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DVT (Blood Clot in the Leg)

Question:

What treatment was effective for your deep vein thrombosis? Submit Your Comment

Comment from: Barbie, 35-44 Female (Patient) Published: February 09

I had a tummy tuck 5 weeks ago. Two and a half weeks after that surgery I woke up with groin pain. I went to work, and by mid- day, my left leg was the size of both put together, and dark purple. (I work for my plastic surgeon). A doctor immediately gave me 3 aspirin and a co- worker rushed me to the ER (emergency room). After a Doppler was done it confirmed what we all knew it was. I had a massive DVT (deep vein thrombosis) from my groin all the way down to my toes. I was immediately taken into surgery where they inserted an IVC (inferior vena cava) filter for my protection. I was placed on heparin and TPA (tissue plasminogen activator). Three days in a row I was in surgery having angioplasties. My clot dissolved from the bottom up. I spent 4 days in the ICU and 2 days in a regular room. I was discharged with a small clot still in the groin area. I was sent home with Lovenox injections which I did twice a day for 15 days along with Coumadin daily. I am now off of the Lovenox and at therapeutic levels. I've been cleared to take a 3 hour flight next week (4 weeks after all of this). I will have another sonogram in 6 weeks to see where I am in this whole process. I feel 90 percent better, but still have leg pain or fatigue if I'm on my feet too long. And yes, I wear Jobst stockings every day.

Comment from: lucky girl, 35-44 Female (Patient) Published: May 26

My ordeal actually began in mid January 2010 but wasn't diagnosed until March 2010. I had the tingling and swelling but my doctor attributed it to sciatica since I have lower back issues. I flew from IN to VA where I worked for two months. The day after I returned home, my leg was still swollen, achy, had red areas that were warm, and I had a little trouble breathing as well. I went to my doc's office, the nurse practitioner took one look at my leg and said it could be a blood clot. She suggested possibly a bug bite or a sprained ankle but I could tell she strongly thought it was a clot. I went to the local hospital, got it checked, and to my surprise, she was right. There were actually three areas where the clots could clearly be seen on the picture. I was admitted and that night had a CT scan which found clots in my lungs too. I spent only from Friday night to early Monday afternoon there on an IV of Heparin and started taking warfarin pills which I am still taking. I've been getting my blood checked every 2 - 4 weeks for over a year now too. Like Venus Williams said, I feel lucky to be alive.

Comment from: Una , 45-54 Female (Patient) Published: May 31

My leg was really swollen and groin was also swollen before they gave me antibiotics, but now I'm finished with the antibiotics. My leg is swollen even more so and my foot as well and I am worried about deep vein thrombosis.

Comment from: momofalli, 55-64 Female (Patient) Published: January 15

My right leg began aching and cramping at night to where I had to get out of bed. Within a few days my toes were blue and very swollen! I went right to the podiatrist. She set an appointment up with the surgeon 3 p.m. the same day He had to put 3 stents behind my knee but there were blood clots at the base of my toes, my knee and groin area. I'm already showing signs of having the problem again.

Comment from: joebear, 35-44 Female (Patient) Published: January 04

I was 2 months pregnant when I was experiencing pain in my left leg. I thought I had a pulled muscle, so I put heat on it with in 1 hour my pain traveled up to my groin area. Within 1 more hour I couldn't walk on my leg. I had to crawl into my parents' room. My husband was out of town. My dad had to carry me down the stairs. We called my doctor and he said go to emergency room. We got to emergency room within 20 minutes of arriving I was experiencing pains in the chest. All I remember is the doctor yelling code and the doctors telling my parents to stand back because they are trying to save their daughter's life. My blood clot turned pulmonary embolism and almost took my life that night. I was unconscious for three days. While unconscious they put a green filter in through my neck to prevent any other clots passing. When I woke up I was in the ICU with IVs attached and blood infusions. All in all I was on blood thinners after I got out of the hospital for the rest of my pregnancy. I am ok and most important the baby was ok as well. Big baby boy Brady!

Comment from: dvt guy, 45-54 Male (Patient) Published: September 19

I woke up one more in 1993 with a swollen thigh. I went to the hospital and I was told that there was a blood clot in my thigh. I have been on blood thinners for 14 years. I still get clots. I am on medication, but now I get injections because the pills no longer work for me.

Comment from: Tammy, 35-44 Female (Patient) Published: July 19

I awoke with swelling, redness and heaviness in my entire left leg. I went to the doctor, ordered blood work and ultrasound which showed diminished flow. I sent for a CT scan. It found a large clot extending from iliac to femoral vein with significant blockage. I was put on heparin shots twice daily for two and half weeks while Coumadin levels became therapeutic. The doctor set up an appointment with a specialist for catheter clot busting surgery. Got there, he said it was too late, clot had already hardened to vein walls and that too much time had gone by and was too risky at that point. So, apparently there is a very short "window of opportunity" for that surgery. I am now home on bedrest and taking Coumadin hoping my body can fix itself.

