Cervical Dysplasia

Question:

Please describe your experience with Cervical Dysplasia. Submit Your Comment

Comment from: KellyB, 25-34 Female (Patient) Published: August 28

I am 34 years old and have had a colposcopy the past couple years and now am going for the loop electrosurgical excision procedure (LEEP) in less than 2 weeks. They wanted to schedule it as soon as possible to treat my cervical dysplasia. I am a little nervous and scared as it has put a lot of strain on my marriage and my husband is furious. I feel like I know what is best for my body and what needs to be done. I am not optimistic about how my results will come out as I have a long family history of cervical cancer. I am really in need of emotional support though.

Comment from: Petrified, 55-64 Female (Patient) Published: February 11

Thank you everyone for sharing your stories. I am set to have a laparoscopic hysterectomy in two weeks due to long term cervical dysplasia that has not responded to multiple LEEP (loop electrosurgical excision procedure) and cone procedures, which I might add were barbaric. I am petrified. I don’t know my gynecologist very well and she has not given me much information. I recognize the procedure is relatively safe so I am sticking with her so I can just get it over in a timely manner. Your stories helped.

Comment from: Diane, 55-64 Female (Patient) Published: January 14

I am 58, and have had cervical dysplasia many times in 20 years. I test positive for the high risk HPV virus every year, now that my new gynecologist tests for it. Five years ago, I've had the cone biopsy once and now two LEEPs (loop electrosurgical excision procedures). My cervix is all scar tissue at this point, I get normal Pap results, but then in situ CIN level 1, 2, and 3 comes back after colposcopy every couple of years. She now suggested hysterectomy and I'm all in! This is hopefully a good solution to stop worrying about cancer.

Comment from: Jw, 25-34 Female (Patient) Published: January 07

I'm 34. I tested positive for HPV (human papillomavirus) in July 2019. I had a cone biopsy done and it came back CIN 2 (cervical intraepithelial neoplasia). I had a LEEP (loop electrosurgical excision procedure) done in August, and I had a rough time with it. I bled for weeks and had a lot of pain. The doctor put more stuff on my cervix to stop bleeding (it didn’t work), and after it finally stopped my periods were lasting 2 to 3 weeks. I saw another doctor 2 weeks ago (4 months after LEEP) I tested positive for cervical dysplasia again and my cervix is inflamed and infected. I'm just frustrated at this point.

Comment from: MLL, 25-34 Female (Patient) Published: October 08

I was diagnosed with CIN 1 (cervical dysplasia) at age 19 after having my son. I had no symptoms or anything. The doctor recommended that we should do LEEP (loop electrosurgical excision procedure). I have had two clear Pap results since. However I am now 26 and having extreme back pain, pain during sex, and spotting.

Comment from: REfuse2FightRee, 25-34 Female (Patient) Published: October 18

I'm 32 years old and my doctor says I have CIN2. Now I choose not to be treated any more for cervical dysplasia. When it's my time to go, then it's my time.

Comment from: Fiftysomething, 55-64 Female (Patient) Published: September 17

Thanks for the comments on having hysterectomy. I quickly developed CIN3 (cervical dysplasia) and after both LEEP (loop electrosurgical excision procedure) and cone biopsy, it still came back with abnormal margins. I've completed childbearing and am nearing menopause so have decided based on input from the gynecologist and oncologist to proceed with hysterectomy. I'm quite fearful of doing this so good to hear other women recovered well.

Comment from: Sarah, 25-34 Female (Patient) Published: August 12

In 2017 I had abnormal Pap and colposcopy showed no abnormalities. Doctor advised it will likely clear on its own. In 2018 I again had abnormal Pap and colposcopy showed no abnormalities. The doctor again advised it will likely clear on its own. In 2019 abnormal Pap once more, and colposcopy came back showing CIN between 2 to 3. I was advised to get a LEEP (loop electrosurgical excision procedure) as soon as possible. I did my own research and spoke with my acupuncturist who suggested I take a supplement called indole carbinol 3. It cleared me within 3 months.

Comment from: Carole, 55-64 Female (Patient) Published: August 06

I’ve been diagnosed with cervical dysplasia (loop electrosurgical excision procedure), CIN 2/3 and had both LEEP and conization done with still positive margins (all this in less than a year after a normal Pap smear). My gynecologist is now recommending hysterectomy and I’m just wondering if there are any other options. I’ve heard many negatives about that surgery in terms of negative consequences. There’s very little information on progression of precancerous to cancerous state.

QUESTION

The vagina includes the labia, clitoris, and uterus. See Answer
Comment from: ThatMommy84, 35-44 Female (Patient) Published: August 05

I'm 35 years old. I had my first irregular Pap in January 2019. To be honest, I haven't had one in several years. I had a colposcopy and biopsy done in February 2019, and still had cervical dysplasia. LEEP (loop electrosurgical excision procedure) was done in April 2019. Diagnosed with CIN 3 carcinoma in situ. I just had a cold knife cone biopsy done in July 2019 and unfortunately there are still some precancerous cells inside the cervix. Debating whether I should continue with exams and possibly more minor procedures or just do the hysterectomy.

