Main Article on Acromegaly Question: Do you or a loved one have acromegaly? Please describe your experience. Submit Your Comment Comment from: Barb, 45-54 Female (Patient) Published: November 03 I was diagnosed with acromegaly in 2010. I had surgery, but they were not able to remove all the tumor so I have been on injections since then. In the last year the 20 mg no longer worked so I had to increase to 30 mg every 28 days. I live with lots of body pain daily. I do not know what the future holds. I have never talked to anybody else with this disease, I would like to know what to expect.