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Brain Infection

Question:

What caused your brain infection? Submit Your Comment

Comment from: spiveycol, 7-12 Female (Caregiver) Published: May 18

My 11 year old healthy daughter's brain abscess culture came back with the bacteria Eikenella which is a bacteria that we all have in our mouths. She has never had sinus problems before, but they say that she had acute sinusitis. The doctors are perplexed as to the type of bacteria that was found. They assumed it would be streptococcus, but it wasn't. We still don't know why it happened and say it was just bad luck. As a mom, I would like to find out why this happened and to know if she is susceptible for another occurrence. I have done lots of research and there are very few cases of Eikenella bacteria causing brain abscesses. Those that have had it, had a compromised health issue, which my daughter has not. The one thing that I can say is that she did get braces 6 weeks before this. A week before her headache started, she complained that the wire was poking her. I took her to the orthopedist and had the wire clipped. Because of the bacteria being Eikenella, I wonder if that was the reason. I wonder if it can go from the mouth to the sinus to the brain.

Comment from: mesosad, 55-64 Female (Caregiver) Published: September 27

My sister has had CLL (chronic lymphocytic leukemia) since 2012. She had chemotherapy and it went down to 1 percent. The doctors kept telling her to come back every 6 months to get checked, and once in a while she had to have platelets. Her cancer was never a big issue, her immune system was becoming compromised, and they tried to boost her white cell count. Then they had a clinical trial set up for her where they take out her T cells and place a chemo-like medicine in them, freeze them, then put them back into her because she was having more problems. She would get sick just by standing in the same room with someone with a cold. She finally said let's do this, they put her in the hospital this year, did a round of chemotherapy on her right away and it was the strongest ever, her hair fell out the next day! Then they did an MRI and lumbar puncture; that's when the bad news came. They walked in and said, 'sorry, we can no longer do the T cell transplant because you have now another problem, it is called PML/JCV which is a brain infection and not treatable. Go home and enjoy what life you have left.' She went home for a month, then everyone noticed she was having trouble with words, started to just space out, not talk, nothing. They put her in a different hospital and tried a malaria drug that seemed to bring her out of it for a while, but then she would go right back to not speaking, just staring into space. This new hospital just gave her 1 month left to live. She is now on home hospice care. She sometimes comes out of it, if she is lying on the couch, she will just sit up, stand up and walk around, go to the bathroom on her own, however today she had trouble getting up off the toilet. She had three words yesterday, nothing today. They brought a hospital bed into her home today and she cried. She knows what is going on with her and it is devastating to see her slipping away and it is worse that she knows what is happening to her. They have her on steroids right now which gives her a push too. It is amazing but they will only give it to her for a week.

Comment from: al, 65-74 Male (Caregiver) Published: March 01

My husband is battling brain infection after surgery to remove a malignant tumor. They still have not diagnosed his bacterial infection. His head starting seeping fluid and blood at a very high rate along with a lot of swelling. They reopened his skull and cleaned it out. He is in severe pain and is still swollen. His surgery was February the 11th! They still do not know the strain!

Comment from: Davis, 55-64 Female (Caregiver) Published: January 29

The patient is 55 year old female in good health. It started with throwing up and flu like symptoms. Then high fever that would not go down for one week. Finally she was hospitalized after being sent home numerous times. No more fever or throwing up. Symptoms of brain infection now are eyes rolling back, lethargy, rigid neck, twitching hands, memory loss, can't walk by herself, or feed herself. Every test done came back negative except for spinal tap. Cloudy brain fluid, but does not have encephalitis or meningitis. Tested for HIV, herpes, syphilis, Lyme disease, West Nile virus, parasites, all CT and MRI scans of the brain, breast, stomach, chest, all clear. All Blood work came back normal. Every test came back negative and doctors don't know what else to do.

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