 weeks 1.

Comment from: J, 45-54 Male (Patient) Published: September 01

SA lot of great comments. I had no idea so many suffer from the CFS. I am 45 and have had chronic pain for 15 years. It started while I was working in Tokyo for 2 years. I was not accustomed to the busy, stressful environment of such a huge city. I am not much of a drinker but I found alcohol helped reduce the pain in my face and head. Well I realized early that that was just a bad idea. When I returned home to Canada I started to take Effexor as I was getting depressed from always being in pain. I used to have so much energy but I am always lethargic; it’s very frustrating. Lately I have started trying injections of anesthetic in my neck and back and that seems to have helped a bit. I tried Yoga for 2 yrs but it did not help at all. So I find that mediation, breathing, relaxing, staying positive is the best remedy for keeping from getting the blues. I will try to change my diet and find out more about some of the suggestions such as serrapeptase and concerta.

Comment from: niftynona, 55-64 Female (Patient) Published: July 25

In Sept/10 I had to have a kidney removed due to cancer. It seems from that date on I have been getting more tired and listless. I went back to work from Dec/10 to Mar/11 and had to take 2 weeks off due to lack of energy. My legs gave out on me at one point even. From March to May I tried working again. May was the final straw; I was sitting down more than doing my job. The most irritating part is every time I saw my dr. he said it was depression because of the pain & wanting to stay in bed. He even tried to blame it on menopause. I kept telling him I know my body & something is not right. I am not depressed other than the fact I can't work. Today I am going to see him & tell him to start ruling out all illnesses so I can hopefully get help before it is too late for total recovery. I sleep very well, other than washroom breaks, but need at least one, sometimes 2 catnaps a day. I, like all of you, would love to get my life back.

Comment from: Kay31, 75 or over Female (Patient) Published: June 05

The symptoms appeared about 6 months after the passing of my mother. Although, there were no immediate reactions, I have read that a physical or emotional trauma can trigger this syndrome. After three years of searching for the answers to my health issues, and consulting several medical and holistic doctors, I traveled to South Carolina for a two-day evaluation from Dr. Charles Lapp, a specialist in this field. He validated that the symptoms indicated CFS.

Comment from: love4yhwh, 25-34 Female (Patient) Published: April 16

I have CFS. It has been getting progressively worse over the past few years. I don’t feel alive. I don’t feel human. I am finishing up my master's degree, but I know I cannot work full or part-time. So, I don’t know what I'll do for money or my student loans. I applied for disability and am waiting to get a court date. It will be some time. If it were not for God, I would just quit right now. It is so bad. I feel so awful- to the point where sometimes I think I should be in the hospital. I just saw an alternative MD and he believes that many CFS cases are caused by Lyme disease, Lyme co-infections, and EBV. He put me on Valtrex. I have read some of the testimonials on here and believe some of you should be tested (just blood work). If you do have any of these, you could be treated and get better. I have not received my results yet.

Comment from: marytexas, 45-54 Female (Patient) Published: December 27

I had all the symptoms associated with CFS for several years. I thought I was depressed because of the illness. When my depression was treated my CFS went away.

Comment from: Kat, 45-54 Female (Patient) Published: July 11

I was diagnosed with CFS about 12 months ago although I'm sure I had it way before that. Apart from the total debilitating fatigue and excruciating pain, I find some peoples attitude towards it infuriating. Up until the past couple of weeks I would have to sleep for 2-3 hours then make myself get up for the same amount of time then return to bed and so it went on. I'm on a lot of meds to try and combat the pain but pacing/rest periods are the only real winners in my case.


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