Comment from: BeYourOwnAdvocate, 25-34 Female (Patient) Published: June 21

I am 33. I have children, and only had one partner in the past 7 or 8 years before all of this began. After months of weird spotting in between periods and after sex, and some off-discharge I scheduled a Pap but was told I was too 'early' once in the exam room and needed to wait until the next year. I had no idea what was going on and continued to assert my health concerns and demanded a full exam; Pap, STD, etc., which thankfully was granted. Good thing I did, because my most recent Pap shows cervical dysplasia.

Comment from: Kbear, 25-34 Female (Patient) Published: August 29

I have been doing a lot of research on CIN1. I was 26 when my doctor told me I have cervical dysplasia (CIN1), January of 20017. I didn't think anything of it. But then she told me I have HPV high risk E6/E7 mRNA. One day I was looking through my medical records online and discovered I had CIN1 3 years ago July of 2014 and my doctor never told me. Now I am stressing over it because my periods are irregular and when I do have them they are strange. Also the year of 2014 I told my doctor I was having clots the size of 2 half dollars put together and she didn't say anything either. I get pelvic pain sometimes. She did a biopsy and I was positive for CIN1 and high risk HPV and ascus. I don't know what I should do, maybe I should get a new doctor.

Comment from: ds77, 45-54 Female (Patient) Published: September 10

I am a 50-year-old female. I contracted a mild-to-moderate case of cervical dysplasia when I was 23 years old. I had laser surgery. I got married and had three children. When I turned 36, it came back severe with CIN2. I had a LEEP procedure. When I turned 43, I developed severe bleeding and was diagnosed with HPV with the deadliest cancer-causing strain. A uterine ablation was performed but ultimately failed. My gynecologist prescribed additional testing and found tumors and fibroids. My radical hysterectomy came at the age of 46. I strongly recommend being an advocate for your health and wellness. I lost a friend at the age of 31 to cervical cancer because she could not find a doctor that would take a radical move to cure her. After, she passed, her oncologist also died. Seek treatment and second opinions; it just might save your life. I know first-hand, and I am grateful that I did. I am doing quite well.

Comment from: 25-34 Female (Patient) Published: September 10

I am 28 years old and was diagnosed with high risk HPV about 4 years ago. After 2 1/2 years of repeat paps, colposcopies/biopsy and my CIN 1 turning into CIN 3/Carcinoma in situ I underwent a cold knife cone biopsy 8 months ago with clear margins. For the first time in 4 years I had a completely normal pap 3 months after the cone biopsy. Just last week I had my second follow pap and it came back abnormal w/CIN 1 again. This can lead to very frustrating feelings. I am now going to undergo yet another colposcopy/biopsy to see what the next step will be. All of this due to a tiny little virus called HPV. I think it is very important to have all of our young girls vaccinated with the new vaccine for high risk types of the HPV!

Comment from: betty, 35-44 Female (Patient) Published: August 23

I have visited the same Ob/Gyn every year since I was 20 for regular Pap smears with no abnormal test results, ever. When I started seeing a new doctor last year, she tested me for HPV virus and it came back positive for strain 18 (which is a high cancer indicator). It is possible I had the virus for up to 15 years without ever knowing or asking for a test. A colposcopy and biopsy indicated I had severe cervical dysplasia, and I was almost immediately rushed into a LEEP procedure which removed many layers of carcinoma. I wanted to tell my story to encourage everyone to make sure that you ask for the HPV test to be performed. Without this, I might have been riddled with cancer before anything was identified due to my normal Pap test results.

Comment from: ., 19-24 Female (Patient) Published: February 17

I was diagnosed with HPV not even a year ago. I am a transplant patient, so I have a weak immune system. I had the freezing done. Had a Pap smear a couple months later and it came back with good results. I was told I don't need another one for six months. I am keeping my fingers crossed.

Comment from: Linda, 45-54 Female (Patient) Published: February 02

I was diagnosed with cervical dysplasia when I was 36 yrs. old. There were no symptoms, but it was discovered through routine ob/gyn visit. I also had the cone biopsy before being advised to have a hysterectomy, since I already had one child and had lost two babies with tubal pregnancies. This is very serious stuff -- my tubes burst, extreme and severe abdominal pain. I could have bled to death each time - but lived to tell the tale. I opted for the hysterectomy. I did not want cancerous cells growing in me. It was the best decision for me... plus NO MORE Menstruation.

Comment from: jblippman, 45-54 Female (Patient) Published: April 19

I suffered from cervical dysplasia for nearly 10 years with recurring "flunked" pap tests. I was strongly encouraged by my gynecologist to undergo a hysterectomy to give me the best chance of resolving my problems permanently. I did my research and found that one of the best practitioners of laparoscopic-assisted vaginal hysterectomies was here in Cambridge, MA, near me. I had the procedure on January 19 of this year. By February 1, I was feeling perfectly normal. No pain and minimal scarring (two tiny red lines on my abdomen). It was a great experience all the way through. If you are not planning on having any more children, SERIOUSLY consider having this procedure.

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