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Cerebral Palsy

Question:

What symptoms did your child experience with cerebral palsy? Submit Your Comment

Comment from: 0hioStatekid1991, 19-24 Male (Patient) Published: August 10

This goes to any parent that is concerned because his/her child has cerebral palsy. I was born with mild cerebral palsy affecting both of my legs. I have had surgery to lengthen my hamstrings which has helped immensely. I don't consider CP a disability because I've never excluded myself from any physical activity. I wrestled varsity in high school. When I work out I do all of the exercises that any average gym member would do. My best advice would be to not worry so much about the restrictions because your child can push past them.

Comment from: Yaana, 3-6 Female (Caregiver) Published: December 02

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Comment from: mapee, 0-2 Female (Caregiver) Published: April 30

I had a difficult labor and eventually had an emergency C-section. A month later my daughter had brain surgery for subdural hematoma. Post-surgery, she was diagnosed with cp. She is totally unaware and negligent of the left side of her body. She'll be 2 years old soon and hasn't crawled, stood or walked. She also can't form any words. It's really heartbreaking. I hope it gets better with time.

Comment from: myboys, 3-6 Male (Caregiver) Published: May 29

I have two beautiful boys. My five-year-old was born at 30 weeks, and flat-lined at birth. He stayed in the NICU for nine weeks. He didn't sit up straight until he was four years old. Worse, doctors told me my son would never walk, but last week, he got up out of nowhere and started walking. I'm one proud mama! Doctors don't know everything!

Comment from: jamuel, 0-2 Male (Caregiver) Published: November 12

Have a son who is 2 years old with CP. He sits up only with support and he has muscle spasms and cannot crawl or walk. His delivery was normal but after a week got ill. At a year old, he was diagnosed with CP.

Comment from: JS, 13-18 Male (Caregiver) Published: June 26

Our son was born 31-32 weeks gestation! He weighed in at 4lbs, 1oz. He had to be on a ventilator for 12 hours because his oxygen levels got seriously low. He spent 23 days in the NICU. When he came home we noticed how stiff his arms were. It was very hard to dress him. He salivated excessively and still does this as a young man! He never did crawl! He did and army type of crawl until he walked with assistance at age 2! He also had crossed eyes which he had two surgeries to correct. He had two major orthopedic surgeries as well. He has worn wire leg braces most of his life until he decided he wasn't going to anymore! He will me a sophomore in college this year!

Comment from: 0-2 Female (Caregiver) Published: May 30

I am a Ugandan and I live in Kampala. I only have a daughter and I live with my wife. She gave birth at 8 months and 2 weeks by a natural birth. My daughter is one year, nine months. She is intelligent and bright. She has delayed milestones such as controlling head, rolling over, reaching with one hand, sitting without support, crawling, and walking. I cannot pick anything out of what she talks.

Comment from: dannydavies87, 19-24 Male (Patient) Published: March 27

I have cerebral palsy as well as hydrocephalus. I had a shunt put in when I was 24, and I still wonder to this day why I have it. CP has not stopped me from living my life.

Comment from: Emma, 0-2 Female (Caregiver) Published: November 10

My son had a head lag until nine months, used only his left arm, unable to roll over sit or stand! He has screaming episodes and is yet to sleep through the night! He had all the genetic tests and they were all clear! MRI diagnosis was cerebral palsy in all 4 limbs!

Comment from: kushal, 0-2 Male (Caregiver) Published: February 28

My son has CP. He can barely control his head. He cannot sit without support and he can neither sit or crawl.

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