Brain Lesions

Question:

Please describe your experience with a brain lesion. Submit Your Comment

Comment from: Jennifer, 65-74 Female (Patient) Published: July 24

On 3rd July I had CT brain scan, and on 6th I was recalled for another 2 weeks later scan. I am scared. Now 18 days later I have not heard anything. I've stopped doing anything like shopping, walking, exercise, etc., as I was fearful I would cause damage to whatever I have. I saw my family doctor today, asked what was going on and why I had been recalled for another scan. He said he'd only got result of 1st scan which show lesion on the nerve in the brain and schwannoma, but knew nothing more. I am going into a panic because I don’t know what schwannoma, I can't find reference to it.

Comment from: Michael l, 25-34 Male (Patient) Published: June 12

They found a brain lesion on the right side of my head, due to an infectious disease called toxoplasmosis, because I’m also detected HIV positive. They put me on antibiotics real quick and hopefully the infection will go down. I’ve had major headaches, stiff necks, vision problems, hearing problems, decrease appetite, fatigue, nausea, and vomiting. Really bad symptoms to have all at once. But I got myself checked and they are in the right road to get it fixed. Hopefully the antibiotics help a lot. I’m taking so many of them.

Comment from: Sue, 65-74 Female (Patient) Published: June 22

I was diagnosed with (benign intracranial hypertension) BIH in 1990. Although this was scary, it was better than the original diagnosis of a brain tumor. I was treated for three years. The illness seemed to have subsided and I was released and did okay until 2015. At that time, I noticed some vision problems of seeing things that weren't there and not seeing things that were. After five weeks of testing of my eyes, I was sent for an MRI of the brain. I got a (possible) diagnoses of multiple sclerosis (MS). After 5 to 6 months of that, I was suddenly told that I did not have MS but it was not known what I had except many lesions on my brain which was very abnormal. I was not even offered a suggestion as to what to do. Therefore, I went back to the previous doctor where I was told that I had lost peripheral vision at the top and bottom of my eyes. They suggested that I go to a neurologist closer to me for further observation. I have gone back to being diagnosed again with MS and I am having MRIs done regularly to compare to previous ones. I have many headaches. I went through three months where I had electrical type shocks of pain in my head. They were nearly unbearable, but finally they stopped. Now the pain in my head is in varying degrees and places.

Comment from: Mike's mom, 25-34 Male (Caregiver) Published: June 10

My son was found unconscious in May 2013 due to 13 brain lesions. Original diagnosis was brain cancer but it was found to be bacterial after the biopsy. We were told he would not survive. He had to learn to talk, eat and walk after spending 75 days in hospital. The lesions they could access by surgery were drained. He still has an Ommaya reservoir under his scalp and quite a few scars but has made a full recovery and works full time. Never give up hope!

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