Comment from: Mkakish , 55-64 Male (Patient) Published: May 11

I have my DVT in my left leg. I had it from a long flight. At that time I felt my leg was stiff, and started to hurt. I went to my DR. who checked it and gave me pain pills. I took the pills for a couple weeks, but my leg swelled and my right chest started hurting. My leg was checked (by ultra sound), and found out the clots. They gave me Lovenox shots, and started me on warfarin. Nobody mentioned anything about my chest pain. A week later I started feeling gurgling in my lung. At the hospital hey gave me steroids and other medications. I was lucky, the clot in my lung was dissolved. I am taking warfarin, and have to take it for the rest of my life.

Comment from: mw, 65-74 Female (Patient) Published: February 10

I had a total knee replacement. Within a few days I noticed that the area was puffy so I went to see my surgeon. I had a staph infection. I had to stay as quiet as possible while I was on antibiotics. About three months after the surgery, I noticed that my foot was swollen. I went to my regular doctor and was told I had gout. When I disagreed with him he ordered gout tests. They were negative. I asked for some other tests, but was told that it was normal after surgery to have swelling. Three weeks later I went back to the doctor and this time I was told I had a lymph gland problem. I went to the E.R. and they checked me for a heart attack. Those tests were negative. Two weeks later, my leg was swollen from my toes to my groin. My surgeon immediately ordered an ultrasound. I have DVT in my right leg from my groin to my toes. I have clots in my lungs, and one was getting ready to go into my heart. I was hospitalized for a week. Do doctors not know about clots? I will be on warfarin for a long time.

Comment from: 45-54 Male (Patient) Published: January 23

I was in a car accident. I went to the ER to get check out they did several x-rays didn't find anything. Three days later I went to bed my leg was in pain around the knee. The next morning I could barely walk. I talk with the nurse she told me that the doctor will get back with me this went on for three weeks the doctor never got back to me. Finally they told me a have appointment on the first of September. I talk with my PCP to her what was going on. I asked her for some pain meds she told me she couldn't do that and never checked me. I left there in severe pain. The following Monday was labor I was in so much pain so I sought out another doctor on that Tuesday, I told him what's going on, he respond said it sound like look like a clot and he sent me immediately to get a ultrasound. I am glad that I followed up on my own health if I hadn't I could have been dead today. I am on blood thinner it has been six months.

Comment from: B_Jones, 55-64 Male (Patient) Published: December 27

I am a 64 y/o male with a history of Leukemia (CLL). I am currently experiencing my third set of DVTs and second round of pulmonary emboli. I have a large clot in my upper leg which has totally occluded my femoral vein. I also have two large pulmonary emboli, one on each lung which has involved all four lobes of the lungs. I was started on Heparin in the hospital as well as 5 mg of Coumadin.

Comment from: SPB, 19-24 Female (Patient) Published: December 27

I am 24 years old and I was diagnosed with DVT during my seventh month of pregnancy. One night my leg swelled up really bad and it was so hard. I couldn't bend it, let alone walk, and the pain was so indescribable. I stayed in the hospital for a week and my form of treatment is a blood thinner called Lovenox.

Comment from: Michael, 55-64 Male (Patient) Published: November 10

I am a 61 year old man and just experienced a blood clot in my lower left leg. There was a small lump on the back of my leg behind my knee and my calf and foot were red and very swollen. The doctor instructed me to take a full aspirin ASAP to thin my blood. The aspirin resolved symptoms in a few hours. A sonogram is scheduled for today to make sure there is no deep vein problem.

Comment from: speedmjack, 45-54 Male (Patient) Published: October 04

I went fishing and came home and lay down and got up a few hours later to find that my leg was swollen up. The wife and I went to the hospital and had a CT scan done and there it was in my leg – deep vein thrombosis.

Comment from: Deck, 55-64 Male (Patient) Published: August 01

After reading the information on Deep Vein Thrombosis I though the pain around my right knee was sure to be a blood clot as it matched all the symptoms from the article. We made the trip to the emergency room and to my relief the doctor determined that it was gout and prescribed anti-inflammatory medications, which I expect will sort the problem out over the course of the evening.

Comment from: Rodney, 45-54 Male (Patient) Published: June 28

I'm a 50 year-old man, who unbeknownst to me developed DVT about (4) weeks ago. While I was stacking timber sideways, I immediately felt sharp pain and had swelling below calf, behind knee and at the top of my hamstring. After a couple of weeks, I had a dull sensation in left thigh. Then, swelling of ankle developed as well. I ignored the symptoms until just recently. Treatment is including two injections daily and warfarin.

Comment from: lucklylady62, 55-64 Female (Patient) Published: June 28

The day after a total knee replacement surgery, they got me up to walk using a walker. I was doing well and just got very weak while walking. I turned my walker around and passed out. I woke up in my room with doctors and nurses working on me. I spent two days in ICU. The blood clot went from my left leg to my right lung. I was very LUCKY that the clot didn't block and vein or artery. I have to be on blood thinner medicine for 6months, and I have to have blood checked twice a week for 6months.

Comment from: Sarah, 65-74 Male (Caregiver) Published: February 28

My 69 year old husband, in the past 5 years, has had a total of 3 stents for heart blockages and has a pacemaker/defibrillator. He is diabetic and just recently has been on insulin. He was introduced to Coumadin when his pacemaker was implanted because he also had/has a blood clot in the front of his heart. Two weeks ago he started having really bad nightly leg cramps. He went to his personal doctor and was instructed to have an ultra sound of his leg. That was one week ago Thursday. He was immediately transported to the hospital because it was discovered that he had a clot that ran the entire length of his leg. He underwent a procedure where a filter was placed in the artery below his heart.

Comment from: Rocky, 45-54 Male (Patient) Published: February 07

I was at work and moving a motor in a box about 80lbs and started breathing hard, and began stacking small oxygen bottles on a shelf on my knees and felt as if the atmosphere was bad and I felt like I was about to pass out. I crawled outside to get fresh air and began panting as if I had sprinted a marathon and passed out again. I pulled out my cell phone and as soon as I could catch breath called 911 and soon an ambulance arrived and found my oxygen level at 84% and put me on oxygen and transported me to the hospital. ER Doctor couldn't find anything wrong and as I informed him I thought I might have breathed a chemical... He then had me walk around ER with nurse and monitor my oxygen level (96) and as I started walking I felt it harder and harder to breath and was put back on oxygen. The ER doc sent me to have a CT scan and they found both lungs with blood clots (pulmonary embolism) from my deep vein thrombosis (DVT). When being asked about recent trauma or long plane trip - forgot I had banged my shin in a slip on recent snow storm on curb and leg was red and swollen (leg trauma) even then it was considered rare. I also forgot that 24 years earlier I had a vein stripping on my leg and when I left the hospital also had a blood clot.

Comment from: BLESSED, 45-54 Female (Patient) Published: February 02

My ordeal happened back in October 2009 I woke up to my leg being swollen from the top of my hip to the bottom of my left foot. At first the pain was mild. It was only a tingly numb feeling as if it had fallen asleep. I called my fiance and he insisted that I go to the ER, but I didn't have insurance so I wanted to wait to let him see what he thought about it because maybe it could have been a spider bite. Well, when he came by he couldn't get me to the ER fast enough. He said it looked very scary plus by now the pain had kicked in and I was ready as well to see what in the world was happening to me. When I got there in triage, I weighed 20 pounds more than normal. That was another red flag in my opinion. When the doctors saw the size of my leg they ordered an ultrasound where they found the DVT and admitted me into the hospital where I stayed for a week.

Comment from: 45-54 Female Published: October 14

I am having a difficult time finding others who have had DVT's in the subclavian (chest area) to share stories with. I have had two now, one on each side of my chest, and they have gone into my arms. I was only about 45 years old with the first one to get diagnosed. It has taken a long time to find due to symptoms. Now after the second one I am on 7.5 mg Warfarin daily. Keeping within the INR range has been difficult lately, but I am going in to see if something is now happening in my leg.

REFERENCES:

Bauer, K.A., MD. "Approach to the diagnosis and therapy of lower extremity deep vein thrombosis." Updated July 15, 2014.
<https://www.uptodate.com/contents/approach-to-the-diagnosis-and-therapy-of-lower-extremity-deep-vein-thrombosis>

Centers for Disease Control and Prevention. Venous Thromboembolism. (Blood Clots).

FDA Prescribing Information. SAVAYSA™ (edoxaban).
<http://www.accessdata.fda.gov/drugsatfda_docs/label/2015/206316lbl.pdf>

FDA Prescribing Information. ARIXTRA® (fondaparinux sodium) infection.
<http://www.accessdata.fda.gov/drugsatfda_docs/label/2005/021345s010lbl.pdf>

Dentali, F., et al. "Pulmonary embolism severity index accurately predicts long-term mortality rate in patients hospitalized for acute pulmonary embolism." Journal of Thrombosis and Haemostasis . 11.12 (2013): 2103-2120.

Litzendorf, M. E. and B Satiani. "Superficial venous thrombosis: disease progression and evolving treatment approaches." Vascular Health and Risk Management. 7 (2011): 569-575.

Lucena, J., et al. "Pulmonary embolism and sudden-unexpected death: prospective study on 2477 forensic autopsies performed at the Institute of Legal Medicine in Seville." Journal of Forensic and Legal Medicine. 16.4 (2009): 196-201.

MedlinePlus. Deep Vein Thrombosis. Thompson, B.T., MD. "Overview of acute pulmonary embolism in adults." Updated: Aug 08, 2016.
<http://www.uptodate.com/contents/overview-of-acute-pulmonary-embolism-in-adults>

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